thank yous

[Guest guest]

Hello all

Thank you all very much for your kind comments and support. I have found

this year to be a bit overwhelming in general and this is just the icing of

it all. My daughter, Luka, is doing generally well. With her diagnosis

things have improved greatly. There is a very good staff of doctors here

and they are well educated about CF. I myself am just learning and finding

it all quite overwhelming. I have been most frustrated with the fact that

no one can tell me much about what will happen, because I know there is

nothing for sure, but it is still frustrating to not know. I have read all

of your comments, and have been somewhat impressed by a lot of the things

said, and slightly scared by others. I have one question that seemed to

come up often. What is TOBI? Right now it is very hard because I am a

single parent and I have just moved back to Stockholm this year after

spending nearly 12 years in New York, there is in otherwords little support,

so I am glad to know that there are places like this to look.

Tortson: thank you for the email address for the other woman here in Sweden.

I have written to her, but she has not yet responded.

Thank you all again

Anika

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