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Re: Survey/New Doc/MDA

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Hi Bonnie

Im doing a chart, survey what ever you want to call it i need your age i

have. year of onset or age ancestry occupation eye color hair color RH i have

or LH and family history of neurological diseases GEO

Survey/New Doc/MDA

Hi everyone,

I have been catching up on all the posted messages. I noticed some

kind of survey....I have ascending PLS, right handed, age of onset

26. That's right 26... UGH!

I have trouble lately with doctors. In the last 4 years, 5 of my

docs relocated and I keep having to find someone new. I will be

checking out the new MDA clinic in NC. I live in SC, and went to MDA

clinic in ton to get reestablished there. I had been there 3

years ago, and needed to go back. How disappointing. I waited 7

months for an appointment - and the doc took all of 10 minutes with

me. Anyway, I get comfort from all the posts. It helps me realize I

am not alone.

Be well,

Bonnie in SC

------------------------------------------------------------------------------

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GEO HI IT IS ANNIE HILL AGE 60

ONSET AT 59 STARTED WITH SPEECH AND WENT TO LEFT HAND AND LEGS I AM RIGHT

HANDED AND NO ONE HAS A NEURO DISEASE BUT ME

PLS

Survey/New Doc/MDA

>

>

> Hi everyone,

>

> I have been catching up on all the posted messages. I noticed some

> kind of survey....I have ascending PLS, right handed, age of onset

> 26. That's right 26... UGH!

>

> I have trouble lately with doctors. In the last 4 years, 5 of my

> docs relocated and I keep having to find someone new. I will be

> checking out the new MDA clinic in NC. I live in SC, and went to MDA

> clinic in ton to get reestablished there. I had been there 3

> years ago, and needed to go back. How disappointing. I waited 7

> months for an appointment - and the doc took all of 10 minutes with

> me. Anyway, I get comfort from all the posts. It helps me realize I

> am not alone.

>

> Be well,

> Bonnie in SC

>

>

>

> --------------------------------------------------------------------------

----

>

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ANNIE AGAIN I HAVE BROWN HAIR AND BLUE EYES ANCESTRY GERMAN

Survey/New Doc/MDA

>

>

> Hi everyone,

>

> I have been catching up on all the posted messages. I noticed some

> kind of survey....I have ascending PLS, right handed, age of onset

> 26. That's right 26... UGH!

>

> I have trouble lately with doctors. In the last 4 years, 5 of my

> docs relocated and I keep having to find someone new. I will be

> checking out the new MDA clinic in NC. I live in SC, and went to MDA

> clinic in ton to get reestablished there. I had been there 3

> years ago, and needed to go back. How disappointing. I waited 7

> months for an appointment - and the doc took all of 10 minutes with

> me. Anyway, I get comfort from all the posts. It helps me realize I

> am not alone.

>

> Be well,

> Bonnie in SC

>

>

>

> --------------------------------------------------------------------------

----

>

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Hi Anne

i dont have occupation ?GEO

Survey/New Doc/MDA

>

>

> Hi everyone,

>

> I have been catching up on all the posted messages. I noticed some

> kind of survey....I have ascending PLS, right handed, age of onset

> 26. That's right 26... UGH!

>

> I have trouble lately with doctors. In the last 4 years, 5 of my

> docs relocated and I keep having to find someone new. I will be

> checking out the new MDA clinic in NC. I live in SC, and went to MDA

> clinic in ton to get reestablished there. I had been there 3

> years ago, and needed to go back. How disappointing. I waited 7

> months for an appointment - and the doc took all of 10 minutes with

> me. Anyway, I get comfort from all the posts. It helps me realize I

> am not alone.

>

> Be well,

> Bonnie in SC

>

>

>

> --------------------------------------------------------------------------

----

>

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teacher, retired, private tutor using speech device

Survey/New Doc/MDA

> >

> >

> > Hi everyone,

> >

> > I have been catching up on all the posted messages. I noticed some

> > kind of survey....I have ascending PLS, right handed, age of onset

> > 26. That's right 26... UGH!

> >

> > I have trouble lately with doctors. In the last 4 years, 5 of my

> > docs relocated and I keep having to find someone new. I will be

> > checking out the new MDA clinic in NC. I live in SC, and went to

MDA

> > clinic in ton to get reestablished there. I had been there 3

> > years ago, and needed to go back. How disappointing. I waited 7

> > months for an appointment - and the doc took all of 10 minutes with

> > me. Anyway, I get comfort from all the posts. It helps me realize I

> > am not alone.

> >

> > Be well,

> > Bonnie in SC

> >

> >

> >

>

> --------------------------------------------------------------------------

> ----

> >

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