Re: I cant believe my ears

[Guest guest]

YUP, and can't help wondering if my messages are doing the same thing--on

four lists!

n

[Guest guest]

HI

We can always put our thoughts together reguardless of how far apart we all are.

Ofcourse feel free to e-mail me anytime.

Take care,

Stein

Re: I cant believe my ears

Hi

I live in Green Bay, Wisconsin so I guess that shoots the idea of trying to

organize something. Oh well, at least we can keep in touch via internet.

Take Care

Mother of 11 mo wcf

[Guest guest]

,

Thank you. I cant say that I've come to terms with his B-day yet, but I will say

that I'm going to make it the best day ever and move on from the past.

I saw Tammy sing that song on some show about a month ago. I couldn't stop

crying. It's absolutely beautiful.

BTW>>>plenty of room on this soapbox, come join when you feel the need.

Take care,

Stein.....mom to CF (11 mo) & Tori wo/cf (3 1/2 yr)

Re: I cant believe my ears

,

Lol, Dope Slap?? I like it, have a few people I would like to give a dope

slap too.

And I, like you, have thought the same thing, like while in WAWA and they

have the balloons for the Childrens Miracle Network, do people know that a

portion of that supposedly goes to CF research? And how many of these people

know what our kids, husbands, wives brothers or sisters, even moms and dads,

and great friends, have to go through each and every day to stay as healthy

as possible, or do they even care? Every time I hear Angels in Waiting, I

wonder if people actually know why Tammy Cochran wrote this, and what

significance this has to her and others?

Ok, think I joined your soap box with you, lol

Take care, and I hope you had a nice birthday with , and hope you are

feeling better, as I know you were having a tough time with his first

birthday as it approached.

See ya soon,

, mommy of 4, 16, and now working at Burger King, yeahh, has

turned me into a taxi, Caleb 6 1/2, doing great in Kindergarten, and a great

big brother, 5, uses many forms of art, including body painting, ughhh,

and a wonderful big sister, and 21 months, CF, GERD, bright blue eyes,

a beautiful smile, who loves Barney, swinging and the outside.

.

[Guest guest]

Jen,

Food gets'em every time. I hope your a superb baker!

I may start baking myself.

Take care,

Stein....mom to CF (11 mo) & Tori wo/cf ( 3 1/2 yr)

Re: RE: I cant believe my ears

Where exactly do you think I was meaning for the money

to go?? Though, I must admit, I think more money needs

to go to families, because I am sure I am not the only

one getting government assistance to survive. The

drugs are too darned expensive, and the

doctors/hospital visits much too consistent. And I am

doing what I can in regards to the Great Strides walk.

I am walking on May 20, and to raise donations at

work I have taken in pictures of my son during one of

his treatments with his mask and vest on. Some people

actually cry when they see the picture, but still

don't do anything about it. I raised better money

last week when I set a plate of cookies out at each

department with a picture of my kids and a jar for

donations. That went over pretty well.

--- Daelynn wrote:

> ,

>

> One fact is that between 85 to 95 cents of every

> dollar raised for CF research actually goes to

> research, this is one reason for the quick advances

> over the last 10-15 years... the CFF does not spend

> MEGA BUCKS to do telethons because then there

> wouldn't be so much to go to research... If you want

> to catch people, give them the above fact... the CFF

> is one of the top ten charities to donate to, there

> is more research for each dollar donated, that is

> one reason why Bill Gates donated 20 million (or

> was it 25 million) to the CFF. Get some brochures

> from your local CF Foundation office and pick a time

> when your office is not raising money for another

> charity, especially during the area " Great Strides "

> this is our annual fund raising time. If there

> isn't one near you, contact the CFF office nearest

> you and help organize one. Be patient and explain

> what CF is and don't sugar coat it. I give details

> and facts that eventhough the " median life

> expectancy " is 33 years old there are still way too

> many children and young adults dying earlier due to

> the lung infections and malnutrition. This will get

> them. I don't know if this helps you any, but I

> would rather have the money go toward research than

> to go on a telethon.

>

> Take care and keep it up, you are doing a great job

> at educating those around you.

> Daelynn

>

>

> [Non-text portions of this message have been

> removed]

>

>

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