Guest guest Posted May 29, 2001 Report Share Posted May 29, 2001 Welcome back Amy and glad to see you hopping right back on track. I have found that when I stayed very close to the ocean I too swelled up and puffed out. Must be the water and did you get a lot of suds when you shampooed your hair? Norma Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2004 Report Share Posted September 17, 2004 Marina, Your English is fine. ) Welcome to the group and I'm glad you found us. Fear is a normal part of the grieving process, if it becomes overwhelming you should talk to your doctor about it...however you should allow yourself to go thru these stages. It's the human minds way of dealing with dramatic change and is perfectly normal. Finding out all you can about IgAN and asking questions here from those " who have been there " can help to calm your fears. Also write down all the questions as they come to you then bring them into your doctor on your next visit. It can help ease the fears by just getting the question onto paper. Only 30-50% of IgAN patients ever reach end stage renal failure, which means most of us will live out our lives with nothing more than a few extra pills and doctors appointments. The odds are in your favor. Remember you aren't alone with this and welcome again to the group. Amy G. Hi everyone First of all, sorry about my english, I will try to do my best about this. I've been reading from the first message here, and it's late at night in Argentina, so I just want to say I'm proud about the great job Pierre has done during this years in this site, helping people understand this patology. I've been recently diagnosed with IgA nephropathy, after a biopsy two mounths ago, so that my brain is an infinit sea of questions, and above all, I'm scared. Thanks to all, and kisses. To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ To unsubcribe via email, iga-nephropathy-unsubscribe Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: http://www.igan.ca/id62.htm Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2004 Report Share Posted September 18, 2004 Hi Farizada, A very warm welcome to our group. I am sorry you have been diagnosed with IgAN of course, and I want you to know that being scared is a very normal response to finding out you have a chronic illness. I would suggest that you first read through our sister site, www.igan.ca and you may find that you feel better understanding more about IgAN. Try not to let IgAN have too much power or control over your life. It is only something you need to manage, not who you are. I hope to encourage you by telling you that the majority of people who have IgAN never reach end stage renal disease. I myself have had symptoms since the 1970's, and I am still not yet on dialysis. There are many here who have had it 20+ years and are still doing well. Welcome again! In a message dated 9/17/2004 8:51:56 PM Pacific Daylight Time, farizada_mardel@... writes: > First of all, sorry about my english, I will try to do my best about > this. > I've been reading from the first message here, and it's late at > night in Argentina, so I just want to say I'm proud about the great > job Pierre has done during this years in this site, helping people > understand this patology. > I've been recently diagnosed with IgA nephropathy, after a biopsy > two mounths ago, so that my brain is an infinit sea of questions, > and above all, I'm scared. > Thanks to all, and kisses. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2004 Report Share Posted November 3, 2004 Hi na, What a special mother to have both a daughter and son go through dialysis and waiting for a transplant. I am glad the daughter got hers, and I hope her son gets a new kidney soon too. We join you in praying for a kidney soon for Pierre! In a message dated 11/3/2004 5:36:40 PM Eastern Standard Time, " na " writes: > > >Hi, special people, I've been reading messages, I'm exhausted, and I >still have to read a lot, but nothing is going to descouraging me at >all.Oh No!!!I want to know everything is going on here. >First of all, I want to tell Pierre that I'm doing a big-huge-great >campain here in Argentina to send you all the best energy we can, in >order to getting your transplant very very soon, I hope the force or >strenght of this positive thinking can help. >I've been reading messages from new people that join the group, and >I also want to tell them welcome to the group. >Besides, I send hugs to all of you wich feel tired, frustrated, >under pressure, sad, etc, I hope you can feel better soon, and to >all of you who have shared good news, I say congratulations, and go >on. >Finally, I knew a 22-year-old girl that was on dialisis since she >was 15, and in Hollidays, Pascua de Resurreccion( I don't know how >to say it in english, sorry)last April, I don't remember exactly the >date, she received a transplant. She was 9th in the list, she was >called from the transplant center, in La Plata, near to Buenos >Aires, and travelled 400 km, to get it. Once there, the people who >were previously on the list, for many reasons they weren't able to >get the transplant. The curious thing is that her mother was praying >and asking to , the one who unties knots, for a miracle. >I talked to her mother and she believes it was a miracle. >Now her son is waiting for a transplant, he has the same disease and >has been waiting almost 8 years in dialisis. God, What a strong >mother! >Well, I need a rest now after all that reading, but continue >tomorrow. >Kisses >na > > > > > > > > >To edit your settings for the group, go to our Yahoo Group >home page: >http://groups.yahoo.com/group/iga-nephropathy/ > >To unsubcribe via email, >iga-nephropathy-unsubscribe >Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: >http://www.igan.ca/id62.htm > >Thank you > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2004 Report Share Posted November 4, 2004 Hi na Nice to hear from you. Pierre Hi everyone > > > Hi, special people, I've been reading messages, I'm exhausted, and I > still have to read a lot, but nothing is going to descouraging me at > all.Oh No!!!I want to know everything is going on here. > First of all, I want to tell Pierre that I'm doing a big-huge-great > campain here in Argentina to send you all the best energy we can, in > order to getting your transplant very very soon, I hope the force or > strenght of this positive thinking can help. > I've been reading messages from new people that join the group, and > I also want to tell them welcome to the group. > Besides, I send hugs to all of you wich feel tired, frustrated, > under pressure, sad, etc, I hope you can feel better soon, and to > all of you who have shared good news, I say congratulations, and go > on. > Finally, I knew a 22-year-old girl that was on dialisis since she > was 15, and in Hollidays, Pascua de Resurreccion( I don't know how > to say it in english, sorry)last April, I don't remember exactly the > date, she received a transplant. She was 9th in the list, she was > called from the transplant center, in La Plata, near to Buenos > Aires, and travelled 400 km, to get it. Once there, the people who > were previously on the list, for many reasons they weren't able to > get the transplant. The curious thing is that her mother was praying > and asking to , the one who unties knots, for a miracle. > I talked to her mother and she believes it was a miracle. > Now her son is waiting for a transplant, he has the same disease and > has been waiting almost 8 years in dialisis. God, What a strong > mother! > Well, I need a rest now after all that reading, but continue > tomorrow. > Kisses > na > > > > > > > > > To edit your settings for the group, go to our Yahoo Group > home page: > http://groups.yahoo.com/group/iga-nephropathy/ > > To unsubcribe via email, > iga-nephropathy-unsubscribe > Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: > http://www.igan.ca/id62.htm > > Thank you > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2006 Report Share Posted February 22, 2006 Hello, Just a daily post to say hello and enjoy reading all our group emails. The Arimidex is a strange drug. Last night I woke up and it felt like my feet were broken. The other night it was my middle finger. After I get up and move around it is ok; but I haven't slept too good in the last week. I guess that is a side effect re: "bone pain". I also have this rash or bumps on my left side under my eye and by my nose. My bc was in the left breast also. I had this right before my bc was diagnosed. It scares me as they are like blisters and that it was a sign that I had cancer. Probably just paranoid but any feed back would be appreciated. SharonC SHARON COLEY DIRECTOR OF SALES DOUBLETREE HOTEL LOS ANGELES/ROSEMEAD 888 MONTEBELLO BLVD. ROSEMEAD, CA 91770 Brings words and photos together (easily) with PhotoMail - it's free and works with Yahoo! Mail. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2006 Report Share Posted February 22, 2006 Sharon, Sorry to hear you are having so much pain. I will keep you in my prayers. Hugs nne Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.html Check out my breast cancer ornaments at:http://www.geocities.com/chucky5741/bcornament.htmlalso check out my other ornaments and lots of nice gifts at:http://www.cancerclub.com re: Hi Everyone Hello, Just a daily post to say hello and enjoy reading all our group emails. The Arimidex is a strange drug. Last night I woke up and it felt like my feet were broken. The other night it was my middle finger. After I get up and move around it is ok; but I haven't slept too good in the last week. I guess that is a side effect re: "bone pain". I also have this rash or bumps on my left side under my eye and by my nose. My bc was in the left breast also. I had this right before my bc was diagnosed. It scares me as they are like blisters and that it was a sign that I had cancer. Probably just paranoid but any feed back would be appreciated. SharonC SHARON COLEY DIRECTOR OF SALES DOUBLETREE HOTEL LOS ANGELES/ROSEMEAD 888 MONTEBELLO BLVD. ROSEMEAD, CA 91770 Brings words and photos together (easily) withPhotoMail - it's free and works with Yahoo! Mail. Quote Link to comment Share on other sites More sharing options...
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