Guest guest Posted November 4, 2004 Report Share Posted November 4, 2004 Shara: Having a child is a wonderful gift! I have two little ones of my own -- they mean the world to me. I wish you all the best for your pregnancy! Let your neph know you are pregnant ASAP so that he/she can help you track your IGAN more closely and head off any problems if they arise. Cheers! --Dave Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2004 Report Share Posted November 4, 2004 Hi Shara Congratulations! However, without trying to cause you any alarm or anything, it does not give me a good feeling when I hear you say you stopped your blood pressure med and you haven't informed your nephrologist about this news. It's extremely important to do so. There are other BP meds they can safely prescribe to expecting mothers if necessary. Having IgAN already, there's a greater risk that pregnancy might actually cause higher blood pressure. On the flip side, it has been said about IgAN that there's something a little mysterious about it in that pregnancy sometimes seems to put it into remission (it's something I heard a while ago, so, don't ask for a reference :-) So, I'm sure everything will turn out great, but do phone your nephrologist ASAP. We want everyone in the group to be as safe as possible, and that goes double for expecting mothers! Pierre Pregnant > > > For all those who previously asked about having children while > having IgA...I guess I'll be finding out what it's like in the next > 9 months. My husband and I are going to have our first child > together. I have not told my nephrologist yet but I have stopped the > lisinopril as it can cause fetal death. I'm not sure what he is > going to tell me, if he will put me on a different drug or just > watch me closely. We are excited about the pregnancy, but as > expected everyone is a little apprehensive about my recent discovery > of IgAN. Just wanted to share with everyone and I certainly welcome > any suggestions for those who have had children post IgA diagnosis. > Thank you! - Shara > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2004 Report Share Posted November 4, 2004 Thank you for the info Pierre. I have only known I was pregnant for three days so I have not been off the lisinopril for long. I was not on it for high blood pressure though. I did tell my nephrologist today when I saw him at work. I will make an appointment with him and the office and I have scheduled my appointment with my high risk OB. I am going to be extra careful. - Shara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2004 Report Share Posted November 4, 2004 Hi Shara, Congratulations on your pregnancy :-) I am so happy for you. Please do check in with your Nephrologist soon though to make sure your BP is not too high. I wish you all the best with your pregnancy, and pray you will be blessed with a healthy baby. Keep us in the loop on how your pregnancy is going. In a message dated 11/4/2004 7:10:49 AM Pacific Standard Time, sharareece@... writes: > For all those who previously asked about having children while > having IgA...I guess I'll be finding out what it's like in the next > 9 months. My husband and I are going to have our first child > together. I have not told my nephrologist yet but I have stopped the > lisinopril as it can cause fetal death. I'm not sure what he is > going to tell me, if he will put me on a different drug or just > watch me closely. We are excited about the pregnancy, but as > expected everyone is a little apprehensive about my recent discovery > of IgAN. Just wanted to share with everyone and I certainly welcome > any suggestions for those who have had children post IgA diagnosis. > Thank you! - Shara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2004 Report Share Posted November 4, 2004 Congratulations! I can't offer advice from the point of having been pregnant and birthing a child after my diagnosis, but I can offer advice from having become a parent after diagnosis. I am wiped out, simply put. Everyone tried to warn me how tired I'd be, how all consuming it would be. Nothing anyone said comes close to it. Don't get me wrong, I love my boy, I love that I am his momma, but man oh man, it's like the Everready Bunny lives with me, and this bunny doesn't need much sleep unlike his momma. Being anemic doesn't help. My biggest piece of " non medical, soon to be a mom " advice, take all the baths you can now, and eat really slowly, enjoying every bite, you may never have time to do either again. All the best to you. Take good care of yourself... sfbay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2004 Report Share Posted November 4, 2004 Shara, I had my kids pre-diagnosis so I can't help with the high risk planning...but I can say Congratulations! You are soon to enter a world of challenges and joys beyond compare. ) Amy G. Pregnant > > > For all those who previously asked about having children while > having IgA...I guess I'll be finding out what it's like in the next > 9 months. My husband and I are going to have our first child > together. I have not told my nephrologist yet but I have stopped the > lisinopril as it can cause fetal death. I'm not sure what he is > going to tell me, if he will put me on a different drug or just > watch me closely. We are excited about the pregnancy, but as > expected everyone is a little apprehensive about my recent discovery > of IgAN. Just wanted to share with everyone and I certainly welcome > any suggestions for those who have had children post IgA diagnosis. > Thank you! - Shara > > > > > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > > To unsubcribe via email, > iga-nephropathy-unsubscribe > Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: > http://www.igan.ca/id62.htm > > Thank you > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2004 Report Share Posted November 4, 2004 Shara, I am thrilled for you. I wish you the best during your pregnancy. Please keep us all informed. I am going to discuss pregnancy with my nephrologist next week. We may be in the same boat together very soon. Take Care Christa - In iga-nephropathy , " sl_piercetx " <sharareece@g...> wrote: > > For all those who previously asked about having children while > having IgA...I guess I'll be finding out what it's like in the next > 9 months. My husband and I are going to have our first child > together. I have not told my nephrologist yet but I have stopped the > lisinopril as it can cause fetal death. I'm not sure what he is > going to tell me, if he will put me on a different drug or just > watch me closely. We are excited about the pregnancy, but as > expected everyone is a little apprehensive about my recent discovery > of IgAN. Just wanted to share with everyone and I certainly welcome > any suggestions for those who have had children post IgA diagnosis. > Thank you! - Shara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2004 Report Share Posted November 4, 2004 Shara, What magnificent news! That is so exciting! I know everybody on the board will be glued to this one! I know you know, but be sure to give your neph a ring and let him know that you've stopped the lisinopril. Perhaps he can work with your OB-GYN to come up with a good alternative. Cy Pregnant > > > For all those who previously asked about having children while > having IgA...I guess I'll be finding out what it's like in the next > 9 months. My husband and I are going to have our first child > together. I have not told my nephrologist yet but I have stopped the > lisinopril as it can cause fetal death. I'm not sure what he is > going to tell me, if he will put me on a different drug or just > watch me closely. We are excited about the pregnancy, but as > expected everyone is a little apprehensive about my recent discovery > of IgAN. Just wanted to share with everyone and I certainly welcome > any suggestions for those who have had children post IgA diagnosis. > Thank you! - Shara > > > > > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > > To unsubcribe via email, > iga-nephropathy-unsubscribe > Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: > http://www.igan.ca/id62.htm > > Thank you > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2004 Report Share Posted November 4, 2004 sfbay is spot on about taking baths. always knew just when I tried to slip into the hot water and get comfortable because that's when he started yowling. Also got to add, enjoy going to the bathroom alone! Cy Re: Pregnant > > > Congratulations! I can't offer advice from the point of having been pregnant and birthing a > child after my diagnosis, but I can offer advice from having become a parent after > diagnosis. I am wiped out, simply put. Everyone tried to warn me how tired I'd be, how all > consuming it would be. Nothing anyone said comes close to it. Don't get me wrong, I love > my boy, I love that I am his momma, but man oh man, it's like the Everready Bunny lives > with me, and this bunny doesn't need much sleep unlike his momma. Being anemic > doesn't help. My biggest piece of " non medical, soon to be a mom " advice, take all the > baths you can now, and eat really slowly, enjoying every bite, you may never have time to > do either again. > > All the best to you. Take good care of yourself... > sfbay > > > > > > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > > To unsubcribe via email, > iga-nephropathy-unsubscribe > Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: > http://www.igan.ca/id62.htm > > Thank you > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2004 Report Share Posted November 5, 2004 Hi Jennie, Congratulations to you too!!! How exciting to be expecting such a little blessing. I hope you are feeling good now that you have passed the first trimester. Pregnancy and new babies and raising a family are such exciting times in a marriage. In a message dated 11/5/2004 5:13:47 AM Pacific Standard Time, jennieeb@... writes: > Congrats, Shara!! How far along are you? I'm currently 13 weeks pregnant. > It's such an exciting, but nerveracking time, isn't it?!?! > > On the subject of the lisinopril, your neph may do what mine did and put you > onto aldomet. I was told that that's pretty much the safest antihypertensive > drug to be on while pregnant. Definetly see your neph ASAP, as, more than > likely, you will need to be on some sort of antihypertensive agent if the > lisinopril was to control your blood pressure as well as to protect your kidneys. > > Anyway, all the best. > > Jennie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2004 Report Share Posted November 5, 2004 Congrats, Shara!! How far along are you? I'm currently 13 weeks pregnant. It's such an exciting, but nerveracking time, isn't it?!?! On the subject of the lisinopril, your neph may do what mine did and put you onto aldomet. I was told that that's pretty much the safest antihypertensive drug to be on while pregnant. Definetly see your neph ASAP, as, more than likely, you will need to be on some sort of antihypertensive agent if the lisinopril was to control your blood pressure as well as to protect your kidneys. Anyway, all the best. Jennie Dave Arterburn wrote: Shara: Having a child is a wonderful gift! I have two little ones of my own -- they mean the world to me. I wish you all the best for your pregnancy! Let your neph know you are pregnant ASAP so that he/she can help you track your IGAN more closely and head off any problems if they arise. Cheers! --Dave To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ To unsubcribe via email, iga-nephropathy-unsubscribe Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: http://www.igan.ca/id62.htm Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2004 Report Share Posted November 6, 2004 Thanks . The first trimester was especially nerveracking considering that with my last pregnancy I lost the baby at 9 weeks. Things are going ok so far with this pregnancy, so I'm keeping my fingers crossed. > Hi Jennie, > > Congratulations to you too!!! How exciting to be expecting such a little > blessing. I hope you are feeling good now that you have passed the first > trimester. > > Pregnancy and new babies and raising a family are such exciting times in a > marriage. > > > > In a message dated 11/5/2004 5:13:47 AM Pacific Standard Time, > jennieeb@y... writes: > > > Congrats, Shara!! How far along are you? I'm currently 13 weeks pregnant. > > It's such an exciting, but nerveracking time, isn't it?!?! > > > > On the subject of the lisinopril, your neph may do what mine did and put you > > onto aldomet. I was told that that's pretty much the safest antihypertensive > > drug to be on while pregnant. Definetly see your neph ASAP, as, more than > > likely, you will need to be on some sort of antihypertensive agent if the > > lisinopril was to control your blood pressure as well as to protect your kidneys. > > > > Anyway, all the best. > > > > Jennie > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2004 Report Share Posted November 7, 2004 My goodness Jennie! I imagine the first trimester was stressful knowing you lost your last pregnancy at 9 weeks. I am so sorry you had to go through that. I'm glad things are going well with this one. Are you being monitored by a high risk OB-Gyn? Take care of yourself! In a message dated 11/6/2004 9:05:45 PM Eastern Standard Time, " Jennie " writes: > > > >Thanks . The first trimester was especially nerveracking >considering that with my last pregnancy I lost the baby at 9 weeks. >Things are going ok so far with this pregnancy, so I'm keeping my >fingers crossed. > > >> Hi Jennie, >> >> Congratulations to you too!!! Â How exciting to be expecting such a >little >> blessing. Â I hope you are feeling good now that you have passed the >first >> trimester. >> >> Pregnancy and new babies and raising a family are such exciting >times in a >> marriage. >> >> >> >> In a message dated 11/5/2004 5:13:47 AM Pacific Standard Time, >> jennieeb@y... writes: >> >> > Congrats, Shara!! How far along are you? I'm currently 13 weeks >pregnant. >> > It's such an exciting, but nerveracking time, isn't it?!?! >> > >> > On the subject of the lisinopril, your neph may do what mine did >and put you >> > onto aldomet. I was told that that's pretty much the safest >antihypertensive >> > drug to be on while pregnant. Definetly see your neph ASAP, as, >more than >> > likely, you will need to be on some sort of antihypertensive >agent if the >> > lisinopril was to control your blood pressure as well as to >protect your kidneys. >> > >> > Anyway, all the best. >> > >> > Jennie >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2004 Report Share Posted November 7, 2004 Yes I am, & he's fantastic!! I also have to have regular appointments with my neph & also my endocrinologist, as I've also got diabetes. W4JC@... wrote:My goodness Jennie! I imagine the first trimester was stressful knowing you lost your last pregnancy at 9 weeks. I am so sorry you had to go through that. I'm glad things are going well with this one. Are you being monitored by a high risk OB-Gyn? Take care of yourself! In a message dated 11/6/2004 9:05:45 PM Eastern Standard Time, " Jennie " writes: > > > >Thanks . The first trimester was especially nerveracking >considering that with my last pregnancy I lost the baby at 9 weeks. >Things are going ok so far with this pregnancy, so I'm keeping my >fingers crossed. > > >> Hi Jennie, >> >> Congratulations to you too!!! How exciting to be expecting such a >little >> blessing. I hope you are feeling good now that you have passed the >first >> trimester. >> >> Pregnancy and new babies and raising a family are such exciting >times in a >> marriage. >> >> >> >> In a message dated 11/5/2004 5:13:47 AM Pacific Standard Time, >> jennieeb@y... writes: >> >> > Congrats, Shara!! How far along are you? I'm currently 13 weeks >pregnant. >> > It's such an exciting, but nerveracking time, isn't it?!?! >> > >> > On the subject of the lisinopril, your neph may do what mine did >and put you >> > onto aldomet. I was told that that's pretty much the safest >antihypertensive >> > drug to be on while pregnant. Definetly see your neph ASAP, as, >more than >> > likely, you will need to be on some sort of antihypertensive >agent if the >> > lisinopril was to control your blood pressure as well as to >protect your kidneys. >> > >> > Anyway, all the best. >> > >> > Jennie >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2004 Report Share Posted November 8, 2004 Hi Shara, Pre-eclampsia is a completely different thing that having reduced renal sufficiency. I would caution you to not start a high protein diet without the expressed consent of your Nephrologist though. I am not a doctor nor a dietitian, but I do know that high protein diets are harder on your kidneys. I realize you already said you were going to ask your Neph about it, but I just wanted to again encourage that you not make any dietary changes before checking with him first. Take care of yourself! In a message dated 11/8/2004 2:29:48 PM Pacific Standard Time, sharareece@... writes: > Jennie, > I am just now starting my 6th week. I'm nervous about getting > through these first weeks. Just trying to enjoy it. I've been told > that you start showing earlier with the second, so I am trying to > eat plenty healthy so that I don't gain too quickly or vice versa. > One thing though, I had asked some other women (withouth CKD) about > how to prevent pre-eclampsia (high bp in the end of pregnancy) and > they said that there is a high protein diet out there that has > proven to prevent that. I'd like to try to prevent that this time > around, but is it safe for me to be on a high protein diet? I plan > on asking my neph about this at our appointment, but I thought I'd > see if anyone had any input. - Shara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2004 Report Share Posted November 8, 2004 Jennie, I am just now starting my 6th week. I'm nervous about getting through these first weeks. Just trying to enjoy it. I've been told that you start showing earlier with the second, so I am trying to eat plenty healthy so that I don't gain too quickly or vice versa. One thing though, I had asked some other women (withouth CKD) about how to prevent pre-eclampsia (high bp in the end of pregnancy) and they said that there is a high protein diet out there that has proven to prevent that. I'd like to try to prevent that this time around, but is it safe for me to be on a high protein diet? I plan on asking my neph about this at our appointment, but I thought I'd see if anyone had any input. - Shara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2004 Report Share Posted November 8, 2004 I sure wouldn't recommend adopting any diet based on hearsay, that's for sure, especially when there's a baby at stake! Pierre Re: Re: Pregnant > > Hi Shara, > > Pre-eclampsia is a completely different thing that having reduced renal > sufficiency. I would caution you to not start a high protein diet without the > expressed consent of your Nephrologist though. I am not a doctor nor a dietitian, > but I do know that high protein diets are harder on your kidneys. I realize > you already said you were going to ask your Neph about it, but I just wanted > to again encourage that you not make any dietary changes before checking with > him first. > > Take care of yourself! > > > > In a message dated 11/8/2004 2:29:48 PM Pacific Standard Time, > sharareece@... writes: > > > Jennie, > > I am just now starting my 6th week. I'm nervous about getting > > through these first weeks. Just trying to enjoy it. I've been told > > that you start showing earlier with the second, so I am trying to > > eat plenty healthy so that I don't gain too quickly or vice versa. > > One thing though, I had asked some other women (withouth CKD) about > > how to prevent pre-eclampsia (high bp in the end of pregnancy) and > > they said that there is a high protein diet out there that has > > proven to prevent that. I'd like to try to prevent that this time > > around, but is it safe for me to be on a high protein diet? I plan > > on asking my neph about this at our appointment, but I thought I'd > > see if anyone had any input. - Shara > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2004 Report Share Posted November 9, 2004 Shara.. I would like to add my congrats and blessings. Re. high protein .. my Neph says that the diet does not effect the spillage.... I have a different opinion and have done an experiment where one month I ate <40 grams of protein each day and got a result of around 630mg. The next month I ate a bit more protein, probably 60-80mg.... and my result was double... And the Neph. I saw at Columbia said.... " it's worth being on a low protein diet even if there is a chance it helps, although it's not proven. " so.. there is my 2 cents worth Ali Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2004 Report Share Posted November 9, 2004 No, I wont be changing anything without the care and approval of a doctor, I just wanted to see what anyone had to say about that particular type of diet. We often talk here about having high protein levels in our urine and how that isn't a good thing so I wanted to see how that actually related to the amount of protein we eat. During pregnancy is the only time I have had noticeable amounts of protein in my urine, but that is almost a normal thing for pregnant women. Thank you for the concern. - Shara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2004 Report Share Posted November 9, 2004 No, I wont be changing anything without the care and approval of a doctor, I just wanted to see what anyone had to say about that particular type of diet. We often talk here about having high protein levels in our urine and how that isn't a good thing so I wanted to see how that actually related to the amount of protein we eat. During pregnancy is the only time I have had noticeable amounts of protein in my urine, but that is almost a normal thing for pregnant women. Thank you for the concern. - Shara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2004 Report Share Posted November 11, 2004 Thank you Ali. I would think the amount you eat would affect the amount you spill, but hey...that's just me and I'm not an MD... - Shara > Shara.. > > I would like to add my congrats and blessings. > > Re. high protein .. my Neph says that the diet does not effect the > spillage.... I have a different opinion and have done an experiment where one month I > ate <40 grams of protein each day and got a result of around 630mg. The next > month I ate a bit more protein, probably 60-80mg.... and my result was double... > > And the Neph. I saw at Columbia said.... " it's worth being on a low protein > diet even if there is a chance it helps, although it's not proven. " > > so.. there is my 2 cents worth > > Ali > > > Quote Link to comment Share on other sites More sharing options...
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