Guest guest Posted March 6, 2006 Report Share Posted March 6, 2006 You probably do NOT fit their profile, but you should check out the yahoo group " attachasd " --it deals with autistic children but they will " let you in(!) " to discuss the diet! I'm on this group because of my adopted dd having possible Fetal Alcohol Syndrome. They have been a GREAT help & you'll learn ALOT about a GFCF diet there. MOST are on that diet...we are only gf! http://health.groups.yahoo.com/group/attachasd/ " This group is for adoptive families who are trying to determine if their child's issues/behaviors are due to attachment problems, RAD, PTSD, Sensory Integration, Autism Spectrum Disorders, adoption issues or any combination of the above. Parents on the list are actively seeking appropriate treatments to help their particular child. " Laurel > > So..we are new to the diet. I am in the process of elimating gluten > foods. We should be GF soon. > When we originally did the Entrolab stool & saliva test, they felt > we should remove both gluten & casien from my 3yr DS diet. I am > wondering how long milk should be removed? He does not have > an " allergy " to milk, but I understand milk is a common problem for > gluten senative people. Once I have removed milk for (how ever long) > is it okay to have some milk. Unlike once I remove gluten it is a > 100% gluten free diet. > FYI...Entrolab said he had " dietary gluten sensitivity " > and " increased amount of dietary fat in the stool,likely due to > samll instestinal malabsorbition/damage. " They also said...:you > have antibodies to cows milk....your are immunolgically sensitive to > foodproducts containing cows milk " . > We did an endoscopy and it came back negative. He also has elevated > igG. > Sorry so long...but has anyone else removed milk/casien and how long > should it be reomved? > Thank you for your advise. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2006 Report Share Posted March 6, 2006 Forgot to add, they have files of GFCF recipes, links, etc. There are probably other yahoo groups dedicated just to gfcf issues...do a search. I think you'll find many have to do with Autism because, for some reason a GFCF diet REALLY helps autistic kids. Laurel > > > > So..we are new to the diet. I am in the process of elimating > gluten > > foods. We should be GF soon. > > When we originally did the Entrolab stool & saliva test, they felt > > we should remove both gluten & casien from my 3yr DS diet. I am > > wondering how long milk should be removed? He does not have > > an " allergy " to milk, but I understand milk is a common problem > for > > gluten senative people. Once I have removed milk for (how ever > long) > > is it okay to have some milk. Unlike once I remove gluten it is a > > 100% gluten free diet. > > FYI...Entrolab said he had " dietary gluten sensitivity " > > and " increased amount of dietary fat in the stool,likely due to > > samll instestinal malabsorbition/damage. " They also said...:you > > have antibodies to cows milk....your are immunolgically sensitive > to > > foodproducts containing cows milk " . > > We did an endoscopy and it came back negative. He also has > elevated > > igG. > > Sorry so long...but has anyone else removed milk/casien and how > long > > should it be reomved? > > Thank you for your advise. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2006 Report Share Posted March 6, 2006 I have found that the GFCF sites are under " autism " ...so I am having a hard time seperating between helpful GFCF stuff and " way over my head Autism stuff " . They take enzymes, and do lots of stuff that I have not figured out. Thanks nes > > Forgot to add, they have files of GFCF recipes, links, etc. There > are probably other yahoo groups dedicated just to gfcf issues...do a > search. I think you'll find many have to do with Autism because, for > some reason a GFCF diet REALLY helps autistic kids. > Laurel > > > --- In SillyYaks , " Laurel S " <smidgentigre@> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2006 Report Share Posted March 7, 2006 When our son was diagnosed, he would not drink milk at all. We were told to keep him casein free for a few months til he healed and then introduce milk into his diet. After waiting 3 mos. on the gf diet, we gave him milk and he drank it. Now, we cannot give him enough milk. He loves it. I remember when we first tried milk at age one and he hardly drank any and then the smell was too much for him, so he would not go near it. Hope this helps in your situation. Lauretta So..we are new to the diet. I am in the process of elimating gluten foods. We should be GF soon.When we originally did the Entrolab stool & saliva test, they felt we should remove both gluten & casien from my 3yr DS diet. I am wondering how long milk should be removed? He does not have an " allergy " to milk, but I understand milk is a common problem for gluten senative people. Once I have removed milk for (how ever long) is it okay to have some milk. Unlike once I remove gluten it is a 100% gluten free diet.FYI...Entrolab said he had " dietary gluten sensitivity " and " increased amount of dietary fat in the stool,likely due to samll instestinal malabsorbition/damage. " They also said...:you have antibodies to cows milk....your are immunolgically sensitive to foodproducts containing cows milk " .We did an endoscopy and it came back negative. He also has elevated igG.Sorry so long...but has anyone else removed milk/casien and how long should it be reomved?Thank you for your advise. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2006 Report Share Posted March 7, 2006 - my 9 year old tested positive for milk and eggs allergies - after 9 months without these and being GF he is now testing negative for these allergies. He also tolerates milk and eggs in his diet. He eats 1 - 2 servings of milk in the form of cheese or yogurt per day, but says cows milk still upsets his stomach so for now he's sticking with soy milk. Kerri wrote: So..we are new to the diet. I am in the process of elimating gluten foods. We should be GF soon.When we originally did the Entrolab stool & saliva test, they felt we should remove both gluten & casien from my 3yr DS diet. I am wondering how long milk should be removed? He does not have an "allergy" to milk, but I understand milk is a common problem for gluten senative people. Once I have removed milk for (how ever long) is it okay to have some milk. Unlike once I remove gluten it is a 100% gluten free diet.FYI...Entrolab said he had "dietary gluten sensitivity" and "increased amount of dietary fat in the stool,likely due to samll instestinal malabsorbition/damage." They also said...:you have antibodies to cows milk....your are immunolgically sensitive to foodproducts containing cows milk".We did an endoscopy and it came back negative. He also has elevated igG.Sorry so long...but has anyone else removed milk/casien and how long should it be reomved?Thank you for your advise. Relax. Yahoo! Mail virus scanning helps detect nasty viruses! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2006 Report Share Posted March 7, 2006 Does your 3yr son have dark circles under his eyes, any kind of sensory issues, or temper/aggression that seems above and beyond? > > So..we are new to the diet. I am in the process of elimating gluten > foods. We should be GF soon. > When we originally did the Entrolab stool & saliva test, they felt > we should remove both gluten & casien from my 3yr DS diet. I am > wondering how long milk should be removed? He does not have > an " allergy " to milk, but I understand milk is a common problem for > gluten senative people. Once I have removed milk for (how ever long) > is it okay to have some milk. Unlike once I remove gluten it is a > 100% gluten free diet. > FYI...Entrolab said he had " dietary gluten sensitivity " > and " increased amount of dietary fat in the stool,likely due to > samll instestinal malabsorbition/damage. " They also said...:you > have antibodies to cows milk....your are immunolgically sensitive to > foodproducts containing cows milk " . > We did an endoscopy and it came back negative. He also has elevated > igG. > Sorry so long...but has anyone else removed milk/casien and how long > should it be reomved? > Thank you for your advise. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2006 Report Share Posted March 7, 2006 I'm an escapee from the Yahoo group GFCFrecipes. My son is autistic and a gfcf diet has done wonders for many autistic folks. If you want more info on gfcf for yourself, you might want to check that group out. (FYI, Laurel, if you're interested, this site: http://www.glutensolutions.com/autism.htm might help you to understand why a gfcf diet is a must for autistics. Sorry... didn't mean to get off topic.) :-) Kat > > > > > > So..we are new to the diet. I am in the process of elimating > > gluten > > > foods. We should be GF soon. > > > When we originally did the Entrolab stool & saliva test, they > felt > > > we should remove both gluten & casien from my 3yr DS diet. I am > > > wondering how long milk should be removed? He does not have > > > an " allergy " to milk, but I understand milk is a common problem > > for > > > gluten senative people. Once I have removed milk for (how ever > > long) > > > is it okay to have some milk. Unlike once I remove gluten it is > a > > > 100% gluten free diet. > > > FYI...Entrolab said he had " dietary gluten sensitivity " > > > and " increased amount of dietary fat in the stool,likely due to > > > samll instestinal malabsorbition/damage. " They also said...:you > > > have antibodies to cows milk....your are immunolgically > sensitive > > to > > > foodproducts containing cows milk " . > > > We did an endoscopy and it came back negative. He also has > > elevated > > > igG. > > > Sorry so long...but has anyone else removed milk/casien and how > > long > > > should it be reomved? > > > Thank you for your advise. > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2006 Report Share Posted March 7, 2006 I have, also as the result of an enterolab test. I didn't remove it until after I had been GF for 8 months and started feeling a lot of inflammation. I feel so much better with it removed.My understanding is that if you have an autoimmune response to it, like gluten, you should never eat any of it again.Best,Ciara Yahoo! Mail Bring photos to life! New PhotoMail makes sharing a breeze. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2006 Report Share Posted March 8, 2006 Eliminating milk is quite standard upon starting a GF diet. With the damage to the digestive tract, the body starts slowing down the production of digestive enzymes. Casein is a large protein that is hard to break down, especially in young kids. After healing, your son should be able to tolerate milk products again. Wait a few months and try to introduce milk again, but slowly. you dont want to overwhelm his body. Teenagers & adults do not heal as quickly and should wait longer. I just spoke with 3 different newly diagnosed teens and they all were told the same thing(by different dr.s): try and avoid milk for a year to 18 months and then reintroduce it slowly. > > > > So..we are new to the diet. I am in the process of elimating gluten > > foods. We should be GF soon. > > When we originally did the Entrolab stool & saliva test, they felt > > we should remove both gluten & casien from my 3yr DS diet. I am > > wondering how long milk should be removed? He does not have > > an " allergy " to milk, but I understand milk is a common problem for > > gluten senative people. Once I have removed milk for (how ever long) > > is it okay to have some milk. Unlike once I remove gluten it is a > > 100% gluten free diet. > > FYI...Entrolab said he had " dietary gluten sensitivity " > > and " increased amount of dietary fat in the stool,likely due to > > samll instestinal malabsorbition/damage. " They also said...:you > > have antibodies to cows milk....your are immunolgically sensitive to > > foodproducts containing cows milk " . > > We did an endoscopy and it came back negative. He also has elevated > > igG. > > Sorry so long...but has anyone else removed milk/casien and how long > > should it be reomved? > > Thank you for your advise. > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2006 Report Share Posted March 8, 2006 , we gave our 2 year old Lactaid for about 6 months while we began the GF diet and he liked it a lot. It comes in chocolate too. Because that has an enzyme (lactase) that helps digest lactose, it helped him eat the cheese he loves (in small amounts) and now 8 mos GF he can have milk without any problems. Three months just wasn't quite enough for my son, but everyone's different. I think it just depends how long it takes your son's tummy to heal before you reintroduce dairy. I don't know if Lactaid would be something you can use, but if you can, try it! I hope this helps a little. Angie > > > > > > So..we are new to the diet. I am in the process of elimating > gluten > > > foods. We should be GF soon. > > > When we originally did the Entrolab stool & saliva test, they > felt > > > we should remove both gluten & casien from my 3yr DS diet. I am > > > wondering how long milk should be removed? He does not have > > > an " allergy " to milk, but I understand milk is a common problem > for > > > gluten senative people. Once I have removed milk for (how ever > long) > > > is it okay to have some milk. Unlike once I remove gluten it is > a > > > 100% gluten free diet. > > > FYI...Entrolab said he had " dietary gluten sensitivity " > > > and " increased amount of dietary fat in the stool,likely due to > > > samll instestinal malabsorbition/damage. " They also said...:you > > > have antibodies to cows milk....your are immunolgically > sensitive to > > > foodproducts containing cows milk " . > > > We did an endoscopy and it came back negative. He also has > elevated > > > igG. > > > Sorry so long...but has anyone else removed milk/casien and how > long > > > should it be reomved? > > > Thank you for your advise. > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2006 Report Share Posted March 8, 2006 Yes. I have no doubt that if you remove casein you will see dramatic differences - I mean, he is still three and will still act like a three year old, but it will be within a more normal range. Give it a shot, and be sure to email me if you see a difference. I have had a number of 'in real life' friends do this with huge changes in their kids. You should try it for at least a month before chucking it. Casein is in quite a bit of stuff, including things like tuna fish, so you want to get as familar with the variations like you did with gluten. Check out these sites: http://www.childhoodanxietynetwork.org/htdocs/htm/sid.htm http://www.thegraycenter.org/sectionsdetails.cfm?id=54 > > > > > > So..we are new to the diet. I am in the process of elimating > > gluten > > > foods. We should be GF soon. > > > When we originally did the Entrolab stool & saliva test, they > felt > > > we should remove both gluten & casien from my 3yr DS diet. I am > > > wondering how long milk should be removed? He does not have > > > an " allergy " to milk, but I understand milk is a common problem > > for > > > gluten senative people. Once I have removed milk for (how ever > > long) > > > is it okay to have some milk. Unlike once I remove gluten it is > a > > > 100% gluten free diet. > > > FYI...Entrolab said he had " dietary gluten sensitivity " > > > and " increased amount of dietary fat in the stool,likely due to > > > samll instestinal malabsorbition/damage. " They also said...:you > > > have antibodies to cows milk....your are immunolgically > sensitive > > to > > > foodproducts containing cows milk " . > > > We did an endoscopy and it came back negative. He also has > > elevated > > > igG. > > > Sorry so long...but has anyone else removed milk/casien and how > > long > > > should it be reomved? > > > Thank you for your advise. > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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