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Posted
Posted

Thank you Jo, Lorraine, Em

Thank you so much. I just got home from the hospital. Actually I had cleaned

out all my files and I was throwing away all kinds of extra things, I had

written a letter. I doubled over in pain and started vomiting and within

about an hour had to be taken to the ER... with severe gastritis, an ulcer,

a strangulated hiatal hernia... I got away thank God without surgery. I am

weak and exhausted. In the meantime nothing but bad news keeps coming and

coming. I have shared all with my kids. In the hospital, I had my therapist

and both my kids come, we all cried together. Everybody expressed their

frustration and pain, I told them everything that was on my mind and heart

and what was happening -- my whole life is being destroyed by this person's

heartless act. Because he pushed me into bankruptcy a whole domino of things

have happened -- I will lose my social security disability, and my

medications are extremely expensive.... I won't even go into all the things

that will happen now just because he changed his mind about this decision,

as if asking for a different flavor of ice cream. My kids said no way they

would let me end up in a homeless shelter. But I will probably have to give

up my art and most of the things I've worked all my life for. I understand

what you say.... I've been there, done that.... I pray and meditate

constantly. I can't take antidepressants because I am allergic to them, but

I do have medications that help the pain and anxiety. I can't imagine being

able to work a regular job. Maybe that is where I am headed --- into trying

to work at some job and ending up in the hospital over and over and over

again because my body won't do it. Thank you for your love and care, I do

have people who love me, I know that. I don't want to do anything to myself.

I am so exhausted and I don't know what will happen, all I can do right now

is wait. If I have to end up dependent on my kids it will kill me, but I

can't put them through the pain of losing me to suicide. All I can do is

wait. And pray. and then pray some more.

love

Vimala

> Hang in there...I care!

> Jo

> God bless

> Lorraine UK

>

> *millions of hugs*

> Em

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  • 4 months later...
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Posted
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Tom,

Welcome to the board and congratulations on your new son. My daughter was

born with moderately severe bilateral clubfoot almost two years ago now. We

origionally were seeing a local orthopedic surgeon for the first three

months of her life and did'nt find out about the Ponseti Method or any

doctors using it until she was already 5 months old. We were using the

" Traditional Method " at first and I understand what you mean when you say

that your son's feet are now at neutral possition and are pointing straight

down. 's feet did that from about cast number 7 or 8 and she had a

total of 10 casts. (3 full months of treatments.) Her feet never progressed

past that possition and at that point surgery was going to be the only thing

left to correct her feet completely. They were unable to manipulate her feet

past that possition because she was too tight and so casting was finished

and we waited until she was old enough to have surgery. Fortunately we found

the Ponseti Method before that. After all the casts and time that had gone

by and the fact that 's feet almost totally relapsed while waiting for

surgery, Dr. Ponseti was able to correct 's feet starting at five

months of age with 6 casts and a tenotomy procedure. (Her feet were in a

normal possiton with his casts from about cast #3 or 4 on.)

I also very much understand how you feel about questioning your doctors, I

too had to deal with that, it was very difficult for me. What I can say now,

having gone through it all is that I don't feel the same way anymore. I

realized that it was up to me to find the best treatment for my daughter

that I could. One that I felt comfortable with and felt confident that would

be her best chance for a complete correction and the best outcome for her

future. Having realized that it was still very scary leaving our first

doctor but I felt it was the right thing to do. I knew only a little about

the Ponseti Method, just what I read from Dr. Ponseti's website. There

really was'nt much out there at the time she was born that I could find to

research.

I also wanted to mention that while in Iowa we had a doctor from Scotland

assisting Dr. Ponseti with 's casts for a few weeks. (That was in the

summer of 2000.) I know that she is on Dr. Ponseti's list of qualified

doctors, I believe she is the doctor that you said was on maternity leave if

I remember correctly. Dr. Short. She was extremely nice and we liked her a

lot!

Best of Luck to your family and hopefully all of your questions and concerns

are being answered.

Holly and (from: Michigan Born: Feb.11,2000.)

Thank you

>Thank you to everyone who has replied.

>

>It's very touching to receive the kind messages and advice.

>

>My wife, Corinne and I life in Scotland and the list of those

>qualified in the teachings of Dr Ponsetti (from the link on

>www.VH.org), names one Doctor in Scotland who I have contacted

>through e-mail. She is currently on maternity leave until May.

>

>In reply to my querry the doctor has given me a name of someone at

>another hospital who is practicing the method and has had results.

>This might well be the route we go down.

>

>The doctor who is currently manipulating my son Ben's feet I believe

>to be a honest person and I am trusting her (at the moment) that she

>has had results with the Ponsetti method.

>

>The questions posted to ask will be helpful (the problem I have is to

>some extent, is questioning the Doctors, I am understand that things

>are too important not to) and I am now trying very hard to understand

>the process as best I can. I will continue to read as much as

>possible and have ordered a copy of Dr Ponsetti's book.

>

>Ben's casts are every Monday so I should be clearer on how we are

>going to progress next week.

>

>Thank you again everyone.

>

>It is a good site.

>

>

>

>

>

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Posted
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Tom:

We also saw the doctor that Holly is referring to and her name was

Short. She did at least one of my son's casts while we were in

Iowa. I would have a lot of confidence in her since she spent

approximately 2 weeks in Iowa training with Dr. Ponsetti.

Again, best of luck

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  • 3 months later...
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Posted
Posted

Hello,

What a relief! I too felt the same about being lucky that clubfoot was her only

problem. It's treatable and pretty mild compared to all the other things out

there that could go wrong! A friend of mine had her first child a little boy a

couple of years ago and he was born with a hole in his heart. He has had

multiple heart surgeries and was fed through a feeding tube for most of the

beginning of his life. Now he needs a heart transplant. They didn't think he

would live this long. I thought about that and thanked god that all she had was

clubfeet.

Congrats on your good news!

Sincerely,

and Breanna

mfitz42900 wrote: I just wanted to say thanks to those of you

who responded to my

message. It's wonderful to have a resource to go to. My husband and

I were very surprised at the diagnoses, but we are happy that this is

something that is very treatable. Our Dr was afraid that the club

foot may be linked to Downs Syndrome, so I had an Amnio a couple of

weeks ago. Everything came back normal, but after having a scare of

a potential child with Downs, club foot seems very mild. I have

started looking at some of the photos you all have posted and it's

great to see some many happy, healthy children.

Thanks again for making me feel welcome.

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Posted
Posted

Hello,

What a relief! I too felt the same about being lucky that clubfoot was her only

problem. It's treatable and pretty mild compared to all the other things out

there that could go wrong! A friend of mine had her first child a little boy a

couple of years ago and he was born with a hole in his heart. He has had

multiple heart surgeries and was fed through a feeding tube for most of the

beginning of his life. Now he needs a heart transplant. They didn't think he

would live this long. I thought about that and thanked god that all she had was

clubfeet.

Congrats on your good news!

Sincerely,

and Breanna

mfitz42900 wrote: I just wanted to say thanks to those of you

who responded to my

message. It's wonderful to have a resource to go to. My husband and

I were very surprised at the diagnoses, but we are happy that this is

something that is very treatable. Our Dr was afraid that the club

foot may be linked to Downs Syndrome, so I had an Amnio a couple of

weeks ago. Everything came back normal, but after having a scare of

a potential child with Downs, club foot seems very mild. I have

started looking at some of the photos you all have posted and it's

great to see some many happy, healthy children.

Thanks again for making me feel welcome.

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Guest guest

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Posted
Posted

Hello,

What a relief! I too felt the same about being lucky that clubfoot was her only

problem. It's treatable and pretty mild compared to all the other things out

there that could go wrong! A friend of mine had her first child a little boy a

couple of years ago and he was born with a hole in his heart. He has had

multiple heart surgeries and was fed through a feeding tube for most of the

beginning of his life. Now he needs a heart transplant. They didn't think he

would live this long. I thought about that and thanked god that all she had was

clubfeet.

Congrats on your good news!

Sincerely,

and Breanna

mfitz42900 wrote: I just wanted to say thanks to those of you

who responded to my

message. It's wonderful to have a resource to go to. My husband and

I were very surprised at the diagnoses, but we are happy that this is

something that is very treatable. Our Dr was afraid that the club

foot may be linked to Downs Syndrome, so I had an Amnio a couple of

weeks ago. Everything came back normal, but after having a scare of

a potential child with Downs, club foot seems very mild. I have

started looking at some of the photos you all have posted and it's

great to see some many happy, healthy children.

Thanks again for making me feel welcome.

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Posted
Posted

Jody,

whewww!!...that wuz tough!, my brain cells got

scattered all over the place. Finally exam is over, i

can now relax and read all the group's emails.!! =)

BTW: just want 2 share with You my picture

again....ehehehehe...this was taken a year after I was

RAi-ed!

Warning, what you are about to see contained !#$%^ & *!

graphic, Parental discretion is advised.

http://www.angelfire.com/ca4/JATERMAC/RAI.html

chie

--- Jody Spitale wrote:

>

__________________________________________________

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Posted
Posted

Jody,

whewww!!...that wuz tough!, my brain cells got

scattered all over the place. Finally exam is over, i

can now relax and read all the group's emails.!! =)

BTW: just want 2 share with You my picture

again....ehehehehe...this was taken a year after I was

RAi-ed!

Warning, what you are about to see contained !#$%^ & *!

graphic, Parental discretion is advised.

http://www.angelfire.com/ca4/JATERMAC/RAI.html

chie

--- Jody Spitale wrote:

>

__________________________________________________

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Guest guest

Guest guest

Posted
Posted

Jody,

whewww!!...that wuz tough!, my brain cells got

scattered all over the place. Finally exam is over, i

can now relax and read all the group's emails.!! =)

BTW: just want 2 share with You my picture

again....ehehehehe...this was taken a year after I was

RAi-ed!

Warning, what you are about to see contained !#$%^ & *!

graphic, Parental discretion is advised.

http://www.angelfire.com/ca4/JATERMAC/RAI.html

chie

--- Jody Spitale wrote:

>

__________________________________________________

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  • 6 years later...
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Posted
Posted

Dearest Eileen,

Yes, I will follow all your suggestions, thank you so much for so much of love, concern, care, sympathy, help, support and all the prayers, yes, I consider so lucky to be a member of the support group.

I will learn to fight as all of you have done and not give up.

Lots of love and prayers to you

Sandhya

Subject: Re: need you kind HELP & SUPPORT URGENTLYTo: BTVC-SCD Date: Thursday, January 1, 2009, 6:05 PM

Sandyhaas Jodi said please don't panic - we're all here - and we've all been there - people come to SCD who are sick of being sick - you will heal, you'll be ok - while you work ( I couldn't) also vitamins have to be worked in slowly - everything does - you're probably not absorbing great right now anyway - the best thing to do is talk to Lucy or digestivewellness. com -Ester is greatthere - that will help with what you need in the future - but for now SOUP is amazing and heals so much -relax - pray (if you're a pray-er - LOL) it bought me to SCD I'll pray for you -stay calm -do the intro for 2-5 days and add 1 thing SLOWLY after that (vitamins, probiotics, food - all get added separately)www.pecanbread. com should help with stages - Lucy never followed them - they weren't Elaine's idea- but they help I think - as we don't know what is safe next and we're so confused - anyway...we' re

all here and please write with what you need any of us can get it and send it -hang ineileen11 1/2 months scd> >I already sent several mails to Lucys kitchen if > >she will post the package from the USA to Nepal, I get no response from her.> > Sandhya,> > Last week was Christmas, which is a very big > holiday in the United States. It was also > Hanukkah, which is another. This week, it is New > Year's. So these weekends are difficult for > someone to get back to you if they are having > holiday company. I know you are anxious to get > started correctly on SCD, and I'm sure Lucy will > get back to you as

quickly as she can. She is a > lovely lady who was healed completely of her > Ulcerative Colitis by SCD, and who has been > following the diet for something like 15 years.> > One thing, we have been recommending the > Yogourmet yogurt maker to you, and none of us > though about the possible difference in > electrical current between North America and > Nepal. I just looked it up, and I believe that > your electrical current is not compatible with > the Yogourmet. You will need an adapter for it.> > However, there is a way to make proper SCD yogurt without the Yogourmet.> > This video, by Ramacher, shows how to do > it using an ordinary foam cooler (or other > insulated box) and a regular electric light.> > http://www.cookingf orceliacscolitis crohnsandibs. com/cooking_ for/content/how_to_make_ yogurt.html> > or> > http://tinyurl. com/5z5o4v> > She does show making yogurt with regular yogurt, > and not the culture powders which one would order > from Lucy. If you can find out what cultures are > used in the store bought yogurt you were using, that may be OK.> > Lucy's Kitchen Shop is located in Washington > State, on the west coast of the U.S. Her time is > 13 hours earlier than the time in Kathmandu, > Nepal. That is, when it is 10 a.m. where she is, > it will be 11p.m. in Nepal. So you also have to > take the time differences into account.> > > > — Marilyn> New Orleans, Louisiana, USA> Undiagnosed IBS since 1976,

SCD since 2001> Darn Good SCD Cook> No Human Children> Shadow & Sunny Longhair Dachshund>

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