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Hi, My husband was diagnosed with PLS in June 2003. His symptoms

began last Dec. (as far as we can tell). He fell at that time and we

noticed weakness in the left leg that was getting worse. Long story

short he saw a neurologist MRI x3 EMG x 1 and the neuromuscular

specialist in June for the diagnosis. He has gone from walking by

himself till Aug to a cane then walker and now needs a scooter. He

has muscle twitching in his upper body, in his upper arms and left

forearm and hand. I just came across the ALS site yesterday and

today found the PLS site. Has anyone else progressed this rapidly?

He has balance problems also, stiffness and aching hips especially at

night or if he has done alot of walking? Does the heat (outside)

bother anyone? It sure makes my husband very tired. Of course we

live in AZ and the heat is here to stay!!

We have not really known what to ask the dr. The Dr said give him 6

mo before he would give a prognosis. Stated that it was caught very

early. Just seems like it has progressed rapidly especially since

Aug. I have also noticed that he does not sit up straight much

anymore--and his neck really hurts occasionally. His job is working

on computers so this just makes it worse.

Have others gone thru these same things?

Thanks.

Jane in AZ

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