Guest guest Posted February 10, 2004 Report Share Posted February 10, 2004 Hi Group, I had one of those tough days today. Weather wise it was beautiful, sunny 46 degrees, a real heatwave for the northeast. I even went outside and walked up and down my street alittle while to enjoy the day, but my PLS was in a very uncooperative mood. My right leg wanted to drag along like a small child that didn't want to go with me. I took my rolling walker to be cautious. My left leg was grouchy cause it felt like it had to do all the work. My toes on my right foot wanted to stay curled under inside my sock and shoe, like a lazy person that didn't want to get out from under the covers to go with us. It seemed like every time I sat down today, my bladder would say " I have to go potty " , just like one of the kids that you would ask before you get in the car " do you have to go, well,let's go try while we are close by " , and as soon as you get going they say " I have to go now " , when you are no where close to the facilities. Then my mind got frustrated with the whole bunch.. Well, when I get tired & frustrated you know who always comes to visit me, the last one I feel like visiting with today...Mr.Emotional Lability! Oh swell !!! I wish Sears carried the replacement parts I needed, I be online ordering up a box of toes (assorted sizes), etc....I guess what I really need is some new extension cords, since my light bulb and switch are ok ( or so Mark told me). I have to go for physical therapy tomorrow, I hope we have a better day than today. Sometimes I go and it feels good, other times I go and I'm struggling to get through it. I have been on Baclofen for about 5 weeks 10 mg. per day, it seems to be helping some with the stiffness but some days my legs feel weaker and more tired. Is this pretty much the norm when you start with the Baclofen? Some days I feel like I'm trading the stiffness for the weakness, when I really don't want either one. Then all these things seem to calm down a tad. Well, thanks for letting me vent about my day. Now I feel better and more relaxed. I'm really grateful to have this group and all there support to help me through this.To show my gratitude for each and everyone of you...........go to this site to see and hear how I feel..........http://www.link4u.com/c7/touchsomeone4.htm Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2004 Report Share Posted February 10, 2004 Well...tomorrow will be a better day, but you did find the most perfect link. It had to be written for our SUPPORT groups! Brilliant. Alone we can do so little. Together we can do so much. Helen Keller (1880-1968) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2004 Report Share Posted February 10, 2004 I am sorry to hear about you haveing such a bad day. I hope tomarrow will be a better day for you. Thank you for shareing the link. Have a great day, Sandy Tough day Hi Group, I had one of those tough days today. Weather wise it was beautiful, sunny 46 degrees, a real heatwave for the northeast. I even went outside and walked up and down my street alittle while to enjoy the day, but my PLS was in a very uncooperative mood. My right leg wanted to drag along like a small child that didn't want to go with me. I took my rolling walker to be cautious. My left leg was grouchy cause it felt like it had to do all the work. My toes on my right foot wanted to stay curled under inside my sock and shoe, like a lazy person that didn't want to get out from under the covers to go with us. It seemed like every time I sat down today, my bladder would say " I have to go potty " , just like one of the kids that you would ask before you get in the car " do you have to go, well,let's go try while we are close by " , and as soon as you get going they say " I have to go now " , when you are no where close to the facilities. Then my mind got frustrated with the whole bunch.. Well, when I get tired & frustrated you know who always comes to visit me, the last one I feel like visiting with today...Mr.Emotional Lability! Oh swell !!! I wish Sears carried the replacement parts I needed, I be online ordering up a box of toes (assorted sizes), etc....I guess what I really need is some new extension cords, since my light bulb and switch are ok ( or so Mark told me). I have to go for physical therapy tomorrow, I hope we have a better day than today. Sometimes I go and it feels good, other times I go and I'm struggling to get through it. I have been on Baclofen for about 5 weeks 10 mg. per day, it seems to be helping some with the stiffness but some days my legs feel weaker and more tired. Is this pretty much the norm when you start with the Baclofen? Some days I feel like I'm trading the stiffness for the weakness, when I really don't want either one. Then all these things seem to calm down a tad. Well, thanks for letting me vent about my day. Now I feel better and more relaxed. I'm really grateful to have this group and all there support to help me through this.To show my gratitude for each and everyone of you...........go to this site to see and hear how I feel..........http://www.link4u.com/c7/touchsomeone4.htm Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2004 Report Share Posted February 10, 2004 Dear Jeannie, I am so sorry you are having a rough day! I am glad you are talking about it so you can feel better soon. This is what friends are for!!! Have a great day tommorrow! Tough day > Hi Group, > > I had one of those tough days today. Weather wise it was beautiful, > sunny 46 degrees, a real heatwave for the northeast. I even went outside and > walked up and down my street alittle while to enjoy the day, but my PLS was in a > very uncooperative mood. My right leg wanted to drag along like a small child > that didn't want to go with me. I took my rolling walker to be cautious. My > left leg was grouchy cause it felt like it had to do all the work. My toes on > my right foot wanted to stay curled under inside my sock and shoe, like a > lazy person that didn't want to get out from under the covers to go with us. It > seemed like every time I sat down today, my bladder would say " I have to go > potty " , just like one of the kids that you would ask before you get in the car > " do you have to go, well,let's go try while we are close by " , and as soon as > you get going they say " I have to go now " , when you are no where close to the > facilities. Then my mind got frustrated with the whole bunch.. Well, when I > get tired & frustrated you know who always comes to visit me, the last one I > feel like visiting with today...Mr.Emotional Lability! Oh swell !!! I wish > Sears carried the replacement parts I needed, I be online ordering up a box of > toes (assorted sizes), etc....I guess what I really need is some new extension > cords, since my light bulb and switch are ok ( or so Mark told me). > I have to go for physical therapy tomorrow, I hope we have a better day > than today. Sometimes I go and it feels good, other times I go and I'm > struggling to get through it. I have been on Baclofen for about 5 weeks 10 mg. per > day, it seems to be helping some with the stiffness but some days my legs > feel weaker and more tired. Is this pretty much the norm when you start with the > Baclofen? Some days I feel like I'm trading the stiffness for the weakness, > when I really don't want either one. Then all these things seem to calm down > a tad. Well, thanks for letting me vent about my day. Now I feel better and > more relaxed. I'm really grateful to have this group and all there support > to help me through this.To show my gratitude for each and everyone of > you...........go to this site to see and hear how I > feel..........http://www.link4u.com/c7/touchsomeone4.htm > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2004 Report Share Posted February 11, 2004 I know how you are feeling all too well. Another angle I look at is how many good days did I have before this tough one. I had three great weeks. Gee I was almost normal. Then Friday I went to exercise. My left leg did an instant spasm, foot in and under. I fell into the lady beside me. For 3 days after my leg dragged, twitched and wimped. So I have been playing my own shrink. lol We must remember on the bad days that there are good days around the corner. My hardest part is to remember on the good days I cannot pretend a bad day will not return...I become Queen of Denial. Finding a way everydat Eva Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2004 Report Share Posted February 11, 2004 In a message dated 2/10/2004 11:09:24 PM Eastern Standard Time, pinkflamingo984@... writes: ...........http://www.link4u.com/c7/touchsomeone4.htm Sorry you had such a tough day Jeannie. Hope all the wind in NJ today blew all your troubles away. I loved the above link. How true it is. I know about those bad days, I usually say I'm in a " Funk " or I've got the " Blahs. " Sometimes they stay a while (too long) and other times they go away in a day or so. So hang in. You'll be up and running tomorrow. Connie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2004 Report Share Posted February 11, 2004 Well written! I do hope your having a better day today! You described the body very well on how it works... dale Tough day > Hi Group, > > I had one of those tough days today. Weather wise it was beautiful, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2004 Report Share Posted February 11, 2004 I'm glad you are feeling better. You're not alone. I have had two days where I did not feel like doing anything at all. Even though I force myself. But just one of those days when you wonder when is it going to get better? I usually pray, cry and read the Bible a lot and that comforts me. So I'm back to normal. This is not easy for any of us, but it's good to know that tomorrow holds a better day most of the time. So hang in there my friend, we're going to make it. I believe! God Bless Yolanda Tough day Hi Group, I had one of those tough days today. Weather wise it was beautiful, sunny 46 degrees, a real heatwave for the northeast. I even went outside and walked up and down my street alittle while to enjoy the day, but my PLS was in a very uncooperative mood. My right leg wanted to drag along like a small child that didn't want to go with me. I took my rolling walker to be cautious. My left leg was grouchy cause it felt like it had to do all the work. My toes on my right foot wanted to stay curled under inside my sock and shoe, like a lazy person that didn't want to get out from under the covers to go with us. It seemed like every time I sat down today, my bladder would say " I have to go potty " , just like one of the kids that you would ask before you get in the car " do you have to go, well,let's go try while we are close by " , and as soon as you get going they say " I have to go now " , when you are no where close to the facilities. Then my mind got frustrated with the whole bunch.. Well, when I get tired & frustrated you know who always comes to visit me, the last one I feel like visiting with today...Mr.Emotional Lability! Oh swell !!! I wish Sears carried the replacement parts I needed, I be online ordering up a box of toes (assorted sizes), etc....I guess what I really need is some new extension cords, since my light bulb and switch are ok ( or so Mark told me). I have to go for physical therapy tomorrow, I hope we have a better day than today. Sometimes I go and it feels good, other times I go and I'm struggling to get through it. I have been on Baclofen for about 5 weeks 10 mg. per day, it seems to be helping some with the stiffness but some days my legs feel weaker and more tired. Is this pretty much the norm when you start with the Baclofen? Some days I feel like I'm trading the stiffness for the weakness, when I really don't want either one. Then all these things seem to calm down a tad. Well, thanks for letting me vent about my day. Now I feel better and more relaxed. I'm really grateful to have this group and all there support to help me through this.To show my gratitude for each and everyone of you...........go to this site to see and hear how I feel..........http://www.link4u.com/c7/touchsomeone4.htm Quote Link to comment Share on other sites More sharing options...
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