Guest guest Posted January 7, 2003 Report Share Posted January 7, 2003 Welcome, Just post any questions, concerns, or info you wish to share about mito. You can read everyone's postings and reply anytime. You can also ask to be e-mailed privately if the subject is too personal. Again, welcome, you will find answers and lots of support here. -----Original Message----- Sent: Monday, January 06, 2003 5:46 PMTo: Mito Subject: ChatI would like to chat with people about Mitochondrial Disorders but I have never used a chat room before and don't really know what I'm doing.Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2003 Report Share Posted January 7, 2003 Welcome, Just post any questions, concerns, or info you wish to share about mito. You can read everyone's postings and reply anytime. You can also ask to be e-mailed privately if the subject is too personal. Again, welcome, you will find answers and lots of support here. -----Original Message----- Sent: Monday, January 06, 2003 5:46 PMTo: Mito Subject: ChatI would like to chat with people about Mitochondrial Disorders but I have never used a chat room before and don't really know what I'm doing.Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2003 Report Share Posted January 7, 2003 Welcome, Just post any questions, concerns, or info you wish to share about mito. You can read everyone's postings and reply anytime. You can also ask to be e-mailed privately if the subject is too personal. Again, welcome, you will find answers and lots of support here. -----Original Message----- Sent: Monday, January 06, 2003 5:46 PMTo: Mito Subject: ChatI would like to chat with people about Mitochondrial Disorders but I have never used a chat room before and don't really know what I'm doing.Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2003 Report Share Posted January 7, 2003 Hi! Start by introducing yourself and your affected child if you have one. My name is Sue Ann and my son, , is 18 months old and has mitochondrial disease. He is completly g-tube feed, has eye problems, is completly deaf (but now has a cochlear implant), can not hold his head up, sit, crawl or stand, but has started to roll over. is nonverbal and uses signs to communicate. He is my pride and joy. Sue Ann Chat I would like to chat with people about Mitochondrial Disorders but I have never used a chat room before and don't really know what I'm doing.Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2003 Report Share Posted January 7, 2003 Hi! Start by introducing yourself and your affected child if you have one. My name is Sue Ann and my son, , is 18 months old and has mitochondrial disease. He is completly g-tube feed, has eye problems, is completly deaf (but now has a cochlear implant), can not hold his head up, sit, crawl or stand, but has started to roll over. is nonverbal and uses signs to communicate. He is my pride and joy. Sue Ann Chat I would like to chat with people about Mitochondrial Disorders but I have never used a chat room before and don't really know what I'm doing.Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2003 Report Share Posted January 7, 2003 Hi! Start by introducing yourself and your affected child if you have one. My name is Sue Ann and my son, , is 18 months old and has mitochondrial disease. He is completly g-tube feed, has eye problems, is completly deaf (but now has a cochlear implant), can not hold his head up, sit, crawl or stand, but has started to roll over. is nonverbal and uses signs to communicate. He is my pride and joy. Sue Ann Chat I would like to chat with people about Mitochondrial Disorders but I have never used a chat room before and don't really know what I'm doing.Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2003 Report Share Posted January 7, 2003 Hi there! Welcome to this group of wonderful people! I am Horsley and I have two daughters Brittney 17 with a heart valve problem and my Mito girl is twelve. My girls are the light of my life. We have been struggling since was born to find answers to her problems with no luck until 2001 when we found a new Dr. who sent us straight to Dr. Shoffner in Atlanta for biopsy (Sept. 12,2001). We recieved the first test results 14 weeks later. Of Mito complex 1 & 3. has a very long list of other heath problems that only complicate things. We have a team of 26 Dr.s and therapists who have worked with . They sat us down and told us that they could keep her a year in the hospital and no be able to help her because they have never seen such a complicated medical case and they do not know what to do with her. We take things minute by minute and we believe in miracles and the healing power of God. Thats a little about us. Again welcome to the group, I look forward to getting to know you. Horsley leehorsley@... Chat I would like to chat with people about Mitochondrial Disorders but I have never used a chat room before and don't really know what I'm doing.Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2003 Report Share Posted January 7, 2003 Hi there! Welcome to this group of wonderful people! I am Horsley and I have two daughters Brittney 17 with a heart valve problem and my Mito girl is twelve. My girls are the light of my life. We have been struggling since was born to find answers to her problems with no luck until 2001 when we found a new Dr. who sent us straight to Dr. Shoffner in Atlanta for biopsy (Sept. 12,2001). We recieved the first test results 14 weeks later. Of Mito complex 1 & 3. has a very long list of other heath problems that only complicate things. We have a team of 26 Dr.s and therapists who have worked with . They sat us down and told us that they could keep her a year in the hospital and no be able to help her because they have never seen such a complicated medical case and they do not know what to do with her. We take things minute by minute and we believe in miracles and the healing power of God. Thats a little about us. Again welcome to the group, I look forward to getting to know you. Horsley leehorsley@... Chat I would like to chat with people about Mitochondrial Disorders but I have never used a chat room before and don't really know what I'm doing.Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2003 Report Share Posted January 7, 2003 Hi there! Welcome to this group of wonderful people! I am Horsley and I have two daughters Brittney 17 with a heart valve problem and my Mito girl is twelve. My girls are the light of my life. We have been struggling since was born to find answers to her problems with no luck until 2001 when we found a new Dr. who sent us straight to Dr. Shoffner in Atlanta for biopsy (Sept. 12,2001). We recieved the first test results 14 weeks later. Of Mito complex 1 & 3. has a very long list of other heath problems that only complicate things. We have a team of 26 Dr.s and therapists who have worked with . They sat us down and told us that they could keep her a year in the hospital and no be able to help her because they have never seen such a complicated medical case and they do not know what to do with her. We take things minute by minute and we believe in miracles and the healing power of God. Thats a little about us. Again welcome to the group, I look forward to getting to know you. Horsley leehorsley@... Chat I would like to chat with people about Mitochondrial Disorders but I have never used a chat room before and don't really know what I'm doing.Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2003 Report Share Posted January 7, 2003 Sue Ann Welcome! Does your son have a specific diagnosis? Mom to Angel Lily (forever 2yrs3mo) Red (6yrs) & Ada (4yrs) ________________________________________________________________ Sign Up for Juno Platinum Internet Access Today Only $9.95 per month! Visit www.juno.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2003 Report Share Posted January 7, 2003 Sue Ann Welcome! Does your son have a specific diagnosis? Mom to Angel Lily (forever 2yrs3mo) Red (6yrs) & Ada (4yrs) ________________________________________________________________ Sign Up for Juno Platinum Internet Access Today Only $9.95 per month! Visit www.juno.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2003 Report Share Posted January 7, 2003 Sue Ann Welcome! Does your son have a specific diagnosis? Mom to Angel Lily (forever 2yrs3mo) Red (6yrs) & Ada (4yrs) ________________________________________________________________ Sign Up for Juno Platinum Internet Access Today Only $9.95 per month! Visit www.juno.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2003 Report Share Posted January 8, 2003 , We do not have a specfic diagnosis. had a muscle biopsy last February. Instead of showing a depletion in the mitochondria it showed an increase all across the board -- but has NO energy. Dr. Walsh is puzzled. Our insurance will only pay 80 percent of Dr. Shoffner's bill so we decided that it was O.K. not to know for now. has been in and out of the hospital last year (5 surgeries!) but I am hoping that is behind us and I am looking forward to minimal visits to the hospital (at least that's my hope) this year. Sue Ann Re: Chat Sue AnnWelcome! Does your son have a specific diagnosis?Mom to Angel Lily (forever 2yrs3mo) Red (6yrs) & Ada (4yrs)________________________________________________________________Sign Up for Juno Platinum Internet Access TodayOnly $9.95 per month!Visit www.juno.comPlease contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2003 Report Share Posted January 8, 2003 , We do not have a specfic diagnosis. had a muscle biopsy last February. Instead of showing a depletion in the mitochondria it showed an increase all across the board -- but has NO energy. Dr. Walsh is puzzled. Our insurance will only pay 80 percent of Dr. Shoffner's bill so we decided that it was O.K. not to know for now. has been in and out of the hospital last year (5 surgeries!) but I am hoping that is behind us and I am looking forward to minimal visits to the hospital (at least that's my hope) this year. Sue Ann Re: Chat Sue AnnWelcome! Does your son have a specific diagnosis?Mom to Angel Lily (forever 2yrs3mo) Red (6yrs) & Ada (4yrs)________________________________________________________________Sign Up for Juno Platinum Internet Access TodayOnly $9.95 per month!Visit www.juno.comPlease contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2003 Report Share Posted January 8, 2003 , We do not have a specfic diagnosis. had a muscle biopsy last February. Instead of showing a depletion in the mitochondria it showed an increase all across the board -- but has NO energy. Dr. Walsh is puzzled. Our insurance will only pay 80 percent of Dr. Shoffner's bill so we decided that it was O.K. not to know for now. has been in and out of the hospital last year (5 surgeries!) but I am hoping that is behind us and I am looking forward to minimal visits to the hospital (at least that's my hope) this year. Sue Ann Re: Chat Sue AnnWelcome! Does your son have a specific diagnosis?Mom to Angel Lily (forever 2yrs3mo) Red (6yrs) & Ada (4yrs)________________________________________________________________Sign Up for Juno Platinum Internet Access TodayOnly $9.95 per month!Visit www.juno.comPlease contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2003 Report Share Posted July 17, 2003 Tina, To go to the chat, all you need to do is go to the main site and click on Chat. Then just wait until you get connected. What message are you getting exactly that you believe you may have a problem? Poly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2003 Report Share Posted July 17, 2003 How do i get to the ashermans chat do i have to have special equipment to chat as nothing seems to happen when i join tina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2004 Report Share Posted July 14, 2004 Jasmine, Just wanted to let you know that for some reason I can't chat anymore! I keep getting a message saying it Cannot find server. Oh, well... better luck next time! Mikell Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2004 Report Share Posted July 19, 2004 > Jasmine, > > Just wanted to let you know that for some reason I can't chat anymore! I keep getting a message saying it Cannot find server. Oh, well... better luck next time! > > Mikell > Mikell, LOL, that's okay, I thought there was something going on with my computer too! Oh well, it was worth a shot Jasmine > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2004 Report Share Posted July 19, 2004 > Jasmine, > > Just wanted to let you know that for some reason I can't chat anymore! I keep getting a message saying it Cannot find server. Oh, well... better luck next time! > > Mikell > Mikell, LOL, that's okay, I thought there was something going on with my computer too! Oh well, it was worth a shot Jasmine > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.