Guest guest Posted January 21, 2004 Report Share Posted January 21, 2004 Geo, They didn't. It is viral and had to pass through my system. I was given antibiotics to keep from getting anything else, but I got mononeucleosis, also. With encephalitis, the brain swells and sends signals to various parts of the body that that part of the brain controls. I had severe pain in my lower left leg. It is called " referred pain, " I think. I originally thought I had spinal meningitis. Everyone whom I know had had that died. I was terrified. But, when the local neurologist saw me and did another lumbar puncture (His hurt, while the GP at Purdue Univ. Hospital's did not.), he told me I did not have meningitis. I was so relieved that I didn't fully hear his other words - " You still have a 90% chance to turn into a human vegetable. " - until a few hours later. Then, it became a waiting period. There are some now who believe I am a vegetable since I'm " beat " all the time. It took me six months to remember my social security number. I also went through a divorce during this time. Shoot, I was lucky to remember my ex-wife's name, but I did know my two children's names and recognized them easily. I lost a photographic memory because of that disease, something I really miss. I could not attend classes for 30 days. I had trouble just getting out of bed and going to the bathroom. I would fall asleep in the bathroom, then go back to bed and fall asleep. When I started going back to class, I was in one with my Department Head. We met in his office, since there were only 4 of us. I slept through most of the classes, but got the work done. He was good natured about it. I was very fortunate that the encephalitis did pass through my body, but it left some markers behind. That may be one reason I was told that perhaps 50%, maybe only 10% since I was also told that 50% was in my head, of my problem could be contributed to the encephalitis. My current neurologist does not think so. He says it would have had only a minor effect, if any. He does not rule out the possibility, though. By the way, I'm 55, will be 56 in May. Have had this crappy disease since 1994, at least, maybe longer. I stopped running in 1987 because it was becoming too much an effort. Now, I wonder......? It was diagnosed in 1996 by a simple EMG, after all the other tests had been run, some of them twice. The worst one was the myelogram. They can take that one and shove it where the sun doesn't shine - on themselves. I thought that type of torture went out with the Middle Ages, but maybe they trained under some terrorists. Blue eyes, brown hair, ambidextrous (now only to a small degree), 5'9 " . Have been in at least 4 car accidents that caused me a whiplash injury and had me wearing a neck brace for at least a month each time. However, I believe that I have had more head trauma since PLS than before. This is from the falls I have taken, some of them real beauties. More info? Mike Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2004 Report Share Posted January 22, 2004 Did you get checked for MG Myasthenia Gravis GEO/Viral Encephalitis Geo, They didn't. It is viral and had to pass through my system. I was given antibiotics to keep from getting anything else, but I got mononeucleosis, also. With encephalitis, the brain swells and sends signals to various parts of the body that that part of the brain controls. I had severe pain in my lower left leg. It is called " referred pain, " I think. I originally thought I had spinal meningitis. Everyone whom I know had had that died. I was terrified. But, when the local neurologist saw me and did another lumbar puncture (His hurt, while the GP at Purdue Univ. Hospital's did not.), he told me I did not have meningitis. I was so relieved that I didn't fully hear his other words - " You still have a 90% chance to turn into a human vegetable. " - until a few hours later. Then, it became a waiting period. There are some now who believe I am a vegetable since I'm " beat " all the time. It took me six months to remember my social security number. I also went through a divorce during this time. Shoot, I was lucky to remember my ex-wife's name, but I did know my two children's names and recognized them easily. I lost a photographic memory because of that disease, something I really miss. I could not attend classes for 30 days. I had trouble just getting out of bed and going to the bathroom. I would fall asleep in the bathroom, then go back to bed and fall asleep. When I started going back to class, I was in one with my Department Head. We met in his office, since there were only 4 of us. I slept through most of the classes, but got the work done. He was good natured about it. I was very fortunate that the encephalitis did pass through my body, but it left some markers behind. That may be one reason I was told that perhaps 50%, maybe only 10% since I was also told that 50% was in my head, of my problem could be contributed to the encephalitis. My current neurologist does not think so. He says it would have had only a minor effect, if any. He does not rule out the possibility, though. By the way, I'm 55, will be 56 in May. Have had this crappy disease since 1994, at least, maybe longer. I stopped running in 1987 because it was becoming too much an effort. Now, I wonder......? It was diagnosed in 1996 by a simple EMG, after all the other tests had been run, some of them twice. The worst one was the myelogram. They can take that one and shove it where the sun doesn't shine - on themselves. I thought that type of torture went out with the Middle Ages, but maybe they trained under some terrorists. Blue eyes, brown hair, ambidextrous (now only to a small degree), 5'9 " . Have been in at least 4 car accidents that caused me a whiplash injury and had me wearing a neck brace for at least a month each time. However, I believe that I have had more head trauma since PLS than before. This is from the falls I have taken, some of them real beauties. More info? Mike ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2004 Report Share Posted January 22, 2004 Mike Occupation and family history of neuro diseases and whats a mylogram my spinal tap at Mayo wasnt bad at all my emg there was .I think some just like to torcher and others are caring my latest one here was ok my doc is a peach GEO GEO/Viral Encephalitis Geo, They didn't. It is viral and had to pass through my system. I was given antibiotics to keep from getting anything else, but I got mononeucleosis, also. With encephalitis, the brain swells and sends signals to various parts of the body that that part of the brain controls. I had severe pain in my lower left leg. It is called " referred pain, " I think. I originally thought I had spinal meningitis. Everyone whom I know had had that died. I was terrified. But, when the local neurologist saw me and did another lumbar puncture (His hurt, while the GP at Purdue Univ. Hospital's did not.), he told me I did not have meningitis. I was so relieved that I didn't fully hear his other words - " You still have a 90% chance to turn into a human vegetable. " - until a few hours later. Then, it became a waiting period. There are some now who believe I am a vegetable since I'm " beat " all the time. It took me six months to remember my social security number. I also went through a divorce during this time. Shoot, I was lucky to remember my ex-wife's name, but I did know my two children's names and recognized them easily. I lost a photographic memory because of that disease, something I really miss. I could not attend classes for 30 days. I had trouble just getting out of bed and going to the bathroom. I would fall asleep in the bathroom, then go back to bed and fall asleep. When I started going back to class, I was in one with my Department Head. We met in his office, since there were only 4 of us. I slept through most of the classes, but got the work done. He was good natured about it. I was very fortunate that the encephalitis did pass through my body, but it left some markers behind. That may be one reason I was told that perhaps 50%, maybe only 10% since I was also told that 50% was in my head, of my problem could be contributed to the encephalitis. My current neurologist does not think so. He says it would have had only a minor effect, if any. He does not rule out the possibility, though. By the way, I'm 55, will be 56 in May. Have had this crappy disease since 1994, at least, maybe longer. I stopped running in 1987 because it was becoming too much an effort. Now, I wonder......? It was diagnosed in 1996 by a simple EMG, after all the other tests had been run, some of them twice. The worst one was the myelogram. They can take that one and shove it where the sun doesn't shine - on themselves. I thought that type of torture went out with the Middle Ages, but maybe they trained under some terrorists. Blue eyes, brown hair, ambidextrous (now only to a small degree), 5'9 " . Have been in at least 4 car accidents that caused me a whiplash injury and had me wearing a neck brace for at least a month each time. However, I believe that I have had more head trauma since PLS than before. This is from the falls I have taken, some of them real beauties. More info? Mike ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2004 Report Share Posted January 22, 2004 Geo, Have already sent you the family medical history. I'm the only one with a neurological disease or anything related to it. Occupation is Mental Health Counselor, just a dissertation short of a Ph.D. Have been working in a large State Mental Hospital for 32 years. Was in Administration for 7 years prior to onset of definite symptoms. Was still required to do the duties of the Counselor. No time. Lots of stress. A myelogram is a spinal tap given while you are on a table that tilts. They run x-rays while tilting, then fill your spinal fluid with a dye and repeat the process. You have to cross your arms under your head and hold on to handles to keep from moving. Try this when you have an extreme startle reflex and a lot of pain. You will not want to repeat the procedure. Mike Geo wrote: >Mike Occupation and family history of neuro diseases and whats a mylogram my spinal tap at Mayo wasnt bad at all my emg there was .I think some just like to torcher and others are caring my latest one here was ok my doc is a peach GEO > GEO/Viral Encephalitis > > > Geo, > > They didn't. It is viral and had to pass through my system. I was given > antibiotics to keep from getting anything else, but I got > mononeucleosis, also. With encephalitis, the brain swells and sends > signals to various parts of the body that that part of the brain > controls. I had severe pain in my lower left leg. It is called " referred > pain, " I think. I originally thought I had spinal meningitis. Everyone > whom I know had had that died. I was terrified. But, when the local > neurologist saw me and did another lumbar puncture (His hurt, while the > GP at Purdue Univ. Hospital's did not.), he told me I did not have > meningitis. I was so relieved that I didn't fully hear his other words - > " You still have a 90% chance to turn into a human vegetable. " - until a > few hours later. Then, it became a waiting period. There are some now > who believe I am a vegetable since I'm " beat " all the time. It took me > six months to remember my social security number. I also went through a > divorce during this time. Shoot, I was lucky to remember my ex-wife's > name, but I did know my two children's names and recognized them easily. > I lost a photographic memory because of that disease, something I really > miss. I could not attend classes for 30 days. I had trouble just getting > out of bed and going to the bathroom. I would fall asleep in the > bathroom, then go back to bed and fall asleep. When I started going back > to class, I was in one with my Department Head. We met in his office, > since there were only 4 of us. I slept through most of the classes, but > got the work done. He was good natured about it. > > I was very fortunate that the encephalitis did pass through my body, but > it left some markers behind. That may be one reason I was told that > perhaps 50%, maybe only 10% since I was also told that 50% was in my > head, of my problem could be contributed to the encephalitis. My current > neurologist does not think so. He says it would have had only a minor > effect, if any. He does not rule out the possibility, though. > > By the way, I'm 55, will be 56 in May. Have had this crappy disease > since 1994, at least, maybe longer. I stopped running in 1987 because it > was becoming too much an effort. Now, I wonder......? It was diagnosed > in 1996 by a simple EMG, after all the other tests had been run, some of > them twice. The worst one was the myelogram. They can take that one and > shove it where the sun doesn't shine - on themselves. I thought that > type of torture went out with the Middle Ages, but maybe they trained > under some terrorists. > > Blue eyes, brown hair, ambidextrous (now only to a small degree), 5'9 " . > Have been in at least 4 car accidents that caused me a whiplash injury > and had me wearing a neck brace for at least a month each time. However, > I believe that I have had more head trauma since PLS than before. This > is from the falls I have taken, some of them real beauties. > > More info? > > Mike > > > > >------------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2004 Report Share Posted January 23, 2004 Good now all i need is age and age of onset and ancestry if you gave me these i lost them GEO GEO/Viral Encephalitis > > > Geo, > > They didn't. It is viral and had to pass through my system. I was given > antibiotics to keep from getting anything else, but I got > mononeucleosis, also. With encephalitis, the brain swells and sends > signals to various parts of the body that that part of the brain > controls. I had severe pain in my lower left leg. It is called " referred > pain, " I think. I originally thought I had spinal meningitis. Everyone > whom I know had had that died. I was terrified. But, when the local > neurologist saw me and did another lumbar puncture (His hurt, while the > GP at Purdue Univ. Hospital's did not.), he told me I did not have > meningitis. I was so relieved that I didn't fully hear his other words - > " You still have a 90% chance to turn into a human vegetable. " - until a > few hours later. Then, it became a waiting period. There are some now > who believe I am a vegetable since I'm " beat " all the time. It took me > six months to remember my social security number. I also went through a > divorce during this time. Shoot, I was lucky to remember my ex-wife's > name, but I did know my two children's names and recognized them easily. > I lost a photographic memory because of that disease, something I really > miss. I could not attend classes for 30 days. I had trouble just getting > out of bed and going to the bathroom. I would fall asleep in the > bathroom, then go back to bed and fall asleep. When I started going back > to class, I was in one with my Department Head. We met in his office, > since there were only 4 of us. I slept through most of the classes, but > got the work done. He was good natured about it. > > I was very fortunate that the encephalitis did pass through my body, but > it left some markers behind. That may be one reason I was told that > perhaps 50%, maybe only 10% since I was also told that 50% was in my > head, of my problem could be contributed to the encephalitis. My current > neurologist does not think so. He says it would have had only a minor > effect, if any. He does not rule out the possibility, though. > > By the way, I'm 55, will be 56 in May. Have had this crappy disease > since 1994, at least, maybe longer. I stopped running in 1987 because it > was becoming too much an effort. Now, I wonder......? It was diagnosed > in 1996 by a simple EMG, after all the other tests had been run, some of > them twice. The worst one was the myelogram. They can take that one and > shove it where the sun doesn't shine - on themselves. I thought that > type of torture went out with the Middle Ages, but maybe they trained > under some terrorists. > > Blue eyes, brown hair, ambidextrous (now only to a small degree), 5'9 " . > Have been in at least 4 car accidents that caused me a whiplash injury > and had me wearing a neck brace for at least a month each time. However, > I believe that I have had more head trauma since PLS than before. This > is from the falls I have taken, some of them real beauties. > > More info? > > Mike > > > > >------------------------------------------------------------------------------ > Quote Link to comment Share on other sites More sharing options...
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