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Disregard my last note as I see your doctor gave you permission. If he says

it is okay to ttc then you probably won't be high risk unless it is because

of either your age or if you end up with multiples. I believe I remember

reading that someone on the list was pregnant with multiples.

Rasley

mailto:drasley@...

BTC, Columbus, 10/7/98

Lost over 90% of excess and maintaining

Gained a beautiful daughter on 8/9/00

> Re: New Member

>

>

>

> Hi my name is ang and i'm pretty new to the group as well. I am in

> the process of ttc via IVF. most Dr.'s like you to wait at least 12

> to 18 months from what i've heard but like you said you know of

> pepole who have done it earlier. My advice or and opinon. Wait till

> your surgen say's it's okay to start ttc. I'm only 10 months post op

> myself and am ttc. But, my surgen and my Dr. said that it was okay

> for me to do so. I think it just depends on the surgen and your

> certin situation. My thought is this.......Why go through all of this

> to have the surgery not to get the full benifit from it. You loose

> most of your weight the 1st year. that's what they call your window

> of oppertunity. " you loose the most weight during this time " I think

> you should talk it over with your surgen and fallow his/her advice.

> Once again that is just my opinon. Good luck with your surgery! It

> has been the best choice i've ever made. I hope it's turns out the

> same for you. Ang

> Lap RNY

> 260/170 SEPT./01

>

>

>

>

>

>

>

>

>

> > Hello, my name is and I am a new member. I think this is a

> > wonderful group, one that is more needed than a lot of people

> realize.

> >

> > I have a very important question that I hope someone, anyone, can

> > answer for me. I am still in the " pre-stages " of the surgery

> > process. I have done all of my research, chosen a doctor and my

> > initial consult is tomorrow morning. I am hoping for a

> laparoscopic

> > Roux-en-Y.

> >

> > OK, OK, I'll get to the point. :-) My question is about the post-

> > op " waiting period " before attempting to conceive. I have been

> > informed that I would have to wait 18-24 months. On the other

> hand,

> > I have spoken to women in other surgery support groups who have

> > conceived as soon as NINE months post-op! Has anyone here

> conceived

> > or attempted to conceive this soon? And, if so, how did everything

> > turn out?

> >

> > I know it is still pretty early in the process for me to be

> fretting

> > about this but, I have been waiting ELEVEN YEARS to have a second

> > child (my son is eleven and a half). I did conceive late last year

> > but, miscarried and I am very anxious to lose this weight, get

> > healthy and have a baby.

> >

> > Any and all responses will be greatly appreciated. Please feel

> free

> > to contact me at any time. Thanks.

> >

> > :-)

> > RaeLo29@j...

> > AOL IM: RaeLo29

> > Yahoo!: Lehcar1973

> > ICQ: 147963518

>

>

>

> Children are a blessing, and a gift from the Lord. -Psalm 127:3

>

>

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Hi, Ang.

Thanks very much for your response. It does make sense that I talk

this over with my MD and follow his advice since every situation is

different. I certainly do intend to reap EVERY benefit of this

surgery, I have waited my entire life to get rid of this weight and

can no longer stand the way it makes me feel. It will surely be

worth the wait to be able to carry a healthy baby to term and have

the energy to be a truly " hands-on " mom.

I am glad your surgery has been such a succes for you and wish you

lots of luck!!

Thanks again.

> > Hello, my name is and I am a new member. I think this is

a

> > wonderful group, one that is more needed than a lot of people

> realize.

> >

> > I have a very important question that I hope someone, anyone, can

> > answer for me. I am still in the " pre-stages " of the surgery

> > process. I have done all of my research, chosen a doctor and my

> > initial consult is tomorrow morning. I am hoping for a

> laparoscopic

> > Roux-en-Y.

> >

> > OK, OK, I'll get to the point. :-) My question is about the post-

> > op " waiting period " before attempting to conceive. I have been

> > informed that I would have to wait 18-24 months. On the other

> hand,

> > I have spoken to women in other surgery support groups who have

> > conceived as soon as NINE months post-op! Has anyone here

> conceived

> > or attempted to conceive this soon? And, if so, how did

everything

> > turn out?

> >

> > I know it is still pretty early in the process for me to be

> fretting

> > about this but, I have been waiting ELEVEN YEARS to have a second

> > child (my son is eleven and a half). I did conceive late last

year

> > but, miscarried and I am very anxious to lose this weight, get

> > healthy and have a baby.

> >

> > Any and all responses will be greatly appreciated. Please feel

> free

> > to contact me at any time. Thanks.

> >

> > :-)

> > RaeLo29@j...

> > AOL IM: RaeLo29

> > Yahoo!: Lehcar1973

> > ICQ: 147963518

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Hi, Ang.

Thanks very much for your response. It does make sense that I talk

this over with my MD and follow his advice since every situation is

different. I certainly do intend to reap EVERY benefit of this

surgery, I have waited my entire life to get rid of this weight and

can no longer stand the way it makes me feel. It will surely be

worth the wait to be able to carry a healthy baby to term and have

the energy to be a truly " hands-on " mom.

I am glad your surgery has been such a succes for you and wish you

lots of luck!!

Thanks again.

> > Hello, my name is and I am a new member. I think this is

a

> > wonderful group, one that is more needed than a lot of people

> realize.

> >

> > I have a very important question that I hope someone, anyone, can

> > answer for me. I am still in the " pre-stages " of the surgery

> > process. I have done all of my research, chosen a doctor and my

> > initial consult is tomorrow morning. I am hoping for a

> laparoscopic

> > Roux-en-Y.

> >

> > OK, OK, I'll get to the point. :-) My question is about the post-

> > op " waiting period " before attempting to conceive. I have been

> > informed that I would have to wait 18-24 months. On the other

> hand,

> > I have spoken to women in other surgery support groups who have

> > conceived as soon as NINE months post-op! Has anyone here

> conceived

> > or attempted to conceive this soon? And, if so, how did

everything

> > turn out?

> >

> > I know it is still pretty early in the process for me to be

> fretting

> > about this but, I have been waiting ELEVEN YEARS to have a second

> > child (my son is eleven and a half). I did conceive late last

year

> > but, miscarried and I am very anxious to lose this weight, get

> > healthy and have a baby.

> >

> > Any and all responses will be greatly appreciated. Please feel

> free

> > to contact me at any time. Thanks.

> >

> > :-)

> > RaeLo29@j...

> > AOL IM: RaeLo29

> > Yahoo!: Lehcar1973

> > ICQ: 147963518

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Hi there

It was me that was pregnant with twins. I had my babies 2 years after my WLS

and I was considered high risk only because of having twins not because of

the surgery. I also didnt have IVF.....I just had them on my own. No twins

run in either of our families but my age of 37 might of had something to do

with that because the older you are the more prone you are to release 2

eggs. I ended up having the babies 9 weeks early but they were perfect and

only stayed in the hospital 4 weeks after birth. I was at my goal as far as

weight goes when I conceived and I gained 27lbs with the pregnancy and was

back to pre-pregnancy weight 2 weeks later.

Debbie

open rny with gallbladder removal 1/13/00

pre-op weight 305lbs

current weight 147lbs

gave birth to Zachary and Evan 1/13/02

birth weight 3lbs and 4lbs

Re: New Member

> >

> >

> >

> > Hi my name is ang and i'm pretty new to the group as well. I am in

> > the process of ttc via IVF. most Dr.'s like you to wait at least 12

> > to 18 months from what i've heard but like you said you know of

> > pepole who have done it earlier. My advice or and opinon. Wait till

> > your surgen say's it's okay to start ttc. I'm only 10 months post op

> > myself and am ttc. But, my surgen and my Dr. said that it was okay

> > for me to do so. I think it just depends on the surgen and your

> > certin situation. My thought is this.......Why go through all of this

> > to have the surgery not to get the full benifit from it. You loose

> > most of your weight the 1st year. that's what they call your window

> > of oppertunity. " you loose the most weight during this time " I think

> > you should talk it over with your surgen and fallow his/her advice.

> > Once again that is just my opinon. Good luck with your surgery! It

> > has been the best choice i've ever made. I hope it's turns out the

> > same for you. Ang

> > Lap RNY

> > 260/170 SEPT./01

> >

> >

> >

> >

> >

> >

> >

> >

> >

> > > Hello, my name is and I am a new member. I think this is a

> > > wonderful group, one that is more needed than a lot of people

> > realize.

> > >

> > > I have a very important question that I hope someone, anyone, can

> > > answer for me. I am still in the " pre-stages " of the surgery

> > > process. I have done all of my research, chosen a doctor and my

> > > initial consult is tomorrow morning. I am hoping for a

> > laparoscopic

> > > Roux-en-Y.

> > >

> > > OK, OK, I'll get to the point. :-) My question is about the post-

> > > op " waiting period " before attempting to conceive. I have been

> > > informed that I would have to wait 18-24 months. On the other

> > hand,

> > > I have spoken to women in other surgery support groups who have

> > > conceived as soon as NINE months post-op! Has anyone here

> > conceived

> > > or attempted to conceive this soon? And, if so, how did everything

> > > turn out?

> > >

> > > I know it is still pretty early in the process for me to be

> > fretting

> > > about this but, I have been waiting ELEVEN YEARS to have a second

> > > child (my son is eleven and a half). I did conceive late last year

> > > but, miscarried and I am very anxious to lose this weight, get

> > > healthy and have a baby.

> > >

> > > Any and all responses will be greatly appreciated. Please feel

> > free

> > > to contact me at any time. Thanks.

> > >

> > > :-)

> > > RaeLo29@j...

> > > AOL IM: RaeLo29

> > > Yahoo!: Lehcar1973

> > > ICQ: 147963518

> >

> >

> >

> > Children are a blessing, and a gift from the Lord. -Psalm 127:3

> >

> >

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Guest guest

Hi there

It was me that was pregnant with twins. I had my babies 2 years after my WLS

and I was considered high risk only because of having twins not because of

the surgery. I also didnt have IVF.....I just had them on my own. No twins

run in either of our families but my age of 37 might of had something to do

with that because the older you are the more prone you are to release 2

eggs. I ended up having the babies 9 weeks early but they were perfect and

only stayed in the hospital 4 weeks after birth. I was at my goal as far as

weight goes when I conceived and I gained 27lbs with the pregnancy and was

back to pre-pregnancy weight 2 weeks later.

Debbie

open rny with gallbladder removal 1/13/00

pre-op weight 305lbs

current weight 147lbs

gave birth to Zachary and Evan 1/13/02

birth weight 3lbs and 4lbs

Re: New Member

> >

> >

> >

> > Hi my name is ang and i'm pretty new to the group as well. I am in

> > the process of ttc via IVF. most Dr.'s like you to wait at least 12

> > to 18 months from what i've heard but like you said you know of

> > pepole who have done it earlier. My advice or and opinon. Wait till

> > your surgen say's it's okay to start ttc. I'm only 10 months post op

> > myself and am ttc. But, my surgen and my Dr. said that it was okay

> > for me to do so. I think it just depends on the surgen and your

> > certin situation. My thought is this.......Why go through all of this

> > to have the surgery not to get the full benifit from it. You loose

> > most of your weight the 1st year. that's what they call your window

> > of oppertunity. " you loose the most weight during this time " I think

> > you should talk it over with your surgen and fallow his/her advice.

> > Once again that is just my opinon. Good luck with your surgery! It

> > has been the best choice i've ever made. I hope it's turns out the

> > same for you. Ang

> > Lap RNY

> > 260/170 SEPT./01

> >

> >

> >

> >

> >

> >

> >

> >

> >

> > > Hello, my name is and I am a new member. I think this is a

> > > wonderful group, one that is more needed than a lot of people

> > realize.

> > >

> > > I have a very important question that I hope someone, anyone, can

> > > answer for me. I am still in the " pre-stages " of the surgery

> > > process. I have done all of my research, chosen a doctor and my

> > > initial consult is tomorrow morning. I am hoping for a

> > laparoscopic

> > > Roux-en-Y.

> > >

> > > OK, OK, I'll get to the point. :-) My question is about the post-

> > > op " waiting period " before attempting to conceive. I have been

> > > informed that I would have to wait 18-24 months. On the other

> > hand,

> > > I have spoken to women in other surgery support groups who have

> > > conceived as soon as NINE months post-op! Has anyone here

> > conceived

> > > or attempted to conceive this soon? And, if so, how did everything

> > > turn out?

> > >

> > > I know it is still pretty early in the process for me to be

> > fretting

> > > about this but, I have been waiting ELEVEN YEARS to have a second

> > > child (my son is eleven and a half). I did conceive late last year

> > > but, miscarried and I am very anxious to lose this weight, get

> > > healthy and have a baby.

> > >

> > > Any and all responses will be greatly appreciated. Please feel

> > free

> > > to contact me at any time. Thanks.

> > >

> > > :-)

> > > RaeLo29@j...

> > > AOL IM: RaeLo29

> > > Yahoo!: Lehcar1973

> > > ICQ: 147963518

> >

> >

> >

> > Children are a blessing, and a gift from the Lord. -Psalm 127:3

> >

> >

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Guest guest

Congrats to you!

Rasley

mailto:drasley@...

BTC, Columbus, 10/7/98

Lost over 90% of excess and maintaining

Gained a beautiful daughter on 8/9/00

> Re: Re: New Member

>

>

> Hi there

>

> It was me that was pregnant with twins. I had my babies 2 years

> after my WLS

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Hi - I got pregnant at nine months post op and last month

delivered a healthy 7 lb 2 oz baby girl. My surgeon was not happy

with me for being pregnant so soon (he wanted me to wait 18 mos). We

got pregnant the first time we weren't careful not to so I guess it

wasn't completely an accident.

I would still say listen to your Dr. They tell you to wait for a

reason and another 9 months really isn't that long in the whole

scheme of things. Even so....I am happy to have that little girl and

feel very blessed that she is healthy.

Good luck when your time comes!

Molly

> Hello, my name is and I am a new member. I think this is a

> wonderful group, one that is more needed than a lot of people

realize.

>

> I have a very important question that I hope someone, anyone, can

> answer for me. I am still in the " pre-stages " of the surgery

> process. I have done all of my research, chosen a doctor and my

> initial consult is tomorrow morning. I am hoping for a

laparoscopic

> Roux-en-Y.

>

> OK, OK, I'll get to the point. :-) My question is about the post-

> op " waiting period " before attempting to conceive. I have been

> informed that I would have to wait 18-24 months. On the other

hand,

> I have spoken to women in other surgery support groups who have

> conceived as soon as NINE months post-op! Has anyone here

conceived

> or attempted to conceive this soon? And, if so, how did everything

> turn out?

>

> I know it is still pretty early in the process for me to be

fretting

> about this but, I have been waiting ELEVEN YEARS to have a second

> child (my son is eleven and a half). I did conceive late last year

> but, miscarried and I am very anxious to lose this weight, get

> healthy and have a baby.

>

> Any and all responses will be greatly appreciated. Please feel

free

> to contact me at any time. Thanks.

>

> :-)

> RaeLo29@j...

> AOL IM: RaeLo29

> Yahoo!: Lehcar1973

> ICQ: 147963518

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Guest guest

Hi Molly.

Congratulations on your new baby!! I am glad everything turned out

well for you and that the baby is healthy. No, that certainly was

NOT an accident, it was a gift :-) Thank you so much for the

response. I certainly will listen to my Dr. My priority, after all,

is to have a healthy baby, not to have one ASAP.

Thanks again and good luck to you and the Lil One. :-)

> > Hello, my name is and I am a new member. I think this is

a

> > wonderful group, one that is more needed than a lot of people

> realize.

> >

> > I have a very important question that I hope someone, anyone, can

> > answer for me. I am still in the " pre-stages " of the surgery

> > process. I have done all of my research, chosen a doctor and my

> > initial consult is tomorrow morning. I am hoping for a

> laparoscopic

> > Roux-en-Y.

> >

> > OK, OK, I'll get to the point. :-) My question is about the post-

> > op " waiting period " before attempting to conceive. I have been

> > informed that I would have to wait 18-24 months. On the other

> hand,

> > I have spoken to women in other surgery support groups who have

> > conceived as soon as NINE months post-op! Has anyone here

> conceived

> > or attempted to conceive this soon? And, if so, how did

everything

> > turn out?

> >

> > I know it is still pretty early in the process for me to be

> fretting

> > about this but, I have been waiting ELEVEN YEARS to have a second

> > child (my son is eleven and a half). I did conceive late last

year

> > but, miscarried and I am very anxious to lose this weight, get

> > healthy and have a baby.

> >

> > Any and all responses will be greatly appreciated. Please feel

> free

> > to contact me at any time. Thanks.

> >

> > :-)

> > RaeLo29@j...

> > AOL IM: RaeLo29

> > Yahoo!: Lehcar1973

> > ICQ: 147963518

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  • 4 weeks later...
Guest guest

>

> Hi,

>

> I was so happy to find this group on the internet. I only wish our computer

had been fixed sooner so I could have been involved from the beginning of our

daughters problems.

>

> Our daughter Brooklyn was born on 3/21/02 with severe bilateral clubfeet.

When she was a week old she was put in small plaster casts that went from below

her knee over her feet. These casts were changed weekly. After the 5th week of

casts the doctor said her feet were not moving and they were worse than he

originally thought. He referred us to Dr. Abraham a pediatric orthopaedic

specialist and the head of the orthopaedic department at the University of

Illinois Medical Center in Chicago. We live a bout 2 hours west of Chicago. Our

orthopaedic doctor did his residency under Dr. Abraham and he said he used the

Ponsetti method and got excellent results with clubfeet.

>

> When Brooklyn was 7 weeks old we had our first appointment with Dr. Abraham

and he told us she had severe bilateral clubfeet and he thought he could fix

them in 2 or 3 castings with the Ponsetti technique and then do a tenotomy. So

Brooklyn got her first set of casts, only they were done with fiberglass instead

of plaster. Dr. Abraham said he preferred fiberglass because he could mold it

to the foot when it was wet and it held the foot better than plaster plus it was

lighter than plaster.

>

> Brooklyn went back a week later to get her casts changed and we couldn't

believe it but her feet were already straight. (Thank God for Dr. Ponsettis

technique). Brooklyn had another set of casts on for a week and then had a

tenotomy wich she handled very well. She was in casts for 3 weeks. We went for

another cast change and Dr. Abraham decided to put her in casts for another 2

weeks with her feet at 70% rotation. At the last cast change she was then

measured for her braces. They will be ready on July 23. We are so excited. I

can't wait to see her beautiful feet again.

>

> When we saw the brace specialist I asked him whether they used the DBB or the

AFO. He said that Dr. Abraham had actually created a new brace that was a

combination of both. He uses the AFO with a bar attached to the bottom.

Apparently so many parents were having problems with keeping the DBB on that he

decided to create something that worked better. The brace specialist told us

that Dr. Ponsetti saw Dr. Abrahams work and was so impressed with it that he

asked for a report from him. I guess he liked the braces. If anyone would

like I could take a digital picture of the braces when she gets them and send

them to you by email. I am very curious as to what they look like. Which leads

to my big question. I need hints and help for both the bar and the AFO. Can

anyone help? Will Brooklyn fit in her carrier car seat with the AFO and bar?

Has anyone had a problem with this. Any advice for making her comfortable for

the long ride home and sleeping in her bed? Any advice would be greatly

appreciated.

>

> Thank you so much.

>

> & (mom & dad to daughters Sidney 3 yrs. and Brooklyn (bilateral

clubfeet) 3 1/2 months

>

>

Hello !

Welcome to the group! I just found this site a week ago myself, and was SO

happy to discover it -- it is wonderful to have access to the wealth of

information and experience of all of the others out there who are going (or have

gone) throug the same thing that you are.

Our son Gavin was born on April 12th, 2002 with severe unilateral (left) club

foot. We were lucky to be referred prenatally (we knew about the club foot from

the ultrasound) to Dr. Alvarez at B.C. Children's Hospital in

Vancouver. She uses the Ponsetti method, with a few minor alterations to the

treatment. After hearing about and speaking to a bunch of other club foot

patients, who have switched to the Ponsetti method after trying others, I feel

more and more fortunate that we started out with this treatment. We live far

away (about 12 hrs driving) from Vancouver, so I have been flying back and forth

to Vancouver weekly since Gavin was 4 days old. He is now finished with his

casts (8 in total - he had a very stiff foot to start with) and has been in the

DBB for 3 weeks now. Our trips should be down to once a month now, and we are

headed back tomorrow to see how the DBB is working out. The first couple of

weeks in it were pretty rough, but things are going better now.

I find that once it was fitted correctly (we started out with a bar that was

much too short) Gavin doesn't seem to mind the bar much anymore, but often he

seems more comfortable (especially when sleeping) if I put a pillow under his

legs and bar. No problems in the carrier. Good luck with yours! I would LOVE

to hear about (and see pictures of) different forms of bars and braces -- what

is an AFO?

Rita and Ian, with baby Gavin, 3 months old, and big sister andra, 3 yrs old

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Guest guest

,

Welcome to the list! I have a 2 1/2 y.o. who was born with bilateral clubfeet

and a 3 month old who was born with right clubfoot. Both have been treated by

Dr. Ponseti's method. We live in Florida and flew to Iowa with the 2 1/2 year

old when he was 4 months old. This time around we were able to get in with a

doctor in Orlando who uses the Ponseti method. You would never know the 2 1/2

year old ever had clubfoot, and the 3 month old is progressing wonderfully! We

did not have a problem with either one in the car seat. does look a little

uncomfortable at times in the swing because his legs aren't long enough...but he

doesn't spend much time in there with or without the brace. (It makes him

sleepy and he would much rather fall asleep in someone's arms.) As far as

sleeping, he struggled the first couple of nights with the brace, but has

adjusted to that well. He has learned to roll over front to back with the

brace, which brings back memories of when he!

accomplished that. He could roll to his back, but not to his tummy...so my

husband and I would take turns getting up to 'flip the kid' when he would cry.

Dr. Ponseti I think suggests rolling up a blanket under the child's knees to

make them more comfortable.

I hope this helps a little.

Kim and the gang

________________________________________________________________

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,

Welcome to the list! I have a 2 1/2 y.o. who was born with bilateral clubfeet

and a 3 month old who was born with right clubfoot. Both have been treated by

Dr. Ponseti's method. We live in Florida and flew to Iowa with the 2 1/2 year

old when he was 4 months old. This time around we were able to get in with a

doctor in Orlando who uses the Ponseti method. You would never know the 2 1/2

year old ever had clubfoot, and the 3 month old is progressing wonderfully! We

did not have a problem with either one in the car seat. does look a little

uncomfortable at times in the swing because his legs aren't long enough...but he

doesn't spend much time in there with or without the brace. (It makes him

sleepy and he would much rather fall asleep in someone's arms.) As far as

sleeping, he struggled the first couple of nights with the brace, but has

adjusted to that well. He has learned to roll over front to back with the

brace, which brings back memories of when he!

accomplished that. He could roll to his back, but not to his tummy...so my

husband and I would take turns getting up to 'flip the kid' when he would cry.

Dr. Ponseti I think suggests rolling up a blanket under the child's knees to

make them more comfortable.

I hope this helps a little.

Kim and the gang

________________________________________________________________

GET INTERNET ACCESS FROM JUNO!

Juno offers FREE or PREMIUM Internet access for less!

Join Juno today! For your FREE software, visit:

http://dl.www.juno.com/get/web/.

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Guest guest

,

Welcome to the list! I have a 2 1/2 y.o. who was born with bilateral clubfeet

and a 3 month old who was born with right clubfoot. Both have been treated by

Dr. Ponseti's method. We live in Florida and flew to Iowa with the 2 1/2 year

old when he was 4 months old. This time around we were able to get in with a

doctor in Orlando who uses the Ponseti method. You would never know the 2 1/2

year old ever had clubfoot, and the 3 month old is progressing wonderfully! We

did not have a problem with either one in the car seat. does look a little

uncomfortable at times in the swing because his legs aren't long enough...but he

doesn't spend much time in there with or without the brace. (It makes him

sleepy and he would much rather fall asleep in someone's arms.) As far as

sleeping, he struggled the first couple of nights with the brace, but has

adjusted to that well. He has learned to roll over front to back with the

brace, which brings back memories of when he!

accomplished that. He could roll to his back, but not to his tummy...so my

husband and I would take turns getting up to 'flip the kid' when he would cry.

Dr. Ponseti I think suggests rolling up a blanket under the child's knees to

make them more comfortable.

I hope this helps a little.

Kim and the gang

________________________________________________________________

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Guest guest

Welcome to our group, !

I think you're the first one here that is seeing Dr. Abraham. So, I

don't think any of us have seen his AFO/FAB combination. I hope that

when Brooklyn gets her brace that you'll post the photos on the site

here (you can put it in the Photos section).

Most doctors who use the Ponseti method also use plaster instead of

fiberglass because it is easier to mold the position of the foot.

This is the first that I've heard of fiberglass being " easier " to

mold. Dr. Abraham has modified the method a bit compared to Iowa.

This is probably why Dr. Ponseti requested reports from Dr. Abraham

so that he could see how the modifications are working for his

patients. It sounds like you've had wonderful results under his

care. That is fantastic news! We're happy to have you aboard!

We didn't have any problems with fitting in her carseat with

her brace on. Some parents have had to roll up a blanket or towel to

place under the legs so that the bar/shoes don't catch on the edge of

the carrier. I'm not exactly sure what Brooklyn's brace will consist

of- guess you'll have to let us know when you get them and if you

have any problems, we'll have a brainstorming session to help you out!

To the poster who asked what an AFO is- it's an ankle-foot-orthotic,

usually a plastic piece that is made from a mold of the child's foot

and is held on with velcro straps. (We had a few different types of

these before we went to Dr. Ponseti)

Please keep us posted on Brooklyn's progress!

By the way- we live near Champaign- so I would guess that we're not

too far from you!

Regards,

& (3-16-00)

left clubfoot, switched to Ponseti Method at 4 months old

>

> Hi,

>

> I was so happy to find this group on the internet. I only wish our

computer had been fixed sooner so I could have been involved from the

beginning of our daughters problems.

>

> Our daughter Brooklyn was born on 3/21/02 with severe bilateral

clubfeet. When she was a week old she was put in small plaster casts

that went from below her knee over her feet. These casts were

changed weekly. After the 5th week of casts the doctor said her feet

were not moving and they were worse than he originally thought. He

referred us to Dr. Abraham a pediatric orthopaedic specialist and the

head of the orthopaedic department at the University of Illinois

Medical Center in Chicago. We live a bout 2 hours west of Chicago.

Our orthopaedic doctor did his residency under Dr. Abraham and he

said he used the Ponsetti method and got excellent results with

clubfeet.

>

> When Brooklyn was 7 weeks old we had our first appointment with Dr.

Abraham and he told us she had severe bilateral clubfeet and he

thought he could fix them in 2 or 3 castings with the Ponsetti

technique and then do a tenotomy. So Brooklyn got her first set of

casts, only they were done with fiberglass instead of plaster. Dr.

Abraham said he preferred fiberglass because he could mold it to the

foot when it was wet and it held the foot better than plaster plus it

was lighter than plaster.

>

> Brooklyn went back a week later to get her casts changed and we

couldn't believe it but her feet were already straight. (Thank God

for Dr. Ponsettis technique). Brooklyn had another set of casts on

for a week and then had a tenotomy wich she handled very well. She

was in casts for 3 weeks. We went for another cast change and Dr.

Abraham decided to put her in casts for another 2 weeks with her feet

at 70% rotation. At the last cast change she was then measured for

her braces. They will be ready on July 23. We are so excited. I

can't wait to see her beautiful feet again.

>

> When we saw the brace specialist I asked him whether they used the

DBB or the AFO. He said that Dr. Abraham had actually created a new

brace that was a combination of both. He uses the AFO with a bar

attached to the bottom. Apparently so many parents were having

problems with keeping the DBB on that he decided to create something

that worked better. The brace specialist told us that Dr. Ponsetti

saw Dr. Abrahams work and was so impressed with it that he asked for

a report from him. I guess he liked the braces. If anyone would

like I could take a digital picture of the braces when she gets them

and send them to you by email. I am very curious as to what they

look like. Which leads to my big question. I need hints and help

for both the bar and the AFO. Can anyone help? Will Brooklyn fit in

her carrier car seat with the AFO and bar? Has anyone had a problem

with this. Any advice for making her comfortable for the long ride

home and sleeping in her bed? Any advice would be greatly

appreciated.

>

> Thank you so much.

>

> & (mom & dad to daughters Sidney 3 yrs. and Brooklyn

(bilateral clubfeet) 3 1/2 months

>

>

>

>

>

> ---------------------------------

>

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Share on other sites

Guest guest

Welcome to our group, !

I think you're the first one here that is seeing Dr. Abraham. So, I

don't think any of us have seen his AFO/FAB combination. I hope that

when Brooklyn gets her brace that you'll post the photos on the site

here (you can put it in the Photos section).

Most doctors who use the Ponseti method also use plaster instead of

fiberglass because it is easier to mold the position of the foot.

This is the first that I've heard of fiberglass being " easier " to

mold. Dr. Abraham has modified the method a bit compared to Iowa.

This is probably why Dr. Ponseti requested reports from Dr. Abraham

so that he could see how the modifications are working for his

patients. It sounds like you've had wonderful results under his

care. That is fantastic news! We're happy to have you aboard!

We didn't have any problems with fitting in her carseat with

her brace on. Some parents have had to roll up a blanket or towel to

place under the legs so that the bar/shoes don't catch on the edge of

the carrier. I'm not exactly sure what Brooklyn's brace will consist

of- guess you'll have to let us know when you get them and if you

have any problems, we'll have a brainstorming session to help you out!

To the poster who asked what an AFO is- it's an ankle-foot-orthotic,

usually a plastic piece that is made from a mold of the child's foot

and is held on with velcro straps. (We had a few different types of

these before we went to Dr. Ponseti)

Please keep us posted on Brooklyn's progress!

By the way- we live near Champaign- so I would guess that we're not

too far from you!

Regards,

& (3-16-00)

left clubfoot, switched to Ponseti Method at 4 months old

>

> Hi,

>

> I was so happy to find this group on the internet. I only wish our

computer had been fixed sooner so I could have been involved from the

beginning of our daughters problems.

>

> Our daughter Brooklyn was born on 3/21/02 with severe bilateral

clubfeet. When she was a week old she was put in small plaster casts

that went from below her knee over her feet. These casts were

changed weekly. After the 5th week of casts the doctor said her feet

were not moving and they were worse than he originally thought. He

referred us to Dr. Abraham a pediatric orthopaedic specialist and the

head of the orthopaedic department at the University of Illinois

Medical Center in Chicago. We live a bout 2 hours west of Chicago.

Our orthopaedic doctor did his residency under Dr. Abraham and he

said he used the Ponsetti method and got excellent results with

clubfeet.

>

> When Brooklyn was 7 weeks old we had our first appointment with Dr.

Abraham and he told us she had severe bilateral clubfeet and he

thought he could fix them in 2 or 3 castings with the Ponsetti

technique and then do a tenotomy. So Brooklyn got her first set of

casts, only they were done with fiberglass instead of plaster. Dr.

Abraham said he preferred fiberglass because he could mold it to the

foot when it was wet and it held the foot better than plaster plus it

was lighter than plaster.

>

> Brooklyn went back a week later to get her casts changed and we

couldn't believe it but her feet were already straight. (Thank God

for Dr. Ponsettis technique). Brooklyn had another set of casts on

for a week and then had a tenotomy wich she handled very well. She

was in casts for 3 weeks. We went for another cast change and Dr.

Abraham decided to put her in casts for another 2 weeks with her feet

at 70% rotation. At the last cast change she was then measured for

her braces. They will be ready on July 23. We are so excited. I

can't wait to see her beautiful feet again.

>

> When we saw the brace specialist I asked him whether they used the

DBB or the AFO. He said that Dr. Abraham had actually created a new

brace that was a combination of both. He uses the AFO with a bar

attached to the bottom. Apparently so many parents were having

problems with keeping the DBB on that he decided to create something

that worked better. The brace specialist told us that Dr. Ponsetti

saw Dr. Abrahams work and was so impressed with it that he asked for

a report from him. I guess he liked the braces. If anyone would

like I could take a digital picture of the braces when she gets them

and send them to you by email. I am very curious as to what they

look like. Which leads to my big question. I need hints and help

for both the bar and the AFO. Can anyone help? Will Brooklyn fit in

her carrier car seat with the AFO and bar? Has anyone had a problem

with this. Any advice for making her comfortable for the long ride

home and sleeping in her bed? Any advice would be greatly

appreciated.

>

> Thank you so much.

>

> & (mom & dad to daughters Sidney 3 yrs. and Brooklyn

(bilateral clubfeet) 3 1/2 months

>

>

>

>

>

> ---------------------------------

>

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Share on other sites

Guest guest

,

Welcome to our group. I grew up in the Chicago suburbs and lived in

Naperville until 1989 when we moved to Las Vegas. To date there have

been about 200 or more parents on the internet that we know of who

have gone to a Ponseti method doctor. Until recently, almost anyone

in the Chicago area that we knew about needed to go to Iowa if they

wanted to have the Ponseti method. So far, there have only been a

few internet parents from Chicago. We are glad that your doctor is

beginning to use at least a slighly modified form of the Ponseti

method but until now we have not had other parents here who went to

him.

I hope that you don't mind that I share some information with you

regarding our combined internet experience with doctors who sometimes

modify the Ponseti method. I don't want to overly concern you, but I

do want you to be aware of some of the issues that we discuss here

over the past few years.

From watching what parents have said on the internet over the past 3

years, it seems like new doctors to the method sometimes modify parts

of the Ponseti method. Sometimes those things that are modified seem

to make it a bit more difficult for the children to adapt to the

FAB/DBB. Then instead of thinking that what they may have modified

is making the FAB/DBB harder to use, they may instead want to modify

the use of the FAB/DBB.

My opinion of what some doctors seem to do a bit when they are first

learning the method is to not push the feet out to the full 70

degrees of external rotation that is a part of the final tenotomy

cast. I think that just as it is hard as parents to see the feet

turned out that far, that some new doctors to the method fell like

maybe they don't really need to abduct the feet out that far for

their patients. Then when the children need to go into a FAB/DBB

that is supposed to be set at 70 degrees of external rotation, that

the adjustment to the FAB/DBB is harder. But the reason it is harder

is that the doctor didn't do the final casts properly the way the

method was designed. I am wondering if your doctor is now beginning

to realize this as to why he added a 2nd post tenotomy cast at 70

degrees when his first post tenotomy cast was not set out that far.

A web site that shows the typical 5 casts of the Ponseti method can

be seen at http://hometown.aol.com/vc11/week1.htm

If your doctor has only externally rotated the feet out less than 70

degrees for prior patients, then he has probably had more problems

with the children getting used to the FAB/DBB and has been proposing

a modified AFO as a " solution " . It is possible that a modified AFO

that is attached with bars at the bottom will help and perhpas work

well, but it is also possible that it is just being tried without

long term outcomes being seen for other patients and is somewhat of

an experiment (at least in the long term).

The U of Iowa had tried about 10-15 years ago to see if regular AFO's

would work with the Ponseti method and decided that the FAB/DBB's had

worked better in the long term and so went back to them.

A prior message relating to the idea of being aware that some doctors

were modifying the method had been posted at

http://groups.yahoo.com/group/nosurgery4clubfoot/message/10949

Again, we are glad to welcome you, but felt that you should be at

least aware of the modifications issues.

and (3-17-99)

http://www.vh.org/Patients/IHB/Ortho/Peds/Clubfeet/Egbert.html

>

> Hi,

>

> I was so happy to find this group on the internet. I only wish our

computer had been fixed sooner so I could have been involved from the

beginning of our daughters problems.

>

> Our daughter Brooklyn was born on 3/21/02 with severe bilateral

clubfeet. When she was a week old she was put in small plaster casts

that went from below her knee over her feet. These casts were

changed weekly. After the 5th week of casts the doctor said her feet

were not moving and they were worse than he originally thought. He

referred us to Dr. Abraham a pediatric orthopaedic specialist and the

head of the orthopaedic department at the University of Illinois

Medical Center in Chicago. We live a bout 2 hours west of Chicago.

Our orthopaedic doctor did his residency under Dr. Abraham and he

said he used the Ponsetti method and got excellent results with

clubfeet.

>

> When Brooklyn was 7 weeks old we had our first appointment with Dr.

Abraham and he told us she had severe bilateral clubfeet and he

thought he could fix them in 2 or 3 castings with the Ponsetti

technique and then do a tenotomy. So Brooklyn got her first set of

casts, only they were done with fiberglass instead of plaster. Dr.

Abraham said he preferred fiberglass because he could mold it to the

foot when it was wet and it held the foot better than plaster plus it

was lighter than plaster.

>

> Brooklyn went back a week later to get her casts changed and we

couldn't believe it but her feet were already straight. (Thank God

for Dr. Ponsettis technique). Brooklyn had another set of casts on

for a week and then had a tenotomy wich she handled very well. She

was in casts for 3 weeks. We went for another cast change and Dr.

Abraham decided to put her in casts for another 2 weeks with her feet

at 70% rotation. At the last cast change she was then measured for

her braces. They will be ready on July 23. We are so excited. I

can't wait to see her beautiful feet again.

>

> When we saw the brace specialist I asked him whether they used the

DBB or the AFO. He said that Dr. Abraham had actually created a new

brace that was a combination of both. He uses the AFO with a bar

attached to the bottom. Apparently so many parents were having

problems with keeping the DBB on that he decided to create something

that worked better. The brace specialist told us that Dr. Ponsetti

saw Dr. Abrahams work and was so impressed with it that he asked for

a report from him. I guess he liked the braces. If anyone would

like I could take a digital picture of the braces when she gets them

and send them to you by email. I am very curious as to what they

look like. Which leads to my big question. I need hints and help

for both the bar and the AFO. Can anyone help? Will Brooklyn fit in

her carrier car seat with the AFO and bar? Has anyone had a problem

with this. Any advice for making her comfortable for the long ride

home and sleeping in her bed? Any advice would be greatly

appreciated.

>

> Thank you so much.

>

> & (mom & dad to daughters Sidney 3 yrs. and Brooklyn

(bilateral clubfeet) 3 1/2 months

>

>

>

>

>

> ---------------------------------

>

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Share on other sites

Guest guest

,

Welcome to our group. I grew up in the Chicago suburbs and lived in

Naperville until 1989 when we moved to Las Vegas. To date there have

been about 200 or more parents on the internet that we know of who

have gone to a Ponseti method doctor. Until recently, almost anyone

in the Chicago area that we knew about needed to go to Iowa if they

wanted to have the Ponseti method. So far, there have only been a

few internet parents from Chicago. We are glad that your doctor is

beginning to use at least a slighly modified form of the Ponseti

method but until now we have not had other parents here who went to

him.

I hope that you don't mind that I share some information with you

regarding our combined internet experience with doctors who sometimes

modify the Ponseti method. I don't want to overly concern you, but I

do want you to be aware of some of the issues that we discuss here

over the past few years.

From watching what parents have said on the internet over the past 3

years, it seems like new doctors to the method sometimes modify parts

of the Ponseti method. Sometimes those things that are modified seem

to make it a bit more difficult for the children to adapt to the

FAB/DBB. Then instead of thinking that what they may have modified

is making the FAB/DBB harder to use, they may instead want to modify

the use of the FAB/DBB.

My opinion of what some doctors seem to do a bit when they are first

learning the method is to not push the feet out to the full 70

degrees of external rotation that is a part of the final tenotomy

cast. I think that just as it is hard as parents to see the feet

turned out that far, that some new doctors to the method fell like

maybe they don't really need to abduct the feet out that far for

their patients. Then when the children need to go into a FAB/DBB

that is supposed to be set at 70 degrees of external rotation, that

the adjustment to the FAB/DBB is harder. But the reason it is harder

is that the doctor didn't do the final casts properly the way the

method was designed. I am wondering if your doctor is now beginning

to realize this as to why he added a 2nd post tenotomy cast at 70

degrees when his first post tenotomy cast was not set out that far.

A web site that shows the typical 5 casts of the Ponseti method can

be seen at http://hometown.aol.com/vc11/week1.htm

If your doctor has only externally rotated the feet out less than 70

degrees for prior patients, then he has probably had more problems

with the children getting used to the FAB/DBB and has been proposing

a modified AFO as a " solution " . It is possible that a modified AFO

that is attached with bars at the bottom will help and perhpas work

well, but it is also possible that it is just being tried without

long term outcomes being seen for other patients and is somewhat of

an experiment (at least in the long term).

The U of Iowa had tried about 10-15 years ago to see if regular AFO's

would work with the Ponseti method and decided that the FAB/DBB's had

worked better in the long term and so went back to them.

A prior message relating to the idea of being aware that some doctors

were modifying the method had been posted at

http://groups.yahoo.com/group/nosurgery4clubfoot/message/10949

Again, we are glad to welcome you, but felt that you should be at

least aware of the modifications issues.

and (3-17-99)

http://www.vh.org/Patients/IHB/Ortho/Peds/Clubfeet/Egbert.html

>

> Hi,

>

> I was so happy to find this group on the internet. I only wish our

computer had been fixed sooner so I could have been involved from the

beginning of our daughters problems.

>

> Our daughter Brooklyn was born on 3/21/02 with severe bilateral

clubfeet. When she was a week old she was put in small plaster casts

that went from below her knee over her feet. These casts were

changed weekly. After the 5th week of casts the doctor said her feet

were not moving and they were worse than he originally thought. He

referred us to Dr. Abraham a pediatric orthopaedic specialist and the

head of the orthopaedic department at the University of Illinois

Medical Center in Chicago. We live a bout 2 hours west of Chicago.

Our orthopaedic doctor did his residency under Dr. Abraham and he

said he used the Ponsetti method and got excellent results with

clubfeet.

>

> When Brooklyn was 7 weeks old we had our first appointment with Dr.

Abraham and he told us she had severe bilateral clubfeet and he

thought he could fix them in 2 or 3 castings with the Ponsetti

technique and then do a tenotomy. So Brooklyn got her first set of

casts, only they were done with fiberglass instead of plaster. Dr.

Abraham said he preferred fiberglass because he could mold it to the

foot when it was wet and it held the foot better than plaster plus it

was lighter than plaster.

>

> Brooklyn went back a week later to get her casts changed and we

couldn't believe it but her feet were already straight. (Thank God

for Dr. Ponsettis technique). Brooklyn had another set of casts on

for a week and then had a tenotomy wich she handled very well. She

was in casts for 3 weeks. We went for another cast change and Dr.

Abraham decided to put her in casts for another 2 weeks with her feet

at 70% rotation. At the last cast change she was then measured for

her braces. They will be ready on July 23. We are so excited. I

can't wait to see her beautiful feet again.

>

> When we saw the brace specialist I asked him whether they used the

DBB or the AFO. He said that Dr. Abraham had actually created a new

brace that was a combination of both. He uses the AFO with a bar

attached to the bottom. Apparently so many parents were having

problems with keeping the DBB on that he decided to create something

that worked better. The brace specialist told us that Dr. Ponsetti

saw Dr. Abrahams work and was so impressed with it that he asked for

a report from him. I guess he liked the braces. If anyone would

like I could take a digital picture of the braces when she gets them

and send them to you by email. I am very curious as to what they

look like. Which leads to my big question. I need hints and help

for both the bar and the AFO. Can anyone help? Will Brooklyn fit in

her carrier car seat with the AFO and bar? Has anyone had a problem

with this. Any advice for making her comfortable for the long ride

home and sleeping in her bed? Any advice would be greatly

appreciated.

>

> Thank you so much.

>

> & (mom & dad to daughters Sidney 3 yrs. and Brooklyn

(bilateral clubfeet) 3 1/2 months

>

>

>

>

>

> ---------------------------------

>

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Guest guest

Hi Rita,

Thankyou for the welcome and the response. I will send a picture of the braces

when we get them. Goodluck at your appointment tomorrow and have a safe trip.

Talk to you soon.

ritadeane wrote:

>

> Hi,

>

> I was so happy to find this group on the internet. I only wish our computer

had been fixed sooner so I could have been involved from the beginning of our

daughters problems.

>

> Our daughter Brooklyn was born on 3/21/02 with severe bilateral clubfeet.

When she was a week old she was put in small plaster casts that went from below

her knee over her feet. These casts were changed weekly. After the 5th week of

casts the doctor said her feet were not moving and they were worse than he

originally thought. He referred us to Dr. Abraham a pediatric orthopaedic

specialist and the head of the orthopaedic department at the University of

Illinois Medical Center in Chicago. We live a bout 2 hours west of Chicago. Our

orthopaedic doctor did his residency under Dr. Abraham and he said he used the

Ponsetti method and got excellent results with clubfeet.

>

> When Brooklyn was 7 weeks old we had our first appointment with Dr. Abraham

and he told us she had severe bilateral clubfeet and he thought he could fix

them in 2 or 3 castings with the Ponsetti technique and then do a tenotomy. So

Brooklyn got her first set of casts, only they were done with fiberglass instead

of plaster. Dr. Abraham said he preferred fiberglass because he could mold it

to the foot when it was wet and it held the foot better than plaster plus it was

lighter than plaster.

>

> Brooklyn went back a week later to get her casts changed and we couldn't

believe it but her feet were already straight. (Thank God for Dr. Ponsettis

technique). Brooklyn had another set of casts on for a week and then had a

tenotomy wich she handled very well. She was in casts for 3 weeks. We went for

another cast change and Dr. Abraham decided to put her in casts for another 2

weeks with her feet at 70% rotation. At the last cast change she was then

measured for her braces. They will be ready on July 23. We are so excited. I

can't wait to see her beautiful feet again.

>

> When we saw the brace specialist I asked him whether they used the DBB or the

AFO. He said that Dr. Abraham had actually created a new brace that was a

combination of both. He uses the AFO with a bar attached to the bottom.

Apparently so many parents were having problems with keeping the DBB on that he

decided to create something that worked better. The brace specialist told us

that Dr. Ponsetti saw Dr. Abrahams work and was so impressed with it that he

asked for a report from him. I guess he liked the braces. If anyone would

like I could take a digital picture of the braces when she gets them and send

them to you by email. I am very curious as to what they look like. Which leads

to my big question. I need hints and help for both the bar and the AFO. Can

anyone help? Will Brooklyn fit in her carrier car seat with the AFO and bar?

Has anyone had a problem with this. Any advice for making her comfortable for

the long ride home and sleeping in her bed? Any advice would be greatly

appreciated.

>

> Thank you so much.

>

> & (mom & dad to daughters Sidney 3 yrs. and Brooklyn (bilateral

clubfeet) 3 1/2 months

>

>

Hello !

Welcome to the group! I just found this site a week ago myself, and was SO

happy to discover it -- it is wonderful to have access to the wealth of

information and experience of all of the others out there who are going (or have

gone) throug the same thing that you are.

Our son Gavin was born on April 12th, 2002 with severe unilateral (left) club

foot. We were lucky to be referred prenatally (we knew about the club foot from

the ultrasound) to Dr. Alvarez at B.C. Children's Hospital in

Vancouver. She uses the Ponsetti method, with a few minor alterations to the

treatment. After hearing about and speaking to a bunch of other club foot

patients, who have switched to the Ponsetti method after trying others, I feel

more and more fortunate that we started out with this treatment. We live far

away (about 12 hrs driving) from Vancouver, so I have been flying back and forth

to Vancouver weekly since Gavin was 4 days old. He is now finished with his

casts (8 in total - he had a very stiff foot to start with) and has been in the

DBB for 3 weeks now. Our trips should be down to once a month now, and we are

headed back tomorrow to see how the DBB is working out. The first couple of

weeks in it were pretty rough, but things are going better now.

I find that once it was fitted correctly (we started out with a bar that was

much too short) Gavin doesn't seem to mind the bar much anymore, but often he

seems more comfortable (especially when sleeping) if I put a pillow under his

legs and bar. No problems in the carrier. Good luck with yours! I would LOVE

to hear about (and see pictures of) different forms of bars and braces -- what

is an AFO?

Rita and Ian, with baby Gavin, 3 months old, and big sister andra, 3 yrs old

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Guest guest

Hi Rita,

Thankyou for the welcome and the response. I will send a picture of the braces

when we get them. Goodluck at your appointment tomorrow and have a safe trip.

Talk to you soon.

ritadeane wrote:

>

> Hi,

>

> I was so happy to find this group on the internet. I only wish our computer

had been fixed sooner so I could have been involved from the beginning of our

daughters problems.

>

> Our daughter Brooklyn was born on 3/21/02 with severe bilateral clubfeet.

When she was a week old she was put in small plaster casts that went from below

her knee over her feet. These casts were changed weekly. After the 5th week of

casts the doctor said her feet were not moving and they were worse than he

originally thought. He referred us to Dr. Abraham a pediatric orthopaedic

specialist and the head of the orthopaedic department at the University of

Illinois Medical Center in Chicago. We live a bout 2 hours west of Chicago. Our

orthopaedic doctor did his residency under Dr. Abraham and he said he used the

Ponsetti method and got excellent results with clubfeet.

>

> When Brooklyn was 7 weeks old we had our first appointment with Dr. Abraham

and he told us she had severe bilateral clubfeet and he thought he could fix

them in 2 or 3 castings with the Ponsetti technique and then do a tenotomy. So

Brooklyn got her first set of casts, only they were done with fiberglass instead

of plaster. Dr. Abraham said he preferred fiberglass because he could mold it

to the foot when it was wet and it held the foot better than plaster plus it was

lighter than plaster.

>

> Brooklyn went back a week later to get her casts changed and we couldn't

believe it but her feet were already straight. (Thank God for Dr. Ponsettis

technique). Brooklyn had another set of casts on for a week and then had a

tenotomy wich she handled very well. She was in casts for 3 weeks. We went for

another cast change and Dr. Abraham decided to put her in casts for another 2

weeks with her feet at 70% rotation. At the last cast change she was then

measured for her braces. They will be ready on July 23. We are so excited. I

can't wait to see her beautiful feet again.

>

> When we saw the brace specialist I asked him whether they used the DBB or the

AFO. He said that Dr. Abraham had actually created a new brace that was a

combination of both. He uses the AFO with a bar attached to the bottom.

Apparently so many parents were having problems with keeping the DBB on that he

decided to create something that worked better. The brace specialist told us

that Dr. Ponsetti saw Dr. Abrahams work and was so impressed with it that he

asked for a report from him. I guess he liked the braces. If anyone would

like I could take a digital picture of the braces when she gets them and send

them to you by email. I am very curious as to what they look like. Which leads

to my big question. I need hints and help for both the bar and the AFO. Can

anyone help? Will Brooklyn fit in her carrier car seat with the AFO and bar?

Has anyone had a problem with this. Any advice for making her comfortable for

the long ride home and sleeping in her bed? Any advice would be greatly

appreciated.

>

> Thank you so much.

>

> & (mom & dad to daughters Sidney 3 yrs. and Brooklyn (bilateral

clubfeet) 3 1/2 months

>

>

Hello !

Welcome to the group! I just found this site a week ago myself, and was SO

happy to discover it -- it is wonderful to have access to the wealth of

information and experience of all of the others out there who are going (or have

gone) throug the same thing that you are.

Our son Gavin was born on April 12th, 2002 with severe unilateral (left) club

foot. We were lucky to be referred prenatally (we knew about the club foot from

the ultrasound) to Dr. Alvarez at B.C. Children's Hospital in

Vancouver. She uses the Ponsetti method, with a few minor alterations to the

treatment. After hearing about and speaking to a bunch of other club foot

patients, who have switched to the Ponsetti method after trying others, I feel

more and more fortunate that we started out with this treatment. We live far

away (about 12 hrs driving) from Vancouver, so I have been flying back and forth

to Vancouver weekly since Gavin was 4 days old. He is now finished with his

casts (8 in total - he had a very stiff foot to start with) and has been in the

DBB for 3 weeks now. Our trips should be down to once a month now, and we are

headed back tomorrow to see how the DBB is working out. The first couple of

weeks in it were pretty rough, but things are going better now.

I find that once it was fitted correctly (we started out with a bar that was

much too short) Gavin doesn't seem to mind the bar much anymore, but often he

seems more comfortable (especially when sleeping) if I put a pillow under his

legs and bar. No problems in the carrier. Good luck with yours! I would LOVE

to hear about (and see pictures of) different forms of bars and braces -- what

is an AFO?

Rita and Ian, with baby Gavin, 3 months old, and big sister andra, 3 yrs old

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Guest guest

Hi Shanon and Brooklyn and welcome to this group.

I don't post very often but I do religiously read the messages in

this board, there are always many good advices for us clubfoot-babies

parents.

I'm another Chicagoland area parent. Our son, who is now 21 months

old, was born with unilateral clubfoot (right foot). He was born in

Urbana-Champaign so we started treating his foot there. Like your

daughter, he went from under the knees casts to over his foot casts

and after about 4 casts we moved to South Elgin, IL, so started

taking him to a Pediatric Orthopedic in the Chicagoland area.

This Dr. put our son in about 4 more casts and tried the AFO for a

couple of weeks; however, after a few months he wasn't really happy

about the results, so scheduled our son for surgery when the baby

would had turned 7 months (he was 6 months at that point). As many

parents in this board, once we faced the fact of having surgery done

we started looking around and that's when we found out about Dr.

Ponseti (thanks God!!!).

At that time we did not know about any Dr. doing the Ponseti's method

in this area and since Iowa was just 3 hours driving away, we just

took our son there; due to my baby's age we did not have time to

waste.

Dr. Ponseti put two more casts, then did a tenotomy, then another

cast for 3 more weeks and my son has been wearing the DBB since then

(for over a year now). We just went to Iowa about 10 days ago, got to

see Dr. Ponseti and thanks God again my son is doing great. He should

wear the DBB from12-14 hours a day, which is not a problem for us at

all. If that is all what it takes to keep his foot from relapsing, we

would gladly do it.

Now I'm pregnant with my second child (24 weeks) and I'm just

crossing my fingers (in our case is a genetic cause as my husband's

brother was born with severe bilateral clubfeet), but if we happen to

have another baby with clubfoot I think we are all prepared this time

around.

I'm glad you found out about Dr. Ponseti's method and that your

daughter is progressing so well. It is also good to know that there

is Dr. doing Ponseti's around this area. Like the other parents, I

would be VERY curious to see the AFO/DBB combination brace.

I'm sorry I can't be of much help regarding AFO/DBB issues as with

our son it was a breeze, he never had any problems keeping the DBB

on, he slept well with it on from the very first night (thanks God

one more time), for us (and him) adjusting to the DBB was not a big

deal at all, but I'm sure you will get all you need to know from the

other experienced parents.

I assume we live very close as we are 1 hour west of Chicago. Where

exactly do you live?

Bets of luck to you and your daughter and please keep us posted.!!

Andreina (mom to Simon Andres unilateral clubfoot 10/04/2000)

>

> Hi,

>

> I was so happy to find this group on the internet. I only wish our

computer had been fixed sooner so I could have been involved from the

beginning of our daughters problems.

>

> Our daughter Brooklyn was born on 3/21/02 with severe bilateral

clubfeet. When she was a week old she was put in small plaster casts

that went from below her knee over her feet. These casts were

changed weekly. After the 5th week of casts the doctor said her feet

were not moving and they were worse than he originally thought. He

referred us to Dr. Abraham a pediatric orthopaedic specialist and the

head of the orthopaedic department at the University of Illinois

Medical Center in Chicago. We live a bout 2 hours west of Chicago.

Our orthopaedic doctor did his residency under Dr. Abraham and he

said he used the Ponsetti method and got excellent results with

clubfeet.

>

> When Brooklyn was 7 weeks old we had our first appointment with Dr.

Abraham and he told us she had severe bilateral clubfeet and he

thought he could fix them in 2 or 3 castings with the Ponsetti

technique and then do a tenotomy. So Brooklyn got her first set of

casts, only they were done with fiberglass instead of plaster. Dr.

Abraham said he preferred fiberglass because he could mold it to the

foot when it was wet and it held the foot better than plaster plus it

was lighter than plaster.

>

> Brooklyn went back a week later to get her casts changed and we

couldn't believe it but her feet were already straight. (Thank God

for Dr. Ponsettis technique). Brooklyn had another set of casts on

for a week and then had a tenotomy wich she handled very well. She

was in casts for 3 weeks. We went for another cast change and Dr.

Abraham decided to put her in casts for another 2 weeks with her feet

at 70% rotation. At the last cast change she was then measured for

her braces. They will be ready on July 23. We are so excited. I

can't wait to see her beautiful feet again.

>

> When we saw the brace specialist I asked him whether they used the

DBB or the AFO. He said that Dr. Abraham had actually created a new

brace that was a combination of both. He uses the AFO with a bar

attached to the bottom. Apparently so many parents were having

problems with keeping the DBB on that he decided to create something

that worked better. The brace specialist told us that Dr. Ponsetti

saw Dr. Abrahams work and was so impressed with it that he asked for

a report from him. I guess he liked the braces. If anyone would

like I could take a digital picture of the braces when she gets them

and send them to you by email. I am very curious as to what they

look like. Which leads to my big question. I need hints and help

for both the bar and the AFO. Can anyone help? Will Brooklyn fit in

her carrier car seat with the AFO and bar? Has anyone had a problem

with this. Any advice for making her comfortable for the long ride

home and sleeping in her bed? Any advice would be greatly

appreciated.

>

> Thank you so much.

>

> & (mom & dad to daughters Sidney 3 yrs. and Brooklyn

(bilateral clubfeet) 3 1/2 months

>

>

>

>

>

> ---------------------------------

>

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Share on other sites

Guest guest

Hi Shanon and Brooklyn and welcome to this group.

I don't post very often but I do religiously read the messages in

this board, there are always many good advices for us clubfoot-babies

parents.

I'm another Chicagoland area parent. Our son, who is now 21 months

old, was born with unilateral clubfoot (right foot). He was born in

Urbana-Champaign so we started treating his foot there. Like your

daughter, he went from under the knees casts to over his foot casts

and after about 4 casts we moved to South Elgin, IL, so started

taking him to a Pediatric Orthopedic in the Chicagoland area.

This Dr. put our son in about 4 more casts and tried the AFO for a

couple of weeks; however, after a few months he wasn't really happy

about the results, so scheduled our son for surgery when the baby

would had turned 7 months (he was 6 months at that point). As many

parents in this board, once we faced the fact of having surgery done

we started looking around and that's when we found out about Dr.

Ponseti (thanks God!!!).

At that time we did not know about any Dr. doing the Ponseti's method

in this area and since Iowa was just 3 hours driving away, we just

took our son there; due to my baby's age we did not have time to

waste.

Dr. Ponseti put two more casts, then did a tenotomy, then another

cast for 3 more weeks and my son has been wearing the DBB since then

(for over a year now). We just went to Iowa about 10 days ago, got to

see Dr. Ponseti and thanks God again my son is doing great. He should

wear the DBB from12-14 hours a day, which is not a problem for us at

all. If that is all what it takes to keep his foot from relapsing, we

would gladly do it.

Now I'm pregnant with my second child (24 weeks) and I'm just

crossing my fingers (in our case is a genetic cause as my husband's

brother was born with severe bilateral clubfeet), but if we happen to

have another baby with clubfoot I think we are all prepared this time

around.

I'm glad you found out about Dr. Ponseti's method and that your

daughter is progressing so well. It is also good to know that there

is Dr. doing Ponseti's around this area. Like the other parents, I

would be VERY curious to see the AFO/DBB combination brace.

I'm sorry I can't be of much help regarding AFO/DBB issues as with

our son it was a breeze, he never had any problems keeping the DBB

on, he slept well with it on from the very first night (thanks God

one more time), for us (and him) adjusting to the DBB was not a big

deal at all, but I'm sure you will get all you need to know from the

other experienced parents.

I assume we live very close as we are 1 hour west of Chicago. Where

exactly do you live?

Bets of luck to you and your daughter and please keep us posted.!!

Andreina (mom to Simon Andres unilateral clubfoot 10/04/2000)

>

> Hi,

>

> I was so happy to find this group on the internet. I only wish our

computer had been fixed sooner so I could have been involved from the

beginning of our daughters problems.

>

> Our daughter Brooklyn was born on 3/21/02 with severe bilateral

clubfeet. When she was a week old she was put in small plaster casts

that went from below her knee over her feet. These casts were

changed weekly. After the 5th week of casts the doctor said her feet

were not moving and they were worse than he originally thought. He

referred us to Dr. Abraham a pediatric orthopaedic specialist and the

head of the orthopaedic department at the University of Illinois

Medical Center in Chicago. We live a bout 2 hours west of Chicago.

Our orthopaedic doctor did his residency under Dr. Abraham and he

said he used the Ponsetti method and got excellent results with

clubfeet.

>

> When Brooklyn was 7 weeks old we had our first appointment with Dr.

Abraham and he told us she had severe bilateral clubfeet and he

thought he could fix them in 2 or 3 castings with the Ponsetti

technique and then do a tenotomy. So Brooklyn got her first set of

casts, only they were done with fiberglass instead of plaster. Dr.

Abraham said he preferred fiberglass because he could mold it to the

foot when it was wet and it held the foot better than plaster plus it

was lighter than plaster.

>

> Brooklyn went back a week later to get her casts changed and we

couldn't believe it but her feet were already straight. (Thank God

for Dr. Ponsettis technique). Brooklyn had another set of casts on

for a week and then had a tenotomy wich she handled very well. She

was in casts for 3 weeks. We went for another cast change and Dr.

Abraham decided to put her in casts for another 2 weeks with her feet

at 70% rotation. At the last cast change she was then measured for

her braces. They will be ready on July 23. We are so excited. I

can't wait to see her beautiful feet again.

>

> When we saw the brace specialist I asked him whether they used the

DBB or the AFO. He said that Dr. Abraham had actually created a new

brace that was a combination of both. He uses the AFO with a bar

attached to the bottom. Apparently so many parents were having

problems with keeping the DBB on that he decided to create something

that worked better. The brace specialist told us that Dr. Ponsetti

saw Dr. Abrahams work and was so impressed with it that he asked for

a report from him. I guess he liked the braces. If anyone would

like I could take a digital picture of the braces when she gets them

and send them to you by email. I am very curious as to what they

look like. Which leads to my big question. I need hints and help

for both the bar and the AFO. Can anyone help? Will Brooklyn fit in

her carrier car seat with the AFO and bar? Has anyone had a problem

with this. Any advice for making her comfortable for the long ride

home and sleeping in her bed? Any advice would be greatly

appreciated.

>

> Thank you so much.

>

> & (mom & dad to daughters Sidney 3 yrs. and Brooklyn

(bilateral clubfeet) 3 1/2 months

>

>

>

>

>

> ---------------------------------

>

Link to comment
Share on other sites

Guest guest

Hi Shanon and Brooklyn and welcome to this group.

I don't post very often but I do religiously read the messages in

this board, there are always many good advices for us clubfoot-babies

parents.

I'm another Chicagoland area parent. Our son, who is now 21 months

old, was born with unilateral clubfoot (right foot). He was born in

Urbana-Champaign so we started treating his foot there. Like your

daughter, he went from under the knees casts to over his foot casts

and after about 4 casts we moved to South Elgin, IL, so started

taking him to a Pediatric Orthopedic in the Chicagoland area.

This Dr. put our son in about 4 more casts and tried the AFO for a

couple of weeks; however, after a few months he wasn't really happy

about the results, so scheduled our son for surgery when the baby

would had turned 7 months (he was 6 months at that point). As many

parents in this board, once we faced the fact of having surgery done

we started looking around and that's when we found out about Dr.

Ponseti (thanks God!!!).

At that time we did not know about any Dr. doing the Ponseti's method

in this area and since Iowa was just 3 hours driving away, we just

took our son there; due to my baby's age we did not have time to

waste.

Dr. Ponseti put two more casts, then did a tenotomy, then another

cast for 3 more weeks and my son has been wearing the DBB since then

(for over a year now). We just went to Iowa about 10 days ago, got to

see Dr. Ponseti and thanks God again my son is doing great. He should

wear the DBB from12-14 hours a day, which is not a problem for us at

all. If that is all what it takes to keep his foot from relapsing, we

would gladly do it.

Now I'm pregnant with my second child (24 weeks) and I'm just

crossing my fingers (in our case is a genetic cause as my husband's

brother was born with severe bilateral clubfeet), but if we happen to

have another baby with clubfoot I think we are all prepared this time

around.

I'm glad you found out about Dr. Ponseti's method and that your

daughter is progressing so well. It is also good to know that there

is Dr. doing Ponseti's around this area. Like the other parents, I

would be VERY curious to see the AFO/DBB combination brace.

I'm sorry I can't be of much help regarding AFO/DBB issues as with

our son it was a breeze, he never had any problems keeping the DBB

on, he slept well with it on from the very first night (thanks God

one more time), for us (and him) adjusting to the DBB was not a big

deal at all, but I'm sure you will get all you need to know from the

other experienced parents.

I assume we live very close as we are 1 hour west of Chicago. Where

exactly do you live?

Bets of luck to you and your daughter and please keep us posted.!!

Andreina (mom to Simon Andres unilateral clubfoot 10/04/2000)

>

> Hi,

>

> I was so happy to find this group on the internet. I only wish our

computer had been fixed sooner so I could have been involved from the

beginning of our daughters problems.

>

> Our daughter Brooklyn was born on 3/21/02 with severe bilateral

clubfeet. When she was a week old she was put in small plaster casts

that went from below her knee over her feet. These casts were

changed weekly. After the 5th week of casts the doctor said her feet

were not moving and they were worse than he originally thought. He

referred us to Dr. Abraham a pediatric orthopaedic specialist and the

head of the orthopaedic department at the University of Illinois

Medical Center in Chicago. We live a bout 2 hours west of Chicago.

Our orthopaedic doctor did his residency under Dr. Abraham and he

said he used the Ponsetti method and got excellent results with

clubfeet.

>

> When Brooklyn was 7 weeks old we had our first appointment with Dr.

Abraham and he told us she had severe bilateral clubfeet and he

thought he could fix them in 2 or 3 castings with the Ponsetti

technique and then do a tenotomy. So Brooklyn got her first set of

casts, only they were done with fiberglass instead of plaster. Dr.

Abraham said he preferred fiberglass because he could mold it to the

foot when it was wet and it held the foot better than plaster plus it

was lighter than plaster.

>

> Brooklyn went back a week later to get her casts changed and we

couldn't believe it but her feet were already straight. (Thank God

for Dr. Ponsettis technique). Brooklyn had another set of casts on

for a week and then had a tenotomy wich she handled very well. She

was in casts for 3 weeks. We went for another cast change and Dr.

Abraham decided to put her in casts for another 2 weeks with her feet

at 70% rotation. At the last cast change she was then measured for

her braces. They will be ready on July 23. We are so excited. I

can't wait to see her beautiful feet again.

>

> When we saw the brace specialist I asked him whether they used the

DBB or the AFO. He said that Dr. Abraham had actually created a new

brace that was a combination of both. He uses the AFO with a bar

attached to the bottom. Apparently so many parents were having

problems with keeping the DBB on that he decided to create something

that worked better. The brace specialist told us that Dr. Ponsetti

saw Dr. Abrahams work and was so impressed with it that he asked for

a report from him. I guess he liked the braces. If anyone would

like I could take a digital picture of the braces when she gets them

and send them to you by email. I am very curious as to what they

look like. Which leads to my big question. I need hints and help

for both the bar and the AFO. Can anyone help? Will Brooklyn fit in

her carrier car seat with the AFO and bar? Has anyone had a problem

with this. Any advice for making her comfortable for the long ride

home and sleeping in her bed? Any advice would be greatly

appreciated.

>

> Thank you so much.

>

> & (mom & dad to daughters Sidney 3 yrs. and Brooklyn

(bilateral clubfeet) 3 1/2 months

>

>

>

>

>

> ---------------------------------

>

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Share on other sites

  • 2 weeks later...
Guest guest

Andreina:

Hola como estas? soy Karin de Peru la mama de Max acabo de leer un mail tuyo

donde cuentas que estas esperando tu segundo bebe te felicito!! y otra vez

vamos a tener bebes casi de la misma edad por que yo tambien estoy

embarazada tengo 7 meses asi que mi fecha probable es en 26 de setiembre y

me voy a Miami en una semana asi que te felicito y como esta Simon Andres?

Re: new member

> Hi Shanon and Brooklyn and welcome to this group.

>

> I don't post very often but I do religiously read the messages in

> this board, there are always many good advices for us clubfoot-babies

> parents.

>

> I'm another Chicagoland area parent. Our son, who is now 21 months

> old, was born with unilateral clubfoot (right foot). He was born in

> Urbana-Champaign so we started treating his foot there. Like your

> daughter, he went from under the knees casts to over his foot casts

> and after about 4 casts we moved to South Elgin, IL, so started

> taking him to a Pediatric Orthopedic in the Chicagoland area.

>

> This Dr. put our son in about 4 more casts and tried the AFO for a

> couple of weeks; however, after a few months he wasn't really happy

> about the results, so scheduled our son for surgery when the baby

> would had turned 7 months (he was 6 months at that point). As many

> parents in this board, once we faced the fact of having surgery done

> we started looking around and that's when we found out about Dr.

> Ponseti (thanks God!!!).

>

> At that time we did not know about any Dr. doing the Ponseti's method

> in this area and since Iowa was just 3 hours driving away, we just

> took our son there; due to my baby's age we did not have time to

> waste.

>

> Dr. Ponseti put two more casts, then did a tenotomy, then another

> cast for 3 more weeks and my son has been wearing the DBB since then

> (for over a year now). We just went to Iowa about 10 days ago, got to

> see Dr. Ponseti and thanks God again my son is doing great. He should

> wear the DBB from12-14 hours a day, which is not a problem for us at

> all. If that is all what it takes to keep his foot from relapsing, we

> would gladly do it.

>

> Now I'm pregnant with my second child (24 weeks) and I'm just

> crossing my fingers (in our case is a genetic cause as my husband's

> brother was born with severe bilateral clubfeet), but if we happen to

> have another baby with clubfoot I think we are all prepared this time

> around.

>

> I'm glad you found out about Dr. Ponseti's method and that your

> daughter is progressing so well. It is also good to know that there

> is Dr. doing Ponseti's around this area. Like the other parents, I

> would be VERY curious to see the AFO/DBB combination brace.

>

> I'm sorry I can't be of much help regarding AFO/DBB issues as with

> our son it was a breeze, he never had any problems keeping the DBB

> on, he slept well with it on from the very first night (thanks God

> one more time), for us (and him) adjusting to the DBB was not a big

> deal at all, but I'm sure you will get all you need to know from the

> other experienced parents.

>

> I assume we live very close as we are 1 hour west of Chicago. Where

> exactly do you live?

>

> Bets of luck to you and your daughter and please keep us posted.!!

>

> Andreina (mom to Simon Andres unilateral clubfoot 10/04/2000)

>

> >

> > Hi,

> >

> > I was so happy to find this group on the internet. I only wish our

> computer had been fixed sooner so I could have been involved from the

> beginning of our daughters problems.

> >

> > Our daughter Brooklyn was born on 3/21/02 with severe bilateral

> clubfeet. When she was a week old she was put in small plaster casts

> that went from below her knee over her feet. These casts were

> changed weekly. After the 5th week of casts the doctor said her feet

> were not moving and they were worse than he originally thought. He

> referred us to Dr. Abraham a pediatric orthopaedic specialist and the

> head of the orthopaedic department at the University of Illinois

> Medical Center in Chicago. We live a bout 2 hours west of Chicago.

> Our orthopaedic doctor did his residency under Dr. Abraham and he

> said he used the Ponsetti method and got excellent results with

> clubfeet.

> >

> > When Brooklyn was 7 weeks old we had our first appointment with Dr.

> Abraham and he told us she had severe bilateral clubfeet and he

> thought he could fix them in 2 or 3 castings with the Ponsetti

> technique and then do a tenotomy. So Brooklyn got her first set of

> casts, only they were done with fiberglass instead of plaster. Dr.

> Abraham said he preferred fiberglass because he could mold it to the

> foot when it was wet and it held the foot better than plaster plus it

> was lighter than plaster.

> >

> > Brooklyn went back a week later to get her casts changed and we

> couldn't believe it but her feet were already straight. (Thank God

> for Dr. Ponsettis technique). Brooklyn had another set of casts on

> for a week and then had a tenotomy wich she handled very well. She

> was in casts for 3 weeks. We went for another cast change and Dr.

> Abraham decided to put her in casts for another 2 weeks with her feet

> at 70% rotation. At the last cast change she was then measured for

> her braces. They will be ready on July 23. We are so excited. I

> can't wait to see her beautiful feet again.

> >

> > When we saw the brace specialist I asked him whether they used the

> DBB or the AFO. He said that Dr. Abraham had actually created a new

> brace that was a combination of both. He uses the AFO with a bar

> attached to the bottom. Apparently so many parents were having

> problems with keeping the DBB on that he decided to create something

> that worked better. The brace specialist told us that Dr. Ponsetti

> saw Dr. Abrahams work and was so impressed with it that he asked for

> a report from him. I guess he liked the braces. If anyone would

> like I could take a digital picture of the braces when she gets them

> and send them to you by email. I am very curious as to what they

> look like. Which leads to my big question. I need hints and help

> for both the bar and the AFO. Can anyone help? Will Brooklyn fit in

> her carrier car seat with the AFO and bar? Has anyone had a problem

> with this. Any advice for making her comfortable for the long ride

> home and sleeping in her bed? Any advice would be greatly

> appreciated.

> >

> > Thank you so much.

> >

> > & (mom & dad to daughters Sidney 3 yrs. and Brooklyn

> (bilateral clubfeet) 3 1/2 months

> >

> >

> >

> >

> >

> > ---------------------------------

> >

Link to comment
Share on other sites

Guest guest

Andreina:

Hola como estas? soy Karin de Peru la mama de Max acabo de leer un mail tuyo

donde cuentas que estas esperando tu segundo bebe te felicito!! y otra vez

vamos a tener bebes casi de la misma edad por que yo tambien estoy

embarazada tengo 7 meses asi que mi fecha probable es en 26 de setiembre y

me voy a Miami en una semana asi que te felicito y como esta Simon Andres?

Re: new member

> Hi Shanon and Brooklyn and welcome to this group.

>

> I don't post very often but I do religiously read the messages in

> this board, there are always many good advices for us clubfoot-babies

> parents.

>

> I'm another Chicagoland area parent. Our son, who is now 21 months

> old, was born with unilateral clubfoot (right foot). He was born in

> Urbana-Champaign so we started treating his foot there. Like your

> daughter, he went from under the knees casts to over his foot casts

> and after about 4 casts we moved to South Elgin, IL, so started

> taking him to a Pediatric Orthopedic in the Chicagoland area.

>

> This Dr. put our son in about 4 more casts and tried the AFO for a

> couple of weeks; however, after a few months he wasn't really happy

> about the results, so scheduled our son for surgery when the baby

> would had turned 7 months (he was 6 months at that point). As many

> parents in this board, once we faced the fact of having surgery done

> we started looking around and that's when we found out about Dr.

> Ponseti (thanks God!!!).

>

> At that time we did not know about any Dr. doing the Ponseti's method

> in this area and since Iowa was just 3 hours driving away, we just

> took our son there; due to my baby's age we did not have time to

> waste.

>

> Dr. Ponseti put two more casts, then did a tenotomy, then another

> cast for 3 more weeks and my son has been wearing the DBB since then

> (for over a year now). We just went to Iowa about 10 days ago, got to

> see Dr. Ponseti and thanks God again my son is doing great. He should

> wear the DBB from12-14 hours a day, which is not a problem for us at

> all. If that is all what it takes to keep his foot from relapsing, we

> would gladly do it.

>

> Now I'm pregnant with my second child (24 weeks) and I'm just

> crossing my fingers (in our case is a genetic cause as my husband's

> brother was born with severe bilateral clubfeet), but if we happen to

> have another baby with clubfoot I think we are all prepared this time

> around.

>

> I'm glad you found out about Dr. Ponseti's method and that your

> daughter is progressing so well. It is also good to know that there

> is Dr. doing Ponseti's around this area. Like the other parents, I

> would be VERY curious to see the AFO/DBB combination brace.

>

> I'm sorry I can't be of much help regarding AFO/DBB issues as with

> our son it was a breeze, he never had any problems keeping the DBB

> on, he slept well with it on from the very first night (thanks God

> one more time), for us (and him) adjusting to the DBB was not a big

> deal at all, but I'm sure you will get all you need to know from the

> other experienced parents.

>

> I assume we live very close as we are 1 hour west of Chicago. Where

> exactly do you live?

>

> Bets of luck to you and your daughter and please keep us posted.!!

>

> Andreina (mom to Simon Andres unilateral clubfoot 10/04/2000)

>

> >

> > Hi,

> >

> > I was so happy to find this group on the internet. I only wish our

> computer had been fixed sooner so I could have been involved from the

> beginning of our daughters problems.

> >

> > Our daughter Brooklyn was born on 3/21/02 with severe bilateral

> clubfeet. When she was a week old she was put in small plaster casts

> that went from below her knee over her feet. These casts were

> changed weekly. After the 5th week of casts the doctor said her feet

> were not moving and they were worse than he originally thought. He

> referred us to Dr. Abraham a pediatric orthopaedic specialist and the

> head of the orthopaedic department at the University of Illinois

> Medical Center in Chicago. We live a bout 2 hours west of Chicago.

> Our orthopaedic doctor did his residency under Dr. Abraham and he

> said he used the Ponsetti method and got excellent results with

> clubfeet.

> >

> > When Brooklyn was 7 weeks old we had our first appointment with Dr.

> Abraham and he told us she had severe bilateral clubfeet and he

> thought he could fix them in 2 or 3 castings with the Ponsetti

> technique and then do a tenotomy. So Brooklyn got her first set of

> casts, only they were done with fiberglass instead of plaster. Dr.

> Abraham said he preferred fiberglass because he could mold it to the

> foot when it was wet and it held the foot better than plaster plus it

> was lighter than plaster.

> >

> > Brooklyn went back a week later to get her casts changed and we

> couldn't believe it but her feet were already straight. (Thank God

> for Dr. Ponsettis technique). Brooklyn had another set of casts on

> for a week and then had a tenotomy wich she handled very well. She

> was in casts for 3 weeks. We went for another cast change and Dr.

> Abraham decided to put her in casts for another 2 weeks with her feet

> at 70% rotation. At the last cast change she was then measured for

> her braces. They will be ready on July 23. We are so excited. I

> can't wait to see her beautiful feet again.

> >

> > When we saw the brace specialist I asked him whether they used the

> DBB or the AFO. He said that Dr. Abraham had actually created a new

> brace that was a combination of both. He uses the AFO with a bar

> attached to the bottom. Apparently so many parents were having

> problems with keeping the DBB on that he decided to create something

> that worked better. The brace specialist told us that Dr. Ponsetti

> saw Dr. Abrahams work and was so impressed with it that he asked for

> a report from him. I guess he liked the braces. If anyone would

> like I could take a digital picture of the braces when she gets them

> and send them to you by email. I am very curious as to what they

> look like. Which leads to my big question. I need hints and help

> for both the bar and the AFO. Can anyone help? Will Brooklyn fit in

> her carrier car seat with the AFO and bar? Has anyone had a problem

> with this. Any advice for making her comfortable for the long ride

> home and sleeping in her bed? Any advice would be greatly

> appreciated.

> >

> > Thank you so much.

> >

> > & (mom & dad to daughters Sidney 3 yrs. and Brooklyn

> (bilateral clubfeet) 3 1/2 months

> >

> >

> >

> >

> >

> > ---------------------------------

> >

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Guest guest

Andreina:

Hola como estas? soy Karin de Peru la mama de Max acabo de leer un mail tuyo

donde cuentas que estas esperando tu segundo bebe te felicito!! y otra vez

vamos a tener bebes casi de la misma edad por que yo tambien estoy

embarazada tengo 7 meses asi que mi fecha probable es en 26 de setiembre y

me voy a Miami en una semana asi que te felicito y como esta Simon Andres?

Re: new member

> Hi Shanon and Brooklyn and welcome to this group.

>

> I don't post very often but I do religiously read the messages in

> this board, there are always many good advices for us clubfoot-babies

> parents.

>

> I'm another Chicagoland area parent. Our son, who is now 21 months

> old, was born with unilateral clubfoot (right foot). He was born in

> Urbana-Champaign so we started treating his foot there. Like your

> daughter, he went from under the knees casts to over his foot casts

> and after about 4 casts we moved to South Elgin, IL, so started

> taking him to a Pediatric Orthopedic in the Chicagoland area.

>

> This Dr. put our son in about 4 more casts and tried the AFO for a

> couple of weeks; however, after a few months he wasn't really happy

> about the results, so scheduled our son for surgery when the baby

> would had turned 7 months (he was 6 months at that point). As many

> parents in this board, once we faced the fact of having surgery done

> we started looking around and that's when we found out about Dr.

> Ponseti (thanks God!!!).

>

> At that time we did not know about any Dr. doing the Ponseti's method

> in this area and since Iowa was just 3 hours driving away, we just

> took our son there; due to my baby's age we did not have time to

> waste.

>

> Dr. Ponseti put two more casts, then did a tenotomy, then another

> cast for 3 more weeks and my son has been wearing the DBB since then

> (for over a year now). We just went to Iowa about 10 days ago, got to

> see Dr. Ponseti and thanks God again my son is doing great. He should

> wear the DBB from12-14 hours a day, which is not a problem for us at

> all. If that is all what it takes to keep his foot from relapsing, we

> would gladly do it.

>

> Now I'm pregnant with my second child (24 weeks) and I'm just

> crossing my fingers (in our case is a genetic cause as my husband's

> brother was born with severe bilateral clubfeet), but if we happen to

> have another baby with clubfoot I think we are all prepared this time

> around.

>

> I'm glad you found out about Dr. Ponseti's method and that your

> daughter is progressing so well. It is also good to know that there

> is Dr. doing Ponseti's around this area. Like the other parents, I

> would be VERY curious to see the AFO/DBB combination brace.

>

> I'm sorry I can't be of much help regarding AFO/DBB issues as with

> our son it was a breeze, he never had any problems keeping the DBB

> on, he slept well with it on from the very first night (thanks God

> one more time), for us (and him) adjusting to the DBB was not a big

> deal at all, but I'm sure you will get all you need to know from the

> other experienced parents.

>

> I assume we live very close as we are 1 hour west of Chicago. Where

> exactly do you live?

>

> Bets of luck to you and your daughter and please keep us posted.!!

>

> Andreina (mom to Simon Andres unilateral clubfoot 10/04/2000)

>

> >

> > Hi,

> >

> > I was so happy to find this group on the internet. I only wish our

> computer had been fixed sooner so I could have been involved from the

> beginning of our daughters problems.

> >

> > Our daughter Brooklyn was born on 3/21/02 with severe bilateral

> clubfeet. When she was a week old she was put in small plaster casts

> that went from below her knee over her feet. These casts were

> changed weekly. After the 5th week of casts the doctor said her feet

> were not moving and they were worse than he originally thought. He

> referred us to Dr. Abraham a pediatric orthopaedic specialist and the

> head of the orthopaedic department at the University of Illinois

> Medical Center in Chicago. We live a bout 2 hours west of Chicago.

> Our orthopaedic doctor did his residency under Dr. Abraham and he

> said he used the Ponsetti method and got excellent results with

> clubfeet.

> >

> > When Brooklyn was 7 weeks old we had our first appointment with Dr.

> Abraham and he told us she had severe bilateral clubfeet and he

> thought he could fix them in 2 or 3 castings with the Ponsetti

> technique and then do a tenotomy. So Brooklyn got her first set of

> casts, only they were done with fiberglass instead of plaster. Dr.

> Abraham said he preferred fiberglass because he could mold it to the

> foot when it was wet and it held the foot better than plaster plus it

> was lighter than plaster.

> >

> > Brooklyn went back a week later to get her casts changed and we

> couldn't believe it but her feet were already straight. (Thank God

> for Dr. Ponsettis technique). Brooklyn had another set of casts on

> for a week and then had a tenotomy wich she handled very well. She

> was in casts for 3 weeks. We went for another cast change and Dr.

> Abraham decided to put her in casts for another 2 weeks with her feet

> at 70% rotation. At the last cast change she was then measured for

> her braces. They will be ready on July 23. We are so excited. I

> can't wait to see her beautiful feet again.

> >

> > When we saw the brace specialist I asked him whether they used the

> DBB or the AFO. He said that Dr. Abraham had actually created a new

> brace that was a combination of both. He uses the AFO with a bar

> attached to the bottom. Apparently so many parents were having

> problems with keeping the DBB on that he decided to create something

> that worked better. The brace specialist told us that Dr. Ponsetti

> saw Dr. Abrahams work and was so impressed with it that he asked for

> a report from him. I guess he liked the braces. If anyone would

> like I could take a digital picture of the braces when she gets them

> and send them to you by email. I am very curious as to what they

> look like. Which leads to my big question. I need hints and help

> for both the bar and the AFO. Can anyone help? Will Brooklyn fit in

> her carrier car seat with the AFO and bar? Has anyone had a problem

> with this. Any advice for making her comfortable for the long ride

> home and sleeping in her bed? Any advice would be greatly

> appreciated.

> >

> > Thank you so much.

> >

> > & (mom & dad to daughters Sidney 3 yrs. and Brooklyn

> (bilateral clubfeet) 3 1/2 months

> >

> >

> >

> >

> >

> > ---------------------------------

> >

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  • 2 weeks later...

Hello,

I am happy to hear that you found Dr. Ponseti before your grandson was treated

the " other " way. A lot of parents/grandparents aren't as lucky and end up going

through a lot of unnecessary treatments before they find the wonderful Dr.

Ponseti! You will find this group to be very intellegent, helpful, responsive,

understanding and loving as I have! I think we are just one big family, the Dr.

Ponseti cf family!

Glad to have you!

Sincererly,

& Breanna

ugo2l wrote:

Hello everyone I am a new member here and would like to introduce

myslef, and tell everyone about my familys experince with cf. My name

is Leora I live in NE. My experince started 21 years ago when my son

was born with cf. At that time I knew nothing about cf and

trusted my Dr to guide me in getting the treatment my son needed, we

were sent to a sugeron. was in cast for about the first 6

months of his life and had his first sugery when he was about 14

months old. Scince then he has had 7 sugerys in all and his foot is

scared and painful. I must say we have always be greatful for the

treatment kevin recived. We did not know that cf could be treated and

corrected without sugery. When My grandson Dylan was born in March

2002 with bilatreial clubfeet, My husban Tom got on the internet and

found Doctor Ponseti. Dylan started treatment when he was 12 days old

he had 5 sets of cast and then wore the dennis brown splint for three

months 24 hours a day. Dylan is now 5 months old and wears his dennis

brown splint while he sleeps, his feet look wonderful. You would

never know he had cf just by looking at his feet. If only we had

knowen about Doctor Ponseti when was born.

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