Re: New to this group...please help

[Guest guest]

Wow...it is so strange to hear from people that have the same problem as I have.

I am new to this list serve and I hope to find support and helpful information

and I also look forward to sharing anything I can that may help others. Jen,

your story sounds similar to mine except for the fact that I am still

researching my options. I am 33 years old and I have been dealing with this

fibroid/endometriosis thing for years. However, the past 4 years have been

outrageous and the past 1 year has been almost totally debilitating for me. I

bleed so much sometimes I can't go anywhere but straight to the bathroom. This

past episode was 4 weeks of straight bleeding. The clots are the size of my

tampons or larger and I have no control over this issue. I need to constantly

go to the bathroom every 10 - 15 minutes and once I am there I can't get off of

the toilet for sometimes a full 1/2 an hour!! No lye!!! I have been so very

stressed from all of this, trying to hold down my new job of only 2 months and

it is getting to the point to where I think I may need to make a choice about

whether or not to keep my job. I cannot begin to tell you how devastating this

situation has been for me. I want to work, but I cannot work in this condition.

I am only 33 years old and do not want to go straight for the hysterectomy if

not absolutely needed. But what can I do??? I just had a Laporoscopy /

Histeroscopy / D & C in August and I have done almost 5 months of the Lupron

injections to no avail. Actually since the surgery and the Lupron injections,

my cycles have gone from 2 weeks to almost continually bleeding every day. I

have had about 2 weeks off from bleeding since August. I take Chromagen 400 mgs

a day to replace the lost iron and I am always severely anemic which as you all

know has it's own lovely side effects to contend with. I am married to a

wonderful man who is so patient and caring...but it is putting a strain on our

relationship if you know what I mean. So anyhow, I guess I am not sure what it

is I am looking for from all of you...maybe I am just needing to vent to someone

who really understands the problem, maybe I just need to hear how you all deal

with it? I am trying to get into the University of Michigan to see a specialist

but they cannot get me in until February. What are my options?? Does anyone

know? What are things I should be checking into? Thank you so much for

anything you can offer on this. I will write more later when I have more time.

Anxiously waiting...

Jenine - Southeastern Michigan

[Guest guest]

In a message dated 12/18/02 6:37:33 PM US Mountain Standard Time,

GlitterGirl69@... writes:

> I am trying to get into the University of Michigan to see a specialist but

> they cannot get me in until February. What are my options?? Does anyone

> know? What are things I should be checking into? Thank you so much for

> anything you can offer on this. I will write more later when I have more

> time.

> Anxiously waiting...

> Jenine - Southeastern Michigan

>

I was seeing a doctor of oriental medicine at a local naturopathic clinic.

Bleeding was not one of my problems but he said that he had been able to help

women who had problems with bleeding or pain from fibroids. Have you checked

out any naturopathic or oriental medicine doctors in your area to 'tide you

over' until you see a specialist in February?

Cheryl