Guest guest Posted October 20, 2004 Report Share Posted October 20, 2004 I hope it is ok to forward this site. It describes so many people's situations with chronic illness. http://www.butyoudontlooksick.com/spoons.htm , Mom to Rob Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2004 Report Share Posted October 20, 2004 thank you so much for posting that! It does say it all and more....I think I'm going to send that to some family members who just can't grasp the idea that I'm ill because I don't " look " ill. Somedays I don't feel ill and I use those days to their fullest, but days like today where I'm stressed out, in pain, feeling lousy and it's now 9:30pm and I realize I have done absolutely nothing all day except get dressed....well it would be nice if they could grasp the why of it. Thank you again for a great website, Amy G. Re: Spoon story > > > I hope it is ok to forward this site. It describes so many people's > situations with chronic illness. > > http://www.butyoudontlooksick.com/spoons.htm > > , Mom to Rob > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2004 Report Share Posted October 20, 2004 Wow , That is a great story. What a creative idea to have others understand what it is like to have a chronic illness. Thanks for sharing this! In a message dated 10/20/2004 11:29:26 PM Eastern Daylight Time, snooksmama@... writes: > > >I hope it is ok to forward this site. It describes so many people's >situations with chronic illness. > >http://www.butyoudontlooksick.com/spoons.htm > >, Mom to Rob > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2004 Report Share Posted October 20, 2004 Thanks so much, for the website. I have been very active myself, but the whole thing about lack of choices and lack of freedom the website described really struck home for me. I think this is what upsets me the most - the lack of choice and freedom. I'm chained to my time schedule b/c of my pills. I have to eat all the time because of my pills (and I hardly ever used to eat before). Travel is such a hassle b/c of my pills. I used to be able to eat whatever I want - and now I have to be careful b/c of the sodium. And presently, I cannot choose to have a family if I want one b/c I am physically unable to do so. As a result, I encourage my sister and every other young female to have kids while they can and not wait too long - before that choice gets taken away as abruptly as mine. Sophia > > I hope it is ok to forward this site. It describes so many people's > situations with chronic illness. > > http://www.butyoudontlooksick.com/spoons.htm > > , Mom to Rob > > Quote Link to comment Share on other sites More sharing options...
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