Re: Provigil

[Guest guest]

I take provigil and as far as I have

researched it is gluten-free, but now I can’t remember where I got the

information. Sorry. I think I found it on a gluten-free meds list. Do call, and

tell us what you find. I’m hoping I’ll be able to stop using it

when I’m gluten free again for a while.

Laurie

lbilyeu@...

From: SillyYaks [mailto:SillyYaks ] On Behalf Of lilbit3603

Sent: Wednesday, March 15, 2006

12:58 AM

To: SillyYaks

Subject: Provigil

Does anyone know if the

medication provigil is glutenfree? It has

pregelatinized starch as one of the

ingredients? I will try and call

tomorrow, but I would like to know ASAP.

Thanks,

[Guest guest]

According to cephalon, the makers of provigil, it is not gluten

free, as the pregelatinized starch can be from corn, wheat, or

potatoes and it varies w/ each batch

Does anyone here know of a gluten free treatment for narcolepsy?

Aderol/Ritalin and anti-depressents are not really an option for me,

so I don't know of anything else right now.

>

> I take provigil and as far as I have researched it is gluten-free,

but now I

> can't remember where I got the information. Sorry. I think I found

it on a

> gluten-free meds list. Do call, and tell us what you find. I'm

hoping I'll

> be able to stop using it when I'm gluten free again for a while.

>

>

>

> Laurie

>

> lbilyeu@...

>

> _____

>

> From: SillyYaks [mailto:SillyYaks ]

On Behalf

> Of lilbit3603

> Sent: Wednesday, March 15, 2006 12:58 AM

> To: SillyYaks

> Subject: Provigil

>

>

>

> Does anyone know if the medication provigil is glutenfree? It has

> pregelatinized starch as one of the ingredients? I will try and

call

> tomorrow, but I would like to know ASAP.

>

> Thanks,

>

>

>

>

>

>

>

>

[Guest guest]

> Does anyone here know of a gluten free treatment for narcolepsy?

> Aderol/Ritalin and anti-depressents are not really an option for

> me, so I don't know of anything else right now.

The only thing that ever worked for me was to figure out what

additional foods I was reacting to in addition to gluten. I was put

on Ritalin for a couple of years for fatigue that bordered on

narcolepsy according to a sleep study (pre-diagnosis), but it only

made me jittery and extremely irritable.

Have you looked into other foods that you could be reacting to?

Trudy in NH

[Guest guest]

C-pap machine are for sleep apnea as far as i know. I have looked

into other things I am reacting to and have a decent sized list to

stay away from as a result of various allergy testing, however, I have

been diagnosed w/ narcolepsy through sleep studies and a blood test to

look for the gene, so as far as I know and have been told, although

staying away from things i react to will help it will not solve the

problem

>

> > Does anyone here know of a gluten free treatment for

narcolepsy?

> > Aderol/Ritalin and anti-depressents are not really an option for

> > me, so I don't know of anything else right now.

>

> The only thing that ever worked for me was to figure out what

> additional foods I was reacting to in addition to gluten. I was put

> on Ritalin for a couple of years for fatigue that bordered on

> narcolepsy according to a sleep study (pre-diagnosis), but it only

> made me jittery and extremely irritable.

>

> Have you looked into other foods that you could be reacting to?

>

> Trudy in NH

>

[Guest guest]

yeah i'm trying to look into the other versions now, as far as I can

tell the version in canada is alertec, but i can't seem to find much

information on it.

I have to find something to switch to ASAP or I will end up losing

my license to drive

> >

> > I take provigil and as far as I have researched it is gluten-

free,

> but now I

> > can't remember where I got the information. Sorry. I think I

found

> it on a

> > gluten-free meds list. Do call, and tell us what you find. I'm

> hoping I'll

> > be able to stop using it when I'm gluten free again for a while.

> >

> >

> >

> > Laurie

> >

> > <mailto:lbilyeu@> lbilyeu@

> >

> > _____

> >

> > From: SillyYaks

[mailto:SillyYaks ]

> On Behalf

> > Of lilbit3603

> > Sent: Wednesday, March 15, 2006 12:58 AM

> > To: SillyYaks

> > Subject: Provigil

> >

> >

> >

> > Does anyone know if the medication provigil is glutenfree? It

has

> > pregelatinized starch as one of the ingredients? I will try and

> call

> > tomorrow, but I would like to know ASAP.

> >

> > Thanks,

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

I don't have narcolepsy, but have a mild form of a different kind of

epilepsy (temporal lobe). I also get migraine, which is related to

epilepsy in general.

I have to completely avoid aspartame (tradename Nutrasweet).

I also have to make sure my blood glucose does not drop low. (I'm T2.)

If I have aspartame I will get a seizure within 48 hours. If my blood

glucose drops much below fasting level, I'll have migraine within 48

hours.

If I avoid aspartame and blood glucose drops, I can pretty much avoid

the majority of my brain problems.

If you are prone to low blood sugar, and/or if you are fond of using

aspartame products, you might try to see if avoiding b.g. lows and

aspartame might help you.

Just a thought.

NOT meant to start a flame war about the merits and drawbacks of

aspartame and/or any other sweetener. Last time I mentioned the " A "

word (and " Splenda " ), it started an ugly flame war that got some folks

very emotionally wounded. I know this is a charged subject and I'm

treading on dangerous ground to even mention it. Let's just assume for

a minute that I have avoided all the mines as I tread this field, OK?

I'm merely stating a fact that **FOR ME** aspartame gives me brain

problems and my neurologist told me to avoid it. **FOR ME**, avoiding

aspartame has helped a lot. And maybe, just maybe, my sharing my

experience can help someone else find a little relief, too. I used to

have several cans of diet soda/day. (Not 20, not ten, more like 2 or

3. But it was enough aspartame to bother my brain.)

Esther in RI

[Guest guest]

Many people have similar problems with aspartame and I feel the same

way as you do. I too have issues with aspartame and won't touch it

with a ten foot pole. But, that's also just me.

Rhiannon

>

> I don't have narcolepsy, but have a mild form of a different kind

of

> epilepsy (temporal lobe). I also get migraine, which is related to

> epilepsy in general.

>

> I have to completely avoid aspartame (tradename Nutrasweet).

> I also have to make sure my blood glucose does not drop low. (I'm

T2.)

>

> If I have aspartame I will get a seizure within 48 hours. If my

blood

> glucose drops much below fasting level, I'll have migraine within

48

> hours.

>

> If I avoid aspartame and blood glucose drops, I can pretty much

avoid

> the majority of my brain problems.

>

> If you are prone to low blood sugar, and/or if you are fond of

using

> aspartame products, you might try to see if avoiding b.g. lows and

> aspartame might help you.

>

> Just a thought.

>

> NOT meant to start a flame war about the merits and drawbacks of

> aspartame and/or any other sweetener. Last time I mentioned

the " A "

> word (and " Splenda " ), it started an ugly flame war that got some

folks

> very emotionally wounded. I know this is a charged subject and I'm

> treading on dangerous ground to even mention it. Let's just assume

for

> a minute that I have avoided all the mines as I tread this field,

OK?

> I'm merely stating a fact that **FOR ME** aspartame gives me brain

> problems and my neurologist told me to avoid it. **FOR ME**,

avoiding

> aspartame has helped a lot. And maybe, just maybe, my sharing my

> experience can help someone else find a little relief, too. I used

to

> have several cans of diet soda/day. (Not 20, not ten, more like 2

or

> 3. But it was enough aspartame to bother my brain.)

>

> Esther in RI

>

[Guest guest]

C-Pap machines are actually used for a lot of sleep disorders...not

just sleep apnea. That's not to say that it would be right for you,

but it might be an option. ???

> >

> > > Does anyone here know of a gluten free treatment for

> narcolepsy?

> > > Aderol/Ritalin and anti-depressents are not really an option

for

> > > me, so I don't know of anything else right now.

> >

> > The only thing that ever worked for me was to figure out what

> > additional foods I was reacting to in addition to gluten. I was

put

> > on Ritalin for a couple of years for fatigue that bordered on

> > narcolepsy according to a sleep study (pre-diagnosis), but it

only

> > made me jittery and extremely irritable.

> >

> > Have you looked into other foods that you could be reacting to?

> >

> > Trudy in NH

> >

>

[Guest guest]

What kind of stuff is the aspartame in? I do drink soda

occasionally, but never diet as it seems to trigger my migraines.

THe blood sugar drops is a decent possibility to look into, as I

have a hard time regulating my meals, as i don't seem to get hungry

but about once a day. I'll have to see what else I can find out

about this.

The reason I saw some promise in the other version of modafinil,

rather than simply provigil is that I found a site listing the

ingredients in modafinil and it listed maize starch, rather than the

pregelatinized starch, which I think would be gluten free, I just

can't figure out which version the ingredient list came from, and I

tried calling the number for shire biochem, the makers of Alertec,

but I got nowhere as I'm not in canada and I don't think they will

call back to a US #. I did email them, and am awaiting a response.

If anyone else has any luck please, please let me know. I am in the

process of applying to a police departmet, and if I cannot show that

the narcolepsy is sufficiently controlled by medication I will be

completely knocked out of the running.

> >

> > I don't have narcolepsy, but have a mild form of a different

kind

> of

> > epilepsy (temporal lobe). I also get migraine, which is related

to

> > epilepsy in general.

> >

> > I have to completely avoid aspartame (tradename Nutrasweet).

> > I also have to make sure my blood glucose does not drop low.

(I'm

> T2.)

> >

> > If I have aspartame I will get a seizure within 48 hours. If my

> blood

> > glucose drops much below fasting level, I'll have migraine

within

> 48

> > hours.

> >

> > If I avoid aspartame and blood glucose drops, I can pretty much

> avoid

> > the majority of my brain problems.

> >

> > If you are prone to low blood sugar, and/or if you are fond of

> using

> > aspartame products, you might try to see if avoiding b.g. lows

and

> > aspartame might help you.

> >

> > Just a thought.

> >

> > NOT meant to start a flame war about the merits and drawbacks of

> > aspartame and/or any other sweetener. Last time I mentioned

> the " A "

> > word (and " Splenda " ), it started an ugly flame war that got some

> folks

> > very emotionally wounded. I know this is a charged subject and

I'm

> > treading on dangerous ground to even mention it. Let's just

assume

> for

> > a minute that I have avoided all the mines as I tread this

field,

> OK?

> > I'm merely stating a fact that **FOR ME** aspartame gives me

brain

> > problems and my neurologist told me to avoid it. **FOR ME**,

> avoiding

> > aspartame has helped a lot. And maybe, just maybe, my sharing my

> > experience can help someone else find a little relief, too. I

used

> to

> > have several cans of diet soda/day. (Not 20, not ten, more like

2

> or

> > 3. But it was enough aspartame to bother my brain.)

> >

> > Esther in RI

> >

>

[Guest guest]

Can i put a few cents in about this? My grandma had an allergy to

formaldehyde. aspartame and hydrocloric acid in your stomach combine

and create formaldehyde at 89 degrees, well below body temperature.

She used to get the horrible headaches and other dangerous symptoms,

such as sudden low blood pressure and sometimes pass out. She also

can't eat splenda, IT'S CHLORINE COATED SUGAR! it's supposed to go

through your body because your body recognises chlorine as a poison,

and supposedly " passes through " your body without getting digested,

but really now, after all of the stuff we know now about our digestive

systems, do we really think our bodies do that? it's still " normal "

sugar, but with " bleach " coating! I can't have splenda, it makes me

violently ill because i'm allergic to bleach, i drink bottled waters,

have no cleaners with bleach in them, and if i come in contact with

it, my skinn peels off...it's really gross. My mom has the same

allergy, and has researched the whole splenda-chlorine thing. Sorry to

rant on like this, but after all we do to try to be healthy, doesn't

that sound counterproductive?

>

> I used to get " wicked " headaches from Aspartame, too,

Esther...Splenda , however, doesn't seem to bother me.

> cheryl in maine

>

[Guest guest]

There is a sugar alternative out there that is supposed to be much

healthier...it's called stevia. I have not used it yet because I do

not know enough about it. I know that's it not an exact amount

alternative. It's a lot sweeter, so you only use a little bit

compared to a normal amount, if that makes any sense. But, it's

something for those of you who care to look into using.

Rhiannon

> >

> > I used to get " wicked " headaches from Aspartame, too,

> Esther...Splenda , however, doesn't seem to bother me.

> > cheryl in maine

> >

>

[Guest guest]

Yes, i actually use stevia in lots of things, it tasts great if you

get the one that says " no bitter aftertaste " . it is sold in powder and

liquid form, and even comes in different flavors, like vanilla,

toffee, orange, lemon, chocolate raspberry, and a few others i haven't

tried yet. It has no calories and is definately sweeter than sugar,

and better for you. It's an herb, natural ground up leaves of the

stevia plant, so it's not a chemical kind of sweetener like aspartame.

Hope this helps

> > >

> > > I used to get " wicked " headaches from Aspartame, too,

> > Esther...Splenda , however, doesn't seem to bother me.

> > > cheryl in maine

> > >

> >

>