Re: Off Prednisone and still grossly fatigued

[Guest guest]

Hi Gloria,

Anemia is the biggest cause for the fatique. Talk to your doctor

about more regular Procrit shots. Before I started dialysis my Neph

gave me 10,000 units every week. Smaller doses weekly rather than

one large one a month may help.

Jeff

>

> Hi everyone,

>

> Has anyone experienced this effect? I took prednisone for 7 months

> and then tapered to 0 by Oct. 5. I blamed prednisone for my

fatigue

> in addition to the other side effects: depression, purple spots.

> Since I have been off prednisone for a month now, the depression is

> gone as well as the purple spots. The fatigue remains and is

getting

> unbearable. The smallest chore requires a rest period before I can

> start the next one.

>

> I am only on bp meds; atenolol, lisinopril, HCT only 2-1/2 mg

daily.

> I take Procrit by injection, 40,000 units monthly for anemia, the

> last injection was 2-1/2 weeks ago. The fatigue has never

> stopped.....will it ever?

>

> Thanks for any input.

>

> Gloria

[Guest guest]

Thanks for the advice, Jeff. My last blood analysis showed my

hematacrit at 35.7, but the team CNP gave me the shot anyway. The

problem for my having it every week is that my insurance carrier

requires the analysis before the epo and they won't pay for it if the

crit is 36 or higher. This is the highest it has been in a year and

just maybe the epo is now working. I will ask my hemotologist about

weekly shots on my next visit. Thanks again. Gloria

> >

> > Hi everyone,

> >

> > Has anyone experienced this effect? I took prednisone for 7

months

> > and then tapered to 0 by Oct. 5. I blamed prednisone for my

> fatigue

> > in addition to the other side effects: depression, purple

spots.

> > Since I have been off prednisone for a month now, the depression

is

> > gone as well as the purple spots. The fatigue remains and is

> getting

> > unbearable. The smallest chore requires a rest period before I

can

> > start the next one.

> >

> > I am only on bp meds; atenolol, lisinopril, HCT only 2-1/2 mg

> daily.

> > I take Procrit by injection, 40,000 units monthly for anemia, the

> > last injection was 2-1/2 weeks ago. The fatigue has never

> > stopped.....will it ever?

> >

> > Thanks for any input.

> >

> > Gloria

[Guest guest]

Hi Gloria,

What do your hematocrit and hemoglobin look like? Generally, fatigue is most

commonly related to anemia. If those numbers are off, perhaps your iron stores

are low or your Procrit dose needs tweaking.

Cy

Gloria wrote:

Hi everyone,

Has anyone experienced this effect? I took prednisone for 7 months

and then tapered to 0 by Oct. 5. I blamed prednisone for my fatigue

in addition to the other side effects: depression, purple spots.

Since I have been off prednisone for a month now, the depression is

gone as well as the purple spots. The fatigue remains and is getting

unbearable. The smallest chore requires a rest period before I can

start the next one.

I am only on bp meds; atenolol, lisinopril, HCT only 2-1/2 mg daily.

I take Procrit by injection, 40,000 units monthly for anemia, the

last injection was 2-1/2 weeks ago. The fatigue has never

stopped.....will it ever?

Thanks for any input.

Gloria

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[Guest guest]

Gloira,

this may sound silly, but are you getting enough calories in the day? I have

trouble making

sure that I eat enough, and can tell it causes trouble for me sometimes.

sfbay

[Guest guest]

Hi Gloria,

In my mind, Procrit is really a miracle drug. It really helped so much with

the fatigue. I went to every other week, and that helped me. You might want

to inquire about that instead. I hope it gets your hematocrit up a little bit

more for you.

In a message dated 11/4/2004 10:35:12 AM Pacific Standard Time,

gt7082002@... writes:

> Thanks for the advice, Jeff. My last blood analysis showed my

> hematacrit at 35.7, but the team CNP gave me the shot anyway. The

> problem for my having it every week is that my insurance carrier

> requires the analysis before the epo and they won't pay for it if the

> crit is 36 or higher. This is the highest it has been in a year and

> just maybe the epo is now working. I will ask my hemotologist about

> weekly shots on my next visit. Thanks again. Gloria

[Guest guest]

Now that's a possibility, . My appetite is terrible, although I

try to eat enough. My weight is staying stable at 125, up 9 lbs. in

a year; that seems OK for 5'7. I have to cook for my husband so

that's a plus and he nags me to eat, which is hard to ignore. Thanks

for your interest. Gloria

>

> Gloira,

> this may sound silly, but are you getting enough calories in the

day? I have trouble making

> sure that I eat enough, and can tell it causes trouble for me

sometimes.

>

> sfbay

[Guest guest]

Hi Gloria, Another possibility regarding fatigue is the meds you are on, and

their dosages. How much Atenolol are you on? Beta blockers such as Atenolol,

and some ACE i such as Lisinopril) can have a side effect of fatigue. (Usually

more so with the Atenolol than Lisinopril). I had to split my dose of

Lisinopril because of significant fatigue, (15mg in the morning, 20 in the eve)

That seems to help somewhat, but for some reason all of these drugs seem to

cause somnolence with me. (at least with the ACE, ARB and CellCept) If you are

on a moderate dose, may want to ask your neph if you could split the dose to see

if that would help. Take good care. Bonnie

Gloria wrote:

Now that's a possibility, . My appetite is terrible, although I

try to eat enough. My weight is staying stable at 125, up 9 lbs. in

a year; that seems OK for 5'7. I have to cook for my husband so

that's a plus and he nags me to eat, which is hard to ignore. Thanks

for your interest. Gloria

>

> Gloira,

> this may sound silly, but are you getting enough calories in the

day? I have trouble making

> sure that I eat enough, and can tell it causes trouble for me

sometimes.

>

> sfbay

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donations. If you would like to help, go to:

http://www.igan.ca/id62.htm

Thank you

[Guest guest]

>

>

> Hi everyone,

>

> Has anyone experienced this effect? I took prednisone for 7 months

> and then tapered to 0 by Oct. 5. I blamed prednisone for my fatigue

> in addition to the other side effects: depression, purple spots.

> Since I have been off prednisone for a month now, the depression is

> gone as well as the purple spots. The fatigue remains and is

getting

> unbearable. The smallest chore requires a rest period before I can

> start the next one.

>

> I am only on bp meds; atenolol, lisinopril, HCT only 2-1/2 mg

daily.

> I take Procrit by injection, 40,000 units monthly for anemia, the

> last injection was 2-1/2 weeks ago. The fatigue has never

> stopped.....will it ever?

>

> Thanks for any input.

>

> Gloria

>

>

>

>

>

>

> To edit your settings for the group, go to our Yahoo Group

> home page:

> http://groups.yahoo.com/group/iga-nephropathy/

>

> To unsubcribe via email,

> iga-nephropathy-unsubscribe

> Visit our companion website at www.igan.ca. The site is entirely

supported by donations. If you would like to help, go to:

> http://www.igan.ca/id62.htm

>

> Thank you

>