Re: Echo results: , Pierre, , Cy, Amy, Rita etc.

[Guest guest]

Hi Bonnie,

I must confess I don't really understand what the results of your Echo mean.

I guess we will have to wait until Mt. Sinai gets back to you.

My meeting with the renal care team and PD consult are not until Nov 15 and

17th respectively. I'll update you then.

Take care of yourself and please try hard to not work so hard.

In a message dated 10/27/2004 6:54:45 PM Pacific Daylight Time,

bd4679@... writes:

> My levels apparently from what Dr. T said and the written report mean there

> is probable diastolic

> dysfunction and borderline elevation in the pressure in the pulmonary artery

> which goes from the right ventricle in the heart to the lungs

[Guest guest]

Thanks Bonnie,

I understand that much better now. Thanks for putting it into layman's

terms. I continue to hope you do not have Fabry's. I don't like those

mortality

rates at all.

Is any of the treatment helping your edema? I am pretty concerned about that.

You are very perceptive...I AM very tired tonight, and I am off to bed for

the night :-)

Please take care of yourself.

In a message dated 10/27/2004 8:25:29 PM Pacific Daylight Time,

bd4679@... writes:

> Hey , I'm sure you'll be off to bed soon, but while I have a sec let

> me rephrase my previous statement. What all that junk means is .. instead of

> the heart being a weak pump in letting the blood go out of the heart

> (systolic function) the problem with diastolic function lies in the resting

stage

> (filling stage) of the heart (as opposed to pumping stage of the heart) so

> there's too much pressure dilating and stretching the right side of the heart

> which in turn puts too much pressure going to the artery which sends the blood

> into the lungs and for all purposes causes an overexertion on the heart and

> backward pump failure. (That's where the pitting edema comes in and shortness

of

> breath on exertion) . Mortality rate can vary anywhere between 10 - 50% in

> 5 + years, depending on severity, other medical conditions and compliance

> with medications. So name of the game is to keep B/P down, take all the tons

of

> meds Ig A patients already take ACE 1, diuretics, keeping chol down, down,

> down, and maintaining a normal weight. Sounds familiar heh?

> Best of luck with appointments on November 15th and 17th. You also take

> good care of yourself, and don't work too hard. Get a good night rest. You

> sound a bit weary tonight. Bless you for always trying so hard to answer

> everyones posts, especially as promptly as you do. Bonnie

[Guest guest]

Hey , I'm sure you'll be off to bed soon, but while I have a sec let me

rephrase my previous statement. What all that junk means is .. instead of the

heart being a weak pump in letting the blood go out of the heart (systolic

function) the problem with diastolic function lies in the resting stage (filling

stage) of the heart (as opposed to pumping stage of the heart) so there's too

much pressure dilating and stretching the right side of the heart which in turn

puts too much pressure going to the artery which sends the blood into the lungs

and for all purposes causes an overexertion on the heart and backward pump

failure. (That's where the pitting edema comes in and shortness of breath on

exertion) . Mortality rate can vary anywhere between 10 - 50% in 5 + years,

depending on severity, other medical conditions and compliance with medications.

So name of the game is to keep B/P down, take all the tons of meds Ig A patients

already take ACE 1, diuretics, keeping chol down, down,

down, and maintaining a normal weight. Sounds familiar heh?

Best of luck with appointments on November 15th and 17th. You also take good

care of yourself, and don't work too hard. Get a good night rest. You sound a

bit weary tonight. Bless you for always trying so hard to answer everyones

posts, especially as promptly as you do. Bonnie

W4JC@... wrote:

Hi Bonnie,

I must confess I don't really understand what the results of your Echo mean.

I guess we will have to wait until Mt. Sinai gets back to you.

My meeting with the renal care team and PD consult are not until Nov 15 and

17th respectively. I'll update you then.

Take care of yourself and please try hard to not work so hard.

In a message dated 10/27/2004 6:54:45 PM Pacific Daylight Time,

bd4679@... writes:

> My levels apparently from what Dr. T said and the written report mean there

> is probable diastolic

> dysfunction and borderline elevation in the pressure in the pulmonary artery

> which goes from the right ventricle in the heart to the lungs

[Guest guest]

Bonnie:

Hi again. I just wanted to make sure you saw my other post related

to your echo questions -- under " sick kids.. " etc.

I'm glad you like your internist and nephrologist. That makes life

so much easier, doesn't it?

Cheers!

--Dave

[Guest guest]

Thanks Bonnie for providing the additional clarification. I was re-reading

your prior post, trying to do the mental " how bad " calculations. Your

discussion of CHF had me very scared - as I bet you were feeling. The

minimal valve leakage sounds like a positive indicator. What a confounding

thing with the pitting edema... as if the edema related to proteinuria

weren't bad enough.

Big hugs. Sounds like today has been a very intense day for you as you try

to put all this together. Hope you can find some space for a pot of tea and

a good NON-MEDICAL book.

Cy

Re: Echo results: , Pierre, , Cy, Amy, Rita etc.

>

> Hey , I'm sure you'll be off to bed soon, but while I have a sec let

me rephrase my previous statement. What all that junk means is .. instead

of the heart being a weak pump in letting the blood go out of the heart

(systolic function) the problem with diastolic function lies in the resting

stage (filling stage) of the heart (as opposed to pumping stage of the

heart) so there's too much pressure dilating and stretching the right side

of the heart which in turn puts too much pressure going to the artery which

sends the blood into the lungs and for all purposes causes an overexertion

on the heart and backward pump failure. (That's where the pitting edema

comes in and shortness of breath on exertion) . Mortality rate can vary

anywhere between 10 - 50% in 5 + years, depending on severity, other medical

conditions and compliance with medications. So name of the game is to keep

B/P down, take all the tons of meds Ig A patients already take ACE 1,

diuretics, keeping chol down, down,

> down, and maintaining a normal weight. Sounds familiar heh?

> Best of luck with appointments on November 15th and 17th. You also take

good care of yourself, and don't work too hard. Get a good night rest. You

sound a bit weary tonight. Bless you for always trying so hard to answer

everyones posts, especially as promptly as you do. Bonnie

>

> W4JC@... wrote:

>

>

> Hi Bonnie,

>

> I must confess I don't really understand what the results of your Echo

mean.

> I guess we will have to wait until Mt. Sinai gets back to you.

>

> My meeting with the renal care team and PD consult are not until Nov 15

and

> 17th respectively. I'll update you then.

>

> Take care of yourself and please try hard to not work so hard.

>

>

>

> In a message dated 10/27/2004 6:54:45 PM Pacific Daylight Time,

> bd4679@... writes:

>

> > My levels apparently from what Dr. T said and the written report mean

there

> > is probable diastolic

> > dysfunction and borderline elevation in the pressure in the pulmonary

artery

> > which goes from the right ventricle in the heart to the lungs

>

>

>

>