Re: Moving on

[Guest guest]

Go on the medicine, but stay on whole foods natural foods, no raw foods

My doctor and I have decided it is time to abandon the diet. (Don't

worry, he's an md but also holistic and a believer in the diet. Uses

it for autism as well.)

It has been 4 months and I've actually got worse. While I am sure that

I will still have dietary needs to follow that have yet to be

determined, we've decided to take a medicine approach. I have an

incredible amount of anxiety which seems to dramatically increase my

symptoms. Example: I don't really have to use the bathroom until I

know I am leaving the house. Stopped at a stoplight with traffic all

around and I can't pull over to use the potty in my truck. Things

like that. I had also tried eliminating certain foods that might have

been a cause - yogurt, cheese, honey, raw fruits etc... I gave it a

good go - my best shot.

He is thinking more in terms that IBS is my trouble and we are going

to try Librax along with Xanax when needed. I'm also on a supplement

to help with the slight Candida excess that was reported on my stool

test - along with continuing my 6 month script of diflucan. I will

also continue with the 24 hour yogurt and I don't mind that at all.

I'm very optimistic! Of course results are yet to be seen, but I just

thought I would share this in case anyone might find it useful.

I guess part of the reason for my post is that I've quite often felt

like I wasn't doing something right on this diet and why wasn't it

working for me. I just want to get the message out there that while

it is AWESOME if the diet works for you - it is okay if it doesn't.

You just have to try something else! Never quit trying!

------------------------------------

[Guest guest]

Hey ,

Personally.. 4 months is not nearly enough time to gauge if the diet

is working. Many of us get quite ill on and off during that first

year on the SCD. Elaine wanted us to be on it for 2 years and then

reassess.

Anyway, just wanted to let you know that Xanax is highly addictive and

hard to get off of. Go for Clonzepam if you are thinking of using it

for a while.

The brain and gut are intricately connected. I too would have to go

right before leaving the house etc- you should read " Gut and

Psychology Syndrome " By Dr Natasha McBride. Also, Mara

remarked about an interesting book the other day called " The Second

Brain " or something like that. Shows us how the gut basically has

it's own type of neurons- giving it a mind of it's own. So

brain/psychology and GI are so deeply intertwined.

Jodi

SCD 15 months

Crohn's/Colitis

[Guest guest]

Appreciated. My doc seems to have studied much about gut/brain - goes

to conferences several times per year, etc... and yes it is referred

to as " The Second Brain " . (He has also suggested gut/brain books as

well) I'm going to go with whatever he says right now as my brain

fog/memory is so bad I would not retain 20% of any book read. He and

I both agree that 4 months is plenty of time to see some type of

improvement. There was no glimmer that it might have been working at

all. I know Elaine studied and studied and has helped many people,

but quite simply the diet does not work for me. I can certainly take

ideas from the diet - but as a total package not so much.

I thought it had worked in a previous flare, but my doc and I talked

about it and realized that more than likely it did not. I realized

that I was eating many illegal foods (that for some reason I thought

was legal) none of the yogurt, but got better anyway. (other factors

as well)

Thanks for the info on Clonzepam I'll check into it. Right now the

Xanax is strictly for those terribly over anxious days. (I'm guessing

maybe twice a month) And at my request he only gave me a small script

at a low dose. Luckily I do not have addictive tendencies. Usually

if I think I need something, that is the time I shy away from it.

Thanks!

>

> Hey ,

>

> Personally.. 4 months is not nearly enough time to gauge if the diet

> is working. Many of us get quite ill on and off during that first

> year on the SCD. Elaine wanted us to be on it for 2 years and then

> reassess.

>

> Anyway, just wanted to let you know that Xanax is highly addictive and

> hard to get off of. Go for Clonzepam if you are thinking of using it

> for a while.

>

> The brain and gut are intricately connected. I too would have to go

> right before leaving the house etc- you should read " Gut and

> Psychology Syndrome " By Dr Natasha McBride. Also, Mara

> remarked about an interesting book the other day called " The Second

> Brain " or something like that. Shows us how the gut basically has

> it's own type of neurons- giving it a mind of it's own. So

> brain/psychology and GI are so deeply intertwined.

>

> Jodi

> SCD 15 months

> Crohn's/Colitis

>

[Guest guest]

,

Clonazepam and Xanax are in the Valium family of drugs and therefore, yes have the potential for addiction. All of these benzodiazepines have that potential. However, the half life of Xanax is 7 hours. The half life of Clonazepam is 35 hours. This means that in 35 hours, half of the dose is still circulating in your body. The Xanax, IMO is a better choice for the occasional anxieties you are describing and it will leave you less sedated. ( I was a pharmacist in my previous 'life') The addiction factor is a little overrated-one needs to have the addictive personality to begin with. One can become dependent, but it sounds like you and your doctor have a good handle on what's working for you.

Not everything works for everybody--we all have to decide what works best for us in our lifestyles. Best of luck in your journey.

Terry

UC

Lialda

Re: Moving on

Appreciated. My doc seems to have studied much about gut/brain - goesto conferences several times per year, etc... and yes it is referredto as "The Second Brain". (He has also suggested gut/brain books aswell) I'm going to go with whatever he says right now as my brainfog/memory is so bad I would not retain 20% of any book read. He andI both agree that 4 months is plenty of time to see some type ofimprovement. There was no glimmer that it might have been working atall. I know Elaine studied and studied and has helped many people,but quite simply the diet does not work for me. I can certainly takeideas from the diet - but as a total package not so much. I thought it had worked in a previous flare, but my doc and I talkedabout it and realized that more than likely it did not. I realizedthat I was eating many illegal foods (that for some reason I thoughtwas legal) none of the yogurt, but got better anyway. (other factorsas well)Thanks for the info on Clonzepam I'll check into it. Right now theXanax is strictly for those terribly over anxious days. (I'm guessingmaybe twice a month) And at my request he only gave me a small scriptat a low dose. Luckily I do not have addictive tendencies. Usuallyif I think I need something, that is the time I shy away from it. Thanks! >> Hey ,> > Personally.. 4 months is not nearly enough time to gauge if the diet> is working. Many of us get quite ill on and off during that first> year on the SCD. Elaine wanted us to be on it for 2 years and then> reassess.> > Anyway, just wanted to let you know that Xanax is highly addictive and> hard to get off of. Go for Clonzepam if you are thinking of using it> for a while.> > The brain and gut are intricately connected. I too would have to go> right before leaving the house etc- you should read "Gut and> Psychology Syndrome" By Dr Natasha McBride. Also, Mara> remarked about an interesting book the other day called "The Second> Brain" or something like that. Shows us how the gut basically has> it's own type of neurons- giving it a mind of it's own. So> brain/psychology and GI are so deeply intertwined.> > Jodi> SCD 15 months> Crohn's/Colitis>

[Guest guest]

You may also want to consider doing a colonoscopy with biopsies if

you haven't had them. If you have Microscopic Colitis and don't know

it, it may take longer for the diet to work, and going on meds to

allow your body time to calm down immunologically can help the diet

get the foothold it needs. I just found I have MC (I don't fit the

usual symptoms at all either). It's a lot more common than is

usually realized and is often overlooked because it takes biopsies to

see. Hope you find the relief you need.

Shonda

>

> My doctor and I have decided it is time to abandon the diet. (Don't

> worry, he's an md but also holistic and a believer in the diet.

Uses

> it for autism as well.)

>

> It has been 4 months and I've actually got worse. While I am sure

that

> I will still have dietary needs to follow that have yet to be

> determined, we've decided to take a medicine approach. I have an

> incredible amount of anxiety which seems to dramatically increase my

> symptoms. Example: I don't really have to use the bathroom until I

> know I am leaving the house. Stopped at a stoplight with traffic

all

> around and I can't pull over to use the potty in my truck. Things

> like that. I had also tried eliminating certain foods that might

have

> been a cause - yogurt, cheese, honey, raw fruits etc... I gave it a

> good go - my best shot.

>

> He is thinking more in terms that IBS is my trouble and we are going

> to try Librax along with Xanax when needed. I'm also on a

supplement

> to help with the slight Candida excess that was reported on my stool

> test - along with continuing my 6 month script of diflucan. I will

> also continue with the 24 hour yogurt and I don't mind that at all.

>

> I'm very optimistic! Of course results are yet to be seen, but I

just

> thought I would share this in case anyone might find it useful.

>

> I guess part of the reason for my post is that I've quite often felt

> like I wasn't doing something right on this diet and why wasn't it

> working for me. I just want to get the message out there that while

> it is AWESOME if the diet works for you - it is okay if it doesn't.

> You just have to try something else! Never quit trying!

>

[Guest guest]

>

> My doctor and I have decided it is time to abandon the diet. (Don't

> worry, he's an md but also holistic and a believer in the diet. Uses

> it for autism as well.)

>

> It has been 4 months and I've actually got worse. While I am sure that

> I will still have dietary needs to follow that have yet to be

> determined, we've decided to take a medicine approach.

Dearest ,

I can aprreciate where you are coming from - you want to get it fixed.

Believe me, I am there with you and I am so motivated by other stories

and how quickly they got helped. So, the SCD diet sounds to me that you

will go on a diet for 4 to 8 weeks and should see dramtic improvments.

And you think to yourselve: Well, I am not that sick - it should work

for me like that, too. Howver, 8 weeks go by - not much is happening.

And you start to look at others: Why did it work for them so quickly

and not for me?

I believe that for many of us, including me, it takes longer - much

longer.

Suggestion: Since you are so keen on getting confirmations by doctors,

why don`t you read what Dr. Lutz form Austria had to say. In his book

he is analysing the recovery of more then 1000 of his patients and he

confirms, that it takes from a few months to up to 8 years (worse case)

to recover and get healed from UC (!!!). He brings up some very good

statistics - good for me, because I am a numbers person. However, 60%

are healed within the first two years ... so like Elaine puts it: After

12 months we should analyse our situation again.

Hang in there ... 4 months seemed to be long time - but it really isn`t

(check Dr. Lutz`s data material - here is link from the scd folks:

http://www.scdiet.org/7archives/lutz/lebenoh.html).

Report every little improvement, so you also can experience some

QuickWins, which are important in order to hang in there. And may God

show you your path and protect you will you will have daubts.

In Him,

[Guest guest]

,

Thanks so much for that link. I look forward to reading it, too.

After rereading my post, I wanted to add that it can also take a while

to help other bowel diseases too. I just mentioned the MC possibly

taking a while because it's the one I know more about and am dealing

with myself.

Shonda

[Guest guest]

no, no, no :-( please don't give up - I don't think any of us

saw improvement by 4 months - hang in - add a little something if you

need and then wean off it - you will get results- please hang in - it

goes by so fast (1 year the 13th )and still am i healed? no- but are

my scopes showing no inflammation yes !!!-they were at 9 months !!!

and i'm gaining and i'm better than I was - it's working - you are

healing I bet plus with yeast issues etc it's harder and longer -

please give it another chance

eileen

-- In BTVC-SCD , " jodah235 " wrote:

>

> Hey ,

>

> Personally.. 4 months is not nearly enough time to gauge if the diet

> is working. Many of us get quite ill on and off during that first

> year on the SCD. Elaine wanted us to be on it for 2 years and then

> reassess.

>

> Anyway, just wanted to let you know that Xanax is highly addictive

and

> hard to get off of. Go for Clonzepam if you are thinking of using

it

> for a while.

>

> The brain and gut are intricately connected. I too would have to go

> right before leaving the house etc- you should read " Gut and

> Psychology Syndrome " By Dr Natasha McBride. Also, Mara

> remarked about an interesting book the other day called " The Second

> Brain " or something like that. Shows us how the gut basically has

> it's own type of neurons- giving it a mind of it's own. So

> brain/psychology and GI are so deeply intertwined.

>

> Jodi

> SCD 15 months

> Crohn's/Colitis

>

[Guest guest]

, just a thought. I used to get this too and thought it was abotu

stress of leaving too....... Cause for me? Aritificial fragrance. I

would put on perfume or deoderant before leaving.........and I am

actually sensitive to products with any aritificial fragrance in it.

Now that we are fragrance free and I have switched to products that I

am not sensitive to I do not have that problem any longer. Michele

wrote:

Example: I don't really have to use the bathroom until I

> know I am leaving the house.