Guest guest Posted March 14, 2002 Report Share Posted March 14, 2002 Hi: Welcome, the only thing i can think of is that chiari is pain 24 hours 365days a week and can only get worse. Maybe a reputalbe chiropractor who specializes in the head can help you since it comes and goes...sunshine Confused > I was diagnosed with ACM several weeks ago, after I had my freaking > out period settled down, I found all of you. As I'm reading more and > more posts it really sounds as though some of you are in much tougher > shape than I feel that I am. I have lots of symptoms that sound > familiar. > I get terrible headaches, although not daily or even every week. > However when they do come, I feel like ventilating my skull. > My walk is not as natural as it used to be and sometimes I list to my > right. > I see things flash across my vision that aren't there. > I have lower back and shoulder pain that cannot be figured out. > Every now and again my vision gets screwy. > For a while I had a tick at the bottom of my left eye, it didn't goof > up my sight to the point I couldn't see, it just felt weird. Lasted > about a week. > I have chronic badk pain, mild crunchy pain. > I have the foggy head deal going and am forgetful sometimes. > My speech sometimes gets messed up, I mean to say one thing and get > messed up halfway through a word. > I have hand tremmors. > Sometimes when I'm eating the swallow mechanism jams up and whatever > it was that I'm trying to swallow, gets stuck, sometimes for > 20 mins. to half hour. when that happens, I can' get anything, not > even water down. I go to the bathroom and just drool over the toilet > untill I can either get it back up or swallow it down. > I'm very active, still working too many hours at my business. I am > able to snowmobile, although sometimes I pay the headach price. > The diagnosis was by MRI. haven't been to see anyone yet who sounds > like an " expert " and am waiting to find that person to get the full > spine MRI to see If I have the syrnyx problem. > Sometimes, often in the spring, I have what is almost incontinence > while I'm sleeping, just wake up kind of damp, not wet. > > I guess my question is, Does this sound like ACM that is mild or > typical, if there is anything such as typical. > > Very confused, > > anyones thoughts or experiences would be very helpful. > > Thanks Joe. > > > > Help section: http://www.yahoogroups.com/help/ > > NOTE: NCC refers to posts with No Chiari Content > > To Unsubscribe Yourself: > chiari-unsubscribe > > WACMA Home: Http://www.wacma.com > > WACMA Online Group: http://groups.yahoo.com/group/chiari/ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2002 Report Share Posted March 14, 2002 Hi: Welcome, the only thing i can think of is that chiari is pain 24 hours 365days a week and can only get worse. Maybe a reputalbe chiropractor who specializes in the head can help you since it comes and goes...sunshine Confused > I was diagnosed with ACM several weeks ago, after I had my freaking > out period settled down, I found all of you. As I'm reading more and > more posts it really sounds as though some of you are in much tougher > shape than I feel that I am. I have lots of symptoms that sound > familiar. > I get terrible headaches, although not daily or even every week. > However when they do come, I feel like ventilating my skull. > My walk is not as natural as it used to be and sometimes I list to my > right. > I see things flash across my vision that aren't there. > I have lower back and shoulder pain that cannot be figured out. > Every now and again my vision gets screwy. > For a while I had a tick at the bottom of my left eye, it didn't goof > up my sight to the point I couldn't see, it just felt weird. Lasted > about a week. > I have chronic badk pain, mild crunchy pain. > I have the foggy head deal going and am forgetful sometimes. > My speech sometimes gets messed up, I mean to say one thing and get > messed up halfway through a word. > I have hand tremmors. > Sometimes when I'm eating the swallow mechanism jams up and whatever > it was that I'm trying to swallow, gets stuck, sometimes for > 20 mins. to half hour. when that happens, I can' get anything, not > even water down. I go to the bathroom and just drool over the toilet > untill I can either get it back up or swallow it down. > I'm very active, still working too many hours at my business. I am > able to snowmobile, although sometimes I pay the headach price. > The diagnosis was by MRI. haven't been to see anyone yet who sounds > like an " expert " and am waiting to find that person to get the full > spine MRI to see If I have the syrnyx problem. > Sometimes, often in the spring, I have what is almost incontinence > while I'm sleeping, just wake up kind of damp, not wet. > > I guess my question is, Does this sound like ACM that is mild or > typical, if there is anything such as typical. > > Very confused, > > anyones thoughts or experiences would be very helpful. > > Thanks Joe. > > > > Help section: http://www.yahoogroups.com/help/ > > NOTE: NCC refers to posts with No Chiari Content > > To Unsubscribe Yourself: > chiari-unsubscribe > > WACMA Home: Http://www.wacma.com > > WACMA Online Group: http://groups.yahoo.com/group/chiari/ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2002 Report Share Posted March 15, 2002 Hey Joe, I've read what you've been posting for the last couple of days and if it were me, I think it would be good do something soon. To me you have a problem that is affecting your life, it needs fixing. This is only my opinion, and I am taking into consideration your experiences, life could really improve for you. I hope that your brother does come in contact with Dr. Frim, he seems a good choice for you, only an interstate ride away. Hope the snow, rain or whatever missed you last night. We lucked out no precip. of any form. From Wi, . GO BADGERS!!!!!!!!!!!!!! jpjk58 wrote: > > Thanks to those that wrote. > My life is going on kind of as usual. As I've written in prior posts, > when I first got the news, like everyone else I just freaked. > I spent one whole week on the net looking for info, went to see a > neuro guy, who by the way wasn't at all up on ACM. Then I sat back > and reevaluated. I was born with this and have had it for 43 Yrs. Yea, > I've had the trigger trauma, more than once, 26 surgeries in two years > back when I was a kid. Had a couple cars totaled out from under me. > Been flat lined twice. Not the best ride. HOWEVER, I'm still here, > still doing what I do. My wife and I will celebrate 22 Years tomarrow. > > So what I've decided to do is use my supprort network. All Of you with > the wisdom of experience. My primary physician. And last but not least > my my brother works with a company that does work with MS. He is at a > conference in Chicago right now with all kinds of neruologists. He has > been talking to people all over the state of Wisconsin, trying to help > me find the right guy. He may even rub elbows with Dr. Frim. I asked > him to look for him specifically. > > With all that said, I've had this for all these years with all these > tramatic accidents. Yes my symptoms are progressing, but I've come to > the decision that It's more important to spend some time now, looking > and evaluating. If it takes till summer to find the guy, I'm OK with > that. > > I know that I don't want this to progress much further, but I feel > that sometimes it's best not to rush quite so much now in hopes that I > don't have to pay by way of pain and suffering due to a quick, not > fully informed decision now. > > Can't tell you how much it helps to ramble on like this to a group > that is often times in the same state of concern, confusion and fear > that I am. > > THANKS AGAIN, > Be well, drive safe, and good luck to all. > Joe > > Help section: http://www.yahoogroups.com/help/ > > NOTE: NCC refers to posts with No Chiari Content > > To Unsubscribe Yourself: > chiari-unsubscribe > > WACMA Home: Http://www.wacma.com > > WACMA Online Group: http://groups.yahoo.com/group/chiari/ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2003 Report Share Posted January 6, 2003 Hi , Have you tried Carol Gray's Social Stories? They are wonderful tools for helping children in social situations. This is the link if you are interested in reading more about it: <A HREF= " http://www.udel.edu/bkirby/asperger/socialcarolgray.html " > http://www.udel.edu/bkirby/asperger/socialcarolgray.html</A> With regard to the diagnosis possibly being incorrect, you might want to contact a pediatric neurologist. Best of luck, Maureen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2003 Report Share Posted January 6, 2003 Hi , Have you tried Carol Gray's Social Stories? They are wonderful tools for helping children in social situations. This is the link if you are interested in reading more about it: <A HREF= " http://www.udel.edu/bkirby/asperger/socialcarolgray.html " > http://www.udel.edu/bkirby/asperger/socialcarolgray.html</A> With regard to the diagnosis possibly being incorrect, you might want to contact a pediatric neurologist. Best of luck, Maureen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2003 Report Share Posted January 6, 2003 Hi , Have you tried Carol Gray's Social Stories? They are wonderful tools for helping children in social situations. This is the link if you are interested in reading more about it: <A HREF= " http://www.udel.edu/bkirby/asperger/socialcarolgray.html " > http://www.udel.edu/bkirby/asperger/socialcarolgray.html</A> With regard to the diagnosis possibly being incorrect, you might want to contact a pediatric neurologist. Best of luck, Maureen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2003 Report Share Posted January 6, 2003 > She has outburst at her father all of the time and says things completly off the wall, that I can not understand and I don't think she does either. When her dad yells at her or tell her to do something is tone is not calm and it really upsets her and she gets very very angry at him and if he says " you'll go to bed if you don't stop " she'll say the same thing back to him in a very angry voice. Boone hates for someone to raise their voice -- especially at him. He reacts by screaming no, becoming very angry and throwing things or hurting himself. We just don't raise our voices to him and try not to raise our voices to each other. The best way to deal with Boone is through written communication or social stories. Sissi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2003 Report Share Posted January 6, 2003 > She has outburst at her father all of the time and says things completly off the wall, that I can not understand and I don't think she does either. When her dad yells at her or tell her to do something is tone is not calm and it really upsets her and she gets very very angry at him and if he says " you'll go to bed if you don't stop " she'll say the same thing back to him in a very angry voice. Boone hates for someone to raise their voice -- especially at him. He reacts by screaming no, becoming very angry and throwing things or hurting himself. We just don't raise our voices to him and try not to raise our voices to each other. The best way to deal with Boone is through written communication or social stories. Sissi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2003 Report Share Posted January 6, 2003 > She has outburst at her father all of the time and says things completly off the wall, that I can not understand and I don't think she does either. When her dad yells at her or tell her to do something is tone is not calm and it really upsets her and she gets very very angry at him and if he says " you'll go to bed if you don't stop " she'll say the same thing back to him in a very angry voice. Boone hates for someone to raise their voice -- especially at him. He reacts by screaming no, becoming very angry and throwing things or hurting himself. We just don't raise our voices to him and try not to raise our voices to each other. The best way to deal with Boone is through written communication or social stories. Sissi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2003 Report Share Posted January 6, 2003 ----- Original Message ----- - My daughter is almost seven and we have been told that she has Asperger Syndrome. My nine year old has aspergers. - I have known for a long time now that she is different, but in a special way. She notices and hears things that other people never do and never will. Like instead of looking at something as a whole, does she look at certain details? My son would comment on the bars of the cage rather than the guinea pig inside. - She is always in her own world, and likes to play alone. used to be like this. -She will only eat for me and for her grandmother. She just started being able to eat very little at school. I am glad we haven't had this problem! He has been picky enough at times! - She has outburst at her father all of the time and says things completly off the wall, that I can not understand and I don't think she does either. Mine would say the off the wall things as an attempt to join a conversation. -When her dad yells at her or tell her to do something is tone is not calm and it really upsets her and she gets very very angry at him and if he says " you'll go to bed if you don't stop " she'll say the same thing back to him in a very angry voice. Very typical. Both of my son's will use the same tone that is used with them. (my 12 year old is autistic). If you raise your voice, they raise theirs and they get closer to being out of contro.. If we can talk to them low and calmly, they are much better at holding themselves together. They are not aware of their tone of voice though. -She doesn't know how to react to pain, she is getting better at it though ) Oh yes! Either too big a reaction or too small. Sometimes no reaction at all. This is from sensory dysfunction. An occupational therapist should be working with her at school on this. - She doesn't know how to have normal converstations, and does not play well with other children. Has the school done a speech evaluation on her? Is she receiving speech at school and working with a social worker there also? If not, she should be getting these services. -She will play with he cousins but it has to be her way, or else she gets very angry and confused. This is because she doesn't understand the social rules on how she should act...she is trying to control the game playing so she knows what's going on. -She is also visually impaired and for that reason has her own student aid at a public school, but she is still struggling, they cut her work load in half and she is doing better with that, This is good! -but she will not play at recess You may need to make a social story with pictures of her on the different equipment on the play ground for her to understand that she is to use it. This has happened before. -(I just quit my full-time job so I can be home more and go to recess and lunch with her, today will be my first day). Very lucky that you can do this! - She picks all of the time, she picks at her fingers, nails, lips, facial hair, and nose hairs. Probably sensory related again. Have you tried giving her things to carry around that would be appropriate for her to pick at? Maybe a Koosh ball? was a nail biter until just recently and was a nail and cuticle picker. As 's stress increased, he would start picking at his lip and nose. The new meds he's on have made a drastic reduction in this type of behavior. Enough so that for the first time since he was 4, I actually can clip his nails now and then! -She also has some facial tics, they are not as bad as they use to be. Some of the autistic kids here do have Tourettes as a coexisting disorder. -She is on ritilan, and was on zoloft, but I slowly took her off the zoloft because she was picking more, and it was so bad, that she did it all day and would bleed. She also zoned out for hours. She was put on zoloft because she started to get panic attacks and was scared all of the time, and her anx iety level is very high. Now she is scared to go to the bathroom! Sounds like the Dr. needs to try a different medication for her. Some of our kids, especially the aspergers ones have very high levels of anxiety. It takes some experimentation to find the right medication for each child, unfortunately. - alone or to fall asleep alone, but it is not like it use to be, it has gotten better, but I am scared that one little thing could set it off again. I can understand your fear! -After reading the post and reading books, I am not possitive Asperger Syndrome is correct. She is not fixaed on one subject. It doesn't have to be just one subject. is into buttons, jewelry, bugs, whales, planets and starts, dinosaurs, etc. When he watches a movie, the boys will watch the same one almost every time they want to see a movie. will talk about it endlessly. Right now he's even mimicking the speech the Atlanians used on Atlantis! -She loves Stitch from the movie " lilo and stitch " and she thinks he is real and that is all she will talk about. Oh yes. We have to constantly remind the boys that movies and things on tv are not real and they are actors or cartoons, etc. and they will talk about it because that is their interest. -But then she just recently started watching the movie " Spirit " and she won't stop talking about that movie now. And she is still all about stitch. Sounds like right now those are your daughters interests. - And she does repeat things over and over again. And she does very much hate change. These things do sound very spectrumy. -I am just not sure what to tell the school, because they are not doing anything to help her in this catagory and they do not believe that her problem is Asperger Syndrome. I have been in this place before! It absolutely sucks! The most important thing is that they understand that aspergers IS a form of autism. If they have not yet done evaluations on her, put in writing that you want her evaluated for autism spectrum disorder. (unless this is not what you want.) They have to provide her with what her needs are and the testing will show her areas of need. -But I do know she is different and that she will always be different, and that she does have autistic features. What do I do???? , You have to decide whether you are comfortable with her being labled aspergers, assuming the school finds this to be the case. I had a four year struggle to get my district to understand that was Aspergers and it is autism. We have finally won that battle and they are working with our states autism society to learn how to work with him. A lot of what you have said to describe does sound like my kids, but I am not a Dr. or a PhD. Just a mom living with autism. I hope some of what I have said will be helpful. Big cyber hug to you! Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2003 Report Share Posted January 6, 2003 ----- Original Message ----- - My daughter is almost seven and we have been told that she has Asperger Syndrome. My nine year old has aspergers. - I have known for a long time now that she is different, but in a special way. She notices and hears things that other people never do and never will. Like instead of looking at something as a whole, does she look at certain details? My son would comment on the bars of the cage rather than the guinea pig inside. - She is always in her own world, and likes to play alone. used to be like this. -She will only eat for me and for her grandmother. She just started being able to eat very little at school. I am glad we haven't had this problem! He has been picky enough at times! - She has outburst at her father all of the time and says things completly off the wall, that I can not understand and I don't think she does either. Mine would say the off the wall things as an attempt to join a conversation. -When her dad yells at her or tell her to do something is tone is not calm and it really upsets her and she gets very very angry at him and if he says " you'll go to bed if you don't stop " she'll say the same thing back to him in a very angry voice. Very typical. Both of my son's will use the same tone that is used with them. (my 12 year old is autistic). If you raise your voice, they raise theirs and they get closer to being out of contro.. If we can talk to them low and calmly, they are much better at holding themselves together. They are not aware of their tone of voice though. -She doesn't know how to react to pain, she is getting better at it though ) Oh yes! Either too big a reaction or too small. Sometimes no reaction at all. This is from sensory dysfunction. An occupational therapist should be working with her at school on this. - She doesn't know how to have normal converstations, and does not play well with other children. Has the school done a speech evaluation on her? Is she receiving speech at school and working with a social worker there also? If not, she should be getting these services. -She will play with he cousins but it has to be her way, or else she gets very angry and confused. This is because she doesn't understand the social rules on how she should act...she is trying to control the game playing so she knows what's going on. -She is also visually impaired and for that reason has her own student aid at a public school, but she is still struggling, they cut her work load in half and she is doing better with that, This is good! -but she will not play at recess You may need to make a social story with pictures of her on the different equipment on the play ground for her to understand that she is to use it. This has happened before. -(I just quit my full-time job so I can be home more and go to recess and lunch with her, today will be my first day). Very lucky that you can do this! - She picks all of the time, she picks at her fingers, nails, lips, facial hair, and nose hairs. Probably sensory related again. Have you tried giving her things to carry around that would be appropriate for her to pick at? Maybe a Koosh ball? was a nail biter until just recently and was a nail and cuticle picker. As 's stress increased, he would start picking at his lip and nose. The new meds he's on have made a drastic reduction in this type of behavior. Enough so that for the first time since he was 4, I actually can clip his nails now and then! -She also has some facial tics, they are not as bad as they use to be. Some of the autistic kids here do have Tourettes as a coexisting disorder. -She is on ritilan, and was on zoloft, but I slowly took her off the zoloft because she was picking more, and it was so bad, that she did it all day and would bleed. She also zoned out for hours. She was put on zoloft because she started to get panic attacks and was scared all of the time, and her anx iety level is very high. Now she is scared to go to the bathroom! Sounds like the Dr. needs to try a different medication for her. Some of our kids, especially the aspergers ones have very high levels of anxiety. It takes some experimentation to find the right medication for each child, unfortunately. - alone or to fall asleep alone, but it is not like it use to be, it has gotten better, but I am scared that one little thing could set it off again. I can understand your fear! -After reading the post and reading books, I am not possitive Asperger Syndrome is correct. She is not fixaed on one subject. It doesn't have to be just one subject. is into buttons, jewelry, bugs, whales, planets and starts, dinosaurs, etc. When he watches a movie, the boys will watch the same one almost every time they want to see a movie. will talk about it endlessly. Right now he's even mimicking the speech the Atlanians used on Atlantis! -She loves Stitch from the movie " lilo and stitch " and she thinks he is real and that is all she will talk about. Oh yes. We have to constantly remind the boys that movies and things on tv are not real and they are actors or cartoons, etc. and they will talk about it because that is their interest. -But then she just recently started watching the movie " Spirit " and she won't stop talking about that movie now. And she is still all about stitch. Sounds like right now those are your daughters interests. - And she does repeat things over and over again. And she does very much hate change. These things do sound very spectrumy. -I am just not sure what to tell the school, because they are not doing anything to help her in this catagory and they do not believe that her problem is Asperger Syndrome. I have been in this place before! It absolutely sucks! The most important thing is that they understand that aspergers IS a form of autism. If they have not yet done evaluations on her, put in writing that you want her evaluated for autism spectrum disorder. (unless this is not what you want.) They have to provide her with what her needs are and the testing will show her areas of need. -But I do know she is different and that she will always be different, and that she does have autistic features. What do I do???? , You have to decide whether you are comfortable with her being labled aspergers, assuming the school finds this to be the case. I had a four year struggle to get my district to understand that was Aspergers and it is autism. We have finally won that battle and they are working with our states autism society to learn how to work with him. A lot of what you have said to describe does sound like my kids, but I am not a Dr. or a PhD. Just a mom living with autism. I hope some of what I have said will be helpful. Big cyber hug to you! Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2003 Report Share Posted January 6, 2003 ----- Original Message ----- - My daughter is almost seven and we have been told that she has Asperger Syndrome. My nine year old has aspergers. - I have known for a long time now that she is different, but in a special way. She notices and hears things that other people never do and never will. Like instead of looking at something as a whole, does she look at certain details? My son would comment on the bars of the cage rather than the guinea pig inside. - She is always in her own world, and likes to play alone. used to be like this. -She will only eat for me and for her grandmother. She just started being able to eat very little at school. I am glad we haven't had this problem! He has been picky enough at times! - She has outburst at her father all of the time and says things completly off the wall, that I can not understand and I don't think she does either. Mine would say the off the wall things as an attempt to join a conversation. -When her dad yells at her or tell her to do something is tone is not calm and it really upsets her and she gets very very angry at him and if he says " you'll go to bed if you don't stop " she'll say the same thing back to him in a very angry voice. Very typical. Both of my son's will use the same tone that is used with them. (my 12 year old is autistic). If you raise your voice, they raise theirs and they get closer to being out of contro.. If we can talk to them low and calmly, they are much better at holding themselves together. They are not aware of their tone of voice though. -She doesn't know how to react to pain, she is getting better at it though ) Oh yes! Either too big a reaction or too small. Sometimes no reaction at all. This is from sensory dysfunction. An occupational therapist should be working with her at school on this. - She doesn't know how to have normal converstations, and does not play well with other children. Has the school done a speech evaluation on her? Is she receiving speech at school and working with a social worker there also? If not, she should be getting these services. -She will play with he cousins but it has to be her way, or else she gets very angry and confused. This is because she doesn't understand the social rules on how she should act...she is trying to control the game playing so she knows what's going on. -She is also visually impaired and for that reason has her own student aid at a public school, but she is still struggling, they cut her work load in half and she is doing better with that, This is good! -but she will not play at recess You may need to make a social story with pictures of her on the different equipment on the play ground for her to understand that she is to use it. This has happened before. -(I just quit my full-time job so I can be home more and go to recess and lunch with her, today will be my first day). Very lucky that you can do this! - She picks all of the time, she picks at her fingers, nails, lips, facial hair, and nose hairs. Probably sensory related again. Have you tried giving her things to carry around that would be appropriate for her to pick at? Maybe a Koosh ball? was a nail biter until just recently and was a nail and cuticle picker. As 's stress increased, he would start picking at his lip and nose. The new meds he's on have made a drastic reduction in this type of behavior. Enough so that for the first time since he was 4, I actually can clip his nails now and then! -She also has some facial tics, they are not as bad as they use to be. Some of the autistic kids here do have Tourettes as a coexisting disorder. -She is on ritilan, and was on zoloft, but I slowly took her off the zoloft because she was picking more, and it was so bad, that she did it all day and would bleed. She also zoned out for hours. She was put on zoloft because she started to get panic attacks and was scared all of the time, and her anx iety level is very high. Now she is scared to go to the bathroom! Sounds like the Dr. needs to try a different medication for her. Some of our kids, especially the aspergers ones have very high levels of anxiety. It takes some experimentation to find the right medication for each child, unfortunately. - alone or to fall asleep alone, but it is not like it use to be, it has gotten better, but I am scared that one little thing could set it off again. I can understand your fear! -After reading the post and reading books, I am not possitive Asperger Syndrome is correct. She is not fixaed on one subject. It doesn't have to be just one subject. is into buttons, jewelry, bugs, whales, planets and starts, dinosaurs, etc. When he watches a movie, the boys will watch the same one almost every time they want to see a movie. will talk about it endlessly. Right now he's even mimicking the speech the Atlanians used on Atlantis! -She loves Stitch from the movie " lilo and stitch " and she thinks he is real and that is all she will talk about. Oh yes. We have to constantly remind the boys that movies and things on tv are not real and they are actors or cartoons, etc. and they will talk about it because that is their interest. -But then she just recently started watching the movie " Spirit " and she won't stop talking about that movie now. And she is still all about stitch. Sounds like right now those are your daughters interests. - And she does repeat things over and over again. And she does very much hate change. These things do sound very spectrumy. -I am just not sure what to tell the school, because they are not doing anything to help her in this catagory and they do not believe that her problem is Asperger Syndrome. I have been in this place before! It absolutely sucks! The most important thing is that they understand that aspergers IS a form of autism. If they have not yet done evaluations on her, put in writing that you want her evaluated for autism spectrum disorder. (unless this is not what you want.) They have to provide her with what her needs are and the testing will show her areas of need. -But I do know she is different and that she will always be different, and that she does have autistic features. What do I do???? , You have to decide whether you are comfortable with her being labled aspergers, assuming the school finds this to be the case. I had a four year struggle to get my district to understand that was Aspergers and it is autism. We have finally won that battle and they are working with our states autism society to learn how to work with him. A lot of what you have said to describe does sound like my kids, but I am not a Dr. or a PhD. Just a mom living with autism. I hope some of what I have said will be helpful. Big cyber hug to you! Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2003 Report Share Posted January 8, 2003 I want to hear about Greggory too so I can pretend that's what is going to end up like when she's older. Hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2003 Report Share Posted January 8, 2003 I want to hear about Greggory too so I can pretend that's what is going to end up like when she's older. Hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2003 Report Share Posted January 8, 2003 I want to hear about Greggory too so I can pretend that's what is going to end up like when she's older. Hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2003 Report Share Posted January 8, 2003 Ok. I will post about greggory. What he was like as a baby and toddler and how he was dx'd at 28 months and his failed and sucessful therapies and where he is now. But I warn you. I have dealing with Greggory for almost 7 yrs now and its gonna be long. lol Jacquie H Re: Confused I want to hear about Greggory too so I can pretend that's what is going to end up like when she's older. Hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2003 Report Share Posted January 8, 2003 Ok. I will post about greggory. What he was like as a baby and toddler and how he was dx'd at 28 months and his failed and sucessful therapies and where he is now. But I warn you. I have dealing with Greggory for almost 7 yrs now and its gonna be long. lol Jacquie H Re: Confused I want to hear about Greggory too so I can pretend that's what is going to end up like when she's older. Hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2003 Report Share Posted January 8, 2003 Ok. I will post about greggory. What he was like as a baby and toddler and how he was dx'd at 28 months and his failed and sucessful therapies and where he is now. But I warn you. I have dealing with Greggory for almost 7 yrs now and its gonna be long. lol Jacquie H Re: Confused I want to hear about Greggory too so I can pretend that's what is going to end up like when she's older. Hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2003 Report Share Posted January 8, 2003 ----- Original Message ----- But I warn you. I have dealing with Greggory for almost 7 yrs now and its gonna be long. lol Gee Jacquie, I'll be between your 7 years with Greggory and my almost 13 with , we could make one really HUGE post! heehee Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2003 Report Share Posted January 8, 2003 ----- Original Message ----- But I warn you. I have dealing with Greggory for almost 7 yrs now and its gonna be long. lol Gee Jacquie, I'll be between your 7 years with Greggory and my almost 13 with , we could make one really HUGE post! heehee Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2003 Report Share Posted January 8, 2003 ----- Original Message ----- But I warn you. I have dealing with Greggory for almost 7 yrs now and its gonna be long. lol Gee Jacquie, I'll be between your 7 years with Greggory and my almost 13 with , we could make one really HUGE post! heehee Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2003 Report Share Posted January 8, 2003 LOL....that would be one heck of a post wouldnt it? lol Jacquie H Re: Confused ----- Original Message ----- But I warn you. I have dealing with Greggory for almost 7 yrs now and its gonna be long. lol Gee Jacquie, I'll be between your 7 years with Greggory and my almost 13 with , we could make one really HUGE post! heehee Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2003 Report Share Posted January 8, 2003 LOL....that would be one heck of a post wouldnt it? lol Jacquie H Re: Confused ----- Original Message ----- But I warn you. I have dealing with Greggory for almost 7 yrs now and its gonna be long. lol Gee Jacquie, I'll be between your 7 years with Greggory and my almost 13 with , we could make one really HUGE post! heehee Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2003 Report Share Posted January 8, 2003 LOL....that would be one heck of a post wouldnt it? lol Jacquie H Re: Confused ----- Original Message ----- But I warn you. I have dealing with Greggory for almost 7 yrs now and its gonna be long. lol Gee Jacquie, I'll be between your 7 years with Greggory and my almost 13 with , we could make one really HUGE post! heehee Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2003 Report Share Posted January 27, 2003 I could be wrong, but I think all of this, including the spacer and the " Neff " nail, had to do with the knee arthroplasty, so the femorotibial nail system probably would fit, right? I don't think they were talking about the arm, were they? I may have missed an email, though, as I don't always read through every single one with the same subject line. ) Joy Deb, > >Don't know about the antibody part.....never heard that before. There is a >Neff nail in Stedman's Equipment Words. > >:-) > > > > Confused Date: Mon, 27 Jan 2003 13:32:42 -0000 In an earlier post you were looking for a Neff nail. And someone said they found it in the Stedman's Equipment words. In the Stedman's Equipment Word book under nails, there is no listing for Neff. BUT, if you look up Neff, one of the references is, " femorotibial nail system " , but is that what you look for? Anything that has the word " nail " in it? If the Dr is operating on an arm, he wouldn't use a Neff nail, because femorotibial means in the leg, right? I am a student as most of you know, and it seems I get more confused the further I go. I thought this course transcription would be easier as it draws toward the end, but it seems I am getting more frustrated instead. _________________________________________________________________ MSN 8 helps eliminate e-mail viruses. Get 2 months FREE*. http://join.msn.com/?page=features/virus Quote Link to comment Share on other sites More sharing options...
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