Re: newbie here, with celiac,crohns,refractory sprue,etc. need advice please...

[Guest guest]

don't have too much advice but you do have my prayers!!! I have 4 lil

ones and have been sick for only 15 months and don't even homeschool

and thank God don't have to worry about hubby's job security - you

poor thing - even if it seems like these things aren't bugging you

guys, you are feeding the bacteria so I'd have to say start real

slow - go with soups in your crockpot - many see D go pretty quick I

believe on intro

you have so much going on but I felt connected because my first 2

GI's said celiac/crohns though I hear it's not common (my 3rd current

one said celiac/non-specific corrosion (meaning I guess it could have

been extensive celiac damage???)

anyway.... 9 months in my scopes showed no inflammation - not

symptom free yet - still nausea here there lil pains etc but SO much

better

hang in and welcome

eileen

almost 1 year scd

-- In BTVC-SCD , " Lynne " wrote:

>

> Hi everyone, Im Lynne, a homeschooling mom of 6 kids ages

> l8,14,12,10,8 & 6. 6 years ago I was finally diagnosed with Celiac

> after being sick for so long. Our youngest suffered the most but

has

> done wonderfully since putting her on a gluten/cassein free diet

and

> no potatoes or many other foods shes sensitive to. Ive gotten

worse

> and have polyps, lots of inflammation in my stomach, lymphnodes and

> liver,spleen and pancreas get enlarged often for unknown reasons,

Ive

> devoloped worsening allergies once I went gf and I am 100%gf, I get

> tested and make everything at home with my vitamix, all the kids

are

> too. Im allergic to eggs and many other foods. I need some help

> fixing meals according to SCD and knowing what is best for me. I

> have chronic diarrhea, every 20 minutes from 2 am and get

dehydrated

> a lot, Im on Lomotil right now but it will stop working in a few

more

> days and I will be back to being sick all over again. We also have

> been struggling financially, no income but my disability and food

> money is only 600 for the month and no matter how hard I try, I

cant

> make it last so I also need some economical meals too. Im good

with

> crockpots and making things taste great without

> eggs,dairy,gluten,potato but I do use a combo of rice and sorghum

> flours with garbanzo. It doesnt upset any of our stomachs and I

dont

> eat it often. Ive got some allergic to corn so I try to make

> everything safe for all of us. I have gone 2 weeks without eating

> and only siping water and still have the constant diarrhea, so it

> doesnt make a difference what I eat. Though, I will not go off a gf

> diet, also I have steroid induced diabetes too. If anyone has any

> suggestions for me, please send them this way. Thank you very

much.

> I know this is confusing and I hope someone can help me. I just had

a

> balloon endo the other day that was awful, and have had numerous

> colonoscipies,upper endos, capsule endoscopies in the last year. I

> do have bleeding lesions, gastric polyps, scalloping in the small

> intestines, villi are growing back, nutritional deficiencies galore

> and am overweight so its really frustrating to be eating fresh

> spinach salads and only water and be this big. I look forward to

> hearing from some of you hopefully. Thank you very much. Lynne

>

[Guest guest]

don't have too much advice but you do have my prayers!!! I have 4 lil

ones and have been sick for only 15 months and don't even homeschool

and thank God don't have to worry about hubby's job security - you

poor thing - even if it seems like these things aren't bugging you

guys, you are feeding the bacteria so I'd have to say start real

slow - go with soups in your crockpot - many see D go pretty quick I

believe on intro

you have so much going on but I felt connected because my first 2

GI's said celiac/crohns though I hear it's not common (my 3rd current

one said celiac/non-specific corrosion (meaning I guess it could have

been extensive celiac damage???)

anyway.... 9 months in my scopes showed no inflammation - not

symptom free yet - still nausea here there lil pains etc but SO much

better

hang in and welcome

eileen

almost 1 year scd

-- In BTVC-SCD , " Lynne " wrote:

>

> Hi everyone, Im Lynne, a homeschooling mom of 6 kids ages

> l8,14,12,10,8 & 6. 6 years ago I was finally diagnosed with Celiac

> after being sick for so long. Our youngest suffered the most but

has

> done wonderfully since putting her on a gluten/cassein free diet

and

> no potatoes or many other foods shes sensitive to. Ive gotten

worse

> and have polyps, lots of inflammation in my stomach, lymphnodes and

> liver,spleen and pancreas get enlarged often for unknown reasons,

Ive

> devoloped worsening allergies once I went gf and I am 100%gf, I get

> tested and make everything at home with my vitamix, all the kids

are

> too. Im allergic to eggs and many other foods. I need some help

> fixing meals according to SCD and knowing what is best for me. I

> have chronic diarrhea, every 20 minutes from 2 am and get

dehydrated

> a lot, Im on Lomotil right now but it will stop working in a few

more

> days and I will be back to being sick all over again. We also have

> been struggling financially, no income but my disability and food

> money is only 600 for the month and no matter how hard I try, I

cant

> make it last so I also need some economical meals too. Im good

with

> crockpots and making things taste great without

> eggs,dairy,gluten,potato but I do use a combo of rice and sorghum

> flours with garbanzo. It doesnt upset any of our stomachs and I

dont

> eat it often. Ive got some allergic to corn so I try to make

> everything safe for all of us. I have gone 2 weeks without eating

> and only siping water and still have the constant diarrhea, so it

> doesnt make a difference what I eat. Though, I will not go off a gf

> diet, also I have steroid induced diabetes too. If anyone has any

> suggestions for me, please send them this way. Thank you very

much.

> I know this is confusing and I hope someone can help me. I just had

a

> balloon endo the other day that was awful, and have had numerous

> colonoscipies,upper endos, capsule endoscopies in the last year. I

> do have bleeding lesions, gastric polyps, scalloping in the small

> intestines, villi are growing back, nutritional deficiencies galore

> and am overweight so its really frustrating to be eating fresh

> spinach salads and only water and be this big. I look forward to

> hearing from some of you hopefully. Thank you very much. Lynne

>

[Guest guest]

At 05:14 PM 1/8/2009, you wrote:

I was finally diagnosed with

Celiac after being sick for so long.

Lynne,

I will try to get back to you on this, but I am leaving in the morning

for a much needed holiday. (And to see some friends who are the sort that

when you call them at 1 am and say, " We evacuated for a hurricane.

The hotel where we had our reservation won't take the Dachshund

Duo, " answer you with, " Come ahead... the cats will

survive somehow! " )

I will be thinking about you, because I can spot a couple of things in

what you are eating that could be a problem. I'm plus-sized too, and I've

been there with the spinach salad routine. I've lost 180 pounds on SCD,

and my colonoscopy, last Friday, showed nothing but a perfectly healthy

gut.

<hugs>

—

Marilyn

New Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund