Guest guest Posted October 7, 2004 Report Share Posted October 7, 2004 I just spent SEVEN days in bed with a flare up: Huge tonsils, zero ability to get out of bed (or even watch tv!), weight loss, flank pain, infected eyes. My IgAN had gone away for my recent pregnacy - so now I'm dealing with IGAN with a vengance and a 4.5 month old active baby. I used to know how to get better - but it is SO hard to get that done with a crying baby! I know not all IGAN positive folks have lives ruled by flare ups - but mine sure is... By the way - this is my first post here. I posted a bit at igan.ca - but that went away so I'm trying it out here. I'm 31 and have had IgAN since 1997. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2004 Report Share Posted October 8, 2004 Welcome to the group I'm glad you found your way over here from the igan.ca site. I'm 35 and was diagnosed in Sept '03. I'm sorry to hear about the nasty flare up. Mine does that from time to time where the flank pain gets bad, the fatigue is severe, and ya just can't move to save you life. Having a newborn on top of that has to be extremely rough. I hope you are doing better now. So how does your creatinine level look? Are you having problems with spilling protein? I hope you are able to rest when you can. I have 2 kids and it's only been 6 years since my youngest was a newborn....I remember the exhaustion just from that let alone having fatigue from IgAN on top of it. Welcome again, it's great to meet you! Amy G. I hate flare ups! > > > > I just spent SEVEN days in bed with a flare up: Huge tonsils, zero > ability to get out of bed (or even watch tv!), weight loss, flank > pain, infected eyes. My IgAN had gone away for my recent pregnacy - > so now I'm dealing with IGAN with a vengance and a 4.5 month old > active baby. I used to know how to get better - but it is SO hard to > get that done with a crying baby! I know not all IGAN positive folks > have lives ruled by flare ups - but mine sure is... > > By the way - this is my first post here. I posted a bit at igan.ca - > but that went away so I'm trying it out here. I'm 31 and have had > IgAN since 1997. > > > > > > > > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > > To unsubcribe via email, > iga-nephropathy-unsubscribe > Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: > http://www.igan.ca/id62.htm > > Thank you > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2004 Report Share Posted October 8, 2004 Hey Alaska... I hate flare ups too! It's bad enough to be sick, but we gotta deal with flank pain, fatigue, and dark pee to boot. I'm 33 and I've got two boys ages 3 and 1 year. I was told I probably have IGAN last year, 1 month after my son, Charlie, was born. So, I can relate to the fatigue of a newborn and IGAN flares. Hang in there! And welcome to our group! --Dave Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2004 Report Share Posted October 8, 2004 Hi Melani, Welcome to the group, and even more importantly, congratulations on your new baby! How precious a gift a new baby is, but also very difficult when you are not feeling well, and sleep deprived on top of that. I am just so sorry you are having a flare up with a new baby. I hope you feel better soon. Welcome again! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2004 Report Share Posted October 8, 2004 Hello, Sorry to hear about your flare up. My daughter was about 4 months old when I had my first official flare up. It was no fun at all. I understand the sleep deprivation and the general stress of a newborn. I don't wish it upon my worst enemy. My daughter was so colicky until about 5 months. I remember waking up half dead and dreading the day ahead of me. Plenty of guilt would follow my negative feelings. Now that she is almost 18 months, I can cope with this disease much better. I wish I could have taken advantage of family, but they live out of state and my friends are all working full time. I think having a good support system would have gotten me through the stress of a newborn as well as the symptoms of Iga Neph. It's is nice to know others have experienced difficult parenting times as well. Thanks for sharing and I wish you plenty of rest, support, and sanity. Christa > > > I just spent SEVEN days in bed with a flare up: Huge tonsils, zero > ability to get out of bed (or even watch tv!), weight loss, flank > pain, infected eyes. My IgAN had gone away for my recent pregnacy - > so now I'm dealing with IGAN with a vengance and a 4.5 month old > active baby. I used to know how to get better - but it is SO hard to > get that done with a crying baby! I know not all IGAN positive folks > have lives ruled by flare ups - but mine sure is... > > By the way - this is my first post here. I posted a bit at igan.ca - > but that went away so I'm trying it out here. I'm 31 and have had > IgAN since 1997. Quote Link to comment Share on other sites More sharing options...
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