Guest guest Posted August 29, 2005 Report Share Posted August 29, 2005 I forgot to mention the antibody tests. While you are getting the frees, also request the 2 thyroid antibody tests -- also very important! Marlena --- wrote: > Many many thanks Marlena. I'll have a look at the > book list now. I also found something else via the > group from the Wellness Medical Clinic that was > useful. It's so encouraging to even have a clue > what the problem is! At least it's a step in the > right direction! I'm going to ask for the Free T3 > and Free T4 tests do be done:-))) > > I'll be back as soon as I've got the test reports. > In the meantime I'll keep an eye on the group (I've > got the posts coming through as e-mails), and wish > everyone all the best with their treatment. > > Love Chris > Re: test > > results -- need ideas > > > > > > > Hi Topper, > > > Yes, I completely understand. This is an > obscure > > test > > > and no one is familiar with it, so it's hard > for > > you > > > to comment! > > > > > > All I can say is that it reflects how I feel > > more than > > > the blood tests did that I took in June when > I > > was on > > > 2.5 grains. TSH was 0.011 and frees were > both > > just > > > under the mid-range (and I still felt > terrible). > > T4 > > > didn't look higher (in its own range) than > my T3 > > so I > > > didn't think I was having a conversion > problem, > > I just > > > thought I needed a higher dosage! > > > > > > I need to find out the explanation of why my > > doctor > > > says this particular test measures how much > > hormone > > > the body is actually using -- how much the > > tissues are > > > actually getting affected by, regardless of > how > > much > > > is available in the blood. Some people can't > > fully use > > > what is available in the blood (for various > > reasons) > > > -- so for that reason, the free's seem the > best > > out of > > > all the blood tests but still not always > > conclusive, > > > IMO! > > > > > > Marlena > > > > > > --- topper2@... wrote: > > > > > > > My problem is that I've never seen > anything on > > urine > > > > testing for thyroid > > > > hormones. Since these do not specify that > they > > are > > > > Free Ts we have to > > > > assume that they are totals. Which means > you > > don't > > > > know how much hormone > > > > is available for use. Your T4 here is > showing > > very > > > > high... but how much > > > > of it is bound and unusable? If a lot of > it is > > > > bound, for whatever > > > > reason, then there isn't enough available > for > > > > conversion, which could be > > > > why the T3 is so low in it's range.... > Then, > > if we > > > > continue to assume > > > > that these are totals, your available T3 > is > > actually > > > > below range??? > > > > > > > > I can't say that the urine tests are more, > or > > less, > > > > accurate than the > > > > blood tests, we just don't know for sure > what > > was > > > > tested (total or free, > > > > or if they can even differentiate between > free > > and > > > > bound hormone) and how > > > > those numbers, in their ranges, compare to > > what > > > > we've learned about blood > > > > levels and ranges. > > > > > > > > We know that you aren't feeling as well as > you > > > > should... but we don't > > > > know why, yet.... Using a totally > different > > testing > > > > method leaves us in > > > > the dark... we have no comparison, no > > experience, to > > > > know how to > > > > interpret them. > > > > > > > > Just my thoughts..... > > > > > > > > Topper () > > > > > > > > On Fri, 26 Aug 2005 22:27:48 -0700 (PDT) > > Marlena > > > > writes: > > > > Ok y'all, so I finally got my most recent > > thyroid > > > > results in but I'm not sure where to go > from > > here. > > > > My > > > > doctor is pretty holistic and uses a more > > obsure > > > > test > > > > from a lab called Vitamin Diagnostics. It > is a > > 24 hr > > > > urine collection. Supposedly it tests the > > amount of > > > > hormone your body is actually using ... > anyway > > here > > > > are my results: > > > > > > > > 11/2004 (before treatment): > > > > T3 621 range 800-1800 > > > > T4 1698 range 1800-3000 > > > > > > > > 7/05 (since treatment ... it takes a month > to > > get > > > > the > > > > results!) > > > > T3 894 range 800-1800 > > > > T4 3124 range 1800-3000 > > > > > > > > So it looks like I'm not converting well. > Now > > I'm on > > > > 3 > > > > grains of Armour plus 3.5 mcg sustained > > release T3. > > > > (I > > > > was actually taking 3 1/4 grains of Armour > and > > 25mcg > > > > of SR T3 at the time of the test (which > was > > over a > > > > month ago), but soon after felt so bad and > > > > eventually > > > > overstimulated that I cut way back) ... I > know > > my > > > > consistency hasn't been that good, but I > had > > to cut > > > > back -- the T3 doesn't have such a long > life > > so it > > > > seemed ok to me plus the decrease in T4 > was > > probably > > > > good ... I'm also working with a medical > > intuitive > > > > who > > > > is helping me to figure things out a bit > -- > > she told > > > > me that the 25 mcg was way too high (which > > > > correlated > > > > with my symptoms -- which for me was a > > feverish > > > > feeling and ultra fatigue, fast heartbeat > -- > > not > > > > extra > > > > energy that's for sure). This doesn't make > > sense > > > > with > > > > my low T3 test result. It would seem that > my > > body > > > > would want more T3... from my results I'm > > guessing > > > > that my original thyroid production is > down to > > zero > > > > or > > > > almost zero (my last TSH while on 2.5 > grains > > was > > > > .011) > > > > ... I'm just so frustrated ... I felt > better > > on no > > > > medication whatsoever! And it's scary to > me to > > be > > > > completely dependent on something that > isn't > > even > > > > working for me! I've done all the research > and > > been > > > > the model patient -- doing everything I'm > > supposed > > > > to > > > > be doing ... I really don't know where to > go > > from > > > > here. > > > > I do all the things one is supposed to do > to > > enhance > > > > conversion too ... > > > > > > > > My doctor is not telling me anything > > conclusive > > > > about > > > > where I should go from here ... > > > > > > > > The weird thing is that I feel worse than > > before I > > > > started treatment ... and my latest > adrenal > > test > > > > results seem to show that my adrenals are > > actually > > > > doing ok (although this was an ACTH > > stimulation test > > > > to check adrenal reserve and my doctor has > to > > talk > > > > to > > > > the lab to get a conclusive interpretation > of > > the 2 > > > > 24 > > > > hr urine collection results which tests a > > breakdown > > > > of > > > > all the adrenal hormones... and he won't > be > > able to > > > > do > > > > this for another 2 weeks!). I'm really > > confused as > > > > to > > > > why I would feel worse [for 8 months now > -- > > I'm > > > > going > > > > crazy -- things were pretty bad before > > treatment for > > > > 10+ years but I was still functioning -- > now > > I'm not > > > > nearly as functional as before ...] > > > > > > > > Every adrenal hormone in the test > increased by > > a > > > > good > > > > amount after the stimulation -- which it's > > supposed > > > > to > > > > do -- except the aldosterone. It was a > good > > number > > > > to > > > > begin with but then it went down just a > little > > after > > > > the stimulation. It is supposed to go up > ... > > but > > > > what > > > > I don't understand is that apparently the > more > > salt > > > > you eat, the lower the aldosterone ... > > aldosterone's > > > > job is to keep salt in your body, so the > more > > you > > > > eat, > > > > the less is needed. Therefore I would > think > > that > > > > having the surge of cortisol after the > test > > would > > > > increase salt retention and therefore > lower > > > > aldosterone -- like happened with me -- > > however it > > > > says that it is supposed to increase so > ... > > does > > > > anyone know about this? > > > > > > > > I know I'm writing a letter that will be > > difficult > > > > to > > > > respond to -- sorry, I just need to vent > ... > > > > > > > > Marlena > > > > > > > > > > > > > > > > > > ____________________________________________________ > > > Start your day with Yahoo! - make it your > home > > page > > > http://www.yahoo.com/r/hs > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2005 Report Share Posted August 29, 2005 I forgot to mention the antibody tests. While you are getting the frees, also request the 2 thyroid antibody tests -- also very important! Marlena --- wrote: > Many many thanks Marlena. I'll have a look at the > book list now. I also found something else via the > group from the Wellness Medical Clinic that was > useful. It's so encouraging to even have a clue > what the problem is! At least it's a step in the > right direction! I'm going to ask for the Free T3 > and Free T4 tests do be done:-))) > > I'll be back as soon as I've got the test reports. > In the meantime I'll keep an eye on the group (I've > got the posts coming through as e-mails), and wish > everyone all the best with their treatment. > > Love Chris > Re: test > > results -- need ideas > > > > > > > Hi Topper, > > > Yes, I completely understand. This is an > obscure > > test > > > and no one is familiar with it, so it's hard > for > > you > > > to comment! > > > > > > All I can say is that it reflects how I feel > > more than > > > the blood tests did that I took in June when > I > > was on > > > 2.5 grains. TSH was 0.011 and frees were > both > > just > > > under the mid-range (and I still felt > terrible). > > T4 > > > didn't look higher (in its own range) than > my T3 > > so I > > > didn't think I was having a conversion > problem, > > I just > > > thought I needed a higher dosage! > > > > > > I need to find out the explanation of why my > > doctor > > > says this particular test measures how much > > hormone > > > the body is actually using -- how much the > > tissues are > > > actually getting affected by, regardless of > how > > much > > > is available in the blood. Some people can't > > fully use > > > what is available in the blood (for various > > reasons) > > > -- so for that reason, the free's seem the > best > > out of > > > all the blood tests but still not always > > conclusive, > > > IMO! > > > > > > Marlena > > > > > > --- topper2@... wrote: > > > > > > > My problem is that I've never seen > anything on > > urine > > > > testing for thyroid > > > > hormones. Since these do not specify that > they > > are > > > > Free Ts we have to > > > > assume that they are totals. Which means > you > > don't > > > > know how much hormone > > > > is available for use. Your T4 here is > showing > > very > > > > high... but how much > > > > of it is bound and unusable? If a lot of > it is > > > > bound, for whatever > > > > reason, then there isn't enough available > for > > > > conversion, which could be > > > > why the T3 is so low in it's range.... > Then, > > if we > > > > continue to assume > > > > that these are totals, your available T3 > is > > actually > > > > below range??? > > > > > > > > I can't say that the urine tests are more, > or > > less, > > > > accurate than the > > > > blood tests, we just don't know for sure > what > > was > > > > tested (total or free, > > > > or if they can even differentiate between > free > > and > > > > bound hormone) and how > > > > those numbers, in their ranges, compare to > > what > > > > we've learned about blood > > > > levels and ranges. > > > > > > > > We know that you aren't feeling as well as > you > > > > should... but we don't > > > > know why, yet.... Using a totally > different > > testing > > > > method leaves us in > > > > the dark... we have no comparison, no > > experience, to > > > > know how to > > > > interpret them. > > > > > > > > Just my thoughts..... > > > > > > > > Topper () > > > > > > > > On Fri, 26 Aug 2005 22:27:48 -0700 (PDT) > > Marlena > > > > writes: > > > > Ok y'all, so I finally got my most recent > > thyroid > > > > results in but I'm not sure where to go > from > > here. > > > > My > > > > doctor is pretty holistic and uses a more > > obsure > > > > test > > > > from a lab called Vitamin Diagnostics. It > is a > > 24 hr > > > > urine collection. Supposedly it tests the > > amount of > > > > hormone your body is actually using ... > anyway > > here > > > > are my results: > > > > > > > > 11/2004 (before treatment): > > > > T3 621 range 800-1800 > > > > T4 1698 range 1800-3000 > > > > > > > > 7/05 (since treatment ... it takes a month > to > > get > > > > the > > > > results!) > > > > T3 894 range 800-1800 > > > > T4 3124 range 1800-3000 > > > > > > > > So it looks like I'm not converting well. > Now > > I'm on > > > > 3 > > > > grains of Armour plus 3.5 mcg sustained > > release T3. > > > > (I > > > > was actually taking 3 1/4 grains of Armour > and > > 25mcg > > > > of SR T3 at the time of the test (which > was > > over a > > > > month ago), but soon after felt so bad and > > > > eventually > > > > overstimulated that I cut way back) ... I > know > > my > > > > consistency hasn't been that good, but I > had > > to cut > > > > back -- the T3 doesn't have such a long > life > > so it > > > > seemed ok to me plus the decrease in T4 > was > > probably > > > > good ... I'm also working with a medical > > intuitive > > > > who > > > > is helping me to figure things out a bit > -- > > she told > > > > me that the 25 mcg was way too high (which > > > > correlated > > > > with my symptoms -- which for me was a > > feverish > > > > feeling and ultra fatigue, fast heartbeat > -- > > not > > > > extra > > > > energy that's for sure). This doesn't make > > sense > > > > with > > > > my low T3 test result. It would seem that > my > > body > > > > would want more T3... from my results I'm > > guessing > > > > that my original thyroid production is > down to > > zero > > > > or > > > > almost zero (my last TSH while on 2.5 > grains > > was > > > > .011) > > > > ... I'm just so frustrated ... I felt > better > > on no > > > > medication whatsoever! And it's scary to > me to > > be > > > > completely dependent on something that > isn't > > even > > > > working for me! I've done all the research > and > > been > > > > the model patient -- doing everything I'm > > supposed > > > > to > > > > be doing ... I really don't know where to > go > > from > > > > here. > > > > I do all the things one is supposed to do > to > > enhance > > > > conversion too ... > > > > > > > > My doctor is not telling me anything > > conclusive > > > > about > > > > where I should go from here ... > > > > > > > > The weird thing is that I feel worse than > > before I > > > > started treatment ... and my latest > adrenal > > test > > > > results seem to show that my adrenals are > > actually > > > > doing ok (although this was an ACTH > > stimulation test > > > > to check adrenal reserve and my doctor has > to > > talk > > > > to > > > > the lab to get a conclusive interpretation > of > > the 2 > > > > 24 > > > > hr urine collection results which tests a > > breakdown > > > > of > > > > all the adrenal hormones... and he won't > be > > able to > > > > do > > > > this for another 2 weeks!). I'm really > > confused as > > > > to > > > > why I would feel worse [for 8 months now > -- > > I'm > > > > going > > > > crazy -- things were pretty bad before > > treatment for > > > > 10+ years but I was still functioning -- > now > > I'm not > > > > nearly as functional as before ...] > > > > > > > > Every adrenal hormone in the test > increased by > > a > > > > good > > > > amount after the stimulation -- which it's > > supposed > > > > to > > > > do -- except the aldosterone. It was a > good > > number > > > > to > > > > begin with but then it went down just a > little > > after > > > > the stimulation. It is supposed to go up > ... > > but > > > > what > > > > I don't understand is that apparently the > more > > salt > > > > you eat, the lower the aldosterone ... > > aldosterone's > > > > job is to keep salt in your body, so the > more > > you > > > > eat, > > > > the less is needed. Therefore I would > think > > that > > > > having the surge of cortisol after the > test > > would > > > > increase salt retention and therefore > lower > > > > aldosterone -- like happened with me -- > > however it > > > > says that it is supposed to increase so > ... > > does > > > > anyone know about this? > > > > > > > > I know I'm writing a letter that will be > > difficult > > > > to > > > > respond to -- sorry, I just need to vent > ... > > > > > > > > Marlena > > > > > > > > > > > > > > > > > > ____________________________________________________ > > > Start your day with Yahoo! - make it your > home > > page > > > http://www.yahoo.com/r/hs > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2005 Report Share Posted August 29, 2005 I forgot to mention the antibody tests. While you are getting the frees, also request the 2 thyroid antibody tests -- also very important! Marlena --- wrote: > Many many thanks Marlena. I'll have a look at the > book list now. I also found something else via the > group from the Wellness Medical Clinic that was > useful. It's so encouraging to even have a clue > what the problem is! At least it's a step in the > right direction! I'm going to ask for the Free T3 > and Free T4 tests do be done:-))) > > I'll be back as soon as I've got the test reports. > In the meantime I'll keep an eye on the group (I've > got the posts coming through as e-mails), and wish > everyone all the best with their treatment. > > Love Chris > Re: test > > results -- need ideas > > > > > > > Hi Topper, > > > Yes, I completely understand. This is an > obscure > > test > > > and no one is familiar with it, so it's hard > for > > you > > > to comment! > > > > > > All I can say is that it reflects how I feel > > more than > > > the blood tests did that I took in June when > I > > was on > > > 2.5 grains. TSH was 0.011 and frees were > both > > just > > > under the mid-range (and I still felt > terrible). > > T4 > > > didn't look higher (in its own range) than > my T3 > > so I > > > didn't think I was having a conversion > problem, > > I just > > > thought I needed a higher dosage! > > > > > > I need to find out the explanation of why my > > doctor > > > says this particular test measures how much > > hormone > > > the body is actually using -- how much the > > tissues are > > > actually getting affected by, regardless of > how > > much > > > is available in the blood. Some people can't > > fully use > > > what is available in the blood (for various > > reasons) > > > -- so for that reason, the free's seem the > best > > out of > > > all the blood tests but still not always > > conclusive, > > > IMO! > > > > > > Marlena > > > > > > --- topper2@... wrote: > > > > > > > My problem is that I've never seen > anything on > > urine > > > > testing for thyroid > > > > hormones. Since these do not specify that > they > > are > > > > Free Ts we have to > > > > assume that they are totals. Which means > you > > don't > > > > know how much hormone > > > > is available for use. Your T4 here is > showing > > very > > > > high... but how much > > > > of it is bound and unusable? If a lot of > it is > > > > bound, for whatever > > > > reason, then there isn't enough available > for > > > > conversion, which could be > > > > why the T3 is so low in it's range.... > Then, > > if we > > > > continue to assume > > > > that these are totals, your available T3 > is > > actually > > > > below range??? > > > > > > > > I can't say that the urine tests are more, > or > > less, > > > > accurate than the > > > > blood tests, we just don't know for sure > what > > was > > > > tested (total or free, > > > > or if they can even differentiate between > free > > and > > > > bound hormone) and how > > > > those numbers, in their ranges, compare to > > what > > > > we've learned about blood > > > > levels and ranges. > > > > > > > > We know that you aren't feeling as well as > you > > > > should... but we don't > > > > know why, yet.... Using a totally > different > > testing > > > > method leaves us in > > > > the dark... we have no comparison, no > > experience, to > > > > know how to > > > > interpret them. > > > > > > > > Just my thoughts..... > > > > > > > > Topper () > > > > > > > > On Fri, 26 Aug 2005 22:27:48 -0700 (PDT) > > Marlena > > > > writes: > > > > Ok y'all, so I finally got my most recent > > thyroid > > > > results in but I'm not sure where to go > from > > here. > > > > My > > > > doctor is pretty holistic and uses a more > > obsure > > > > test > > > > from a lab called Vitamin Diagnostics. It > is a > > 24 hr > > > > urine collection. Supposedly it tests the > > amount of > > > > hormone your body is actually using ... > anyway > > here > > > > are my results: > > > > > > > > 11/2004 (before treatment): > > > > T3 621 range 800-1800 > > > > T4 1698 range 1800-3000 > > > > > > > > 7/05 (since treatment ... it takes a month > to > > get > > > > the > > > > results!) > > > > T3 894 range 800-1800 > > > > T4 3124 range 1800-3000 > > > > > > > > So it looks like I'm not converting well. > Now > > I'm on > > > > 3 > > > > grains of Armour plus 3.5 mcg sustained > > release T3. > > > > (I > > > > was actually taking 3 1/4 grains of Armour > and > > 25mcg > > > > of SR T3 at the time of the test (which > was > > over a > > > > month ago), but soon after felt so bad and > > > > eventually > > > > overstimulated that I cut way back) ... I > know > > my > > > > consistency hasn't been that good, but I > had > > to cut > > > > back -- the T3 doesn't have such a long > life > > so it > > > > seemed ok to me plus the decrease in T4 > was > > probably > > > > good ... I'm also working with a medical > > intuitive > > > > who > > > > is helping me to figure things out a bit > -- > > she told > > > > me that the 25 mcg was way too high (which > > > > correlated > > > > with my symptoms -- which for me was a > > feverish > > > > feeling and ultra fatigue, fast heartbeat > -- > > not > > > > extra > > > > energy that's for sure). This doesn't make > > sense > > > > with > > > > my low T3 test result. It would seem that > my > > body > > > > would want more T3... from my results I'm > > guessing > > > > that my original thyroid production is > down to > > zero > > > > or > > > > almost zero (my last TSH while on 2.5 > grains > > was > > > > .011) > > > > ... I'm just so frustrated ... I felt > better > > on no > > > > medication whatsoever! And it's scary to > me to > > be > > > > completely dependent on something that > isn't > > even > > > > working for me! I've done all the research > and > > been > > > > the model patient -- doing everything I'm > > supposed > > > > to > > > > be doing ... I really don't know where to > go > > from > > > > here. > > > > I do all the things one is supposed to do > to > > enhance > > > > conversion too ... > > > > > > > > My doctor is not telling me anything > > conclusive > > > > about > > > > where I should go from here ... > > > > > > > > The weird thing is that I feel worse than > > before I > > > > started treatment ... and my latest > adrenal > > test > > > > results seem to show that my adrenals are > > actually > > > > doing ok (although this was an ACTH > > stimulation test > > > > to check adrenal reserve and my doctor has > to > > talk > > > > to > > > > the lab to get a conclusive interpretation > of > > the 2 > > > > 24 > > > > hr urine collection results which tests a > > breakdown > > > > of > > > > all the adrenal hormones... and he won't > be > > able to > > > > do > > > > this for another 2 weeks!). I'm really > > confused as > > > > to > > > > why I would feel worse [for 8 months now > -- > > I'm > > > > going > > > > crazy -- things were pretty bad before > > treatment for > > > > 10+ years but I was still functioning -- > now > > I'm not > > > > nearly as functional as before ...] > > > > > > > > Every adrenal hormone in the test > increased by > > a > > > > good > > > > amount after the stimulation -- which it's > > supposed > > > > to > > > > do -- except the aldosterone. It was a > good > > number > > > > to > > > > begin with but then it went down just a > little > > after > > > > the stimulation. It is supposed to go up > ... > > but > > > > what > > > > I don't understand is that apparently the > more > > salt > > > > you eat, the lower the aldosterone ... > > aldosterone's > > > > job is to keep salt in your body, so the > more > > you > > > > eat, > > > > the less is needed. Therefore I would > think > > that > > > > having the surge of cortisol after the > test > > would > > > > increase salt retention and therefore > lower > > > > aldosterone -- like happened with me -- > > however it > > > > says that it is supposed to increase so > ... > > does > > > > anyone know about this? > > > > > > > > I know I'm writing a letter that will be > > difficult > > > > to > > > > respond to -- sorry, I just need to vent > ... > > > > > > > > Marlena > > > > > > > > > > > > > > > > > > ____________________________________________________ > > > Start your day with Yahoo! - make it your > home > > page > > > http://www.yahoo.com/r/hs > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2005 Report Share Posted August 30, 2005 Thanks Marlena - will do! I've just discovered that my doctor is on holiday (the nurse does the blood tests) so I suspect I'll get met with a big question mark when I ask for these, but at least I can ask the doctor the following week. It's great to have something to go on. I'm so encouraged - I'd been going on for a couple of years thinking there was nothing that could be done, with no idea of why I was getting these symptoms, and 'running down' so just to have hope is a wonderful turnaround:-)))) Many many thanks. Love Chris Re: test> > results -- need ideas> > > > > > > Hi Topper,> > > Yes, I completely understand. This is an> obscure> > test> > > and no one is familiar with it, so it's hard> for> > you> > > to comment!> > >> > > All I can say is that it reflects how I feel> > more than> > > the blood tests did that I took in June when> I> > was on> > > 2.5 grains. TSH was 0.011 and frees were> both> > just> > > under the mid-range (and I still felt> terrible).> > T4> > > didn't look higher (in its own range) than> my T3> > so I> > > didn't think I was having a conversion> problem,> > I just> > > thought I needed a higher dosage!> > >> > > I need to find out the explanation of why my> > doctor> > > says this particular test measures how much> > hormone> > > the body is actually using -- how much the> > tissues are> > > actually getting affected by, regardless of> how> > much> > > is available in the blood. Some people can't> > fully use> > > what is available in the blood (for various> > reasons)> > > -- so for that reason, the free's seem the> best> > out of> > > all the blood tests but still not always> > conclusive,> > > IMO!> > >> > > Marlena> > >> > > --- topper2@... wrote:> > >> > > > My problem is that I've never seen> anything on> > urine> > > > testing for thyroid> > > > hormones. Since these do not specify that> they> > are> > > > Free Ts we have to> > > > assume that they are totals. Which means> you> > don't> > > > know how much hormone> > > > is available for use. Your T4 here is> showing> > very> > > > high... but how much> > > > of it is bound and unusable? If a lot of> it is> > > > bound, for whatever> > > > reason, then there isn't enough available> for> > > > conversion, which could be> > > > why the T3 is so low in it's range....> Then,> > if we> > > > continue to assume> > > > that these are totals, your available T3> is> > actually> > > > below range???> > > >> > > > I can't say that the urine tests are more,> or> > less,> > > > accurate than the> > > > blood tests, we just don't know for sure> what> > was> > > > tested (total or free,> > > > or if they can even differentiate between> free> > and> > > > bound hormone) and how> > > > those numbers, in their ranges, compare to> > what> > > > we've learned about blood> > > > levels and ranges.> > > >> > > > We know that you aren't feeling as well as> you> > > > should... but we don't> > > > know why, yet.... Using a totally> different> > testing> > > > method leaves us in> > > > the dark... we have no comparison, no> > experience, to> > > > know how to> > > > interpret them.> > > >> > > > Just my thoughts.....> > > >> > > > Topper ()> > > >> > > > On Fri, 26 Aug 2005 22:27:48 -0700 (PDT)> > Marlena> > > > writes:> > > > Ok y'all, so I finally got my most recent> > thyroid> > > > results in but I'm not sure where to go> from> > here.> > > > My> > > > doctor is pretty holistic and uses a more> > obsure> > > > test> > > > from a lab called Vitamin Diagnostics. It> is a> > 24 hr> > > > urine collection. Supposedly it tests the> > amount of> > > > hormone your body is actually using ...> anyway> > here> > > > are my results:> > > >> > > > 11/2004 (before treatment):> > > > T3 621 range 800-1800> > > > T4 1698 range 1800-3000> > > >> > > > 7/05 (since treatment ... it takes a month> to> > get> > > > the> > > > results!)> > > > T3 894 range 800-1800> > > > T4 3124 range 1800-3000> > > >> > > > So it looks like I'm not converting well.> Now> > I'm on> > > > 3> > > > grains of Armour plus 3.5 mcg sustained> > release T3.> > > > (I> > > > was actually taking 3 1/4 grains of Armour> and> > 25mcg> > > > of SR T3 at the time of the test (which> was> > over a> > > > month ago), but soon after felt so bad and> > > > eventually> > > > overstimulated that I cut way back) ... I> know> > my> > > > consistency hasn't been that good, but I> had> > to cut> > > > back -- the T3 doesn't have such a long> life> > so it> > > > seemed ok to me plus the decrease in T4> was> > probably> > > > good ... I'm also working with a medical> > intuitive> > > > who> > > > is helping me to figure things out a bit> --> > she told> > > > me that the 25 mcg was way too high (which> > > > correlated> > > > with my symptoms -- which for me was a> > feverish> > > > feeling and ultra fatigue, fast heartbeat> --> > not> > > > extra> > > > energy that's for sure). This doesn't make> > sense> > > > with> > > > my low T3 test result. It would seem that> my> > body> > > > would want more T3... from my results I'm> > guessing> > > > that my original thyroid production is> down to> > zero> > > > or> > > > almost zero (my last TSH while on 2.5> grains> > was> > > > .011)> > > > ... I'm just so frustrated ... I felt> better> > on no> > > > medication whatsoever! And it's scary to> me to> > be> > > > completely dependent on something that> isn't> > even> > > > working for me! I've done all the research> and> > been> > > > the model patient -- doing everything I'm> > supposed> > > > to> > > > be doing ... I really don't know where to> go> > from> > > > here.> > > > I do all the things one is supposed to do> to> > enhance> > > > conversion too ...> > > >> > > > My doctor is not telling me anything> > conclusive> > > > about> > > > where I should go from here ...> > > >> > > > The weird thing is that I feel worse than> > before I> > > > started treatment ... and my latest> adrenal> > test> > > > results seem to show that my adrenals are> > actually> > > > doing ok (although this was an ACTH> > stimulation test> > > > to check adrenal reserve and my doctor has> to> > talk> > > > to> > > > the lab to get a conclusive interpretation> of> > the 2> > > > 24> > > > hr urine collection results which tests a> > breakdown> > > > of> > > > all the adrenal hormones... and he won't> be> > able to> > > > do> > > > this for another 2 weeks!). I'm really> > confused as> > > > to> > > > why I would feel worse [for 8 months now> --> > I'm> > > > going> > > > crazy -- things were pretty bad before> > treatment for> > > > 10+ years but I was still functioning --> now> > I'm not> > > > nearly as functional as before ...]> > > >> > > > Every adrenal hormone in the test> increased by> > a> > > > good> > > > amount after the stimulation -- which it's> > supposed> > > > to> > > > do -- except the aldosterone. It was a> good> > number> > > > to> > > > begin with but then it went down just a> little> > after> > > > the stimulation. It is supposed to go up> ...> > but> > > > what> > > > I don't understand is that apparently the> more> > salt> > > > you eat, the lower the aldosterone ...> > aldosterone's> > > > job is to keep salt in your body, so the> more> > you> > > > eat,> > > > the less is needed. Therefore I would> think> > that> > > > having the surge of cortisol after the> test> > would> > > > increase salt retention and therefore> lower> > > > aldosterone -- like happened with me --> > however it> > > > says that it is supposed to increase so> ...> > does> > > > anyone know about this?> > > >> > > > I know I'm writing a letter that will be> > difficult> > > > to> > > > respond to -- sorry, I just need to vent> ...> > > >> > > > Marlena> > >> > >> > >> > >> > >> >> ____________________________________________________> > > Start your day with Yahoo! - make it your> home> > page> > > http://www.yahoo.com/r/hs> > >> > >> > >> > >> > >> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2005 Report Share Posted August 30, 2005 Thanks Marlena - will do! I've just discovered that my doctor is on holiday (the nurse does the blood tests) so I suspect I'll get met with a big question mark when I ask for these, but at least I can ask the doctor the following week. It's great to have something to go on. I'm so encouraged - I'd been going on for a couple of years thinking there was nothing that could be done, with no idea of why I was getting these symptoms, and 'running down' so just to have hope is a wonderful turnaround:-)))) Many many thanks. Love Chris Re: test> > results -- need ideas> > > > > > > Hi Topper,> > > Yes, I completely understand. This is an> obscure> > test> > > and no one is familiar with it, so it's hard> for> > you> > > to comment!> > >> > > All I can say is that it reflects how I feel> > more than> > > the blood tests did that I took in June when> I> > was on> > > 2.5 grains. TSH was 0.011 and frees were> both> > just> > > under the mid-range (and I still felt> terrible).> > T4> > > didn't look higher (in its own range) than> my T3> > so I> > > didn't think I was having a conversion> problem,> > I just> > > thought I needed a higher dosage!> > >> > > I need to find out the explanation of why my> > doctor> > > says this particular test measures how much> > hormone> > > the body is actually using -- how much the> > tissues are> > > actually getting affected by, regardless of> how> > much> > > is available in the blood. Some people can't> > fully use> > > what is available in the blood (for various> > reasons)> > > -- so for that reason, the free's seem the> best> > out of> > > all the blood tests but still not always> > conclusive,> > > IMO!> > >> > > Marlena> > >> > > --- topper2@... wrote:> > >> > > > My problem is that I've never seen> anything on> > urine> > > > testing for thyroid> > > > hormones. Since these do not specify that> they> > are> > > > Free Ts we have to> > > > assume that they are totals. Which means> you> > don't> > > > know how much hormone> > > > is available for use. Your T4 here is> showing> > very> > > > high... but how much> > > > of it is bound and unusable? If a lot of> it is> > > > bound, for whatever> > > > reason, then there isn't enough available> for> > > > conversion, which could be> > > > why the T3 is so low in it's range....> Then,> > if we> > > > continue to assume> > > > that these are totals, your available T3> is> > actually> > > > below range???> > > >> > > > I can't say that the urine tests are more,> or> > less,> > > > accurate than the> > > > blood tests, we just don't know for sure> what> > was> > > > tested (total or free,> > > > or if they can even differentiate between> free> > and> > > > bound hormone) and how> > > > those numbers, in their ranges, compare to> > what> > > > we've learned about blood> > > > levels and ranges.> > > >> > > > We know that you aren't feeling as well as> you> > > > should... but we don't> > > > know why, yet.... Using a totally> different> > testing> > > > method leaves us in> > > > the dark... we have no comparison, no> > experience, to> > > > know how to> > > > interpret them.> > > >> > > > Just my thoughts.....> > > >> > > > Topper ()> > > >> > > > On Fri, 26 Aug 2005 22:27:48 -0700 (PDT)> > Marlena> > > > writes:> > > > Ok y'all, so I finally got my most recent> > thyroid> > > > results in but I'm not sure where to go> from> > here.> > > > My> > > > doctor is pretty holistic and uses a more> > obsure> > > > test> > > > from a lab called Vitamin Diagnostics. It> is a> > 24 hr> > > > urine collection. Supposedly it tests the> > amount of> > > > hormone your body is actually using ...> anyway> > here> > > > are my results:> > > >> > > > 11/2004 (before treatment):> > > > T3 621 range 800-1800> > > > T4 1698 range 1800-3000> > > >> > > > 7/05 (since treatment ... it takes a month> to> > get> > > > the> > > > results!)> > > > T3 894 range 800-1800> > > > T4 3124 range 1800-3000> > > >> > > > So it looks like I'm not converting well.> Now> > I'm on> > > > 3> > > > grains of Armour plus 3.5 mcg sustained> > release T3.> > > > (I> > > > was actually taking 3 1/4 grains of Armour> and> > 25mcg> > > > of SR T3 at the time of the test (which> was> > over a> > > > month ago), but soon after felt so bad and> > > > eventually> > > > overstimulated that I cut way back) ... I> know> > my> > > > consistency hasn't been that good, but I> had> > to cut> > > > back -- the T3 doesn't have such a long> life> > so it> > > > seemed ok to me plus the decrease in T4> was> > probably> > > > good ... I'm also working with a medical> > intuitive> > > > who> > > > is helping me to figure things out a bit> --> > she told> > > > me that the 25 mcg was way too high (which> > > > correlated> > > > with my symptoms -- which for me was a> > feverish> > > > feeling and ultra fatigue, fast heartbeat> --> > not> > > > extra> > > > energy that's for sure). This doesn't make> > sense> > > > with> > > > my low T3 test result. It would seem that> my> > body> > > > would want more T3... from my results I'm> > guessing> > > > that my original thyroid production is> down to> > zero> > > > or> > > > almost zero (my last TSH while on 2.5> grains> > was> > > > .011)> > > > ... I'm just so frustrated ... I felt> better> > on no> > > > medication whatsoever! And it's scary to> me to> > be> > > > completely dependent on something that> isn't> > even> > > > working for me! I've done all the research> and> > been> > > > the model patient -- doing everything I'm> > supposed> > > > to> > > > be doing ... I really don't know where to> go> > from> > > > here.> > > > I do all the things one is supposed to do> to> > enhance> > > > conversion too ...> > > >> > > > My doctor is not telling me anything> > conclusive> > > > about> > > > where I should go from here ...> > > >> > > > The weird thing is that I feel worse than> > before I> > > > started treatment ... and my latest> adrenal> > test> > > > results seem to show that my adrenals are> > actually> > > > doing ok (although this was an ACTH> > stimulation test> > > > to check adrenal reserve and my doctor has> to> > talk> > > > to> > > > the lab to get a conclusive interpretation> of> > the 2> > > > 24> > > > hr urine collection results which tests a> > breakdown> > > > of> > > > all the adrenal hormones... and he won't> be> > able to> > > > do> > > > this for another 2 weeks!). I'm really> > confused as> > > > to> > > > why I would feel worse [for 8 months now> --> > I'm> > > > going> > > > crazy -- things were pretty bad before> > treatment for> > > > 10+ years but I was still functioning --> now> > I'm not> > > > nearly as functional as before ...]> > > >> > > > Every adrenal hormone in the test> increased by> > a> > > > good> > > > amount after the stimulation -- which it's> > supposed> > > > to> > > > do -- except the aldosterone. It was a> good> > number> > > > to> > > > begin with but then it went down just a> little> > after> > > > the stimulation. It is supposed to go up> ...> > but> > > > what> > > > I don't understand is that apparently the> more> > salt> > > > you eat, the lower the aldosterone ...> > aldosterone's> > > > job is to keep salt in your body, so the> more> > you> > > > eat,> > > > the less is needed. Therefore I would> think> > that> > > > having the surge of cortisol after the> test> > would> > > > increase salt retention and therefore> lower> > > > aldosterone -- like happened with me --> > however it> > > > says that it is supposed to increase so> ...> > does> > > > anyone know about this?> > > >> > > > I know I'm writing a letter that will be> > difficult> > > > to> > > > respond to -- sorry, I just need to vent> ...> > > >> > > > Marlena> > >> > >> > >> > >> > >> >> ____________________________________________________> > > Start your day with Yahoo! - make it your> home> > page> > > http://www.yahoo.com/r/hs> > >> > >> > >> > >> > >> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2005 Report Share Posted August 30, 2005 Thanks Marlena - will do! I've just discovered that my doctor is on holiday (the nurse does the blood tests) so I suspect I'll get met with a big question mark when I ask for these, but at least I can ask the doctor the following week. It's great to have something to go on. I'm so encouraged - I'd been going on for a couple of years thinking there was nothing that could be done, with no idea of why I was getting these symptoms, and 'running down' so just to have hope is a wonderful turnaround:-)))) Many many thanks. Love Chris Re: test> > results -- need ideas> > > > > > > Hi Topper,> > > Yes, I completely understand. This is an> obscure> > test> > > and no one is familiar with it, so it's hard> for> > you> > > to comment!> > >> > > All I can say is that it reflects how I feel> > more than> > > the blood tests did that I took in June when> I> > was on> > > 2.5 grains. TSH was 0.011 and frees were> both> > just> > > under the mid-range (and I still felt> terrible).> > T4> > > didn't look higher (in its own range) than> my T3> > so I> > > didn't think I was having a conversion> problem,> > I just> > > thought I needed a higher dosage!> > >> > > I need to find out the explanation of why my> > doctor> > > says this particular test measures how much> > hormone> > > the body is actually using -- how much the> > tissues are> > > actually getting affected by, regardless of> how> > much> > > is available in the blood. Some people can't> > fully use> > > what is available in the blood (for various> > reasons)> > > -- so for that reason, the free's seem the> best> > out of> > > all the blood tests but still not always> > conclusive,> > > IMO!> > >> > > Marlena> > >> > > --- topper2@... wrote:> > >> > > > My problem is that I've never seen> anything on> > urine> > > > testing for thyroid> > > > hormones. Since these do not specify that> they> > are> > > > Free Ts we have to> > > > assume that they are totals. Which means> you> > don't> > > > know how much hormone> > > > is available for use. Your T4 here is> showing> > very> > > > high... but how much> > > > of it is bound and unusable? If a lot of> it is> > > > bound, for whatever> > > > reason, then there isn't enough available> for> > > > conversion, which could be> > > > why the T3 is so low in it's range....> Then,> > if we> > > > continue to assume> > > > that these are totals, your available T3> is> > actually> > > > below range???> > > >> > > > I can't say that the urine tests are more,> or> > less,> > > > accurate than the> > > > blood tests, we just don't know for sure> what> > was> > > > tested (total or free,> > > > or if they can even differentiate between> free> > and> > > > bound hormone) and how> > > > those numbers, in their ranges, compare to> > what> > > > we've learned about blood> > > > levels and ranges.> > > >> > > > We know that you aren't feeling as well as> you> > > > should... but we don't> > > > know why, yet.... Using a totally> different> > testing> > > > method leaves us in> > > > the dark... we have no comparison, no> > experience, to> > > > know how to> > > > interpret them.> > > >> > > > Just my thoughts.....> > > >> > > > Topper ()> > > >> > > > On Fri, 26 Aug 2005 22:27:48 -0700 (PDT)> > Marlena> > > > writes:> > > > Ok y'all, so I finally got my most recent> > thyroid> > > > results in but I'm not sure where to go> from> > here.> > > > My> > > > doctor is pretty holistic and uses a more> > obsure> > > > test> > > > from a lab called Vitamin Diagnostics. It> is a> > 24 hr> > > > urine collection. Supposedly it tests the> > amount of> > > > hormone your body is actually using ...> anyway> > here> > > > are my results:> > > >> > > > 11/2004 (before treatment):> > > > T3 621 range 800-1800> > > > T4 1698 range 1800-3000> > > >> > > > 7/05 (since treatment ... it takes a month> to> > get> > > > the> > > > results!)> > > > T3 894 range 800-1800> > > > T4 3124 range 1800-3000> > > >> > > > So it looks like I'm not converting well.> Now> > I'm on> > > > 3> > > > grains of Armour plus 3.5 mcg sustained> > release T3.> > > > (I> > > > was actually taking 3 1/4 grains of Armour> and> > 25mcg> > > > of SR T3 at the time of the test (which> was> > over a> > > > month ago), but soon after felt so bad and> > > > eventually> > > > overstimulated that I cut way back) ... I> know> > my> > > > consistency hasn't been that good, but I> had> > to cut> > > > back -- the T3 doesn't have such a long> life> > so it> > > > seemed ok to me plus the decrease in T4> was> > probably> > > > good ... I'm also working with a medical> > intuitive> > > > who> > > > is helping me to figure things out a bit> --> > she told> > > > me that the 25 mcg was way too high (which> > > > correlated> > > > with my symptoms -- which for me was a> > feverish> > > > feeling and ultra fatigue, fast heartbeat> --> > not> > > > extra> > > > energy that's for sure). This doesn't make> > sense> > > > with> > > > my low T3 test result. It would seem that> my> > body> > > > would want more T3... from my results I'm> > guessing> > > > that my original thyroid production is> down to> > zero> > > > or> > > > almost zero (my last TSH while on 2.5> grains> > was> > > > .011)> > > > ... I'm just so frustrated ... I felt> better> > on no> > > > medication whatsoever! And it's scary to> me to> > be> > > > completely dependent on something that> isn't> > even> > > > working for me! I've done all the research> and> > been> > > > the model patient -- doing everything I'm> > supposed> > > > to> > > > be doing ... I really don't know where to> go> > from> > > > here.> > > > I do all the things one is supposed to do> to> > enhance> > > > conversion too ...> > > >> > > > My doctor is not telling me anything> > conclusive> > > > about> > > > where I should go from here ...> > > >> > > > The weird thing is that I feel worse than> > before I> > > > started treatment ... and my latest> adrenal> > test> > > > results seem to show that my adrenals are> > actually> > > > doing ok (although this was an ACTH> > stimulation test> > > > to check adrenal reserve and my doctor has> to> > talk> > > > to> > > > the lab to get a conclusive interpretation> of> > the 2> > > > 24> > > > hr urine collection results which tests a> > breakdown> > > > of> > > > all the adrenal hormones... and he won't> be> > able to> > > > do> > > > this for another 2 weeks!). I'm really> > confused as> > > > to> > > > why I would feel worse [for 8 months now> --> > I'm> > > > going> > > > crazy -- things were pretty bad before> > treatment for> > > > 10+ years but I was still functioning --> now> > I'm not> > > > nearly as functional as before ...]> > > >> > > > Every adrenal hormone in the test> increased by> > a> > > > good> > > > amount after the stimulation -- which it's> > supposed> > > > to> > > > do -- except the aldosterone. It was a> good> > number> > > > to> > > > begin with but then it went down just a> little> > after> > > > the stimulation. It is supposed to go up> ...> > but> > > > what> > > > I don't understand is that apparently the> more> > salt> > > > you eat, the lower the aldosterone ...> > aldosterone's> > > > job is to keep salt in your body, so the> more> > you> > > > eat,> > > > the less is needed. Therefore I would> think> > that> > > > having the surge of cortisol after the> test> > would> > > > increase salt retention and therefore> lower> > > > aldosterone -- like happened with me --> > however it> > > > says that it is supposed to increase so> ...> > does> > > > anyone know about this?> > > >> > > > I know I'm writing a letter that will be> > difficult> > > > to> > > > respond to -- sorry, I just need to vent> ...> > > >> > > > Marlena> > >> > >> > >> > >> > >> >> ____________________________________________________> > > Start your day with Yahoo! - make it your> home> > page> > > http://www.yahoo.com/r/hs> > >> > >> > >> > >> > >> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2005 Report Share Posted August 30, 2005 I definitely think there is hope! --- wrote: > Thanks Marlena - will do! I've just discovered that > my doctor is on holiday (the nurse does the blood > tests) so I suspect I'll get met with a big question > mark when I ask for these, but at least I can ask > the doctor the following week. It's great to have > something to go on. I'm so encouraged - I'd been > going on for a couple of years thinking there was > nothing that could be done, with no idea of why I > was getting these symptoms, and 'running down' so > just to have hope is a wonderful turnaround:-)))) > Many many thanks. Love Chris > Re: > test > > > results -- need ideas > > > > > > > > > > Hi Topper, > > > > Yes, I completely understand. This is an > > obscure > > > test > > > > and no one is familiar with it, so it's > hard > > for > > > you > > > > to comment! > > > > > > > > All I can say is that it reflects how I > feel > > > more than > > > > the blood tests did that I took in June > when > > I > > > was on > > > > 2.5 grains. TSH was 0.011 and frees were > > both > > > just > > > > under the mid-range (and I still felt > > terrible). > > > T4 > > > > didn't look higher (in its own range) > than > > my T3 > > > so I > > > > didn't think I was having a conversion > > problem, > > > I just > > > > thought I needed a higher dosage! > > > > > > > > I need to find out the explanation of > why my > > > doctor > > > > says this particular test measures how > much > > > hormone > > > > the body is actually using -- how much > the > > > tissues are > > > > actually getting affected by, regardless > of > > how > > > much > > > > is available in the blood. Some people > can't > > > fully use > > > > what is available in the blood (for > various > > > reasons) > > > > -- so for that reason, the free's seem > the > > best > > > out of > > > > all the blood tests but still not always > > > conclusive, > > > > IMO! > > > > > > > > Marlena > > > > > > > > --- topper2@... wrote: > > > > > > > > > My problem is that I've never seen > > anything on > > > urine > > > > > testing for thyroid > > > > > hormones. Since these do not specify > that > > they > > > are > > > > > Free Ts we have to > > > > > assume that they are totals. Which > means > > you > > > don't > > > > > know how much hormone > > > > > is available for use. Your T4 here is > > showing > > > very > > > > > high... but how much > > > > > of it is bound and unusable? If a lot > of > > it is > > > > > bound, for whatever > > > > > reason, then there isn't enough > available > > for > > > > > conversion, which could be > > > > > why the T3 is so low in it's range.... > > Then, > > > if we > > > > > continue to assume > > > > > that these are totals, your available > T3 > > is > > > actually > > > > > below range??? > > > > > > > > > > I can't say that the urine tests are > more, > > or > > > less, > > > > > accurate than the > > > > > blood tests, we just don't know for > sure > > what > > > was > > > > > tested (total or free, > > > > > or if they can even differentiate > between > > free > > > and > > > > > bound hormone) and how > > > > > those numbers, in their ranges, > compare to > > > what > > > > > we've learned about blood > > > > > levels and ranges. > > > > > > > > > > We know that you aren't feeling as > well as > > you > > > > > should... but we don't > > > > > know why, yet.... Using a totally > > different > > > testing > > > > > method leaves us in > > > > > the dark... we have no comparison, no > > > experience, to > > > > > know how to > > > > > interpret them. > > > > > > > > > > Just my thoughts..... > > > > > > > > > > Topper () > > > > > > > > > > On Fri, 26 Aug 2005 22:27:48 -0700 > (PDT) > > > Marlena > > > > > writes: > > > > > Ok y'all, so I finally got my most > recent > > > thyroid > > > > > results in but I'm not sure where to > go > > from > > > here. > > > > > My > > > > > doctor is pretty holistic and uses a > more > > > obsure > > > > > test > > > > > from a lab called Vitamin Diagnostics. > It > > is a > > > 24 hr > > > > > urine collection. Supposedly it tests > the > > > amount of > > > > > hormone your body is actually using > ... > > anyway > > > here > > > > > are my results: > > > > > > > > > > 11/2004 (before treatment): > > > > > T3 621 range 800-1800 > > > > > T4 1698 range 1800-3000 > > > > > > > > > > 7/05 (since treatment ... it takes a > month > > to > > > get > > > > > the > > > > > results!) > > > > > T3 894 range 800-1800 > > > > > T4 3124 range 1800-3000 > > > > > > > > > > So it looks like I'm not converting > well. > > Now > > > I'm on > > > > > 3 > > > > > grains of Armour plus 3.5 mcg > sustained > > > release T3. > > > > > (I > > > > > was actually taking 3 1/4 grains of > Armour > > and > > > 25mcg > > > > > of SR T3 at the time of the test > (which > > was > > > over a > > > > > month ago), but soon after felt so bad > and > > > > > eventually > > > > > overstimulated that I cut way back) > ... I > > know > > > my > > > > > consistency hasn't been that good, but > I > > had > > > to cut > > > > > back -- the T3 doesn't have such a > long > > life > > > so it > > > > > seemed ok to me plus the decrease in > T4 > > was > > > probably > > > > > good ... I'm also working with a > medical > > > intuitive > > > > > who > > > > > is helping me to figure things out a > bit > > -- > > > she told > > > > > me that the 25 mcg was way too high > (which > > > > > correlated > > > > > with my symptoms -- which for me was a > > > feverish > > > > > feeling and ultra fatigue, fast > heartbeat > > -- > > > not > > > > > extra > > > > > energy that's for sure). This doesn't > make > > > sense > > > > > with > > > > > my low T3 test result. It would seem > that > > my > > > body > > > > > would want more T3... from my results > I'm > > > guessing > > > > > that my original thyroid production is > > down to > > > zero > > > > > or > > > > > almost zero (my last TSH while on 2.5 > > grains > > > was > > > > > .011) > > > > > ... I'm just so frustrated ... I felt > > better > > > on no > > > > > medication whatsoever! And it's scary > to > > me to > > > be > > > > > completely dependent on something that > > isn't > > > even > > > > > working for me! I've done all the > research > > and > > > been > > > > > the model patient -- doing everything > I'm > > > supposed > > > > > to > > > > > be doing ... I really don't know where > to > > go > > > from > > > > > here. > > > > > I do all the things one is supposed to > do > > to > > > enhance > > > > > conversion too ... > > > > > > > > > > My doctor is not telling me anything > > > conclusive > > > > > about > > > > > where I should go from here ... > > > > > > > > > > The weird thing is that I feel worse > than > > > before I > > > > > started treatment ... and my latest > > adrenal > > > test > > > > > results seem to show that my adrenals > are > > > actually > > > > > doing ok (although this was an ACTH > > > stimulation test > > > > > to check adrenal reserve and my doctor > has > > to > > > talk > > > > > to > > > > > the lab to get a conclusive > interpretation > > of > > > the 2 > > > > > 24 > > > > > hr urine collection results which > tests a > > > breakdown > > > > > of > > > > > all the adrenal hormones... and he > won't > > be > > > able to > > > > > do > > > > > this for another 2 weeks!). I'm really > > > confused as > > > > > to > > > > > why I would feel worse [for 8 months > now > > -- > > > I'm > > > > > going > > > > > crazy -- things were pretty bad before > > > treatment for > > > > > 10+ years but I was still functioning > -- > > now > > > I'm not > > > > > nearly as functional as before ...] > > > > > > > > > > Every adrenal hormone in the test > > increased by > > > a > > > > > good > > > > > amount after the stimulation -- which > it's > > > supposed > > > > > to > > > > > do -- except the aldosterone. It was a > > good > > > number > > > > > to > > > > > begin with but then it went down just > a > > little > > > after > > > > > the stimulation. It is supposed to go > up > > ... > > > but > > > > > what > > > > > I don't understand is that apparently > the > > more > > > salt > > > > > you eat, the lower the aldosterone ... > > > aldosterone's > > > > > job is to keep salt in your body, so > the > > more > > > you > > > > > eat, > > > > > the less is needed. Therefore I would > > think > > > that > > > > > having the surge of cortisol after the > > test > > > would > > > > > increase salt retention and therefore > > lower > > > > > aldosterone -- like happened with me > -- > > > however it > > > > > says that it is supposed to increase > so > > ... > > > does > > > > > anyone know about this? > > > > > > > > > > I know I'm writing a letter that will > be > > > difficult > > > > > to > > > > > respond to -- sorry, I just need to > vent > > ... > > > > > > > > > > Marlena > > > > > > > > > > > > > > > > > > > > > > > > > > ____________________________________________________ > > > > Start your day with Yahoo! - make it > your > > home > > > page > > > > http://www.yahoo.com/r/hs > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2005 Report Share Posted August 30, 2005 I definitely think there is hope! --- wrote: > Thanks Marlena - will do! I've just discovered that > my doctor is on holiday (the nurse does the blood > tests) so I suspect I'll get met with a big question > mark when I ask for these, but at least I can ask > the doctor the following week. It's great to have > something to go on. I'm so encouraged - I'd been > going on for a couple of years thinking there was > nothing that could be done, with no idea of why I > was getting these symptoms, and 'running down' so > just to have hope is a wonderful turnaround:-)))) > Many many thanks. Love Chris > Re: > test > > > results -- need ideas > > > > > > > > > > Hi Topper, > > > > Yes, I completely understand. This is an > > obscure > > > test > > > > and no one is familiar with it, so it's > hard > > for > > > you > > > > to comment! > > > > > > > > All I can say is that it reflects how I > feel > > > more than > > > > the blood tests did that I took in June > when > > I > > > was on > > > > 2.5 grains. TSH was 0.011 and frees were > > both > > > just > > > > under the mid-range (and I still felt > > terrible). > > > T4 > > > > didn't look higher (in its own range) > than > > my T3 > > > so I > > > > didn't think I was having a conversion > > problem, > > > I just > > > > thought I needed a higher dosage! > > > > > > > > I need to find out the explanation of > why my > > > doctor > > > > says this particular test measures how > much > > > hormone > > > > the body is actually using -- how much > the > > > tissues are > > > > actually getting affected by, regardless > of > > how > > > much > > > > is available in the blood. Some people > can't > > > fully use > > > > what is available in the blood (for > various > > > reasons) > > > > -- so for that reason, the free's seem > the > > best > > > out of > > > > all the blood tests but still not always > > > conclusive, > > > > IMO! > > > > > > > > Marlena > > > > > > > > --- topper2@... wrote: > > > > > > > > > My problem is that I've never seen > > anything on > > > urine > > > > > testing for thyroid > > > > > hormones. Since these do not specify > that > > they > > > are > > > > > Free Ts we have to > > > > > assume that they are totals. Which > means > > you > > > don't > > > > > know how much hormone > > > > > is available for use. Your T4 here is > > showing > > > very > > > > > high... but how much > > > > > of it is bound and unusable? If a lot > of > > it is > > > > > bound, for whatever > > > > > reason, then there isn't enough > available > > for > > > > > conversion, which could be > > > > > why the T3 is so low in it's range.... > > Then, > > > if we > > > > > continue to assume > > > > > that these are totals, your available > T3 > > is > > > actually > > > > > below range??? > > > > > > > > > > I can't say that the urine tests are > more, > > or > > > less, > > > > > accurate than the > > > > > blood tests, we just don't know for > sure > > what > > > was > > > > > tested (total or free, > > > > > or if they can even differentiate > between > > free > > > and > > > > > bound hormone) and how > > > > > those numbers, in their ranges, > compare to > > > what > > > > > we've learned about blood > > > > > levels and ranges. > > > > > > > > > > We know that you aren't feeling as > well as > > you > > > > > should... but we don't > > > > > know why, yet.... Using a totally > > different > > > testing > > > > > method leaves us in > > > > > the dark... we have no comparison, no > > > experience, to > > > > > know how to > > > > > interpret them. > > > > > > > > > > Just my thoughts..... > > > > > > > > > > Topper () > > > > > > > > > > On Fri, 26 Aug 2005 22:27:48 -0700 > (PDT) > > > Marlena > > > > > writes: > > > > > Ok y'all, so I finally got my most > recent > > > thyroid > > > > > results in but I'm not sure where to > go > > from > > > here. > > > > > My > > > > > doctor is pretty holistic and uses a > more > > > obsure > > > > > test > > > > > from a lab called Vitamin Diagnostics. > It > > is a > > > 24 hr > > > > > urine collection. Supposedly it tests > the > > > amount of > > > > > hormone your body is actually using > ... > > anyway > > > here > > > > > are my results: > > > > > > > > > > 11/2004 (before treatment): > > > > > T3 621 range 800-1800 > > > > > T4 1698 range 1800-3000 > > > > > > > > > > 7/05 (since treatment ... it takes a > month > > to > > > get > > > > > the > > > > > results!) > > > > > T3 894 range 800-1800 > > > > > T4 3124 range 1800-3000 > > > > > > > > > > So it looks like I'm not converting > well. > > Now > > > I'm on > > > > > 3 > > > > > grains of Armour plus 3.5 mcg > sustained > > > release T3. > > > > > (I > > > > > was actually taking 3 1/4 grains of > Armour > > and > > > 25mcg > > > > > of SR T3 at the time of the test > (which > > was > > > over a > > > > > month ago), but soon after felt so bad > and > > > > > eventually > > > > > overstimulated that I cut way back) > ... I > > know > > > my > > > > > consistency hasn't been that good, but > I > > had > > > to cut > > > > > back -- the T3 doesn't have such a > long > > life > > > so it > > > > > seemed ok to me plus the decrease in > T4 > > was > > > probably > > > > > good ... I'm also working with a > medical > > > intuitive > > > > > who > > > > > is helping me to figure things out a > bit > > -- > > > she told > > > > > me that the 25 mcg was way too high > (which > > > > > correlated > > > > > with my symptoms -- which for me was a > > > feverish > > > > > feeling and ultra fatigue, fast > heartbeat > > -- > > > not > > > > > extra > > > > > energy that's for sure). This doesn't > make > > > sense > > > > > with > > > > > my low T3 test result. It would seem > that > > my > > > body > > > > > would want more T3... from my results > I'm > > > guessing > > > > > that my original thyroid production is > > down to > > > zero > > > > > or > > > > > almost zero (my last TSH while on 2.5 > > grains > > > was > > > > > .011) > > > > > ... I'm just so frustrated ... I felt > > better > > > on no > > > > > medication whatsoever! And it's scary > to > > me to > > > be > > > > > completely dependent on something that > > isn't > > > even > > > > > working for me! I've done all the > research > > and > > > been > > > > > the model patient -- doing everything > I'm > > > supposed > > > > > to > > > > > be doing ... I really don't know where > to > > go > > > from > > > > > here. > > > > > I do all the things one is supposed to > do > > to > > > enhance > > > > > conversion too ... > > > > > > > > > > My doctor is not telling me anything > > > conclusive > > > > > about > > > > > where I should go from here ... > > > > > > > > > > The weird thing is that I feel worse > than > > > before I > > > > > started treatment ... and my latest > > adrenal > > > test > > > > > results seem to show that my adrenals > are > > > actually > > > > > doing ok (although this was an ACTH > > > stimulation test > > > > > to check adrenal reserve and my doctor > has > > to > > > talk > > > > > to > > > > > the lab to get a conclusive > interpretation > > of > > > the 2 > > > > > 24 > > > > > hr urine collection results which > tests a > > > breakdown > > > > > of > > > > > all the adrenal hormones... and he > won't > > be > > > able to > > > > > do > > > > > this for another 2 weeks!). I'm really > > > confused as > > > > > to > > > > > why I would feel worse [for 8 months > now > > -- > > > I'm > > > > > going > > > > > crazy -- things were pretty bad before > > > treatment for > > > > > 10+ years but I was still functioning > -- > > now > > > I'm not > > > > > nearly as functional as before ...] > > > > > > > > > > Every adrenal hormone in the test > > increased by > > > a > > > > > good > > > > > amount after the stimulation -- which > it's > > > supposed > > > > > to > > > > > do -- except the aldosterone. It was a > > good > > > number > > > > > to > > > > > begin with but then it went down just > a > > little > > > after > > > > > the stimulation. It is supposed to go > up > > ... > > > but > > > > > what > > > > > I don't understand is that apparently > the > > more > > > salt > > > > > you eat, the lower the aldosterone ... > > > aldosterone's > > > > > job is to keep salt in your body, so > the > > more > > > you > > > > > eat, > > > > > the less is needed. Therefore I would > > think > > > that > > > > > having the surge of cortisol after the > > test > > > would > > > > > increase salt retention and therefore > > lower > > > > > aldosterone -- like happened with me > -- > > > however it > > > > > says that it is supposed to increase > so > > ... > > > does > > > > > anyone know about this? > > > > > > > > > > I know I'm writing a letter that will > be > > > difficult > > > > > to > > > > > respond to -- sorry, I just need to > vent > > ... > > > > > > > > > > Marlena > > > > > > > > > > > > > > > > > > > > > > > > > > ____________________________________________________ > > > > Start your day with Yahoo! - make it > your > > home > > > page > > > > http://www.yahoo.com/r/hs > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2005 Report Share Posted August 30, 2005 Thanks Marlena:-))))))))))) Love Chris Re: > test> > > results -- need ideas> > > > > > > > > > Hi Topper,> > > > Yes, I completely understand. This is an> > obscure> > > test> > > > and no one is familiar with it, so it's> hard> > for> > > you> > > > to comment!> > > >> > > > All I can say is that it reflects how I> feel> > > more than> > > > the blood tests did that I took in June> when> > I> > > was on> > > > 2.5 grains. TSH was 0.011 and frees were> > both> > > just> > > > under the mid-range (and I still felt> > terrible).> > > T4> > > > didn't look higher (in its own range)> than> > my T3> > > so I> > > > didn't think I was having a conversion> > problem,> > > I just> > > > thought I needed a higher dosage!> > > >> > > > I need to find out the explanation of> why my> > > doctor> > > > says this particular test measures how> much> > > hormone> > > > the body is actually using -- how much> the> > > tissues are> > > > actually getting affected by, regardless> of> > how> > > much> > > > is available in the blood. Some people> can't> > > fully use> > > > what is available in the blood (for> various> > > reasons)> > > > -- so for that reason, the free's seem> the> > best> > > out of> > > > all the blood tests but still not always> > > conclusive,> > > > IMO!> > > >> > > > Marlena> > > >> > > > --- topper2@... wrote:> > > >> > > > > My problem is that I've never seen> > anything on> > > urine> > > > > testing for thyroid> > > > > hormones. Since these do not specify> that> > they> > > are> > > > > Free Ts we have to> > > > > assume that they are totals. Which> means> > you> > > don't> > > > > know how much hormone> > > > > is available for use. Your T4 here is> > showing> > > very> > > > > high... but how much> > > > > of it is bound and unusable? If a lot> of> > it is> > > > > bound, for whatever> > > > > reason, then there isn't enough> available> > for> > > > > conversion, which could be> > > > > why the T3 is so low in it's range....> > Then,> > > if we> > > > > continue to assume> > > > > that these are totals, your available> T3> > is> > > actually> > > > > below range???> > > > >> > > > > I can't say that the urine tests are> more,> > or> > > less,> > > > > accurate than the> > > > > blood tests, we just don't know for> sure> > what> > > was> > > > > tested (total or free,> > > > > or if they can even differentiate> between> > free> > > and> > > > > bound hormone) and how> > > > > those numbers, in their ranges,> compare to> > > what> > > > > we've learned about blood> > > > > levels and ranges.> > > > >> > > > > We know that you aren't feeling as> well as> > you> > > > > should... but we don't> > > > > know why, yet.... Using a totally> > different> > > testing> > > > > method leaves us in> > > > > the dark... we have no comparison, no> > > experience, to> > > > > know how to> > > > > interpret them.> > > > >> > > > > Just my thoughts.....> > > > >> > > > > Topper ()> > > > >> > > > > On Fri, 26 Aug 2005 22:27:48 -0700> (PDT)> > > Marlena> > > > > writes:> > > > > Ok y'all, so I finally got my most> recent> > > thyroid> > > > > results in but I'm not sure where to> go> > from> > > here.> > > > > My> > > > > doctor is pretty holistic and uses a> more> > > obsure> > > > > test> > > > > from a lab called Vitamin Diagnostics.> It> > is a> > > 24 hr> > > > > urine collection. Supposedly it tests> the> > > amount of> > > > > hormone your body is actually using> ...> > anyway> > > here> > > > > are my results:> > > > >> > > > > 11/2004 (before treatment):> > > > > T3 621 range 800-1800> > > > > T4 1698 range 1800-3000> > > > >> > > > > 7/05 (since treatment ... it takes a> month> > to> > > get> > > > > the> > > > > results!)> > > > > T3 894 range 800-1800> > > > > T4 3124 range 1800-3000> > > > >> > > > > So it looks like I'm not converting> well.> > Now> > > I'm on> > > > > 3> > > > > grains of Armour plus 3.5 mcg> sustained> > > release T3.> > > > > (I> > > > > was actually taking 3 1/4 grains of> Armour> > and> > > 25mcg> > > > > of SR T3 at the time of the test> (which> > was> > > over a> > > > > month ago), but soon after felt so bad> and> > > > > eventually> > > > > overstimulated that I cut way back)> ... I> > know> > > my> > > > > consistency hasn't been that good, but> I> > had> > > to cut> > > > > back -- the T3 doesn't have such a> long> > life> > > so it> > > > > seemed ok to me plus the decrease in> T4> > was> > > probably> > > > > good ... I'm also working with a> medical> > > intuitive> > > > > who> > > > > is helping me to figure things out a> bit> > --> > > she told> > > > > me that the 25 mcg was way too high> (which> > > > > correlated> > > > > with my symptoms -- which for me was a> > > feverish> > > > > feeling and ultra fatigue, fast> heartbeat> > --> > > not> > > > > extra> > > > > energy that's for sure). This doesn't> make> > > sense> > > > > with> > > > > my low T3 test result. It would seem> that> > my> > > body> > > > > would want more T3... from my results> I'm> > > guessing> > > > > that my original thyroid production is> > down to> > > zero> > > > > or> > > > > almost zero (my last TSH while on 2.5> > grains> > > was> > > > > .011)> > > > > ... I'm just so frustrated ... I felt> > better> > > on no> > > > > medication whatsoever! And it's scary> to> > me to> > > be> > > > > completely dependent on something that> > isn't> > > even> > > > > working for me! I've done all the> research> > and> > > been> > > > > the model patient -- doing everything> I'm> > > supposed> > > > > to> > > > > be doing ... I really don't know where> to> > go> > > from> > > > > here.> > > > > I do all the things one is supposed to> do> > to> > > enhance> > > > > conversion too ...> > > > >> > > > > My doctor is not telling me anything> > > conclusive> > > > > about> > > > > where I should go from here ...> > > > >> > > > > The weird thing is that I feel worse> than> > > before I> > > > > started treatment ... and my latest> > adrenal> > > test> > > > > results seem to show that my adrenals> are> > > actually> > > > > doing ok (although this was an ACTH> > > stimulation test> > > > > to check adrenal reserve and my doctor> has> > to> > > talk> > > > > to> > > > > the lab to get a conclusive> interpretation> > of> > > the 2> > > > > 24> > > > > hr urine collection results which> tests a> > > breakdown> > > > > of> > > > > all the adrenal hormones... and he> won't> > be> > > able to> > > > > do> > > > > this for another 2 weeks!). I'm really> > > confused as> > > > > to> > > > > why I would feel worse [for 8 months> now> > --> > > I'm> > > > > going> > > > > crazy -- things were pretty bad before> > > treatment for> > > > > 10+ years but I was still functioning> --> > now> > > I'm not> > > > > nearly as functional as before ...]> > > > >> > > > > Every adrenal hormone in the test> > increased by> > > a> > > > > good> > > > > amount after the stimulation -- which> it's> > > supposed> > > > > to> > > > > do -- except the aldosterone. It was a> > good> > > number> > > > > to> > > > > begin with but then it went down just> a> > little> > > after> > > > > the stimulation. It is supposed to go> up> > ...> > > but> > > > > what> > > > > I don't understand is that apparently> the> > more> > > salt> > > > > you eat, the lower the aldosterone ...> > > aldosterone's> > > > > job is to keep salt in your body, so> the> > more> > > you> > > > > eat,> > > > > the less is needed. Therefore I would> > think> > > that> > > > > having the surge of cortisol after the> > test> > > would> > > > > increase salt retention and therefore> > lower> > > > > aldosterone -- like happened with me> --> > > however it> > > > > says that it is supposed to increase> so> > ...> > > does> > > > > anyone know about this?> > > > >> > > > > I know I'm writing a letter that will> be> > > difficult> > > > > to> > > > > respond to -- sorry, I just need to> vent> > ...> > > > >> > > > > Marlena> > > >> > > >> > > >> > > >> > > >> > >> >> ____________________________________________________> > > > Start your day with Yahoo! - make it> your> > home> > > page> > > > http://www.yahoo.com/r/hs> > > >> > > >> > > >> > > >> > > >> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2005 Report Share Posted August 30, 2005 Thanks Marlena:-))))))))))) Love Chris Re: > test> > > results -- need ideas> > > > > > > > > > Hi Topper,> > > > Yes, I completely understand. This is an> > obscure> > > test> > > > and no one is familiar with it, so it's> hard> > for> > > you> > > > to comment!> > > >> > > > All I can say is that it reflects how I> feel> > > more than> > > > the blood tests did that I took in June> when> > I> > > was on> > > > 2.5 grains. TSH was 0.011 and frees were> > both> > > just> > > > under the mid-range (and I still felt> > terrible).> > > T4> > > > didn't look higher (in its own range)> than> > my T3> > > so I> > > > didn't think I was having a conversion> > problem,> > > I just> > > > thought I needed a higher dosage!> > > >> > > > I need to find out the explanation of> why my> > > doctor> > > > says this particular test measures how> much> > > hormone> > > > the body is actually using -- how much> the> > > tissues are> > > > actually getting affected by, regardless> of> > how> > > much> > > > is available in the blood. Some people> can't> > > fully use> > > > what is available in the blood (for> various> > > reasons)> > > > -- so for that reason, the free's seem> the> > best> > > out of> > > > all the blood tests but still not always> > > conclusive,> > > > IMO!> > > >> > > > Marlena> > > >> > > > --- topper2@... wrote:> > > >> > > > > My problem is that I've never seen> > anything on> > > urine> > > > > testing for thyroid> > > > > hormones. Since these do not specify> that> > they> > > are> > > > > Free Ts we have to> > > > > assume that they are totals. Which> means> > you> > > don't> > > > > know how much hormone> > > > > is available for use. Your T4 here is> > showing> > > very> > > > > high... but how much> > > > > of it is bound and unusable? If a lot> of> > it is> > > > > bound, for whatever> > > > > reason, then there isn't enough> available> > for> > > > > conversion, which could be> > > > > why the T3 is so low in it's range....> > Then,> > > if we> > > > > continue to assume> > > > > that these are totals, your available> T3> > is> > > actually> > > > > below range???> > > > >> > > > > I can't say that the urine tests are> more,> > or> > > less,> > > > > accurate than the> > > > > blood tests, we just don't know for> sure> > what> > > was> > > > > tested (total or free,> > > > > or if they can even differentiate> between> > free> > > and> > > > > bound hormone) and how> > > > > those numbers, in their ranges,> compare to> > > what> > > > > we've learned about blood> > > > > levels and ranges.> > > > >> > > > > We know that you aren't feeling as> well as> > you> > > > > should... but we don't> > > > > know why, yet.... Using a totally> > different> > > testing> > > > > method leaves us in> > > > > the dark... we have no comparison, no> > > experience, to> > > > > know how to> > > > > interpret them.> > > > >> > > > > Just my thoughts.....> > > > >> > > > > Topper ()> > > > >> > > > > On Fri, 26 Aug 2005 22:27:48 -0700> (PDT)> > > Marlena> > > > > writes:> > > > > Ok y'all, so I finally got my most> recent> > > thyroid> > > > > results in but I'm not sure where to> go> > from> > > here.> > > > > My> > > > > doctor is pretty holistic and uses a> more> > > obsure> > > > > test> > > > > from a lab called Vitamin Diagnostics.> It> > is a> > > 24 hr> > > > > urine collection. Supposedly it tests> the> > > amount of> > > > > hormone your body is actually using> ...> > anyway> > > here> > > > > are my results:> > > > >> > > > > 11/2004 (before treatment):> > > > > T3 621 range 800-1800> > > > > T4 1698 range 1800-3000> > > > >> > > > > 7/05 (since treatment ... it takes a> month> > to> > > get> > > > > the> > > > > results!)> > > > > T3 894 range 800-1800> > > > > T4 3124 range 1800-3000> > > > >> > > > > So it looks like I'm not converting> well.> > Now> > > I'm on> > > > > 3> > > > > grains of Armour plus 3.5 mcg> sustained> > > release T3.> > > > > (I> > > > > was actually taking 3 1/4 grains of> Armour> > and> > > 25mcg> > > > > of SR T3 at the time of the test> (which> > was> > > over a> > > > > month ago), but soon after felt so bad> and> > > > > eventually> > > > > overstimulated that I cut way back)> ... I> > know> > > my> > > > > consistency hasn't been that good, but> I> > had> > > to cut> > > > > back -- the T3 doesn't have such a> long> > life> > > so it> > > > > seemed ok to me plus the decrease in> T4> > was> > > probably> > > > > good ... I'm also working with a> medical> > > intuitive> > > > > who> > > > > is helping me to figure things out a> bit> > --> > > she told> > > > > me that the 25 mcg was way too high> (which> > > > > correlated> > > > > with my symptoms -- which for me was a> > > feverish> > > > > feeling and ultra fatigue, fast> heartbeat> > --> > > not> > > > > extra> > > > > energy that's for sure). This doesn't> make> > > sense> > > > > with> > > > > my low T3 test result. It would seem> that> > my> > > body> > > > > would want more T3... from my results> I'm> > > guessing> > > > > that my original thyroid production is> > down to> > > zero> > > > > or> > > > > almost zero (my last TSH while on 2.5> > grains> > > was> > > > > .011)> > > > > ... I'm just so frustrated ... I felt> > better> > > on no> > > > > medication whatsoever! And it's scary> to> > me to> > > be> > > > > completely dependent on something that> > isn't> > > even> > > > > working for me! I've done all the> research> > and> > > been> > > > > the model patient -- doing everything> I'm> > > supposed> > > > > to> > > > > be doing ... I really don't know where> to> > go> > > from> > > > > here.> > > > > I do all the things one is supposed to> do> > to> > > enhance> > > > > conversion too ...> > > > >> > > > > My doctor is not telling me anything> > > conclusive> > > > > about> > > > > where I should go from here ...> > > > >> > > > > The weird thing is that I feel worse> than> > > before I> > > > > started treatment ... and my latest> > adrenal> > > test> > > > > results seem to show that my adrenals> are> > > actually> > > > > doing ok (although this was an ACTH> > > stimulation test> > > > > to check adrenal reserve and my doctor> has> > to> > > talk> > > > > to> > > > > the lab to get a conclusive> interpretation> > of> > > the 2> > > > > 24> > > > > hr urine collection results which> tests a> > > breakdown> > > > > of> > > > > all the adrenal hormones... and he> won't> > be> > > able to> > > > > do> > > > > this for another 2 weeks!). I'm really> > > confused as> > > > > to> > > > > why I would feel worse [for 8 months> now> > --> > > I'm> > > > > going> > > > > crazy -- things were pretty bad before> > > treatment for> > > > > 10+ years but I was still functioning> --> > now> > > I'm not> > > > > nearly as functional as before ...]> > > > >> > > > > Every adrenal hormone in the test> > increased by> > > a> > > > > good> > > > > amount after the stimulation -- which> it's> > > supposed> > > > > to> > > > > do -- except the aldosterone. It was a> > good> > > number> > > > > to> > > > > begin with but then it went down just> a> > little> > > after> > > > > the stimulation. It is supposed to go> up> > ...> > > but> > > > > what> > > > > I don't understand is that apparently> the> > more> > > salt> > > > > you eat, the lower the aldosterone ...> > > aldosterone's> > > > > job is to keep salt in your body, so> the> > more> > > you> > > > > eat,> > > > > the less is needed. Therefore I would> > think> > > that> > > > > having the surge of cortisol after the> > test> > > would> > > > > increase salt retention and therefore> > lower> > > > > aldosterone -- like happened with me> --> > > however it> > > > > says that it is supposed to increase> so> > ...> > > does> > > > > anyone know about this?> > > > >> > > > > I know I'm writing a letter that will> be> > > difficult> > > > > to> > > > > respond to -- sorry, I just need to> vent> > ...> > > > >> > > > > Marlena> > > >> > > >> > > >> > > >> > > >> > >> >> ____________________________________________________> > > > Start your day with Yahoo! - make it> your> > home> > > page> > > > http://www.yahoo.com/r/hs> > > >> > > >> > > >> > > >> > > >> > > > Quote Link to comment Share on other sites More sharing options...
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