Guest guest Posted March 17, 2003 Report Share Posted March 17, 2003 Glad to hear your appointment went well . Hope your mom's went as well. Sheila Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2003 Report Share Posted March 17, 2003 Just be sure to go back until they fit correctly Laurie, That's very good advice. Yes, I thought it was timely that I had posted about those socks last night. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2003 Report Share Posted March 17, 2003 Glad to hear your appointment went well . Thank you Sheila. I am very glad too. Mom's went well too, but I'm going to let her tell everyone about it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2003 Report Share Posted March 17, 2003 , glad to hear the appt went well for you guys. Hope the increase in lamictal helps and the othopedic referral does something. keep us posted. take care, adrienne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2003 Report Share Posted March 17, 2003 a, Thanks! It's always nice to hear these things from people who know what they're talking about. It should be interesting to see what an orthopedic surgeon has to say. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2003 Report Share Posted March 17, 2003 Adrienne, Thank you so much for the support. I will definitely keep everyone posted. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2003 Report Share Posted March 17, 2003 I take 200 mg twice a day of the Lamictal. Your post on the AFO socks was timely. Just be sure to go back until they fit correctly. Most of us moms do it for our kids, but forget to give ourselves the same treatment. I'm glad it was a good appointment. laurie > From: Momto4fabkids@... > Reply-To: > Date: Mon, 17 Mar 2003 18:39:57 EST > To: > Subject: MDA appt. today > > I just wanted to let you guys know how our appt. went today, but I'll let mom > tell you about her appt. > > It went really well. The doc wants me to be seen by an orthopedic surgeon. > He thinks I either need to be casted or get AFO's and possibly both. He just > feels that 6 weeks is adequate time to heal and that it's definitely not > healing and there's some weakness in the right as well. > > We talked about my increased migraine/headache/aura issues and he decided to > increase my dose of Lamictal from 150 2x's daily to 200 mg's 2x's daily. > > I think that's about it that was significant. We have appt's to go back in 6 > months. All that worrying and it went really glad. PHEW!!!!!!!!!! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2003 Report Share Posted March 17, 2003 , I am glad your appointment went well today. I have AFO's on both legs and a KFO on my right leg. I ended up with the AFO's, as I was always spraining my ankles and never healing from them. They do help. Good luck with everything! Smiles, a I just wanted to let you guys know how our appt. went today, but I'll let mom tell you about her appt. It went really well. The doc wants me to be seen by an orthopedic surgeon. He thinks I either need to be casted or get AFO's and possibly both. He just feels that 6 weeks is adequate time to heal and that it's definitely not healing and there's some weakness in the right as well.We talked about my increased migraine/headache/aura issues and he decided to increase my dose of Lamictal from 150 2x's daily to 200 mg's 2x's daily.I think that's about it that was significant. We have appt's to go back in 6 months. All that worrying and it went really glad. PHEW!!!!!!!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2003 Report Share Posted March 17, 2003 I would suggest pushing for AFOs before surgery. Kent had the surgery to stabilize his ankle (he was 19) and within the first month he was fitted with AFOs, as the surgery gave way. It wasn't the surgery, just his body. It was mainly from his Ehuler Danlos, but mito certainly could have come into play. Kent's was called an active AFO. It had a hinge to allow him to push on the ankle on the accelerator, but it stabilized the sideward movement of his ankle, yet allowed a normal heal strike gait. laurie > From: Momto4fabkids@... > Reply-To: > Date: Mon, 17 Mar 2003 22:11:41 EST > To: > Subject: Re: MDA appt. today > > a, > > Thanks! It's always nice to hear these things from people who know what > they're talking about. It should be interesting to see what an orthopedic > surgeon has to say. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2003 Report Share Posted March 18, 2003 Laurie, I sure hope they won't suggest surgery. I don't expect them to. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2003 Report Share Posted March 18, 2003 a, This is the reason the MDA doctor wants to see the orthopedic surgeon. Her ankle is not healing well and because she's favoring it, the other ankle has weakened. He tested her and feels that after 6 weeks, she should not be dealing with so much ankle weakness. He indicated that she may need to go into a cast and/or AFO's. She's always had weak ankles and knees so none of this surprises me. Alice --- a C Koch wrote: > , > I am glad your appointment went well today. > I have AFO's on both > legs and a KFO on my right leg. I ended up with > the AFO's, as I was > always spraining my ankles and never healing from > them. They do help. > Good luck with everything! > > Smiles, > a > > > I just wanted to let you guys know how our appt. > went today, but I'll let > mom tell you about her appt. > > It went really well. The doc wants me to be seen by > an orthopedic > surgeon. He thinks I either need to be casted or get > AFO's and possibly > both. He just feels that 6 weeks is adequate time > to heal and that it's > definitely not healing and there's some weakness in > the right as well. > > We talked about my increased migraine/headache/aura > issues and he decided > to increase my dose of Lamictal from 150 2x's daily > to 200 mg's 2x's > daily. > > I think that's about it that was significant. We > have appt's to go back > in 6 months. All that worrying and it went really > glad. PHEW!!!!!!!!!! > > Quote Link to comment Share on other sites More sharing options...
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