Guest guest Posted August 7, 2004 Report Share Posted August 7, 2004 Cora, Our son is 13 and has had his aides since he was about 7 (or is it 8? I forget). Since the very beginning, when we travel Ian takes along a little box that snaps shut. In it he carries extra batteries, the extra ear hooks and the little tools he uses to clean and care for the aides. The little box goes into his suitcase and a pack of extra batteries goes into my purse. I've gotten into the habit of always carry extra batteries in my purse because sometimes they just die for no reason and he doesn't awlk around with extra. The batteries last about a week because Ian uses an FM device in school every day. During the summer, without the FM his batteries last about 2 weeks. We've never had any issues when traveling except that when Ian dozes off, he has a habit of taking out his aides. It's quieter and they sqeal when his head rests against anything. Unfortunately he tends to stuff them into his pockets and once or twice we've been on our hands and knees searching, usually finding the aide stuck between seat cushions. So, now when he takes them out he is to hand them to ME to be put into my purse. He doesn't like it because he's use to taking care of them himself, but I'm tired of playing " find the hearing aide. " I've taken to refering to his aides as his $3,000 dollar earrings. You'd never stuff $3K worth of earrings into a pocket -- he got the point. I put the aides into a little zipper pocket on the side of my purse where they are safe until he is awake and needs them. -- Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2004 Report Share Posted August 7, 2004 Cora, Our son is 13 and has had his aides since he was about 7 (or is it 8? I forget). Since the very beginning, when we travel Ian takes along a little box that snaps shut. In it he carries extra batteries, the extra ear hooks and the little tools he uses to clean and care for the aides. The little box goes into his suitcase and a pack of extra batteries goes into my purse. I've gotten into the habit of always carry extra batteries in my purse because sometimes they just die for no reason and he doesn't awlk around with extra. The batteries last about a week because Ian uses an FM device in school every day. During the summer, without the FM his batteries last about 2 weeks. We've never had any issues when traveling except that when Ian dozes off, he has a habit of taking out his aides. It's quieter and they sqeal when his head rests against anything. Unfortunately he tends to stuff them into his pockets and once or twice we've been on our hands and knees searching, usually finding the aide stuck between seat cushions. So, now when he takes them out he is to hand them to ME to be put into my purse. He doesn't like it because he's use to taking care of them himself, but I'm tired of playing " find the hearing aide. " I've taken to refering to his aides as his $3,000 dollar earrings. You'd never stuff $3K worth of earrings into a pocket -- he got the point. I put the aides into a little zipper pocket on the side of my purse where they are safe until he is awake and needs them. -- Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2004 Report Share Posted August 7, 2004 Cora, Our son is 13 and has had his aides since he was about 7 (or is it 8? I forget). Since the very beginning, when we travel Ian takes along a little box that snaps shut. In it he carries extra batteries, the extra ear hooks and the little tools he uses to clean and care for the aides. The little box goes into his suitcase and a pack of extra batteries goes into my purse. I've gotten into the habit of always carry extra batteries in my purse because sometimes they just die for no reason and he doesn't awlk around with extra. The batteries last about a week because Ian uses an FM device in school every day. During the summer, without the FM his batteries last about 2 weeks. We've never had any issues when traveling except that when Ian dozes off, he has a habit of taking out his aides. It's quieter and they sqeal when his head rests against anything. Unfortunately he tends to stuff them into his pockets and once or twice we've been on our hands and knees searching, usually finding the aide stuck between seat cushions. So, now when he takes them out he is to hand them to ME to be put into my purse. He doesn't like it because he's use to taking care of them himself, but I'm tired of playing " find the hearing aide. " I've taken to refering to his aides as his $3,000 dollar earrings. You'd never stuff $3K worth of earrings into a pocket -- he got the point. I put the aides into a little zipper pocket on the side of my purse where they are safe until he is awake and needs them. -- Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2004 Report Share Posted August 7, 2004 Cora- I was just wondering what type of loss your son has? Our daughter - almost 4 months has mild-moderate loss but doesn't have her aids yet. The Audiologist wants to do some more tests to be sure. I was just curious what loss your son had... I am wondering if we are waiting too long to get our daugther hearing aids. Thanks. Alison " Rabia (Ca) " wrote: Hello, This is Cora. I recently joined the group. My son is 9 weeks old and will get his hearing aids on Monday. I was writing to see if anyone might have some suggestions for me. We will be traveling on a plane a week after he gets them, for any reason should traveling on the plane be any concern for me? Anything I need to buy extra for the aids? Since I will be traveling, I do not want to need something and not know where to get it :-) How often do the batteries need to be changed? I have so many questions, and I know I will learn as I go. It is wonderful that he will be able to get his aids and be able to hear better than now. I am so happy for him. I Still feeling like I wish he did not need them at all...but grateful we found out so early and can get the aids at such a young age. Have a great weekend! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2004 Report Share Posted August 7, 2004 Cora- I was just wondering what type of loss your son has? Our daughter - almost 4 months has mild-moderate loss but doesn't have her aids yet. The Audiologist wants to do some more tests to be sure. I was just curious what loss your son had... I am wondering if we are waiting too long to get our daugther hearing aids. Thanks. Alison " Rabia (Ca) " wrote: Hello, This is Cora. I recently joined the group. My son is 9 weeks old and will get his hearing aids on Monday. I was writing to see if anyone might have some suggestions for me. We will be traveling on a plane a week after he gets them, for any reason should traveling on the plane be any concern for me? Anything I need to buy extra for the aids? Since I will be traveling, I do not want to need something and not know where to get it :-) How often do the batteries need to be changed? I have so many questions, and I know I will learn as I go. It is wonderful that he will be able to get his aids and be able to hear better than now. I am so happy for him. I Still feeling like I wish he did not need them at all...but grateful we found out so early and can get the aids at such a young age. Have a great weekend! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2004 Report Share Posted August 7, 2004 Cora- I was just wondering what type of loss your son has? Our daughter - almost 4 months has mild-moderate loss but doesn't have her aids yet. The Audiologist wants to do some more tests to be sure. I was just curious what loss your son had... I am wondering if we are waiting too long to get our daugther hearing aids. Thanks. Alison " Rabia (Ca) " wrote: Hello, This is Cora. I recently joined the group. My son is 9 weeks old and will get his hearing aids on Monday. I was writing to see if anyone might have some suggestions for me. We will be traveling on a plane a week after he gets them, for any reason should traveling on the plane be any concern for me? Anything I need to buy extra for the aids? Since I will be traveling, I do not want to need something and not know where to get it :-) How often do the batteries need to be changed? I have so many questions, and I know I will learn as I go. It is wonderful that he will be able to get his aids and be able to hear better than now. I am so happy for him. I Still feeling like I wish he did not need them at all...but grateful we found out so early and can get the aids at such a young age. Have a great weekend! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2004 Report Share Posted August 8, 2004 Thank you for the advice about the windows. I am going in the morning to get the aids and love all the advice I got from everyone from this group. Thank you so much. It is wonderful to have people to talk to on this journey. I feel so bad, but sometimes I feel like I will wake up and this all will pass...he will not need the aids. I grew up and lived my whole life with many deaf friends too, I was an interpreter for 4 years at a local Univ. before moving to California.... But there is a difference between loving the deaf community and.... Hearing your baby has a hearing loss.... But, I Thank God that a hearing loss is all we are facing. At least, that is all we know about at this time. Thank you again everyone. I appreciate your help. :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2004 Report Share Posted August 8, 2004 Thank you for the advice about the windows. I am going in the morning to get the aids and love all the advice I got from everyone from this group. Thank you so much. It is wonderful to have people to talk to on this journey. I feel so bad, but sometimes I feel like I will wake up and this all will pass...he will not need the aids. I grew up and lived my whole life with many deaf friends too, I was an interpreter for 4 years at a local Univ. before moving to California.... But there is a difference between loving the deaf community and.... Hearing your baby has a hearing loss.... But, I Thank God that a hearing loss is all we are facing. At least, that is all we know about at this time. Thank you again everyone. I appreciate your help. :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2004 Report Share Posted August 8, 2004 Thank you for the advice about the windows. I am going in the morning to get the aids and love all the advice I got from everyone from this group. Thank you so much. It is wonderful to have people to talk to on this journey. I feel so bad, but sometimes I feel like I will wake up and this all will pass...he will not need the aids. I grew up and lived my whole life with many deaf friends too, I was an interpreter for 4 years at a local Univ. before moving to California.... But there is a difference between loving the deaf community and.... Hearing your baby has a hearing loss.... But, I Thank God that a hearing loss is all we are facing. At least, that is all we know about at this time. Thank you again everyone. I appreciate your help. :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2006 Report Share Posted February 26, 2006 I have a dilema and i dont Know what i should do.My sister has breast cancer,complete mastectomy/kemo.I dont see her to often and dicided to pop in on her to say hi,her young doughter answerd the door and let me in,I stood there stunned,and shocked to say the least to see my sister laying on the couch skinny,pale faced and waring a nit cap,no eyebrows,of course i new right away, we lost are brother to lung cancer at 46 just 2 years before.the good thing is that she told she only had 1 kemo left and the docter said she is going to be fine,thankGod.My dilema is this, I have another sister we talk all the time on the phone and get together often,my sister with bc has ask me not to say anything to my other sister,she got very upset when i brought it up and i dont want to do anything to cause her any stress.we had a great aunt die of bc and i mentioned it puts us as sisters in higher risk and that is why she should be told.well she made me promise that i wouden't, what else could i do.I feel torn my loyelty is to both of my sisters,should i just wait i dont know,i do know that my little sister will hate me forever if i keep this from her and something happens to my big sister.is there a right or wrong here,any advise would be greatly appreciated.I love them both. thanks and God bless everyone on this board. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2006 Report Share Posted February 26, 2006 Wow thats a tough call. I guess there is no right or wrong answer here. Do what you feel in your heart is the best thing to do. Personally if it were me I would probably tell my other sister so she is aware that she is at a high risk for getting breast cancer herself. If you do tell her do you think she could keep it quiet and not let your sister with the breast cancer know that you told her? I will keep you in my prayers that you make the right decision. Hugs nne Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.html Check out my breast cancer ornaments at:http://www.geocities.com/chucky5741/bcornament.htmlalso check out my other ornaments and lots of nice gifts at:http://www.cancerclub.com advice I have a dilema and i dont Know what i should do.My sister has breast cancer,complete mastectomy/kemo.I dont see her to often and dicided to pop in on her to say hi,her young doughter answerd the door and let me in,I stood there stunned,and shocked to say the least to see my sister laying on the couch skinny,pale faced and waring a nit cap,no eyebrows,of course i new right away, we lost are brother to lung cancer at 46 just 2 years before.the good thing is that she told she only had 1 kemo left and the docter said she is going to be fine,thankGod.My dilema is this, I have another sister we talk all the time on the phone and get together often,my sister with bc has ask me not to say anything to my other sister,she got very upset when i brought it up and i dont want to do anything to cause her any stress.we had a great aunt die of bc and i mentioned it puts us as sisters in higher risk and that is why she should be told.well she made me promise that i wouden't, what else could i do.I feel torn my loyelty is to both of my sisters,should i just wait i dont know,i do know that my little sister will hate me forever if i keep this from her and something happens to my big sister.is there a right or wrong here,any advise would be greatly appreciated.I love them both.thanks and God bless everyone on this board. Quote Link to comment Share on other sites More sharing options...
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