Guest guest Posted June 3, 2003 Report Share Posted June 3, 2003 Hello my friends, It was an interesting day. I had my mom come from Toronto to help me, i was worried about how to get in to hospital from parking, and the weakness in my legs seems about same. A tiny bit better today. Now you understand I have to be desperate to ask for help. i am very independent. So the first neurologist (from 8 years ago) who specializes in MS, had sent a stack of my tests and different specialists reports from the past 8 years. this very nice neurologist (#7) quickly read thru them (a speedreader), asked me some questions, did all those quick neuro tests with the hammer etc. He specializes in metabolic myopathies, and did not feel that will be the diagnosis. He was suggesting a mixed connective tissue disorder or myofascial pain syndrome. He did some blood tests and the exersize one with the right forearm, for metabolic myopathies. the other tests that I can remember were ANA, B12, iron, lactate,pyruvate, and i can't remember the rest. He thinks my movement is limited due to pain in muscle /joint area. He did a bunch of squeezing, trigger point stuff that usually the neurologists don't do on me. So his suggestions were to work on stretching, and rehabilitation with a specialist, and have cortisone and some painkiller shots in joint or muscle trigger point area? I wasn't too clear on this, just happy he wasn't sending me away with " I haven't a clue what you have " . I will write more in a few days, my screen keeps saying it is going to shut down. thelma Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2003 Report Share Posted June 3, 2003 Thelma Thanks for the update. It sounds as if you might be getting a bit closer to a diagnosis with this neuro. I hope the ordered tests will produce something useful to help you. You are in my thoughts. laurie > > Reply-To: > Date: Wed, 04 Jun 2003 00:42:37 -0000 > To: > Subject: saw new neurologist today > > Hello my friends, > > It was an interesting day. I had my mom come from Toronto to help me, > i was worried about how to get in to hospital from parking, and the > weakness in my legs seems about same. A tiny bit better today. Now > you understand I have to be desperate to ask for help. i am very > independent. > > So the first neurologist (from 8 years ago) who specializes in MS, > had sent a stack of my tests and different specialists reports from > the past 8 years. this very nice neurologist (#7) quickly read thru > them (a speedreader), asked me some questions, did all those quick > neuro tests with the hammer etc. He specializes in metabolic > myopathies, and did not feel that will be the diagnosis. He was > suggesting a mixed connective tissue disorder or myofascial pain > syndrome. He did some blood tests and the exersize one with the right > forearm, for metabolic myopathies. the other tests that I can > remember were ANA, B12, iron, lactate,pyruvate, and i can't remember > the rest. He thinks my movement is limited due to pain in > muscle /joint area. He did a bunch of squeezing, trigger point stuff > that usually the neurologists don't do on me. > > So his suggestions were to work on stretching, and rehabilitation > with a specialist, and have cortisone and some painkiller shots in > joint or muscle trigger point area? I wasn't too clear on this, just > happy he wasn't sending me away with " I haven't a clue what you > have " . I will write more in a few days, my screen keeps saying it is > going to shut down. > > thelma > > > Quote Link to comment Share on other sites More sharing options...
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