Guest guest Posted January 9, 2003 Report Share Posted January 9, 2003 Yep. Makes sense. I would imagine the kids that get the list of diagnosis' are the ones who don't quite fit the school's criteria for autism. In 's case, he did. Also, the school's don't have to accept a medical diagnosis (or 3), and in 's case, they didn't. I have been very lucky in that they haven't treated either of the boys as a label, but as neat kids who have needs. for a while was treated as a behavioral problem, but we are finally past that (I hope) now that the school district has formally certified his autism and are working with the states autism society. Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2003 Report Share Posted January 9, 2003 Yep. Makes sense. I would imagine the kids that get the list of diagnosis' are the ones who don't quite fit the school's criteria for autism. In 's case, he did. Also, the school's don't have to accept a medical diagnosis (or 3), and in 's case, they didn't. I have been very lucky in that they haven't treated either of the boys as a label, but as neat kids who have needs. for a while was treated as a behavioral problem, but we are finally past that (I hope) now that the school district has formally certified his autism and are working with the states autism society. Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2003 Report Share Posted January 9, 2003 Yep. Makes sense. I would imagine the kids that get the list of diagnosis' are the ones who don't quite fit the school's criteria for autism. In 's case, he did. Also, the school's don't have to accept a medical diagnosis (or 3), and in 's case, they didn't. I have been very lucky in that they haven't treated either of the boys as a label, but as neat kids who have needs. for a while was treated as a behavioral problem, but we are finally past that (I hope) now that the school district has formally certified his autism and are working with the states autism society. Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2003 Report Share Posted January 9, 2003 > the school does their testing and you get things like CAPD, > hyperlexia, dysfragia, etc. Aren't all these terms just > different things to describe different parts if autism? I I don't know what CAPD is. Hyperlexia is a seperate thing from autism. It is a spectrum dx, yes, but not all kids with hyperlexia are autistic and not all kids with autism are hyperlexic. I don't know dysfragia either. Do you mean dyspraxia? That again is a seperate dx and you can have one without the other. It depends on the school system but many districts do not diagnose kids at all. They do their evaluations and describe the child's strengths & deficits. From that you develop IEP goals. For example, typical 3 year olds can use scissors to cut out, I don't know, circles let's say because I can't remember. can't use scissors at all, which was revealed in the school's OT eval. So his IEP breaks down how you learn to use scissors and each step is a goal until he is able to cut out circles, or whatever. When the OT comes in to work with him she can refer to the IEP to remind herself what he needs help with. There is no dx as far as our school administration is concerned; there is only a list of skills he does not have, and at some point those deficits qualify him for sped services. In reality everyone who works with him knows he's autistic, and we are fortunate enough to be working with people who understand what that means and know how to work with him. We are very lucky. This is a large part of why I'm considering homeschooling now. 's strengths, his gifts, are overlooked and ignored. Those special qualities should be USED to help him learn the other things - those things he does not know. Why should he waste time staring at the letter 'A' when he's already reading? Why aren't they pushing that skill? (I know WHY...but I am trying to make a point! His hyperlexia could be a BRILLIANT tool for helping him learn to speak -- much as Boone's audio card reader has made such a miraculous difference for him recently. As varied as 's skills are I really don't think we're going to find an appropriate classroom for him. He just needs too much 1:1 time in any setting. > get services, but the way that public schools can be at what > point does the school stop seeing a child with problems that > needs their correction (and trust me, they are professional > educators and no one else can help your child. I am still very > offended by the one meeting that I had with the sped dept of the > schools here during our dx process) and just sees a name with a > long list of problems after it and forget the person that is lost > in all the technical terms? I think that's a risk you take any time you consult a professional for help with your child. The good ones remember that there IS a child in there and treat him like a human being. But many do forget. Like I said - we are lucky. 's teacher is a WONDERFUL woman who truly seems to enjoy working with him, and with us. Many here are less fortunate in this regard. > > Did I make any sense? I'm not sure. Did I? -Sara. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2003 Report Share Posted January 9, 2003 > the school does their testing and you get things like CAPD, > hyperlexia, dysfragia, etc. Aren't all these terms just > different things to describe different parts if autism? I I don't know what CAPD is. Hyperlexia is a seperate thing from autism. It is a spectrum dx, yes, but not all kids with hyperlexia are autistic and not all kids with autism are hyperlexic. I don't know dysfragia either. Do you mean dyspraxia? That again is a seperate dx and you can have one without the other. It depends on the school system but many districts do not diagnose kids at all. They do their evaluations and describe the child's strengths & deficits. From that you develop IEP goals. For example, typical 3 year olds can use scissors to cut out, I don't know, circles let's say because I can't remember. can't use scissors at all, which was revealed in the school's OT eval. So his IEP breaks down how you learn to use scissors and each step is a goal until he is able to cut out circles, or whatever. When the OT comes in to work with him she can refer to the IEP to remind herself what he needs help with. There is no dx as far as our school administration is concerned; there is only a list of skills he does not have, and at some point those deficits qualify him for sped services. In reality everyone who works with him knows he's autistic, and we are fortunate enough to be working with people who understand what that means and know how to work with him. We are very lucky. This is a large part of why I'm considering homeschooling now. 's strengths, his gifts, are overlooked and ignored. Those special qualities should be USED to help him learn the other things - those things he does not know. Why should he waste time staring at the letter 'A' when he's already reading? Why aren't they pushing that skill? (I know WHY...but I am trying to make a point! His hyperlexia could be a BRILLIANT tool for helping him learn to speak -- much as Boone's audio card reader has made such a miraculous difference for him recently. As varied as 's skills are I really don't think we're going to find an appropriate classroom for him. He just needs too much 1:1 time in any setting. > get services, but the way that public schools can be at what > point does the school stop seeing a child with problems that > needs their correction (and trust me, they are professional > educators and no one else can help your child. I am still very > offended by the one meeting that I had with the sped dept of the > schools here during our dx process) and just sees a name with a > long list of problems after it and forget the person that is lost > in all the technical terms? I think that's a risk you take any time you consult a professional for help with your child. The good ones remember that there IS a child in there and treat him like a human being. But many do forget. Like I said - we are lucky. 's teacher is a WONDERFUL woman who truly seems to enjoy working with him, and with us. Many here are less fortunate in this regard. > > Did I make any sense? I'm not sure. Did I? -Sara. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2003 Report Share Posted January 9, 2003 > the school does their testing and you get things like CAPD, > hyperlexia, dysfragia, etc. Aren't all these terms just > different things to describe different parts if autism? I I don't know what CAPD is. Hyperlexia is a seperate thing from autism. It is a spectrum dx, yes, but not all kids with hyperlexia are autistic and not all kids with autism are hyperlexic. I don't know dysfragia either. Do you mean dyspraxia? That again is a seperate dx and you can have one without the other. It depends on the school system but many districts do not diagnose kids at all. They do their evaluations and describe the child's strengths & deficits. From that you develop IEP goals. For example, typical 3 year olds can use scissors to cut out, I don't know, circles let's say because I can't remember. can't use scissors at all, which was revealed in the school's OT eval. So his IEP breaks down how you learn to use scissors and each step is a goal until he is able to cut out circles, or whatever. When the OT comes in to work with him she can refer to the IEP to remind herself what he needs help with. There is no dx as far as our school administration is concerned; there is only a list of skills he does not have, and at some point those deficits qualify him for sped services. In reality everyone who works with him knows he's autistic, and we are fortunate enough to be working with people who understand what that means and know how to work with him. We are very lucky. This is a large part of why I'm considering homeschooling now. 's strengths, his gifts, are overlooked and ignored. Those special qualities should be USED to help him learn the other things - those things he does not know. Why should he waste time staring at the letter 'A' when he's already reading? Why aren't they pushing that skill? (I know WHY...but I am trying to make a point! His hyperlexia could be a BRILLIANT tool for helping him learn to speak -- much as Boone's audio card reader has made such a miraculous difference for him recently. As varied as 's skills are I really don't think we're going to find an appropriate classroom for him. He just needs too much 1:1 time in any setting. > get services, but the way that public schools can be at what > point does the school stop seeing a child with problems that > needs their correction (and trust me, they are professional > educators and no one else can help your child. I am still very > offended by the one meeting that I had with the sped dept of the > schools here during our dx process) and just sees a name with a > long list of problems after it and forget the person that is lost > in all the technical terms? I think that's a risk you take any time you consult a professional for help with your child. The good ones remember that there IS a child in there and treat him like a human being. But many do forget. Like I said - we are lucky. 's teacher is a WONDERFUL woman who truly seems to enjoy working with him, and with us. Many here are less fortunate in this regard. > > Did I make any sense? I'm not sure. Did I? -Sara. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2003 Report Share Posted January 9, 2003 I realize that there is a difference between a medical dx and an educational dx. But why would a school refuse to accept a medical dx of autism? I am just trying to make sense of all this? Georga Hackworth www.ubah.com/F1549 Enter to win $50 in FREE books! Re: I have a question Yep. Makes sense. I would imagine the kids that get the list of diagnosis' are the ones who don't quite fit the school's criteria for autism. In 's case, he did. Also, the school's don't have to accept a medical diagnosis (or 3), and in 's case, they didn't. I have been very lucky in that they haven't treated either of the boys as a label, but as neat kids who have needs. for a while was treated as a behavioral problem, but we are finally past that (I hope) now that the school district has formally certified his autism and are working with the states autism society. Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2003 Report Share Posted January 9, 2003 I realize that there is a difference between a medical dx and an educational dx. But why would a school refuse to accept a medical dx of autism? I am just trying to make sense of all this? Georga Hackworth www.ubah.com/F1549 Enter to win $50 in FREE books! Re: I have a question Yep. Makes sense. I would imagine the kids that get the list of diagnosis' are the ones who don't quite fit the school's criteria for autism. In 's case, he did. Also, the school's don't have to accept a medical diagnosis (or 3), and in 's case, they didn't. I have been very lucky in that they haven't treated either of the boys as a label, but as neat kids who have needs. for a while was treated as a behavioral problem, but we are finally past that (I hope) now that the school district has formally certified his autism and are working with the states autism society. Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2003 Report Share Posted January 9, 2003 > (And I am NOT thinking of anyone in particular on this list, so stop > wondering if I'm talking about you. > Ha! I know perfectly well that you are talking about ME! J/K Salli Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2003 Report Share Posted January 9, 2003 > (And I am NOT thinking of anyone in particular on this list, so stop > wondering if I'm talking about you. > Ha! I know perfectly well that you are talking about ME! J/K Salli Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2003 Report Share Posted January 9, 2003 > (And I am NOT thinking of anyone in particular on this list, so stop > wondering if I'm talking about you. > Ha! I know perfectly well that you are talking about ME! J/K Salli Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2003 Report Share Posted January 9, 2003 > the school does their testing and you get things like CAPD, > hyperlexia, dysfragia, etc. Aren't all these terms just > different things to describe different parts if autism? I I don't know what CAPD is. a mentioned this today. Central Auditory Prossessing Disorder. I know one or two people who have kids dx'd with this alone. Hyperlexia is a seperate thing from autism. It is a spectrum dx, yes, but not all kids with hyperlexia are autistic and not all kids with autism are hyperlexic. Yes, I know. It was an example. On the Aut-2B-Home list (I think you may have noticed this) some of the people on there have their kids names listed and a list of labels after them. It drives me nuts. Do they forget that their kids are more than a list of " problems " ? I don't know dysfragia either. Do you mean dyspraxia? Probably. Can't spell, didn't feal like lookign it up. That again is a seperate dx and you can have one without the other. Yes, I know. Once again an example. As for rest of it, yes, you made sense. I am trying to make sense of it all since it is something I don't have to deal with. Not only that, some days when I look at the sig lines on Aut-2B-Home I feel like I have an incomplete DX for Savannah (I may have because of the way the report is written up) because I don't have a list of " other things " after ASD. Georga Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2003 Report Share Posted January 9, 2003 > the school does their testing and you get things like CAPD, > hyperlexia, dysfragia, etc. Aren't all these terms just > different things to describe different parts if autism? I I don't know what CAPD is. a mentioned this today. Central Auditory Prossessing Disorder. I know one or two people who have kids dx'd with this alone. Hyperlexia is a seperate thing from autism. It is a spectrum dx, yes, but not all kids with hyperlexia are autistic and not all kids with autism are hyperlexic. Yes, I know. It was an example. On the Aut-2B-Home list (I think you may have noticed this) some of the people on there have their kids names listed and a list of labels after them. It drives me nuts. Do they forget that their kids are more than a list of " problems " ? I don't know dysfragia either. Do you mean dyspraxia? Probably. Can't spell, didn't feal like lookign it up. That again is a seperate dx and you can have one without the other. Yes, I know. Once again an example. As for rest of it, yes, you made sense. I am trying to make sense of it all since it is something I don't have to deal with. Not only that, some days when I look at the sig lines on Aut-2B-Home I feel like I have an incomplete DX for Savannah (I may have because of the way the report is written up) because I don't have a list of " other things " after ASD. Georga Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2003 Report Share Posted January 9, 2003 > the school does their testing and you get things like CAPD, > hyperlexia, dysfragia, etc. Aren't all these terms just > different things to describe different parts if autism? I I don't know what CAPD is. a mentioned this today. Central Auditory Prossessing Disorder. I know one or two people who have kids dx'd with this alone. Hyperlexia is a seperate thing from autism. It is a spectrum dx, yes, but not all kids with hyperlexia are autistic and not all kids with autism are hyperlexic. Yes, I know. It was an example. On the Aut-2B-Home list (I think you may have noticed this) some of the people on there have their kids names listed and a list of labels after them. It drives me nuts. Do they forget that their kids are more than a list of " problems " ? I don't know dysfragia either. Do you mean dyspraxia? Probably. Can't spell, didn't feal like lookign it up. That again is a seperate dx and you can have one without the other. Yes, I know. Once again an example. As for rest of it, yes, you made sense. I am trying to make sense of it all since it is something I don't have to deal with. Not only that, some days when I look at the sig lines on Aut-2B-Home I feel like I have an incomplete DX for Savannah (I may have because of the way the report is written up) because I don't have a list of " other things " after ASD. Georga Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2003 Report Share Posted January 10, 2003 I don't know why the schools do it that way. Probably it has to do with money. Most things seem to. Well yea, they are schools. LOL! Seems that money makes their world go around and it will solve all their problems. > Not only that, some days when I look at the sig lines on > Aut-2B-Home I feel like I have an incomplete DX for Savannah (I > may have because of the way the report is written up) because I > don't have a list of " other things " after ASD. There ISN'T always a bunch of " other things " besides ASD. And that by itself is PLENTY to deal with. No kidding. Ask me about it. 's other dx's are all medical and all from people who know autism well. Are they different aspects of autism? I don't think so. Common to other kids with autism, absolutely, but not a " necessary " part part of ASD itself. Does that make sense? Yes. So I use a sig line like that for a bit to help new people figure out who I am. I'm sorry if it bothers you. It doesn't really bother me. I do see some people who seem to wear all those dx'd like a badge - See everything *I've* gone through? Ha! THIS is that goes on at Aut-2B-Home! This is what bugs me to no end. I start wondering about Savannah too because the report that we have reads " Autistic spectrum disorder, most likely Aspergers Syndrome " . As much as I like Dr Fry that tells me he isn't 100% sure what is going on with her. Makes me wonder sometimes if there is something else going on. Follow? Your pitiful little ASD dx is NOTHING. HFA? Why are you even here? - or who focus so much on what's wrong that they forget about what's right and what's exceptional. They focus so much on all the things they DON'T have that they forget to appreciate the things that they DO have. (I hope I don't come across that way. It has been a rough patch here lately and I know a lot of my posts have been negative.) We all have those times. Georga Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2003 Report Share Posted January 10, 2003 I got a laugh. I am just very cynical about public schools for so many reason, half of which people think I am lying about. LOL Georga Hackworth www.ubah.com/F1549 Enter to win $50 in FREE books! RE: I have a question > Well yea, they are schools. LOL! Seems that money makes their > world go around and it will solve all their problems. For Christmas the boys' Uncle Pat got them these t-shirts with red, white, and blue elephants on them, and they say, " Wee-Publican. " (Uncle Pat and Matt are conservative republicans and Catholics and it is something of a family joke because Aunt is a liberal democrat and Pagan. Pat and Em are having problems in their relationship, gee golly gosh, but it is still something we can all laugh about.) Matt did not think it would be a good idea to send to school wearing it. He thought it was pretty funny that I was going to. I still don't understand but you made me think of that and it made Matt laugh, so maybe you will too. > I start wondering about Savannah too because the report that we > have reads " Autistic spectrum disorder, most likely Aspergers > Syndrome " . As much as I like Dr Fry that tells me he isn't 100% > sure what is going on with her. Makes me wonder sometimes if > there is something else going on. Follow? Yup. AS is hard to dx. It hasn't been around that long and there are a lot of doctors who still don't know anything about it. Getting the AS dx at 5-8 is getting it EARLY. Also, many areas do not recognize AS as a disability and you may not be able to get any services whatsoever despite the dx. So a lot of doctors will call it ASD in order to allow you to get the services you need. > that they DO have. (I hope I don't come across that way. It has been a > rough patch here lately and I know a lot of my posts have been negative.) > > > We all have those times. Glad you understand. -Sara. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2003 Report Share Posted January 10, 2003 I think it's funny! I don't see any problem with sending him to school wearing it. sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2003 Report Share Posted February 21, 2003 I personally know of someone who has had 2 C-sections and then VBACed on the 3rd, talk with your Dr., there is hope for a vag. birth after C-sections. SHARON 34 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2003 Report Share Posted February 21, 2003 Sheila, I know you are an OB nurse. I just had my 2nd cesearian - 5 weeks ago. I was hoping to try VBAC, but my MFM OB ended up doing a repeat section as at 39 1/2 weeks my cervix was unfavorable and I was had Hydroamnios. My question is I have always heard that after 2 sections most OB's would not let you ever try VBAC. I am going to discuss this with my OB at my post-partum visit next week, but I am curious as to what you have seen. Any info would be greatly appreciated! Dubin Open RNY 2-18-02 down 155lbs Mommy to: (born 1-16-03) ~and~ andra (born still at 36 weeks gestation on 3-14-98) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2003 Report Share Posted February 21, 2003 Thanks for the info Sharon! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2003 Report Share Posted May 21, 2003 Could you be confused? Dr Levin is in KY. Have you sent your reports to any of them? Will they do it? Reason asking... I was turned down by military 10/01, Dr Burke 11/01, military (2nd try) 3/03 & Dr Berger 4/03. Dr Levin has agreed to perform my TR. Another suggestion there are several websites which you can order reports regarding Dr medical history. It may ease your mind if you knew their record was clear. August > Hey ladies, > > I have been reading and learning all these neato things about cervixes and fluid and now that my head is spinning off LOL I have a totally non related question. > > I am torn between three Dr.s. I like Dr. Levin because includes the hospital stay in the cost. But there is still a huge air flight fee I need to deal with. > > There is also a Dr in Pensylvania where my grandparents live. At least then I could drive to them and my grandparents could stay with me. > > And then there is a Dr here just a few towns over from me, and They do the procedure. And it is in Canadian wich is convenient for me since that is all the currency I have. But I am having a hard time finding anything out about the rep of this Dr. > > So I am asking advice.. What would you do if you were in my shoes? I am terrified to be put to sleep and the last time I was put to sleep I woke up really hard and the staff wasnt very nice to me.. I dont know anyone in Texas where this Dr levin is and I feel very comfortable with him doing the procedure!!!! helllpppppp > > > > --------------------------------- > Post your free ad now! Yahoo! Canada Personals > > > Quote Link to comment Share on other sites More sharing options...
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