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Hi there friends:

In case anyone missed me I just wanted to let you know that I have been offline

for about 2 weeks due to a computer virus. Also have had a bug myself with a

cough that gave me trouble breathing (more than usual) but I am back online and

cough seems to be subsiding also.

Just wanted to welcome all new PLSers and caregivers and hope you learn as much

from the group as I have. Being cut-off from them was horrific.

I noticed some chatting about emotional liability and I can definitely relate to

that!!!!!!!!!! For just over a month now I have been on Valproic Acid (used to

treat seizures normally) and although my emotions haven't changed as yet, I have

not had any negative reaction like I have to everything else. I would imagine

it takes some time to build up in my system and I just increased the dosage this

week - so keep your fingers crossed that it starts helping. There are so many

things to deal with PLS but the worst for me so far is the emotional problems

and the effect it has on speech.

But none the less we are here for each other and from that we gather the

strength to carry on

My best to everyone. I am glad to be back.

Jo (Northern Ontario)

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Hi Jo,

Welcome back. Glad you are feeling better. Take care.

God Bless

Yolanda

I am back!

Hi there friends:

In case anyone missed me I just wanted to let you know that I have been

offline for about 2 weeks due to a computer virus. Also have had a bug myself

with a cough that gave me trouble breathing (more than usual) but I am back

online and cough seems to be subsiding also.

Just wanted to welcome all new PLSers and caregivers and hope you learn as

much from the group as I have. Being cut-off from them was horrific.

I noticed some chatting about emotional liability and I can definitely relate

to that!!!!!!!!!! For just over a month now I have been on Valproic Acid (used

to treat seizures normally) and although my emotions haven't changed as yet, I

have not had any negative reaction like I have to everything else. I would

imagine it takes some time to build up in my system and I just increased the

dosage this week - so keep your fingers crossed that it starts helping. There

are so many things to deal with PLS but the worst for me so far is the emotional

problems and the effect it has on speech.

But none the less we are here for each other and from that we gather the

strength to carry on

My best to everyone. I am glad to be back.

Jo (Northern Ontario)

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  • 3 months later...
Guest guest

Hi Dena,

Good for you for sticking to your guns on the anesthetic. I was praying for

you, and hope your recovery is going well. Just don't overdo it too soon OK?

Please let us know what you learn on Wednesday.

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