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In a message dated 5/14/2003 6:09:16 AM Eastern Daylight Time,

surfacehippy writes:

>

> Anyone have foot problems related to modified gait? I am 6

> months post op, both hips dysplastic, and now I am realizing as I

> walk every day how screwed up my feet are. Weak arches and a

> tendency to lean to the inside. I have orthotics, but this is not

> nearly enough support.

>

> The hips feel great now, but I'm sure my legs and feet are

> screwed up from a lifetime of compensating for bad hips. I'm

> looking for suggestions -- exercises for the feet. Does physical

> therapy help?

>

> Thanks,

>

>

>

No dysphasia but I have the same foot a leg problems but the more I due

physical therapy the better I am I due feel a difference also found out

walking backwards around the track has help with my gait I usually go every

other lap backwards big difference (1mile) also helps with my balance I am 7

months post op DR Goldberg University Hospt. Cleveland Oh C+ RH I feel very

lucky I also recommend water exercise. Good

luck..........................Carmen

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  • 1 year later...

Dear Donnelle,

Will be praying for both of you everyday.

Karima

Caregiver scared into action..update on Glenn..and A very

humbling experience...

>

> Good Morning ...

>

> I haven't written lately as Glenn has been in severe pain and really sick

> the last 3 weeks. He was hospitalized for 6 days in the cancer wing of a

local

> hospital and released with no real diagnosis and no remedy or relief from

> the pain, then misdiagnosed several times since. His symptoms were

severe

> abdominal pain, diarhea or nothing for days, not eating, sleeping all the

time.

> We spent the better part of Thurs. and Friday at s Hopkins Hospital,

when

> I took him in and basically told the dr. we are not leaving until we have

a

> plan or an answer!!! They could look at Glenn and clearly tell he was in

> pain, weak, pasty-looking. Put him on IV first thing after they took

blood, of

> course. Since the infiltration of chemo into his body in August, he has

had

> only one week of chemo, b/c he's just been too ill to handle anything

else.

> He's been on a barage of different anti-biotics and pain medication for

the

> infiltration of poison, since August. For a week, he was on morphine at

the

> hospital, tests were run, but nothing really diagnosed. They believed

the

> nerves in the colon shutting down, at first, was a result of the ABT751

chemo

> study medication. And it probably was, but more was going on that wasn't

> diagnosed!!! He had taken chemo 7 days and was off 7 when he became ill.

He will

> not be able to participate in that study and he's very disappointed!!

>

> Went to onc the day after released from hosp. on 10/15, who thought it

was a

> huge C-Diff bacterial infection from all the anti-biotics, which attacks

the

> colon. A CT Scan revealed " something " all along several sections of the

> colon. After week of medication, with no relief for Glenn, on the

22nd, my

> son took him back to onc who said " it's a huge infection and will take

some

> time to heal " . This day was a " good " one...he actually ate a meal, so we

were

> hopeful again. It didn't last and he was ill and in pain in the middle

of the

> night again. He hasn't eaten enough to keep a bird alive since Oct. 5th.

>

> On Thurs. last week, I stayed home from work and took him back to JHH,

armed

> with all my internet research...suggesting it was pseudomembranous

> colitis...again from the barage of anti-biotics he was on..telling them we

weren't

> leaving (in a nice way) without a plan or diagnosis. They were convinced

he was

> constipated. His stomach was distended. I told them there is no way

he's

> constipated...he hasn't eaten enough food!!!! After a lovely enema with

NO

> results, the Ct Scan results came back. And I was right!!! Or else they

just

> said that to get rid of us...LOL What scared me was the severity and

length

> of Glenn's pain and not eating, weakness, etc. And Psuedomem. Colitis

can be

> life-threatening...can develop in to ToxicColon resulting in colon bag,

> etc. I wasn't leaving the hospital until I knew for sure...well, I still

don't

> really know, " for sure " ...I only know what the onc told us!!! But, we

did

> get a colonoscopy scheduled for Friday instead of Nov. 15th.

>

> At this point, I don't believe this, but there is still some thoughts

that

> perhaps the cancer may be back at the original site of the colon

resection,

> lymph node missed or some scar tissue business going on at that site, so

a

> colonoscopy will be done on Friday. Amazing what they can get scheduled

when they

> want/need to...usually takes weeks or more to get one scheduled!!! At

least

> with the colonoscopy, they should be able to tell what's really going

on!!!

> So scary!!!

>

> Such an INSIDIOUSLY HORRIBLE DISEASE!!! No words or number of adjectives

> can describe this disease and what it does to people and their loved

ones!!

>

>

> Humbling..to say the least....while at the hospital on Friday, they

brought

> the babies and children from the children's cancer wing over to all the

> nurses stations to Trick-or-Treat. They were each in their own little

wagons

> pulled by a Mom or Dad, with their little costumes on, laughing for the

moment,

> off their IVs, with their favorite little toys or stuffed animals in

their

> wagons with them. I was a little emotional anyway, but this picture

really

> turned on the tears!!! To know what pain and suffering Glenn has been

through the

> last year...and to see these children, some with little bald heads, and

know

> that they are going through their own hell on earth was absolutely

> gut-wrenchingly sad, heart-breaking and very humbling!!! Little

children...so sick

> and not able to even understand!! How very lucky I am, my children and

> grandchildren are healthy!!!

>

> Please pray for us...we need strength...and a correct diagnosis would be

> good also. We need to get Glenn well enough to get him back in to

chemo!!!

> Thanks for letting me vent....Donelle

>

> P.S. Seeing these children has only made me want to help with providing

> dollars towards RESEARCH even more than before. We need to FIND A

CURE!!! If

> you are so inclined, please help by going to the link below. I know you

know

> someone with Cancer!!! Or, thank God, a Survivor!!

>

> _http://www.GrandmommyandmeCustomScrapbooks.com_

> (http://www.GrandmommyandmeCustomScrapbooks.com)

>

> For CANCER GIFTS for the patient, survivor and care-giver, click on the

> store link above and go to " Cancer Gifts " ...all profits specifically

designated

> to RESEARCH and will go to s Hopkins Hospital in Baltimore, MD and

The

> American Cancer Society. Thank you from the bottom of my heart!!!

>

>

>

>

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Yes Donna,

each day is a gift...

And God Bless You and God Bless Rick as he makes his transition. He would

be so proud of you.

In the Light, In the Love, In the Glory,

Karima

Caregiver scared into action..update on Glenn..and A very

humbling experience...

>

> Good Morning ...

>

> I haven't written lately as Glenn has been in severe pain and really sick

> the last 3 weeks. He was hospitalized for 6 days in the cancer wing of a

local

> hospital and released with no real diagnosis and no remedy or relief from

> the pain, then misdiagnosed several times since. His symptoms were

severe

> abdominal pain, diarhea or nothing for days, not eating, sleeping all the

time.

> We spent the better part of Thurs. and Friday at s Hopkins Hospital,

when

> I took him in and basically told the dr. we are not leaving until we have

a

> plan or an answer!!! They could look at Glenn and clearly tell he was in

> pain, weak, pasty-looking. Put him on IV first thing after they took

blood, of

> course. Since the infiltration of chemo into his body in August, he has

had

> only one week of chemo, b/c he's just been too ill to handle anything

else.

> He's been on a barage of different anti-biotics and pain medication for

the

> infiltration of poison, since August. For a week, he was on morphine at

the

> hospital, tests were run, but nothing really diagnosed. They believed

the

> nerves in the colon shutting down, at first, was a result of the ABT751

chemo

> study medication. And it probably was, but more was going on that wasn't

> diagnosed!!! He had taken chemo 7 days and was off 7 when he became ill.

He will

> not be able to participate in that study and he's very disappointed!!

>

> Went to onc the day after released from hosp. on 10/15, who thought it

was a

> huge C-Diff bacterial infection from all the anti-biotics, which attacks

the

> colon. A CT Scan revealed " something " all along several sections of the

> colon. After week of medication, with no relief for Glenn, on the

22nd, my

> son took him back to onc who said " it's a huge infection and will take

some

> time to heal " . This day was a " good " one...he actually ate a meal, so we

were

> hopeful again. It didn't last and he was ill and in pain in the middle

of the

> night again. He hasn't eaten enough to keep a bird alive since Oct. 5th.

>

> On Thurs. last week, I stayed home from work and took him back to JHH,

armed

> with all my internet research...suggesting it was pseudomembranous

> colitis...again from the barage of anti-biotics he was on..telling them we

weren't

> leaving (in a nice way) without a plan or diagnosis. They were convinced

he was

> constipated. His stomach was distended. I told them there is no way

he's

> constipated...he hasn't eaten enough food!!!! After a lovely enema with

NO

> results, the Ct Scan results came back. And I was right!!! Or else they

just

> said that to get rid of us...LOL What scared me was the severity and

length

> of Glenn's pain and not eating, weakness, etc. And Psuedomem. Colitis

can be

> life-threatening...can develop in to ToxicColon resulting in colon bag,

> etc. I wasn't leaving the hospital until I knew for sure...well, I still

don't

> really know, " for sure " ...I only know what the onc told us!!! But, we

did

> get a colonoscopy scheduled for Friday instead of Nov. 15th.

>

> At this point, I don't believe this, but there is still some thoughts

that

> perhaps the cancer may be back at the original site of the colon

resection,

> lymph node missed or some scar tissue business going on at that site, so

a

> colonoscopy will be done on Friday. Amazing what they can get scheduled

when they

> want/need to...usually takes weeks or more to get one scheduled!!! At

least

> with the colonoscopy, they should be able to tell what's really going

on!!!

> So scary!!!

>

> Such an INSIDIOUSLY HORRIBLE DISEASE!!! No words or number of adjectives

> can describe this disease and what it does to people and their loved

ones!!

>

>

> Humbling..to say the least....while at the hospital on Friday, they

brought

> the babies and children from the children's cancer wing over to all the

> nurses stations to Trick-or-Treat. They were each in their own little

wagons

> pulled by a Mom or Dad, with their little costumes on, laughing for the

moment,

> off their IVs, with their favorite little toys or stuffed animals in

their

> wagons with them. I was a little emotional anyway, but this picture

really

> turned on the tears!!! To know what pain and suffering Glenn has been

through the

> last year...and to see these children, some with little bald heads, and

know

> that they are going through their own hell on earth was absolutely

> gut-wrenchingly sad, heart-breaking and very humbling!!! Little

children...so sick

> and not able to even understand!! How very lucky I am, my children and

> grandchildren are healthy!!!

>

> Please pray for us...we need strength...and a correct diagnosis would be

> good also. We need to get Glenn well enough to get him back in to

chemo!!!

> Thanks for letting me vent....Donelle

>

> P.S. Seeing these children has only made me want to help with providing

> dollars towards RESEARCH even more than before. We need to FIND A

CURE!!! If

> you are so inclined, please help by going to the link below. I know you

know

> someone with Cancer!!! Or, thank God, a Survivor!!

>

> _http://www.GrandmommyandmeCustomScrapbooks.com_

> (http://www.GrandmommyandmeCustomScrapbooks.com)

>

> For CANCER GIFTS for the patient, survivor and care-giver, click on the

> store link above and go to " Cancer Gifts " ...all profits specifically

designated

> to RESEARCH and will go to s Hopkins Hospital in Baltimore, MD and

The

> American Cancer Society. Thank you from the bottom of my heart!!!

>

>

>

>

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