Re: Geo/Connecting the Dots

[Guest guest]

Hi Daryll Anne

Your welcome i thaught it might be fun to do the chart we might find out we

have more in common than we think . But unfortunatly im beginning to think some

do not think this should be done here but so be it im doing this with good

intentions nothing in it for me but the enjoyment .This group helps us so we

dont feel alone and this will help that even further GEO

Geo/Connecting the Dots

Hi Geo, I am a lurker. My mom has PLS and I have learned so much

through PLS Friends. You are a wonderful group of people with great

courage and a great sense of humor. I would appreciate it if you

would add Mom to your list. Her name is Peggy Hann. She is 72, 5'2 " ,

she has hazel eyes, brown hair and is mostly of Russian and German

descent. She is right handed, but the symptoms started in her left

leg. There is no known family history of any neurological disease.

She is a retired banker and her first " big " symptom started at age 68

when she got up immediately following a difficult eye laser surgery

and her left leg was dragging. Now she realizes that she had many

less noticeable symptoms before. Thanks for making this

chart...trying to keep warm in land...Daryll Anne

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[Guest guest]

Hi Darryl Anne,

Welcome aboard! It's good that you are seeking information as I know this will

help your mom. She is very blessed to have a child like you. Hang around and

if you need encouragement that's what we are here for or whatever. Tell mom she

is not alone. Take care.

God Bless

Yolanda

Geo/Connecting the Dots

Hi Geo, I am a lurker. My mom has PLS and I have learned so much

through PLS Friends. You are a wonderful group of people with great

courage and a great sense of humor. I would appreciate it if you

would add Mom to your list. Her name is Peggy Hann. She is 72, 5'2 " ,

she has hazel eyes, brown hair and is mostly of Russian and German

descent. She is right handed, but the symptoms started in her left

leg. There is no known family history of any neurological disease.

She is a retired banker and her first " big " symptom started at age 68

when she got up immediately following a difficult eye laser surgery

and her left leg was dragging. Now she realizes that she had many

less noticeable symptoms before. Thanks for making this

chart...trying to keep warm in land...Daryll Anne

[Guest guest]

Hi Geo, I am a lurker too, and I have PLS. I am 40 years old, blue eyes

blonde hair, English/polish decent. I am right handed and the symptoms

started in my right leg. I do not recall a family history of neurological

illnesses. I have never worked with chemicals but have been in stressful

positions as I am a social worker sometimes providing crisis intervention to

distressed clients. I also have had many stressful situations in my life

including an abusive childhood. I abused alcohol during my childhood and

adolescence, but have been 20 years sober as of December 2003. My biggest

symptom occurred after my leg landed deep in the snow as it fell off my

cross-country ski. Upon trying to get back on the ski, I ended up twisting

my knee and needing to attend physiotherapy. At that point I was referred

to my first neurologist at the age of 23 because the physiotherapist thought

that I had a " strange gait " . However, I tended to be " clumsy " throughout my

earlier years with poor balance and a great talent for finding any hole in

any playground to twist my ankles in. I seemed to enjoy falling down stairs

too and this wasn't related to my drinking... honestly!

Thanks for putting a chart together!

Kelli

[Guest guest]

Hi Kelli

im sorry your childhood was'nt good But this should strengthen your resolve to

not let that kind of behavior carry on .You know what current thought is that

people who came from abused families tend to carry it on .My sweety had such a

childhood and mine was the opposite .so we talked alot about this in our

marriage to this day i do not like my Father in law as i was always taught to

avoid people who act this way .I was not the perfect Dad but i always strived to

avoid a violent situation my son and i had one once as his so calle friends got

him into drugs and he became aggressive .so i ended up doind the right thing

having him removed by the police mostly because i was'nt going to let him win

..He moved to Portland and lived like a drugy like he always wanted got his fill

of that kind of life .Thank God he is still alive .He now works 3 jobs i think

mostly to stay clean .you know what they say an idle mind is the devils workshop

..I used to waterski until i got this i tried tubing last year thinking it might

be easier but almost drowned myself GEO

Re: Geo/Connecting the Dots

Hi Geo, I am a lurker too, and I have PLS. I am 40 years old, blue eyes

blonde hair, English/polish decent. I am right handed and the symptoms

started in my right leg. I do not recall a family history of neurological

illnesses. I have never worked with chemicals but have been in stressful

positions as I am a social worker sometimes providing crisis intervention to

distressed clients. I also have had many stressful situations in my life

including an abusive childhood. I abused alcohol during my childhood and

adolescence, but have been 20 years sober as of December 2003. My biggest

symptom occurred after my leg landed deep in the snow as it fell off my

cross-country ski. Upon trying to get back on the ski, I ended up twisting

my knee and needing to attend physiotherapy. At that point I was referred

to my first neurologist at the age of 23 because the physiotherapist thought

that I had a " strange gait " . However, I tended to be " clumsy " throughout my

earlier years with poor balance and a great talent for finding any hole in

any playground to twist my ankles in. I seemed to enjoy falling down stairs

too and this wasn't related to my drinking... honestly!

Thanks for putting a chart together!

Kelli

------------------------------------------------------------------------------

[Guest guest]

Thanks Geo for your comments regarding my post, that was a very nice email

to greet me at the start of the day! Regarding your chart, I forgot to put

the year of my diagnosis (1998) and the real symptoms began around 1986 but

these were very mild in comparison to what I deal with now (use of walker in

home, 2 canes when I need to in case of less accessibility, wheelchair most

often at other locations). My progression has been extremely slow and

remains in my legs.

Have a great day and evening!

Kelli

Re: Geo/Connecting the Dots

> Hi Kelli

> im sorry your childhood was'nt good But this should strengthen your

resolve to not let that kind of behavior carry on .You know what current

thought is that people who came from abused families tend to carry it on .My

sweety had such a childhood and mine was the opposite .so we talked alot

about this in our marriage to this day i do not like my Father in law as i

was always taught to avoid people who act this way .I was not the perfect

Dad but i always strived to avoid a violent situation my son and i had one

once as his so calle friends got him into drugs and he became aggressive .so

i ended up doind the right thing having him removed by the police mostly

because i was'nt going to let him win .He moved to Portland and lived like a

drugy like he always wanted got his fill of that kind of life .Thank God he

is still alive .He now works 3 jobs i think mostly to stay clean .you know

what they say an idle mind is the devils workshop .I used to waterski until

i got this i tried tubing l

[Guest guest]

Hi Kelli you were 22 when symptoms started GEO

Re: Geo/Connecting the Dots

> Hi Kelli

> im sorry your childhood was'nt good But this should strengthen your

resolve to not let that kind of behavior carry on .You know what current

thought is that people who came from abused families tend to carry it on .My

sweety had such a childhood and mine was the opposite .so we talked alot

about this in our marriage to this day i do not like my Father in law as i

was always taught to avoid people who act this way .I was not the perfect

Dad but i always strived to avoid a violent situation my son and i had one

once as his so calle friends got him into drugs and he became aggressive .so

i ended up doind the right thing having him removed by the police mostly

because i was'nt going to let him win .He moved to Portland and lived like a

drugy like he always wanted got his fill of that kind of life .Thank God he

is still alive .He now works 3 jobs i think mostly to stay clean .you know

what they say an idle mind is the devils workshop .I used to waterski until

i got this i tried tubing l

[Guest guest]

And I was in my late teens

Geo wrote:

> Hi Kelli you were 22 when symptoms started GEO

> Re: Geo/Connecting the Dots

>

>

> > Hi Kelli

> > im sorry your childhood was'nt good But this should strengthen your

> resolve to not let that kind of behavior carry on .You know what current

> thought is that people who came from abused families tend to carry

> it on .My

> sweety had such a childhood and mine was the opposite .so we talked alot

> about this in our marriage to this day i do not like my Father in

> law as i

> was always taught to avoid people who act this way .I was not the

> perfect

> Dad but i always strived to avoid a violent situation my son and i

> had one

> once as his so calle friends got him into drugs and he became

> aggressive .so

> i ended up doind the right thing having him removed by the police mostly

> because i was'nt going to let him win .He moved to Portland and

> lived like a

> drugy like he always wanted got his fill of that kind of life .Thank

> God he

> is still alive .He now works 3 jobs i think mostly to stay clean

> .you know

> what they say an idle mind is the devils workshop .I used to

> waterski until

> i got this i tried tubing l

>

>

>

[Guest guest]

Wow Joe, that is so early! Would you mind sharing what was happening for

you at that time in terms of symptoms? Sometimes I feel like I had mine

from birth but it could have been a mild form of cerebral palsy as my first

diagnosis suggested. They just assumed that all my falling and injuries

were me being clumsy.

Regards!

Kelli

Re: Geo/Connecting the Dots

> >

> >

> > > Hi Kelli

> > > im sorry your childhood was'nt good But this should strengthen

your

> > resolve to not let that kind of behavior carry on .You know what

current

> > thought is that people who came from abused families tend to carry

> > it on .My

> > sweety had such a childhood and mine was the opposite .so we talked

alot

> > about this in our marriage to this day i do not like my Father in

> > law as i

> > was always taught to avoid people who act this way .I was not the

> > perfect

> > Dad but i always strived to avoid a violent situation my son and i

> > had one

> > once as his so calle friends got him into drugs and he became

> > aggressive .so

> > i ended up doind the right thing having him removed by the police

mostly

> > because i was'nt going to let him win .He moved to Portland and

> > lived like a

> > drugy like he always wanted got his fill of that kind of life .Thank

> > God he

> > is still alive .He now works 3 jobs i think mostly to stay clean

> > .you know

> > what they say an idle mind is the devils workshop .I used to

> > waterski until

> > i got this i tried tubing l

> >

> >

> >