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Alice,

if my blood sugar goes to 70 I would be very sweaty and shaky. When I am

working on the computer it drops quickly and I can find myself in the 90's.

Most other times it is 150-200. I have figured out some things about mito

and blood sugar that Dr Tick the mito doc agrees with but the

endrocronologist just this last time decided to believe.

When I am sitting doing paperwork or computr work for 2-3 hours at a time my

blood sugar will lower. But, if for instance at my last job every now

couple of days I needed to walk out to the plant. The plant was a 1/2 block

long. So, one day I took my blood sugar before I walked out there--it was

like 125. Then I took it when I got back about 30 minutes later--it was

170. Mind you I had nothing to eat or drink during this time--I also had

exercise which in a normal diabetic would decrease the blood sugar. I also

had an instance written down where I took my blood sugar before and after

going shopping and it went up. Also when I was sanding my kitchen

cabinets--my blood sugar was 50 points higher after 5 hours of physical

labor.

so, Dr Tick agreed with me--mental activity with no physical activity lowers

the blood sugar. Physical activity increases it. He did not seem surprised

by this but I did not think to ask him why this is so. Dr Roth, my PCP says

that mental activity lowers blood sugar--that is why college students get so

hungary when they cram for tests.

I forgot to ask Dr Tick though about the blood sugar levels at night. The

endrocronologist keeps wanting to lower them. Dr Roth had said something

about blood sugars and insulin at night but I do not remember what she

said--that was couple of years ago.

My blood sugar was 173 the other night before I went to bed and in the

morning it was 258. It is always in the 250's or 260's even with the

insulin.

I also decided that being sick, stress are high blood sugars--that is true

in a " normal " diabetic. But, I added one more to my list--not getting at

least 9 hours of sleep.

Well, that is my story

Janet Sample

ps--my notebook crashed and I lost all my email for the past week so just

got a few messages.

Blood Sugar Readings

> Laurie,

>

> The other day, you posted that when you had your surgery, your blood

> sugar readings were kept extremely low because they gave you insulin.

> I can't remember the exact readings but it seems to me they were in

> the 50's and 60's. I have a very noticeable problem if my sugar goes

> into the 70's. I begin to shake, am very weak and become confused.

> I'm wondering if this is abnormal since I don't think I'd do very

> well if my readings were in the 50's or 60's.

>

> My sugar readings on this basically carb-free diet are staying in the

> 80-115 range. This isn't an easy thing for me to do but getting up

> in the morning and finding my readings under 120 every day seems to

> make me feel better - much more able to cope.

>

> I just wonder what others have to say about this. What are your

> goals as far as blood sugar if you are dealing with this as a medical

> issue?

>

> Alice

>

>

>

> Medical advice, information, opinions, data and statements contained

herein are not necessarily those of the list moderators. The author of this

e mail is entirely responsible for its content. List members are reminded of

their responsibility to evaluate the content of the postings and consult

with their physicians regarding changes in their own treatment.

>

>

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Thank you, Janet. I realy appreciate your answers as

I have wondered why I feel so badly if the sugar

readings are under 80 actually. I feel as if I'm on

the brink of passing out. I can tell when they are

getting too low and have to get some protein in my

system right away. It's amazing how the protein

brings my sugar in line.

I was eating a piece of cheese when this happens but

now that I'm off dairy, starches, grain and fats, I'm

finding it harder to find something legal to munch on

to bring the sugar back up. Maybe I should eat a

carrot but that would be sugar and not protein. The

diet calls for 1/2 grapefruit every morning but I am

finding that this raises my blood sugar quickly so I

have opted for two slices of turkey bacon and that

seems to help my sugar go within 95-110 within a very

short period of time. I'm not on insulin and although

the doctor prescribed Glucopage - I have not started

to take it. The reason I'm really afraid of it is

that my sugar readings would drop to the 70's without

the glucopage so I can't imagine what they would do

with it.

Still trying to figure this out. One thing is very

sure, if I have normal blood sugar readings, I am not

dizzy. My equilibium is much more normal and I have

found myself able to walk more which is a huge change

for me. After over 4 years of daily dizzies - this is

a wonderful feeling. I am finding that I can even do

a little housework now without feeling horrible and I

really like that.

Alice

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Alice

They were prepared to give me insulin if my glucose level went high. It was

low on its own. They had to hold my blood pressure meds because that was

also low. They gave me carbs with protein and continued the IV until my

blood sugar was stable - the next day sometime. gets very sick to her

stomach with surgery and my dysautonomia seems to get worse.

When my mother had her stroke (SLE?) they gave her lots of glucose and then

some insulin. She never had it before or again.

laurie

>

> Reply-To:

> Date: Sat, 08 Mar 2003 01:05:08 -0000

> To:

> Subject: Blood Sugar Readings

>

> Laurie,

>

> The other day, you posted that when you had your surgery, your blood

> sugar readings were kept extremely low because they gave you insulin.

> I can't remember the exact readings but it seems to me they were in

> the 50's and 60's. I have a very noticeable problem if my sugar goes

> into the 70's. I begin to shake, am very weak and become confused.

> I'm wondering if this is abnormal since I don't think I'd do very

> well if my readings were in the 50's or 60's.

>

> My sugar readings on this basically carb-free diet are staying in the

> 80-115 range. This isn't an easy thing for me to do but getting up

> in the morning and finding my readings under 120 every day seems to

> make me feel better - much more able to cope.

>

> I just wonder what others have to say about this. What are your

> goals as far as blood sugar if you are dealing with this as a medical

> issue?

>

> Alice

>

>

>

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Alice

How about nuts or peanut butter when your blood sugar is low? It is high in

protein and good fat. I crave peanut butter when my blood sugar is low.

laurie

>

> Reply-To:

> Date: Fri, 7 Mar 2003 18:51:55 -0800 (PST)

> To:

> Subject: Re: Blood Sugar Readings

>

> Thank you, Janet. I realy appreciate your answers as

> I have wondered why I feel so badly if the sugar

> readings are under 80 actually. I feel as if I'm on

> the brink of passing out. I can tell when they are

> getting too low and have to get some protein in my

> system right away. It's amazing how the protein

> brings my sugar in line.

>

> I was eating a piece of cheese when this happens but

> now that I'm off dairy, starches, grain and fats, I'm

> finding it harder to find something legal to munch on

> to bring the sugar back up. Maybe I should eat a

> carrot but that would be sugar and not protein. The

> diet calls for 1/2 grapefruit every morning but I am

> finding that this raises my blood sugar quickly so I

> have opted for two slices of turkey bacon and that

> seems to help my sugar go within 95-110 within a very

> short period of time. I'm not on insulin and although

> the doctor prescribed Glucopage - I have not started

> to take it. The reason I'm really afraid of it is

> that my sugar readings would drop to the 70's without

> the glucopage so I can't imagine what they would do

> with it.

>

> Still trying to figure this out. One thing is very

> sure, if I have normal blood sugar readings, I am not

> dizzy. My equilibium is much more normal and I have

> found myself able to walk more which is a huge change

> for me. After over 4 years of daily dizzies - this is

> a wonderful feeling. I am finding that I can even do

> a little housework now without feeling horrible and I

> really like that.

>

> Alice

>

>

>

>

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That's a good suggestion Laurie. Neither one is

allowed on my diet, but I have to figure out something

that will work. I was using peanut butter before I

started dieting - or cheese.

Thanks!

Alice

--- Laureta Fitzgerald

wrote:

> Alice

>

> How about nuts or peanut butter when your blood

> sugar is low? It is high in

> protein and good fat. I crave peanut butter when my

> blood sugar is low.

>

> laurie

>

> >

> > Reply-To:

> > Date: Fri, 7 Mar 2003 18:51:55 -0800 (PST)

> > To:

> > Subject: Re: Blood Sugar Readings

> >

> > Thank you, Janet. I realy appreciate your answers

> as

> > I have wondered why I feel so badly if the sugar

> > readings are under 80 actually. I feel as if I'm

> on

> > the brink of passing out. I can tell when they

> are

> > getting too low and have to get some protein in my

> > system right away. It's amazing how the protein

> > brings my sugar in line.

> >

> > I was eating a piece of cheese when this happens

> but

> > now that I'm off dairy, starches, grain and fats,

> I'm

> > finding it harder to find something legal to munch

> on

> > to bring the sugar back up. Maybe I should eat a

> > carrot but that would be sugar and not protein.

> The

> > diet calls for 1/2 grapefruit every morning but I

> am

> > finding that this raises my blood sugar quickly so

> I

> > have opted for two slices of turkey bacon and that

> > seems to help my sugar go within 95-110 within a

> very

> > short period of time. I'm not on insulin and

> although

> > the doctor prescribed Glucopage - I have not

> started

> > to take it. The reason I'm really afraid of it is

> > that my sugar readings would drop to the 70's

> without

> > the glucopage so I can't imagine what they would

> do

> > with it.

> >

> > Still trying to figure this out. One thing is

> very

> > sure, if I have normal blood sugar readings, I am

> not

> > dizzy. My equilibium is much more normal and I

> have

> > found myself able to walk more which is a huge

> change

> > for me. After over 4 years of daily dizzies -

> this is

> > a wonderful feeling. I am finding that I can even

> do

> > a little housework now without feeling horrible

> and I

> > really like that.

> >

> > Alice

> >

> >

> >

> >

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Thanks - That answer helped a lot, Laurie.

How is the healing coming along with your arm? You

must still be out of school. Have you ever been out

this long before?

Alice

--- Laureta Fitzgerald

wrote:

> Alice

>

> They were prepared to give me insulin if my glucose

> level went high. It was

> low on its own. They had to hold my blood pressure

> meds because that was

> also low. They gave me carbs with protein and

> continued the IV until my

> blood sugar was stable - the next day sometime.

> gets very sick to her

> stomach with surgery and my dysautonomia seems to

> get worse.

>

> When my mother had her stroke (SLE?) they gave her

> lots of glucose and then

> some insulin. She never had it before or again.

>

> laurie

>

> >

> > Reply-To:

> > Date: Sat, 08 Mar 2003 01:05:08 -0000

> > To:

> > Subject: Blood Sugar Readings

> >

> > Laurie,

> >

> > The other day, you posted that when you had your

> surgery, your blood

> > sugar readings were kept extremely low because

> they gave you insulin.

> > I can't remember the exact readings but it seems

> to me they were in

> > the 50's and 60's. I have a very noticeable

> problem if my sugar goes

> > into the 70's. I begin to shake, am very weak and

> become confused.

> > I'm wondering if this is abnormal since I don't

> think I'd do very

> > well if my readings were in the 50's or 60's.

> >

> > My sugar readings on this basically carb-free diet

> are staying in the

> > 80-115 range. This isn't an easy thing for me to

> do but getting up

> > in the morning and finding my readings under 120

> every day seems to

> > make me feel better - much more able to cope.

> >

> > I just wonder what others have to say about this.

> What are your

> > goals as far as blood sugar if you are dealing

> with this as a medical

> > issue?

> >

> > Alice

> >

> >

> >

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Janet,

is it considered diabetes also when your blood sugars rise too high due to hte dawn effect? what causes it to go overboard only in the early morning or late night like this? My son will be fine all day actually he is hypoglycemic and will go into hte 40's during the day but if you take it around 4 or 5 in the AM it is around 230-250.

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Dear Alice,

To the best of my knowledge, when a person with diabetes is hit with

seriously low blood sugar, carbohydrate must be used--and quickly.

Orange juice, sweets, etc. Pharmacies carry glucose for this purpose--in

tablets, gels, etc. I can never be without it or I know I would lose

consciousness.

There is also the dangerous situation of hypoglycemic unawareness,

caused by autonomic neuropathy. Like you, I can have many nasty symptoms

when my blood sugar is in the 70's: shakiness, etc. However, I've also

had none to minimal symptoms when I found readings in the 40's and

50's--life-threatening. I am trying

for tight control and dieting. Unfortunately, this makes one a sitting

duck for these complications.

Please be careful, Alice!

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Dear Janet,

Blood sugar rises as morning approaches. This is called the Somogyi

effect, or dawn effect. Your body is getting ready for its fuel use to

increase with activity. Like you, sometimes this is exaggerated in my

case, raising the glucose too high. I find this a tough thing to manage.

I also believe that mito and diabetes create a different kind of entity,

like bs rising after exercise. We need docs who believe us when we tell

them of our experiences.

Good luck!

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Alice

I think my arm is coming along fine. I have pain at times, but I think it is

just the healing process. I see the doc on Mon and hope he says I can go

without the sling. I should be starting therapy next week. It is scary to

try anything with the arm until I get the go ahead from the doc.

I was off work for 7.5 weeks when I injured it and Mon will be six weeks

this time around. My long term disability kicked in the 3rd. of this month.

If out beyond a certain point, my insurance will pay a specialist to help me

get SSD. Once I know how long I will be off, I will have lots of decisions

to make. My supervisor thinks I will be out the remainder of the year -

maybe she knows something I don't know. I will be discussing this with the

doc on Mon. School is keeping me in the loop with lots of questions.

Thanks for asking.

laurie

>

> Reply-To:

> Date: Fri, 7 Mar 2003 21:52:32 -0800 (PST)

> To:

> Subject: Re: Blood Sugar Readings

>

> Thanks - That answer helped a lot, Laurie.

>

> How is the healing coming along with your arm? You

> must still be out of school. Have you ever been out

> this long before?

>

> Alice

> --- Laureta Fitzgerald

> wrote:

>> Alice

>>

>> They were prepared to give me insulin if my glucose

>> level went high. It was

>> low on its own. They had to hold my blood pressure

>> meds because that was

>> also low. They gave me carbs with protein and

>> continued the IV until my

>> blood sugar was stable - the next day sometime.

>> gets very sick to her

>> stomach with surgery and my dysautonomia seems to

>> get worse.

>>

>> When my mother had her stroke (SLE?) they gave her

>> lots of glucose and then

>> some insulin. She never had it before or again.

>>

>> laurie

>>

>>>

>>> Reply-To:

>>> Date: Sat, 08 Mar 2003 01:05:08 -0000

>>> To:

>>> Subject: Blood Sugar Readings

>>>

>>> Laurie,

>>>

>>> The other day, you posted that when you had your

>> surgery, your blood

>>> sugar readings were kept extremely low because

>> they gave you insulin.

>>> I can't remember the exact readings but it seems

>> to me they were in

>>> the 50's and 60's. I have a very noticeable

>> problem if my sugar goes

>>> into the 70's. I begin to shake, am very weak and

>> become confused.

>>> I'm wondering if this is abnormal since I don't

>> think I'd do very

>>> well if my readings were in the 50's or 60's.

>>>

>>> My sugar readings on this basically carb-free diet

>> are staying in the

>>> 80-115 range. This isn't an easy thing for me to

>> do but getting up

>>> in the morning and finding my readings under 120

>> every day seems to

>>> make me feel better - much more able to cope.

>>>

>>> I just wonder what others have to say about this.

>> What are your

>>> goals as far as blood sugar if you are dealing

>> with this as a medical

>>> issue?

>>>

>>> Alice

>>>

>>>

>>>

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Dear ,

Thank you again for your caring words. Because I've

had such a bad experience with blood sugar readings in

the 70's, I'm quick to get a protein in my system

which seems to bring it back to a more acceptable

reading quickly. I have also eaten a couple of

mouthfulls of applesauce. Do you think this is a good

solution to the problem?

I very much remember watching my aunt, who was insulin

dependent from her early forty's until she passed away

at 85, who always carried miniature chocolate bars in

her purse. I was very consious of her self care of

the diabetes and spent a lot of time with her. I was

with her during those times of the sugar drops and

would help her get the chocolate bars into her system.

There were times when my life was regulated by her

very stringent schedule of food intake. Sometimes we

would laugh because she never failed to say at a

restaurant that they " gave her too much " and we always

had to convince her that she could take a doggie bag

home. But I did see her in a few serious stupors

where she didn't appear to know what she was doing.

Since she took Synthoroid too (which I'm taking) it

was sometimes hard to decide what was going on-her

blood sugar or her thyroid- but 95% of the time, it

was the sugar dips.

She lived with it for over 40 years and managed it

quite well most of those years. We had often thought

that she would pass away before my mother but this was

not the case. She outlived my Mom by many years. Dad

always said that Mom wasn't diabetic like Aunt Betty

so he would feed her bismarks and ice cream when no

one was around. She was chair/bed bound and I think

Dad just felt badly for her so he compromised and gave

her anything she wanted. Only a few years ago, I was

able to get Mom's hospital records from a very severe

episode when we almost lost her. Her blood sugar

reading was 760 when she was admitted and they were

concerned about kidney failure.

Mom died from the affects of what we believe was Mito.

She was racked with seizures from her 50's on and

they were at times uncontrollable. They gave her

depakote as a " miracle drug " which was the end of her

mobility. She was never the same after the depakote

which they quickly changed to dilantin. She developed

a sore on her leg that wouldn't heal. The doctors

said she was too medically fragile to amputate, which

is what she needed to survive. It was gangriene. I

live in fear of the same thing because it a the most

horrible way to die. Thus - I fight this diabetes

like crazy. All three of us - my two sisters and

myself - have diabetes.

As you know, I'm working very hard with diet. I am

afraid to take the glucopage but know that if I did, I

could alter my diet some. My PCP and endocrinologist

both want me to take it but I still have the

prescription sitting in the medicine cabinet unused.

There's just something about it that I don't feel

comfortable about. Maybe it's because I've seen what

meds have done to my family and this one can be

dangerous. Living alone, I'm very much afraid that

the sugar will dip too fast before I'm aware of it and

I won't be able to help myself.

You see, I'm very consious of the diabetes. That

condition has been a part of my life for many years

and I have to admit that it was very concerning for me

when Dr Cohen's report told me I had it. It crept up

on me like a theif in the night after high dose

steriod treatment to jolt back my hearing.

I'm really trying my best to keep it under control.

Why do you feel like a sitting duck for complications

with dietary methods of control?

Alice

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thanks for your answer brenda

fortunately, my pcp and the mito doc believe me. my pcp has a chemistry

background and she thinks the build up of lactic acid with exercise causes

the blockage of insulin.

it is the endrocronologist who does not believe me until this last time.

Her office is on the 5th floor of a medical building. It is a very

congested parking lot and I raced to get there. When I got there for my

appointment I was told they had called my house and left a message that they

had to change my appointment. So, I went back down using the elevator. It

was only 20 minutes later so I sat in my car. Then, the nurse took my blood

sugar 400. I had forgotten my checkbook in the car and wanted to pay there

copay so I would not have a problem again with them so I went back down to

the parking lot and got my checkbook. Then went up the stairs because the

elevator was taking too long.

Then, after being in the room with the nurse and dietician (who never

believe me when I tell them many times I do not eat anything after 6 pm)

because my b/s are so high.

the endrocronologist comes in. this is like an hour after they took the

first b/s. Mind you i have been sitting in the examing room talking to

these two people--nothing to eat or drink. Lo and behold my b/s is 450.

The endrocronologist then believed me about the exercise causing the blood

sugar to go up. Now she wants me to take a couple of units based on a

sliding scale when I am doing exercise. It worked the first couple of days

but I forget most of the time--I will have to get into a routine of doing

it.

Janet

Re: Blood Sugar Readings

> Dear Janet,

> Blood sugar rises as morning approaches. This is called the Somogyi

> effect, or dawn effect. Your body is getting ready for its fuel use to

> increase with activity. Like you, sometimes this is exaggerated in my

> case, raising the glucose too high. I find this a tough thing to manage.

> I also believe that mito and diabetes create a different kind of entity,

> like bs rising after exercise. We need docs who believe us when we tell

> them of our experiences.

> Good luck!

>

>

>

> Medical advice, information, opinions, data and statements contained

herein are not necessarily those of the list moderators. The author of this

e mail is entirely responsible for its content. List members are reminded of

their responsibility to evaluate the content of the postings and consult

with their physicians regarding changes in their own treatment.

>

>

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Guest guest

good idea--peanut butter. I have not had a peanut butter sandwich since my

son decided a couple of years ago he does not like it anymore. I always

have cheese in my lunch box though.

Janet

Re: Blood Sugar Readings

> > >

> > > Thank you, Janet. I realy appreciate your answers

> > as

> > > I have wondered why I feel so badly if the sugar

> > > readings are under 80 actually. I feel as if I'm

> > on

> > > the brink of passing out. I can tell when they

> > are

> > > getting too low and have to get some protein in my

> > > system right away. It's amazing how the protein

> > > brings my sugar in line.

> > >

> > > I was eating a piece of cheese when this happens

> > but

> > > now that I'm off dairy, starches, grain and fats,

> > I'm

> > > finding it harder to find something legal to munch

> > on

> > > to bring the sugar back up. Maybe I should eat a

> > > carrot but that would be sugar and not protein.

> > The

> > > diet calls for 1/2 grapefruit every morning but I

> > am

> > > finding that this raises my blood sugar quickly so

> > I

> > > have opted for two slices of turkey bacon and that

> > > seems to help my sugar go within 95-110 within a

> > very

> > > short period of time. I'm not on insulin and

> > although

> > > the doctor prescribed Glucopage - I have not

> > started

> > > to take it. The reason I'm really afraid of it is

> > > that my sugar readings would drop to the 70's

> > without

> > > the glucopage so I can't imagine what they would

> > do

> > > with it.

> > >

> > > Still trying to figure this out. One thing is

> > very

> > > sure, if I have normal blood sugar readings, I am

> > not

> > > dizzy. My equilibium is much more normal and I

> > have

> > > found myself able to walk more which is a huge

> > change

> > > for me. After over 4 years of daily dizzies -

> > this is

> > > a wonderful feeling. I am finding that I can even

> > do

> > > a little housework now without feeling horrible

> > and I

> > > really like that.

> > >

> > > Alice

> > >

> > >

> > >

> > >

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Glad to hear you are getting better Laurie.

Blood Sugar Readings

> >>>

> >>> Laurie,

> >>>

> >>> The other day, you posted that when you had your

> >> surgery, your blood

> >>> sugar readings were kept extremely low because

> >> they gave you insulin.

> >>> I can't remember the exact readings but it seems

> >> to me they were in

> >>> the 50's and 60's. I have a very noticeable

> >> problem if my sugar goes

> >>> into the 70's. I begin to shake, am very weak and

> >> become confused.

> >>> I'm wondering if this is abnormal since I don't

> >> think I'd do very

> >>> well if my readings were in the 50's or 60's.

> >>>

> >>> My sugar readings on this basically carb-free diet

> >> are staying in the

> >>> 80-115 range. This isn't an easy thing for me to

> >> do but getting up

> >>> in the morning and finding my readings under 120

> >> every day seems to

> >>> make me feel better - much more able to cope.

> >>>

> >>> I just wonder what others have to say about this.

> >> What are your

> >>> goals as far as blood sugar if you are dealing

> >> with this as a medical

> >>> issue?

> >>>

> >>> Alice

> >>>

> >>>

> >>>

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Janet

I think it makes sense that those with mito would rise with exercise. It is

an energy thing. When the energy gets low, the pancreas doesn't work and the

blood sugar goes up. I was told that the Glucophage would not have much

effect if this was the reason, but it was not an endo that told me this.

laurie

>

> Reply-To:

> Date: Sat, 8 Mar 2003 12:50:22 -0600

> To: < >

> Subject: Re: Blood Sugar Readings

>

> thanks for your answer brenda

>

> fortunately, my pcp and the mito doc believe me. my pcp has a chemistry

> background and she thinks the build up of lactic acid with exercise causes

> the blockage of insulin.

>

> it is the endrocronologist who does not believe me until this last time.

> Her office is on the 5th floor of a medical building. It is a very

> congested parking lot and I raced to get there. When I got there for my

> appointment I was told they had called my house and left a message that they

> had to change my appointment. So, I went back down using the elevator. It

> was only 20 minutes later so I sat in my car. Then, the nurse took my blood

> sugar 400. I had forgotten my checkbook in the car and wanted to pay there

> copay so I would not have a problem again with them so I went back down to

> the parking lot and got my checkbook. Then went up the stairs because the

> elevator was taking too long.

>

> Then, after being in the room with the nurse and dietician (who never

> believe me when I tell them many times I do not eat anything after 6 pm)

> because my b/s are so high.

> the endrocronologist comes in. this is like an hour after they took the

> first b/s. Mind you i have been sitting in the examing room talking to

> these two people--nothing to eat or drink. Lo and behold my b/s is 450.

>

> The endrocronologist then believed me about the exercise causing the blood

> sugar to go up. Now she wants me to take a couple of units based on a

> sliding scale when I am doing exercise. It worked the first couple of days

> but I forget most of the time--I will have to get into a routine of doing

> it.

>

> Janet

> Re: Blood Sugar Readings

>

>

>> Dear Janet,

>> Blood sugar rises as morning approaches. This is called the Somogyi

>> effect, or dawn effect. Your body is getting ready for its fuel use to

>> increase with activity. Like you, sometimes this is exaggerated in my

>> case, raising the glucose too high. I find this a tough thing to manage.

>> I also believe that mito and diabetes create a different kind of entity,

>> like bs rising after exercise. We need docs who believe us when we tell

>> them of our experiences.

>> Good luck!

>>

>>

>>

>> Medical advice, information, opinions, data and statements contained

> herein are not necessarily those of the list moderators. The author of this

> e mail is entirely responsible for its content. List members are reminded of

> their responsibility to evaluate the content of the postings and consult

> with their physicians regarding changes in their own treatment.

>>

>>

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Guest guest

good idea--tuna and miracle whip light on crackers. Or just by itself

>

>Reply-To:

>To: " Mitoldies " < >

>Subject: Blood Sugar Readings

>Date: Sat, 8 Mar 2003 23:00:46 -0500

>

>Alice,

>I battle the hypoglycemia portion of blood sugars everyday. Luckily at

>this point I don't have the high numbers although the docs believe that

>will eventually happen. I have symptoms when my number head south through

>the 80's and into the 70's. Sometimes however I can be in the 50's and not

>even know it. It can be very dangerous and requires careful

>monitoring....which I know you are very good about.

>

>As far as proteins I've found peanut butter to be one of the best, but if

>you can't have that on your diet how about tuna fish? It is a very good

>protein with lots of Omega 3 and now that they have produced them in the

>foil pouches it makes them a lot easier to deal with on the run.

>

>Just a thought.....

>

>Kristie

>

>

>

>Message: 13

> Date: Sat, 08 Mar 2003 01:05:08 -0000

>

>Subject: Blood Sugar Readings

>

>Laurie,

>

>The other day, you posted that when you had your surgery, your blood

>sugar readings were kept extremely low because they gave you insulin.

>I can't remember the exact readings but it seems to me they were in

>the 50's and 60's. I have a very noticeable problem if my sugar goes

>into the 70's. I begin to shake, am very weak and become confused.

>I'm wondering if this is abnormal since I don't think I'd do very

>well if my readings were in the 50's or 60's.

>

>My sugar readings on this basically carb-free diet are staying in the

>80-115 range. This isn't an easy thing for me to do but getting up

>in the morning and finding my readings under 120 every day seems to

>make me feel better - much more able to cope.

>

>I just wonder what others have to say about this. What are your

>goals as far as blood sugar if you are dealing with this as a medical

>issue?

>

>Alice

>

>

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In a message dated 3/8/03 8:52:02 AM Eastern Standard Time, writes:

I have a very noticeable problem if my sugar goes

into the 70's. I begin to shake, am very weak and become confused.

I'm wondering if this is abnormal since I don't think I'd do very

well if my readings were in the 50's or 60's.

Alice,

I'm a little behind on e-mails, sorry! I wanted to jump in though and say that hypoglycemia is a really big problem for me. The past 3 months my blood sugar drops into the 50's and 60's every evening between 4 and 6pm like clockwork. This problem is complicated for me b/c I can't really eat that much and am on TPN. When it does drop, I will eat some bread or something and it will bring it up into the 80's, but the 2 hrs later it will drop again. We have tried everything, including D5 to pull it up, but I get rebound hypoglycemia with IV fluid containing dextrose. My doctors are stumped b/c this don't have any other TPN patients who have this problem.

Starting next week, I am going to have to go on TPN for 20 hrs a day vs the 12 now b/c of the hypoglycemia. I am really dreading this, but my blood sugar is dropping while I am at work, driving, etc and it can be really scary b/c I get really lightheaded with it. I often get symptoms when I am still in the 80's, but usually this occurs b/c my blood sugar is starting to drop and within about 30 minutes it will be in the 50's or 60's. I believe my endocrinologist told me that the symptoms can occur b/c of how quickly it drops....like you could still get symptoms from 110 to 80 if it occurred in a short period of time, but I could be mistaken about that! My memory is awful lately!! :)

Malisa

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,

A NiteBite is a timed released Glucose Bar that helps

to manage hypoglycemia. It is made of sucrose,

protein and uncooked cornstarch and is designed to

deliver glucose into the bloodstream at different

intervals. They are used to lessen the incidence of

low blood sugar without causing high blood sugar.

You cancall them at 1- to get more

information or order them. I had the drug store

order them for me.

They aren't very tasty but they do a good job of

taking care of the problem.

Alice

--- Mrsmurffy@... wrote:

> what is nite bite?

>

>

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In a message dated 3/10/03 1:11:44 PM Eastern Standard Time, writes:

I've often had to be watched very closely when coming off of IV D5/D10 because of how quickly my blood sugars will crash. Is there any way they can change your TPN formula to increase the amount of proteins you are getting?

Kristie,

That's interesting that this happens to you too with D5/D10. I have been told that D5 has so little sugar in it is impossible for blood sugar to drop afterwards. I just love to make the impossible things possible!! :) I actually asked the other day if they could maybe add protein to my IV fluid to balance out the sugar, thinking maybe it would work the same way as eating does. They didn't want to do that b/c of compounding issues, but said it was a good idea. That's when they came up with running the TPN instead of the daily IV fluid and extending the time I am on it.

Malisa :)

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Malisa,

Having a mitochondrial disorder is all about making the impossible possible. I'm sorry the compounding isn't possible for you.

Kristie

Message: 19 Date: Mon, 10 Mar 2003 23:22:17 EST From: Malilibear@...Subject: Re: Blood Sugar ReadingsIn a message dated 3/10/03 1:11:44 PM Eastern Standard Time, writes:> I've often had to be watched very closely when coming off of IV D5/D10 > because of how quickly my blood sugars will crash. Is there any way they > can change your TPN formula to increase the amount of proteins you are > getting?> Kristie,That's interesting that this happens to you too with D5/D10. I have been told that D5 has so little sugar in it is impossible for blood sugar to drop afterwards. I just love to make the impossible things possible!! :) I actually asked the other day if they could maybe add protein to my IV fluid to balance out the sugar, thinking maybe it would work the same way as eating does. They didn't want to do that b/c of compounding issues, but said it was a good idea. That's when they came up with running the TPN instead of the daily IV fluid and extending the time I am on it. Malisa :)

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Kristie,

Just happened to catch your message. I love it--I think it needs to be posted in the office of any doctor we see.

Janet

Re: Blood Sugar Readings

Malisa,

Having a mitochondrial disorder is all about making the impossible possible. I'm sorry the compounding isn't possible for you.

Kristie

Message: 19 Date: Mon, 10 Mar 2003 23:22:17 EST From: Malilibear@...Subject: Re: Blood Sugar ReadingsIn a message dated 3/10/03 1:11:44 PM Eastern Standard Time, writes:> I've often had to be watched very closely when coming off of IV D5/D10 > because of how quickly my blood sugars will crash. Is there any way they > can change your TPN formula to increase the amount of proteins you are > getting?> Kristie,That's interesting that this happens to you too with D5/D10. I have been told that D5 has so little sugar in it is impossible for blood sugar to drop afterwards. I just love to make the impossible things possible!! :) I actually asked the other day if they could maybe add protein to my IV fluid to balance out the sugar, thinking maybe it would work the same way as eating does. They didn't want to do that b/c of compounding issues, but said it was a good idea. That's when they came up with running the TPN instead of the daily IV fluid and extending the time I am on it. Malisa :)Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment.

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