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Hi Deana:

This is chubbygrrl50 better known as Lynne:):) Thank

you for your caring response. My daughter is only 14

and that is a difficult age. Most teens are only

thinking about themselves. But she has only known me

this way her whole life so for her, my being sick all

the time is " normal " . I just wish that I could give

her a real life.

I am so sorry that you are having problems with

migraines. I get them, too. I recently have been

taking a drug named Fiorinal (for the Migraines) and

it really helps. I am also sorry about your back

problem. There is nothing worse than pain; especially

back pain. I have arthritis and osteporosis and am in

pain all the time.

Maybe they can give you some good pain Meds or some

other type of therapy that will help you.

We are both from California even though I am in the

south and you are in the north. I am in Palmdale and

boy is it hot here right now...100 degrees and I don't

have A/C!!!!!! I drink lots of ice-water:):) My

daughter takes cold showers. Anyway, thanks for being

there for me and take good care of yourself.

-Lynne

--- Deana L Fick wrote:

> Hi to the groups its been a toughfew weeks for me

> and I am sorry I have

> not written, but I have readand it blows my mine the

> number of people who

> are suffering like me. This group is a wonderful

> group and just listening

> has help me to get through the recent tough times.

> Been in a major

> flares with migraines that nothing will take them

> away. I took an

> ambulance ride last week to the er because of severe

> back pain, no one

> could move me and I had not done a thing. Well the

> mri came back

> degenerative back disease. Between hospital stay

> and now the pain has

> since creeped into my rt shoulder and down my whole

> rt arm, and straight

> down the back of my rt leg and to the tendons of my

> ankles. So we all

> need each other. chubbygrrl5, sorry do not know

> your name, but I feel

> for you being so secluded and the people who are

> near by don't believe

> it. But you do and the higher power does and all of

> us in this group do.

> So stick with us we will help you by listening and

> you will know we know

> you are not lazy. How does your daughter handle

> this? It must be tough

> on her. I hope she at least is supportive. If you

> do not think I am

> too nosey, hoping she is with you on this. Write

> back to me or the group

> we are here. Deana, from northern Ca.

__________________________________________________

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Guest guest

Lynne, I wish you could move closer to a more populated area. Seems

than you and yourdaughter could get more support. but as usual I am sure

finances pay a big part in your situation. Well you have my email

address write anytime. And I am so sorry you are in a heat wave with

a/c does that make the pain worse? I have found lately that is does not

matter. For four years I worked and just had tiny flares where I would

miss work once or twice a month. But the last year and a half I have

been miserable every day and it does not take anything in to account to

cause it. and I am a pretty happy go lucky person, I love to make people

laugh or happy. If I was not paranoid in a front of a crowd I would have

loved to have been a comedian but straight lase kind not do stupid things

kind. I am a good lifter upper in a pinch, I once had a co-worker tell

me that I have a wonderful talent of putting people together who normally

would not be able to get along. I feel so bad now I fear I lost that

desire and am fighting hard to regain it. Very Scary, glad you found

relief for the migraines and I wish only greatness for your daughter and

you. And may you and everyone in the group be painfree for many, many

days. Love, Deana

On Fri, 29 Jun 2001 14:31:33 -0700 (PDT) L G

writes:

> Hi Deana:

> This is chubbygrrl50 better known as Lynne:):) Thank

> you for your caring response. My daughter is only 14

> and that is a difficult age. Most teens are only

> thinking about themselves. But she has only known me

> this way her whole life so for her, my being sick all

> the time is " normal " . I just wish that I could give

> her a real life.

> I am so sorry that you are having problems with

> migraines. I get them, too. I recently have been

> taking a drug named Fiorinal (for the Migraines) and

> it really helps. I am also sorry about your back

> problem. There is nothing worse than pain; especially

> back pain. I have arthritis and osteporosis and am in

> pain all the time.

> Maybe they can give you some good pain Meds or some

> other type of therapy that will help you.

> We are both from California even though I am in the

> south and you are in the north. I am in Palmdale and

> boy is it hot here right now...100 degrees and I don't

> have A/C!!!!!! I drink lots of ice-water:):) My

> daughter takes cold showers. Anyway, thanks for being

> there for me and take good care of yourself.

> -Lynne

>

> --- Deana L Fick wrote:

> > Hi to the groups its been a toughfew weeks for me

> > and I am sorry I have

> > not written, but I have readand it blows my mine the

> > number of people who

> > are suffering like me. This group is a wonderful

> > group and just listening

> > has help me to get through the recent tough times.

> > Been in a major

> > flares with migraines that nothing will take them

> > away. I took an

> > ambulance ride last week to the er because of severe

> > back pain, no one

> > could move me and I had not done a thing. Well the

> > mri came back

> > degenerative back disease. Between hospital stay

> > and now the pain has

> > since creeped into my rt shoulder and down my whole

> > rt arm, and straight

> > down the back of my rt leg and to the tendons of my

> > ankles. So we all

> > need each other. chubbygrrl5, sorry do not know

> > your name, but I feel

> > for you being so secluded and the people who are

> > near by don't believe

> > it. But you do and the higher power does and all of

> > us in this group do.

> > So stick with us we will help you by listening and

> > you will know we know

> > you are not lazy. How does your daughter handle

> > this? It must be tough

> > on her. I hope she at least is supportive. If you

> > do not think I am

> > too nosey, hoping she is with you on this. Write

> > back to me or the group

> > we are here. Deana, from northern Ca.

>

>

> __________________________________________________

>

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Guest guest

Lynne, I wish you could move closer to a more populated area. Seems

than you and yourdaughter could get more support. but as usual I am sure

finances pay a big part in your situation. Well you have my email

address write anytime. And I am so sorry you are in a heat wave with

a/c does that make the pain worse? I have found lately that is does not

matter. For four years I worked and just had tiny flares where I would

miss work once or twice a month. But the last year and a half I have

been miserable every day and it does not take anything in to account to

cause it. and I am a pretty happy go lucky person, I love to make people

laugh or happy. If I was not paranoid in a front of a crowd I would have

loved to have been a comedian but straight lase kind not do stupid things

kind. I am a good lifter upper in a pinch, I once had a co-worker tell

me that I have a wonderful talent of putting people together who normally

would not be able to get along. I feel so bad now I fear I lost that

desire and am fighting hard to regain it. Very Scary, glad you found

relief for the migraines and I wish only greatness for your daughter and

you. And may you and everyone in the group be painfree for many, many

days. Love, Deana

On Fri, 29 Jun 2001 14:31:33 -0700 (PDT) L G

writes:

> Hi Deana:

> This is chubbygrrl50 better known as Lynne:):) Thank

> you for your caring response. My daughter is only 14

> and that is a difficult age. Most teens are only

> thinking about themselves. But she has only known me

> this way her whole life so for her, my being sick all

> the time is " normal " . I just wish that I could give

> her a real life.

> I am so sorry that you are having problems with

> migraines. I get them, too. I recently have been

> taking a drug named Fiorinal (for the Migraines) and

> it really helps. I am also sorry about your back

> problem. There is nothing worse than pain; especially

> back pain. I have arthritis and osteporosis and am in

> pain all the time.

> Maybe they can give you some good pain Meds or some

> other type of therapy that will help you.

> We are both from California even though I am in the

> south and you are in the north. I am in Palmdale and

> boy is it hot here right now...100 degrees and I don't

> have A/C!!!!!! I drink lots of ice-water:):) My

> daughter takes cold showers. Anyway, thanks for being

> there for me and take good care of yourself.

> -Lynne

>

> --- Deana L Fick wrote:

> > Hi to the groups its been a toughfew weeks for me

> > and I am sorry I have

> > not written, but I have readand it blows my mine the

> > number of people who

> > are suffering like me. This group is a wonderful

> > group and just listening

> > has help me to get through the recent tough times.

> > Been in a major

> > flares with migraines that nothing will take them

> > away. I took an

> > ambulance ride last week to the er because of severe

> > back pain, no one

> > could move me and I had not done a thing. Well the

> > mri came back

> > degenerative back disease. Between hospital stay

> > and now the pain has

> > since creeped into my rt shoulder and down my whole

> > rt arm, and straight

> > down the back of my rt leg and to the tendons of my

> > ankles. So we all

> > need each other. chubbygrrl5, sorry do not know

> > your name, but I feel

> > for you being so secluded and the people who are

> > near by don't believe

> > it. But you do and the higher power does and all of

> > us in this group do.

> > So stick with us we will help you by listening and

> > you will know we know

> > you are not lazy. How does your daughter handle

> > this? It must be tough

> > on her. I hope she at least is supportive. If you

> > do not think I am

> > too nosey, hoping she is with you on this. Write

> > back to me or the group

> > we are here. Deana, from northern Ca.

>

>

> __________________________________________________

>

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Guest guest

Lynne, I wish you could move closer to a more populated area. Seems

than you and yourdaughter could get more support. but as usual I am sure

finances pay a big part in your situation. Well you have my email

address write anytime. And I am so sorry you are in a heat wave with

a/c does that make the pain worse? I have found lately that is does not

matter. For four years I worked and just had tiny flares where I would

miss work once or twice a month. But the last year and a half I have

been miserable every day and it does not take anything in to account to

cause it. and I am a pretty happy go lucky person, I love to make people

laugh or happy. If I was not paranoid in a front of a crowd I would have

loved to have been a comedian but straight lase kind not do stupid things

kind. I am a good lifter upper in a pinch, I once had a co-worker tell

me that I have a wonderful talent of putting people together who normally

would not be able to get along. I feel so bad now I fear I lost that

desire and am fighting hard to regain it. Very Scary, glad you found

relief for the migraines and I wish only greatness for your daughter and

you. And may you and everyone in the group be painfree for many, many

days. Love, Deana

On Fri, 29 Jun 2001 14:31:33 -0700 (PDT) L G

writes:

> Hi Deana:

> This is chubbygrrl50 better known as Lynne:):) Thank

> you for your caring response. My daughter is only 14

> and that is a difficult age. Most teens are only

> thinking about themselves. But she has only known me

> this way her whole life so for her, my being sick all

> the time is " normal " . I just wish that I could give

> her a real life.

> I am so sorry that you are having problems with

> migraines. I get them, too. I recently have been

> taking a drug named Fiorinal (for the Migraines) and

> it really helps. I am also sorry about your back

> problem. There is nothing worse than pain; especially

> back pain. I have arthritis and osteporosis and am in

> pain all the time.

> Maybe they can give you some good pain Meds or some

> other type of therapy that will help you.

> We are both from California even though I am in the

> south and you are in the north. I am in Palmdale and

> boy is it hot here right now...100 degrees and I don't

> have A/C!!!!!! I drink lots of ice-water:):) My

> daughter takes cold showers. Anyway, thanks for being

> there for me and take good care of yourself.

> -Lynne

>

> --- Deana L Fick wrote:

> > Hi to the groups its been a toughfew weeks for me

> > and I am sorry I have

> > not written, but I have readand it blows my mine the

> > number of people who

> > are suffering like me. This group is a wonderful

> > group and just listening

> > has help me to get through the recent tough times.

> > Been in a major

> > flares with migraines that nothing will take them

> > away. I took an

> > ambulance ride last week to the er because of severe

> > back pain, no one

> > could move me and I had not done a thing. Well the

> > mri came back

> > degenerative back disease. Between hospital stay

> > and now the pain has

> > since creeped into my rt shoulder and down my whole

> > rt arm, and straight

> > down the back of my rt leg and to the tendons of my

> > ankles. So we all

> > need each other. chubbygrrl5, sorry do not know

> > your name, but I feel

> > for you being so secluded and the people who are

> > near by don't believe

> > it. But you do and the higher power does and all of

> > us in this group do.

> > So stick with us we will help you by listening and

> > you will know we know

> > you are not lazy. How does your daughter handle

> > this? It must be tough

> > on her. I hope she at least is supportive. If you

> > do not think I am

> > too nosey, hoping she is with you on this. Write

> > back to me or the group

> > we are here. Deana, from northern Ca.

>

>

> __________________________________________________

>

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  • 2 weeks later...
Guest guest

Welcome to the list. Actually welcome to miguel1525@... too. Please

introduce yourself so that we have you names instead of your addresses. The

list is a little slow right now as it is the weekend. It will pick up next

week.

This a friendly and supportive list. We all care for each other and try to

help out when we can. So please introduce yourselves and let us find about

you as you find out about us.

Take care,

Irene

Co-Moderator

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Guest guest

Welcome to the list. Actually welcome to miguel1525@... too. Please

introduce yourself so that we have you names instead of your addresses. The

list is a little slow right now as it is the weekend. It will pick up next

week.

This a friendly and supportive list. We all care for each other and try to

help out when we can. So please introduce yourselves and let us find about

you as you find out about us.

Take care,

Irene

Co-Moderator

Link to comment
Share on other sites

Guest guest

Welcome to the list. Actually welcome to miguel1525@... too. Please

introduce yourself so that we have you names instead of your addresses. The

list is a little slow right now as it is the weekend. It will pick up next

week.

This a friendly and supportive list. We all care for each other and try to

help out when we can. So please introduce yourselves and let us find about

you as you find out about us.

Take care,

Irene

Co-Moderator

Link to comment
Share on other sites

Guest guest

Hi there to Pat@... !-----welcome to this fantastic this

group..Unil I found this group, I had noone..It is great place to be... warm

welcome and thanks for joining....Welcome again and gentle hugs

Terri

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Guest guest

Hi there to Pat@... !-----welcome to this fantastic this

group..Unil I found this group, I had noone..It is great place to be... warm

welcome and thanks for joining....Welcome again and gentle hugs

Terri

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Guest guest

Hi there to Pat@... !-----welcome to this fantastic this

group..Unil I found this group, I had noone..It is great place to be... warm

welcome and thanks for joining....Welcome again and gentle hugs

Terri

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Share on other sites

Guest guest

Welcome to the list. It is a loving and supportive list. Everyone is

friendly and caring. Jump right in and let us get to know you as you get to

know us.

Take care,

Irene

Co-Moderator

Link to comment
Share on other sites

Guest guest

Welcome to the list. It is a loving and supportive list. Everyone is

friendly and caring. Jump right in and let us get to know you as you get to

know us.

Take care,

Irene

Co-Moderator

Link to comment
Share on other sites

Guest guest

Welcome to the list. It is a loving and supportive list. Everyone is

friendly and caring. Jump right in and let us get to know you as you get to

know us.

Take care,

Irene

Co-Moderator

Link to comment
Share on other sites

Guest guest

I came on the list some time ago but can not remember if I ever did post an

intro.

It took many years for the Drs to put all my problems together and come up

with Fybro. After 7 years of treatment, they have also discovered that I have

Lupus. Right now I am rather at a loss.

I lost 185 lbs over the past 2 years and had such hopes that the loss of

weight would result in more energy and a reduction in symptoms. In some ways

this has actually helped - blood sugar is now normal, etc and so forth. But I

am still tired all the time, I still can not seem to get decent sleep... same

old same old.

Is there anyone else here that also has Lupus?

Melinda

http://lacenotes.bizhosting.com

my handcrafted jewelry

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Guest guest

I came on the list some time ago but can not remember if I ever did post an

intro.

It took many years for the Drs to put all my problems together and come up

with Fybro. After 7 years of treatment, they have also discovered that I have

Lupus. Right now I am rather at a loss.

I lost 185 lbs over the past 2 years and had such hopes that the loss of

weight would result in more energy and a reduction in symptoms. In some ways

this has actually helped - blood sugar is now normal, etc and so forth. But I

am still tired all the time, I still can not seem to get decent sleep... same

old same old.

Is there anyone else here that also has Lupus?

Melinda

http://lacenotes.bizhosting.com

my handcrafted jewelry

Link to comment
Share on other sites

Guest guest

I came on the list some time ago but can not remember if I ever did post an

intro.

It took many years for the Drs to put all my problems together and come up

with Fybro. After 7 years of treatment, they have also discovered that I have

Lupus. Right now I am rather at a loss.

I lost 185 lbs over the past 2 years and had such hopes that the loss of

weight would result in more energy and a reduction in symptoms. In some ways

this has actually helped - blood sugar is now normal, etc and so forth. But I

am still tired all the time, I still can not seem to get decent sleep... same

old same old.

Is there anyone else here that also has Lupus?

Melinda

http://lacenotes.bizhosting.com

my handcrafted jewelry

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Guest guest

Hi Melinda,

I'm new here, too--joined a week ago. I have Fibro but I don't have Lupus

(as far as I know).

The thing that I am trying to teach myself now is to stop the self-blame. I

am not to blame for my fatigue and for my illness.

You need to do the same. You weren't tired because you weighed more than

your doctors thought you should. You ARE tired because you are ill. You

can't sleep because your body won't let you.

I've had Fibro for at least 15 years, but it wasn't until last Saturday that

I finally understood what I just told you. I've listened to doctors and

nurses and chiropractors and acupuncturists and osteopaths tell me for years

that I would feel better if I just went to bed earlier, if I just ate this

diet or that diet, if I just did this or that exercise program. In other

words, it was my fault that I was sick.

Last Saturday I did a lot of reading about Fibromyalgia. I learned some

things that I already knew: It doesn't matter how much sleep I get, I'm

still going to be tired and in pain. It doesn't matter how many cups of

cocoa I drink or how many warm baths I take or how many aromatherapy

candles I burn, I still won't get decent, restful sleep. My body won't let

me.

You are tired all the time. You can't seem to get decent sleep. That's a

hallmark of Fibro. I'm not telling you to suck it up and deal--far from it.

I hope and pray that you (and I) will find restful sleep and more energy.

But I am telling you that you didn't do this to yourself, and you shouldn't

take the blame for it.

Hang in there, Melinda!

Love,

ee

P.S., Your jewelry is lovely!

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Guest guest

Hi Melinda,

I'm new here, too--joined a week ago. I have Fibro but I don't have Lupus

(as far as I know).

The thing that I am trying to teach myself now is to stop the self-blame. I

am not to blame for my fatigue and for my illness.

You need to do the same. You weren't tired because you weighed more than

your doctors thought you should. You ARE tired because you are ill. You

can't sleep because your body won't let you.

I've had Fibro for at least 15 years, but it wasn't until last Saturday that

I finally understood what I just told you. I've listened to doctors and

nurses and chiropractors and acupuncturists and osteopaths tell me for years

that I would feel better if I just went to bed earlier, if I just ate this

diet or that diet, if I just did this or that exercise program. In other

words, it was my fault that I was sick.

Last Saturday I did a lot of reading about Fibromyalgia. I learned some

things that I already knew: It doesn't matter how much sleep I get, I'm

still going to be tired and in pain. It doesn't matter how many cups of

cocoa I drink or how many warm baths I take or how many aromatherapy

candles I burn, I still won't get decent, restful sleep. My body won't let

me.

You are tired all the time. You can't seem to get decent sleep. That's a

hallmark of Fibro. I'm not telling you to suck it up and deal--far from it.

I hope and pray that you (and I) will find restful sleep and more energy.

But I am telling you that you didn't do this to yourself, and you shouldn't

take the blame for it.

Hang in there, Melinda!

Love,

ee

P.S., Your jewelry is lovely!

Link to comment
Share on other sites

Guest guest

Hi Melinda,

I'm new here, too--joined a week ago. I have Fibro but I don't have Lupus

(as far as I know).

The thing that I am trying to teach myself now is to stop the self-blame. I

am not to blame for my fatigue and for my illness.

You need to do the same. You weren't tired because you weighed more than

your doctors thought you should. You ARE tired because you are ill. You

can't sleep because your body won't let you.

I've had Fibro for at least 15 years, but it wasn't until last Saturday that

I finally understood what I just told you. I've listened to doctors and

nurses and chiropractors and acupuncturists and osteopaths tell me for years

that I would feel better if I just went to bed earlier, if I just ate this

diet or that diet, if I just did this or that exercise program. In other

words, it was my fault that I was sick.

Last Saturday I did a lot of reading about Fibromyalgia. I learned some

things that I already knew: It doesn't matter how much sleep I get, I'm

still going to be tired and in pain. It doesn't matter how many cups of

cocoa I drink or how many warm baths I take or how many aromatherapy

candles I burn, I still won't get decent, restful sleep. My body won't let

me.

You are tired all the time. You can't seem to get decent sleep. That's a

hallmark of Fibro. I'm not telling you to suck it up and deal--far from it.

I hope and pray that you (and I) will find restful sleep and more energy.

But I am telling you that you didn't do this to yourself, and you shouldn't

take the blame for it.

Hang in there, Melinda!

Love,

ee

P.S., Your jewelry is lovely!

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