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Hi and others,

Avastin has been " tested " in my husband's case as 3rd or 4th line

(I've lost track)trial and it stabilized his disease from October

2003 to March 2004. He will probably be unable to go on with the

trial because of a stricture somewhere in his colon, making him

ill. I also know that the other patient at our cancer center did

well on it-(I was told his condition was similar to my husband's),

as I kept asking about his progress. This information has probably

not been reported officially anywhere yet-just our own personal

experience. Certainly hope this is helpful.

Remaining hopeful,

Annie M

> > By this time, Avastin and Erbitux had just come out. His Dr.

> scheduled him to go into the hospital to get Avastin only to get a

> call from the hospital (Swedish in Seattle) saying they will only

> give Avastin as a first-line treatment since that is what it was

> approved for. They had his biopsy examined and found that it is

the

> type of cancer that Erbitux is used for but

> > he has to have irinotecan and have that fail before he is

eligible

> for Erbitux

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Hi : Don't feel troubled,many of us feel the same way. The irrinatken

is

Camptosar or CPT11,and it works in combination with the 5fu/lv+ whatever else

your

oncologist prescribed. Ye it has hard side effects,though I think your dads

were

extreme. The hair will gow back,don't know if ou dad had mets before his

surgery

or how extensive it was. When my husband first had his they tested 26 lymph

nodes

and 9 were positve. Since hen(1999) he had mets to liver,wo lobes now,2 lung

spots

and a mass in the pancreas area. We fight each one,get mad,anrgy and then we

realized we had to readjust our way of living. We take the good days and

enjoy them.

We get through the bad days on a day be day basis,and we have learned to

cope.

We are blessed with family and friends so that helps. We believe in God and

we

know that the prayers others are sending in our behalf have worked. There is

no

single answer,yo have to believe you can win,fight,and make adjustments in

diet,

and daily activity as necessary. Keeping hydrated and maintaining a normal

weight

helps. You make have to make some dratic diet changes for him,smaller

portions,

no raw veggies or fruits except bananas,fat free lactose free dairy,few

fried foods

but we do the holidays as usual and only give Nick smaller portions. Life is

a gift.

It is finite,love is infinite and only grows more so,so your having your dad

there is

a blessing for him,a great example for your girls and just shows what love

and respect

you have for him. God Bless,keep the faith ,hugs and prayers Nick & Jane

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  • 2 years later...

>

> Hi all,

>

> I start my amalgam removal next week and read all your posts with

interest.

> I mainly write just to let you know I'm here and but also to query

about the

> methylation issue with amalgam removal.

One of the B's I'm on is sublingual

> methylcobalamin, should I discontinue this while I do the removal

protocol?

TK--- no

> If so, for how long? We both have liver phase 1/11 imbalances and

I wonder

> about the effect of the cruciferous veggies (sulfur) on this.

TK--- sulfer foods can make things worse for many in general, some

do better with some, it varies per individual.

Unfortunately

> our main sensitivities are to salicylates and amines so inclusion

of other

> foods isn't possible right now. Could the sulfurous food be

perpetuating the

> liver imbalances? What a vicious cycle!

>

> Thanks for your useful info so far,

>

> Kelle

>

>

>

>

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>

> Hi all,

>

> I start my amalgam removal next week and read all your posts with

interest.

> I mainly write just to let you know I'm here and but also to query

about the

> methylation issue with amalgam removal.

One of the B's I'm on is sublingual

> methylcobalamin, should I discontinue this while I do the removal

protocol?

TK--- no

> If so, for how long? We both have liver phase 1/11 imbalances and

I wonder

> about the effect of the cruciferous veggies (sulfur) on this.

TK--- sulfer foods can make things worse for many in general, some

do better with some, it varies per individual.

Unfortunately

> our main sensitivities are to salicylates and amines so inclusion

of other

> foods isn't possible right now. Could the sulfurous food be

perpetuating the

> liver imbalances? What a vicious cycle!

>

> Thanks for your useful info so far,

>

> Kelle

>

>

>

>

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  • 2 years later...

My doctor has recommended that I go to a gastroenterologist for a

colonoscopy. I am so not looking forward to this. Does anyone have

any tips on how to get through the prep? Also do we have a good docs

list? I would like to find one who is pro-SCD. I am located in

Birmingham, AL.

Lynn

undiagnosed IBS

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  • 8 months later...

HI JOLIE

CONGRATULATIONS AND HIGH-FIVE!!!

LONDA

~ALL THAT IM NOT MAKES ME ALLTHAT I AM~

Subject: Re: New MemberTo: MSersLife Date: Monday, August 17, 2009, 1:16 PM

Hi a and new members, my name is Jolie. I'm 31 anf I have 2daughters who are 8 & 9. I was DXed in 2004 and have been takingRebif since then. Just got back from my doctor, only one small newlesion on my MRI. So I will continue on with Rebif since it seems tobe working. Anyways, welcome to the group to everybody!Jolie

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HI JOLIE

CONGRATULATIONS AND HIGH-FIVE!!!

LONDA

~ALL THAT IM NOT MAKES ME ALLTHAT I AM~

Subject: Re: New MemberTo: MSersLife Date: Monday, August 17, 2009, 1:16 PM

Hi a and new members, my name is Jolie. I'm 31 anf I have 2daughters who are 8 & 9. I was DXed in 2004 and have been takingRebif since then. Just got back from my doctor, only one small newlesion on my MRI. So I will continue on with Rebif since it seems tobe working. Anyways, welcome to the group to everybody!Jolie

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HI JOLIE

CONGRATULATIONS AND HIGH-FIVE!!!

LONDA

~ALL THAT IM NOT MAKES ME ALLTHAT I AM~

Subject: Re: New MemberTo: MSersLife Date: Monday, August 17, 2009, 1:16 PM

Hi a and new members, my name is Jolie. I'm 31 anf I have 2daughters who are 8 & 9. I was DXed in 2004 and have been takingRebif since then. Just got back from my doctor, only one small newlesion on my MRI. So I will continue on with Rebif since it seems tobe working. Anyways, welcome to the group to everybody!Jolie

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