Re: T. Scharrer

October 13, 2003

There is another group called Living-with-ALS. They too are a wonderful group

and will answer so many of your question.

living-with-als</A>

There is also this group, not as big but just as nice.

Groups : ALS-discuss</A>

My brother has sporadic ALS and I have recently been DX with PLS. As I was

told when I joined this group it was the better of the evils so I hope to stay

here but only God knows my destiny.

I too suffered from reflux for years and was up to 120mg a day at times. The

vomiting, ect was horrible. Then the choking episodes started and that lasted

about 6-8 months. My neruo said I have no gag reflex. My reflex of the chin is

brisk. After test for swallowing, I do not have a digestive disease and that

the muscles and nerves don't work properly and was given all kinds of tips. I

listened patiently as it was obvious that this tech had no idea why it wasn't

working. After she was done I explained and she had this look of, oh! Of

course they offer and suggest all kinds of things.

My neuros try to be positive and express hope that I do not progress further.

However, as most know, they don't really know themselves.

Just like certain types of cancer require specialist, it is just as important

to find a doctor that knows about ALS.

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