Re: Received results from Dr. Cohen

[Guest guest]

Thanks for that advice. That will save me waiting for them to find

out while they called down to the lab. I really suspect the way the labs

look that I got that those 4 were not run or at least weren't in this batch

that he reviewed.

Thanks again,

Terry

>

>Reply-To:

>To:

>Subject: Re: Received results from Dr. Cohen

>Date: Thu, 22 May 2003 20:21:22 -0700

>

>Terry,

>

>If you had the tests run at CCF, then I would call the lab there to

>determine first off if they were run. If they were run, ask if the

>results were sent to Dr. Cohen and ask them to resend them. I would

>check with the lab first before contacting Dr. Cohen's office. If they

>were run, then I would contact one of his nurses and ask them about it.

> The nurses are a better source than the secretaries are.

>

>Good luck,

>

>

>T M wrote:

>

> >Hi,

> >I received the lab results today for my daughter's mito eval. I am a bit

> >puzzled though. We saw Dr. Cohen at CC. He was quite certain that the

>labs

> >would show a mito disease. Though what he sent me doesn't. He put a note

>at

> >the top that the labs were normal and that we should follow the plan he

> >discussed with us at our visit. No problem with that but in looking over

>the

> >results, it is clear that 4 tests that he ordered are not here. The pages

> >aren't missing because it says 4 of 4 for the last 4th page. The tests

>that

> >are missing are the carnitine levels urine and blood, coenzymeQ10,

>Organic

> >Acid urine and amino acid urine. When we were at the clinic the lab

> >initially did mess up and had to draw her again because of a " computer "

> >mixup they only first drew one tube of blood. Now I can't help but wonder

>if

> >they messed up and didn't run these other tests. If so, is it possible

>that

> >Dr. Cohen didn't realize they were missing when he reviewed the labs and

> >sent me the letter. He was thinking she would have a carnitine and

> >coenzymeQ10 deficiency. Would the only way he be able to tell this is if

> >those tests were run? In other words, it wouldn't show in the amino acids

> >would it. The abnormalities there were explained as a result of her

> >Neurontin. Has anyone else got lab results from him with some of the

> >results missing of the tests run?

> >

> >I will call there tomorrow but would love to hear others experience.

> >

> >Thanks,

> >Terry

> >

> >_________________________________________________________________

> >Protect your PC - get McAfee.com VirusScan Online

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> >

> >

> >

> >Medical advice, information, opinions, data and statements contained

>herein are not necessarily those of the list moderators. The author of this

>e mail is entirely responsible for its content. List members are reminded

>of their responsibility to evaluate the content of the postings and consult

>with their physicians regarding changes in their own treatment.

> >

> >

[Guest guest]

Terry

I've not had such an experience, but that is not to say that it couldn't

happen. It is a very big place, that I am sure mistakes are made sometimes.

Keep us posted.

laurie

>

> Reply-To:

> Date: Fri, 23 May 2003 00:59:26 +0000

> To:

> Subject: Received results from Dr. Cohen

>

> Hi,

> I received the lab results today for my daughter's mito eval. I am a bit

> puzzled though. We saw Dr. Cohen at CC. He was quite certain that the labs

> would show a mito disease. Though what he sent me doesn't. He put a note at

> the top that the labs were normal and that we should follow the plan he

> discussed with us at our visit. No problem with that but in looking over the

> results, it is clear that 4 tests that he ordered are not here. The pages

> aren't missing because it says 4 of 4 for the last 4th page. The tests that

> are missing are the carnitine levels urine and blood, coenzymeQ10, Organic

> Acid urine and amino acid urine. When we were at the clinic the lab

> initially did mess up and had to draw her again because of a " computer "

> mixup they only first drew one tube of blood. Now I can't help but wonder if

> they messed up and didn't run these other tests. If so, is it possible that

> Dr. Cohen didn't realize they were missing when he reviewed the labs and

> sent me the letter. He was thinking she would have a carnitine and

> coenzymeQ10 deficiency. Would the only way he be able to tell this is if

> those tests were run? In other words, it wouldn't show in the amino acids

> would it. The abnormalities there were explained as a result of her

> Neurontin. Has anyone else got lab results from him with some of the

> results missing of the tests run?

>

> I will call there tomorrow but would love to hear others experience.

>

> Thanks,

> Terry

>

> _________________________________________________________________

> Protect your PC - get McAfee.com VirusScan Online

> http://clinic.mcafee.com/clinic/ibuy/campaign.asp?cid=3963

>

>

>

[Guest guest]

Terry,

If you had the tests run at CCF, then I would call the lab there to

determine first off if they were run. If they were run, ask if the

results were sent to Dr. Cohen and ask them to resend them. I would

check with the lab first before contacting Dr. Cohen's office. If they

were run, then I would contact one of his nurses and ask them about it.

The nurses are a better source than the secretaries are.

Good luck,

T M wrote:

>Hi,

>I received the lab results today for my daughter's mito eval. I am a bit

>puzzled though. We saw Dr. Cohen at CC. He was quite certain that the labs

>would show a mito disease. Though what he sent me doesn't. He put a note at

>the top that the labs were normal and that we should follow the plan he

>discussed with us at our visit. No problem with that but in looking over the

>results, it is clear that 4 tests that he ordered are not here. The pages

>aren't missing because it says 4 of 4 for the last 4th page. The tests that

>are missing are the carnitine levels urine and blood, coenzymeQ10, Organic

>Acid urine and amino acid urine. When we were at the clinic the lab

>initially did mess up and had to draw her again because of a " computer "

>mixup they only first drew one tube of blood. Now I can't help but wonder if

>they messed up and didn't run these other tests. If so, is it possible that

>Dr. Cohen didn't realize they were missing when he reviewed the labs and

>sent me the letter. He was thinking she would have a carnitine and

>coenzymeQ10 deficiency. Would the only way he be able to tell this is if

>those tests were run? In other words, it wouldn't show in the amino acids

>would it. The abnormalities there were explained as a result of her

>Neurontin. Has anyone else got lab results from him with some of the

>results missing of the tests run?

>

>I will call there tomorrow but would love to hear others experience.

>

>Thanks,

>Terry

>

>_________________________________________________________________

>Protect your PC - get McAfee.com VirusScan Online

>http://clinic.mcafee.com/clinic/ibuy/campaign.asp?cid=3963

>

>

>

>Medical advice, information, opinions, data and statements contained herein are

not necessarily those of the list moderators. The author of this e mail is

entirely responsible for its content. List members are reminded of their

responsibility to evaluate the content of the postings and consult with their

physicians regarding changes in their own treatment.

>

>

[Guest guest]

Hi,

Not sure what happened with the labs. I did hear from Dr. Cohen. Though I

don't have the results I mentioned, he must have had them because he

referred to the CoQ10 levels as being indicative of oxidative stress. He

was quite nice and I must say I am very pleased with the outcome of our

visit with him. He gave us a good direction to go for her treatment here

locally. He is truly a rare doctor to find.

Thanks to all here also for your help.

Terry

_________________________________________________________________

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[Guest guest]

Terry,

So does your daughter have a CoQ10 level

that was low? Did she have any

other abnormal lab result. Does he want to do a muscle biopsy on

your daughter? I think I had seen a

post where it was described as a aquired

mitochondrial…was that from all the other treatment she was on? Sorry for so many questions, trying to

figure it out in relationship to what we are walking through.

Thanks for taking the time.

Vivian

Re: Received

results from Dr. Cohen

Hi,

Not sure what happened with the labs. I did hear

from Dr. Cohen. Though I

don't have the results I mentioned, he must have

had them because he

referred to the CoQ10 levels as being indicative

of oxidative stress. He

was quite nice and I must say I am very pleased

with the outcome of our

visit with him. He gave us a good direction to go

for her treatment here

locally. He is truly a rare doctor to find.

Thanks to all here also for your help.

Terry

_________________________________________________________________

Protect your PC - get McAfee.com VirusScan

Online

http://clinic.mcafee.com/clinic/ibuy/campaign.asp?cid=3963

Medical advice, information,

opinions, data and statements contained herein are not necessarily those of the

list moderators. The author of this e mail is entirely responsible for its

content. List members are reminded of their responsibility to evaluate the

content of the postings and consult with their physicians regarding changes in

their own treatment.

Your use of

Yahoo! Groups is subject to the Yahoo!

Terms of Service.

[Guest guest]

I don't know if this means anything or not, but I had very low COQ10 levels

before I started taking CoQ10 and had my muscle biopsy at CCF. I ended up

having a functional complex I & II defect. The membrains of my mitochondria

are very leaky. Don't ask me why or what that means, because as of 1999

when I had my bx, they had never seen it before. I don't know if they have

seen it since either.

Vivian Schumacher wrote:

Terry,

So does your daughter

have a CoQ10 level that was low? Did she have any other

abnormal lab result. Does

he want to do a muscle biopsy on your daughter? I

think I had seen a post where it was described as a

aquired mitochondrial…was that from all the

other treatment she was on? Sorry for so many questions,

trying to figure it out in relationship to what we are walking through.

Thanks for taking

the time.

Vivian

-----Original

Message-----

From: T M

Sent: Thursday, May 22, 2003 11:26 PM

To:

Subject: Re: Received results from Dr. Cohen

Hi,

Not sure what happened with the labs. I did

hear from Dr. Cohen. Though I

don't have the results I mentioned, he must

have had them because he

referred to the CoQ10 levels as being indicative of oxidative stress. He

was quite nice and I must say I am very pleased with the outcome of our

visit with him. He gave us a good direction

to go for her treatment here

locally. He is truly a rare doctor to find.

Thanks to all here also for your help.

Terry

_________________________________________________________________

Protect your PC - get McAfee.com VirusScan Online

http://clinic.mcafee.com/clinic/ibuy/campaign.asp?cid=3963

Medical

advice, information, opinions, data and statements contained herein are not

necessarily those of the list moderators. The author of this e mail is entirely

responsible for its content. List members are reminded of their responsibility

to evaluate the content of the postings and consult with their physicians

regarding changes in their own treatment.

Your

use of Yahoo! Groups is subject to the Yahoo! Terms of Service.

Medical advice, information, opinions, data and statements contained

herein are not necessarily those of the list moderators. The author of this

e mail is entirely responsible for its content. List members are reminded

of their responsibility to evaluate the content of the postings and consult

with their physicians regarding changes in their own treatment.