Guest guest Posted December 30, 2002 Report Share Posted December 30, 2002 In a message dated 12/30/02 12:40:10 PM Eastern Standard Time, TXGenes@... writes: << For me, I waited too long. My fibroids were symptomatic, but initially not significantly affecting my quality of life (or so I thought). By the time I realized that they were affecting my life, I had lost some options. So, beware of " quality of life creep " because it was only when I reached the point of no return and looked back, I realized how much I had changed my life habits to accommodate these parasites over the years! >> Would you talk a little more about this? I'm trying to get some perspective to see if I have, in fact, been accommodating the fibroids in ways that are no longer a good idea. Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2002 Report Share Posted December 30, 2002 In a message dated 12/30/02 12:41:37 PM Eastern Standard Time, schicago2003@... writes: << No sit ups were going to flatten out my stomach. >> I've been thinking a lot about ab exercises and fibroids. I have TONS of patients who do Pilates, with varying results. When I thought about trying it myself, to tighten my abs a bit, I started thinking that doing anything to compress the fibroids wouldn't be a good idea. Just what I need - a marginally flatter tummy, with more bowel pressure! Anyone had any experience with ab exercises and fibroids? Curious, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2002 Report Share Posted December 30, 2002 Terry: You are part of that lucky group of women that have no problems with their fibroids. As a woman whose history with fibroids brought excessive bleeding, unbearable pain, and frequent urination, my two cents is - if you are not having problems, then your body is doing its part in handling the fibroids. I don't think it's necessary to do anything invasive or anything, for that matter, if you are not having any problems. Joyce Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2003 Report Share Posted January 1, 2003 Terry, I found out I had fibroids last Jan. and did the birth control thing, then a D & C and hysteroscopy and then more b/c pills. I had this feeling at the beginning that I would end up doing some surgery or procedure for my fibroids. That was my gut feeling and I was right. I had UAE in Nov. I wanted to do something sooner, but wasn't sure what was right for me. I also wanted to be educated about my condition and all options for me. I feel good that I made the right decision for me and hope to see some relief as the months go on. MAry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2003 Report Share Posted January 1, 2003 Ok, I agree. What I meant to say is that I think , unless it is a life threatening situation, that the wisest course of action is, to wait and explore and educate yourself instead of reacting quickly and urgently out of fear and panic. There have certainly been alot of women coming aboard here, and I was one of them, who were being propelled into a quicker and less informed course of action. gg Terry wrote: > " If it isn't broke......gg. " At the risk of sounding > sarcarstic, I have to ask, are you serious? What was > once a normal, approximately 3 oz size, pear shaped > organ is now a hard, protruding mass that extends > beyond my pelvic bones and makes me appear to be in my > first trimester of pregnancy! I'm sorry, but as far > as I'm concerned, IT'S BROKE and, based on the > experiences of the many women who have suffered from > these parasites, I'm having a hard time just sitting > around waiting for things to get worse. > Terry > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2003 Report Share Posted January 1, 2003 At 08:45 PM 12/31/2002, you wrote: >In a message dated 12/30/02 11:59:48 PM US Mountain Standard Time, >jennasrin@... writes: > > > > The big bonus is that I > > can credit my strong abs (and a wonderful surgeon) with my amazingly quick > > recovery. Strong abs help support your back, pelvis and internal organs. They help with balance, posture, and practically every daily task (try getting out of bed, coughing, laughing, reaching, etc. without using your midsection). Some people have written about how helpful they found abdominal binders or corset type devices after surgery. I didn't need such a thing because my abs did the work. My doctor told me that my strength and fitness would help make my recovery quicker and less painful. And so they have. Tomorrow marks the third week since my surgery and no one who didn't know I'd recently been cut open would know it. I'm driving, walking, vacuuming, cooking, etc., almost as before. Tomorrow I'm going wine tasting. Monday (3.5 weeks post) I'm going back to work. I'm, by no means, athletic or a fitness buff. I'd hoped, as many women on this list have, that improving my diet and exercise would alleviate my fibroid symptoms. It didn't work, but I believe my good health going into surgery has made a huge difference in my recuperation. And, as I mentioned, a good and careful surgeon has also played a role! Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2003 Report Share Posted January 2, 2003 Could you tell me who was your surgeon and his location? Thanks > >In a message dated 12/30/02 11:59:48 PM US Mountain Standard Time, > >jennasrin@e... writes: > > > > > > > The big bonus is that I > > > can credit my strong abs (and a wonderful surgeon) with my amazingly quick > > > recovery. > > Strong abs help support your back, pelvis and internal organs. They help > with balance, posture, and practically every daily task (try getting out of > bed, coughing, laughing, reaching, etc. without using your > midsection). Some people have written about how helpful they found > abdominal binders or corset type devices after surgery. I didn't need such > a thing because my abs did the work. > > My doctor told me that my strength and fitness would help make my recovery > quicker and less painful. And so they have. Tomorrow marks the third week > since my surgery and no one who didn't know I'd recently been cut open > would know it. I'm driving, walking, vacuuming, cooking, etc., almost as > before. Tomorrow I'm going wine tasting. Monday (3.5 weeks post) I'm > going back to work. > > I'm, by no means, athletic or a fitness buff. I'd hoped, as many women on > this list have, that improving my diet and exercise would alleviate my > fibroid symptoms. It didn't work, but I believe my good health going into > surgery has made a huge difference in my recuperation. > > And, as I mentioned, a good and careful surgeon has also played a role! > > Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2003 Report Share Posted January 2, 2003 At 04:22 PM 1/2/2003, medcoor wrote: >Could you tell me who was your surgeon and his location? HER name is Dr. Ahn Ngo (pronounced " no " ) and she works at the UC Irvine Medical Center. A more compassionate, concerned doctor I've never met. She seems to be good with a scalpel, too! Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2003 Report Share Posted January 3, 2003 > >-Jen, > > What type of Dr.is she,Gyn or RE? Does she specialize in Myos? and > >did you go for a Myo and it turned into a Hysterectomy or you knew > >you were going for a Hyst.? > > Dr. Ngo is an ob/gyn. She doesn't SPECIALIZE in myos and said she'd done > around 30 of them. But, she can't be older than me (34) and may well be > younger. She said any good gyn could do a myo. I went for a myo (and she > was very motivated to have me keep my uterus, even when I felt low and said > to just take out ALL the offending organ), but it changed to a hyst. > midstream. Read the report I posted to the group, message number 27602 to > get all the details. > > When I went for my 2 week follow up appointment, she told me that my case > had been reviewed by the gyn team/chief of staff at UCI. This is standard > procedure when the surgeon " fails to save the uterus. " I don't know if > this is the case at all hospitals, but UCI is a teaching hospital. My > doctor told me that the team, even the most experienced doctors, hadn't > seen such a case of fibroids in many years, if ever. The chief told her it > would have been irresponsible for her to have left the uterus. Mine was > the first myo Dr. Ngo had converted to a hyst. and I'm not sure which of us > felt worse about it. In a way, I think she does! > > Jen Jen, I read your 27602 post and what upsets me is how inaccurate the ultrasound seemed to be. It was probably difficult to deal with the surprise of all the fibroids. Does anyone know of a better test? My ultrasounds are probably very inaccurate, too. I had three fibrods show up as being in the wall of the uterus but after my UAE, they are acting like they are submucosal (in the uterus). It sounds like you went through quite an ordeal ALONG with your doctor. I hope you are feeling good now. Tami Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2003 Report Share Posted January 18, 2003 I think I may have posted this twice. I'm not sure. I'm 38 with a large fibroid. I am bleeding now for 17 days, off and on from day 10 onward. I don't have anemia but I feel like I was hit by a truck and can't seem to do very much. I read about all of the options and they all sound terrible. I absolutely won't get a hysterectomy, it's not an option. But I am really bummed out about how I feel right now. Does anyone have any diet or natural methods available? I really could use some energy. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2003 Report Share Posted January 18, 2003 Fellow-sufferers, I've been trying a low-fat diet for a short period of time, and I'm feeling much better about my belly. A low-fat diet , I think, at least can stop the fibroids from growing, and eventually make them disappear--I read this from a website source. I hate hysterectomy, too. a low-fat diet is also a good prevention for cancer. Quote Link to comment Share on other sites More sharing options...
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