Re: [igan]Bonnie's echo/acceptance

[Guest guest]

Hi Bonnie,

I am so disappointed that you did not get the news we were hoping for on the

Echo. Please do let us know when you have an appointment. I am so hoping you

don't have Fabry's and it saddens me that things seem to be pointing in that

direction.

On the acceptance, getting there is really a process. I went through all the

stages of grief, including a very deep depression a few years back. You are

just seeing me on the other side of that, but it was not always pretty when I

was still working my way there. It does take time. My faith and prayer

certainly helped to smooth out the path, but I still did stumble my fair share

of

times along the way.

Be gentle with yourself and let yourself feel the anger and disappointment

too when they come.

You have a sounding board here ready and willing to listen anytime you need

to vent.

In a message dated 10/22/2004 5:30:10 PM Pacific Daylight Time,

bd4679@... writes:

> Although I know we have said over and over, you kinda prepare yourself for

> the ups and downs of having a chronic disease and the idea in the back of

> your head, I'm not always gonna get good news, none the less it still requires

a

> special sense of wisdom and maturity to really ACCEPT things as they are.

[Guest guest]

Hi Bonnie,

I am so happy you and your husband went to the game today! You have to enjoy

the roses along the way :-)

I think we need to pray about your work situation. I too still work full time

and travel about 40% of the time, so I completely understand how hard it is

to juggle everything. We can ask that an NP position that would work better

will come up that will allow you to keep your long term disability. That is

very important!

And yes Bonnie...acceptance is definitely a process. I wish there was an

easier way, but alas it takes time.

n a message dated 10/23/2004 9:41:38 PM Pacific Daylight Time,

bd4679@... writes:

> Ahhh yes, though .... I spent a couple of hours going to Air Force

> football game today with my husband (against BYU). The day was just gorgeous.

> It was really nice to do something fun with him especially in the fresh crisp

> but warm air. It has been a long while since we did anything like that.

> (Although we got beat pretty bad).

> Yes, I'm still counting my blessings, thank you, . Bonnie

>

[Guest guest]

Hello ,

Thanks for sharing your story on acceptance. It's been a bit of a rocky road

for me too lately. One day I'm doing fine, the next day I'm down in the dumps.

In some respects I'm glad it's taken some time to sort through both of these

diagnoses, however at other times I'm ready to accept and just move forward.

I'm really glad I'm not alone in the PROCESS of acceptance. Many times I feel

still in denial, not ready to accept all this. I tried to job share a position

between what I do now, and a " regular nurse " to see if I could decrease my

demanding load for a bit. However my associate beat me to it, and he decreased

his hours in the clinic, so..... Another problem is that I am a salaried

employee and my nurse is hourly. Combining the two may be a problem. Then, my

boss wondered what we would do if my nurse was sick and I had several full days

of patients to reschedule. She mentioned she would consider me going part time,

and hiring another nurse practitioner, however I found

out through Human Resources that I would completely lose my long term

disability if I went part time. So, as they say, just " suck it up " and move

forward. I spent several hours tonight checking on info regarding diastolic

dysfunction and pulmonary hypertension so when I talk to Dr. T (cardiologist

that is an absolute sweetheart) I'll be able to ask intelligent questions.

Ahhh yes, though .... I spent a couple of hours going to Air Force football

game today with my husband (against BYU). The day was just gorgeous. It was

really nice to do something fun with him especially in the fresh crisp but warm

air. It has been a long while since we did anything like that. (Although we

got beat pretty bad).

Yes, I'm still counting my blessings, thank you, . Bonnie

W4JC@... wrote:

Hi Bonnie,

I am so disappointed that you did not get the news we were hoping for on the

Echo. Please do let us know when you have an appointment. I am so hoping you

don't have Fabry's and it saddens me that things seem to be pointing in that

direction.

On the acceptance, getting there is really a process. I went through all the

stages of grief, including a very deep depression a few years back. You are

just seeing me on the other side of that, but it was not always pretty when I

was still working my way there. It does take time. My faith and prayer

certainly helped to smooth out the path, but I still did stumble my fair share

of

times along the way.

Be gentle with yourself and let yourself feel the anger and disappointment

too when they come.

You have a sounding board here ready and willing to listen anytime you need

to vent.

In a message dated 10/22/2004 5:30:10 PM Pacific Daylight Time,

bd4679@... writes:

> Although I know we have said over and over, you kinda prepare yourself for

> the ups and downs of having a chronic disease and the idea in the back of

> your head, I'm not always gonna get good news, none the less it still requires

a

> special sense of wisdom and maturity to really ACCEPT things as they are.

[Guest guest]

Thanks again , Here's a big Bry hug. I'm heading home from work now. Take

good care, and I'll be praying for you tonight. Good night my friend. ((((Bry

hug))) Bonnie

W4JC@... wrote:Hi Bonnie,

I am so happy you and your husband went to the game today! You have to enjoy

the roses along the way :-)

I think we need to pray about your work situation. I too still work full time

and travel about 40% of the time, so I completely understand how hard it is

to juggle everything. We can ask that an NP position that would work better

will come up that will allow you to keep your long term disability. That is

very important!

And yes Bonnie...acceptance is definitely a process. I wish there was an

easier way, but alas it takes time.

n a message dated 10/23/2004 9:41:38 PM Pacific Daylight Time,

bd4679@... writes:

> Ahhh yes, though .... I spent a couple of hours going to Air Force

> football game today with my husband (against BYU). The day was just gorgeous.

> It was really nice to do something fun with him especially in the fresh crisp

> but warm air. It has been a long while since we did anything like that.

> (Although we got beat pretty bad).

> Yes, I'm still counting my blessings, thank you, . Bonnie

>