Re: Bebe

[Guest guest]

Bebe, I know in my case it was an easy decision to final quit my job. I had

hung on longer then I should have. I was an accounting clerk in the bookstore

at our local college. The last semester of the year final took its toll on

me. Part of my job was reconciling the cash drawers, that meant running back

and forth taking readings and bringing back the cash drawers. I said run but I

couldn't even walk and keep my balance without holding on to the shelving.

My boss didn''t what me to leave but she was helping me do my job and that

wasn't fair to her. I could barely make it home at night and then I went to bed

because of the exhaustion. I didn't like staying at home at first but I soon

settled into it. I have learned to pace myself and do what I can during the

day. I talk to my two cats Hillary & Lucy and sometimes they talk back. I

think everyone has to make the decision to stop working for themselves. You

sound

like you already have done a lot of thinking about it and making all those

changes in your house. Good for you!! ..............Flora

[Guest guest]

Bebe and friends...Flora's decision to leave a job and the co-workers she

truly loved was one of many difficult choices she had to make in the early

stages. She was a very valued

and trusted worker, who took her responsibilities seriously as was apparent

in all phases of her performance. The job duties were right up her alley

and I have no doubt she'd still be

there today if things were different. I watched her demeanor and drive

dwindle as she continued her courageous battle not to give in to her

changing condition. Aside from her boss taking on

the added responsibilities of helping her out, Flora's safety in the

workplace was a chief concern. It wasn't fair to jeopardize the well-being

of herself or others and eventually she (we) had to

confront the situation. I liked the idea of her being at home knowing she

was in a safe, familiar environment, but also understood the huge chunk of

independence it would cost her. You'd

have to know her to appreciate how much she values doing it her way...as

only she can. The notion of having to rely on others to do many of the

things she did better than anyone else was a

very, very bitter pill to swallow. By the same token, it was no picnic

for the rest of us either. We too suffered (often in silence) watching the

mystery unfold and having to make adjustments

in our own lives as well. But as they say....#$%^$# happens....and we

moved forward taking it one day at a time, expecting the unexpected and

playing the cards as they were dealt. We have moved far beyond kidding

ourselves about anything remotely related to her PLS. We grown stronger

through knowledge and acceptance, more resourceful in keeping things as

normal as possible and do the best we can. On to many occasions, I've

fallen short of carrying my share of the load, but Flora has never wavered

for an instant. She strength and determination make me ashamed to complain

about my nickel and dime issues. She takes ownership of every aspect of

her life and never gives an inch without leaving claw marks. Truly

remarkable courage and willingness to embrace change.

Why do I share this? Perhaps it might help those who are struggling with

the early onset issues we had. I wish there were pat answers to every

situation, but obviously there are not.

Flora's approach speaks to the extreme importance of keeping mentally,

emotionally and spiritually fit. These qualities can greatly enhance your

daily life even though physical changes are

taking place. Easier said than done? Not only yes, but Hell yes! I'm not

trivializing PLS and all it delivers. It's a lousy deal for everyone. But

keeping a calm, rational mind-set can go a long way

to dealing with the givens.

Enough of my nonsense. Have a great day...Doug/St. sburg. FL

belgium46@...

To:

PLS-FRIENDS

12/15/03 11:02 PM cc:

Please respond to Subject: Re: Bebe

PLS-FRIENDS

Bebe, I know in my case it was an easy decision to final quit my job. I

had

hung on longer then I should have. I was an accounting clerk in the

bookstore

at our local college. The last semester of the year final took its toll on

me. Part of my job was reconciling the cash drawers, that meant running

back

and forth taking readings and bringing back the cash drawers. I said run

but I

couldn't even walk and keep my balance without holding on to the shelving.

My boss didn''t what me to leave but she was helping me do my job and that

wasn't fair to her. I could barely make it home at night and then I went

to bed

because of the exhaustion. I didn't like staying at home at first but I

soon

settled into it. I have learned to pace myself and do what I can during

the

day. I talk to my two cats Hillary & Lucy and sometimes they talk back. I

think everyone has to make the decision to stop working for themselves.

You sound

like you already have done a lot of thinking about it and making all those

changes in your house. Good for you!! ..............Flora

[Guest guest]

Dear Doug and Bebe,

What a BEAUTIFUL letter you wrote yesterday! It brought tears to my eyes of

the love you both have. I admire you both. You are a great writer! God

Bless!!

Re:

Bebe

> PLS-FRIENDS

>

>

>

>

>

>

> Bebe, I know in my case it was an easy decision to final quit my job. I

> had

> hung on longer then I should have. I was an accounting clerk in the

> bookstore

> at our local college. The last semester of the year final took its toll

on

>

> me. Part of my job was reconciling the cash drawers, that meant running

> back

> and forth taking readings and bringing back the cash drawers. I said run

> but I

> couldn't even walk and keep my balance without holding on to the shelving.

>

> My boss didn''t what me to leave but she was helping me do my job and that

> wasn't fair to her. I could barely make it home at night and then I went

> to bed

> because of the exhaustion. I didn't like staying at home at first but I

> soon

> settled into it. I have learned to pace myself and do what I can during

> the

> day. I talk to my two cats Hillary & Lucy and sometimes they talk back.

I

>

> think everyone has to make the decision to stop working for themselves.

> You sound

> like you already have done a lot of thinking about it and making all those

> changes in your house. Good for you!! ..............Flora

>

>

>