Guest guest Posted October 11, 2003 Report Share Posted October 11, 2003 Geo, I am presently on a genetic form of Zanaflex and only it if I've had a bad day and they are 10mg. Don't know if that would also cause the muscle weakness in the lung, I guess it would..........Flora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2003 Report Share Posted October 12, 2003 Hi Jo yes nothing has changed much at all i seem to stay pretty much at the same level .I have some days better than others when i feel like im better but not to be .this gives me false hopes and i get cocky and want to move faster than i should and i end up catching myself from falling this to me is worse than progressing or staying the same , Because you can get hurt GEO Geo Hi Geo: Thanks for your reply. No I am not presently on Baclofen. Have tried it twice, also Neurontin and Zanoflex and am unable to take any of the. The only thing I am on now is a sleeping pill, Vit. E,C and Q10 to help boost my enzymes. I have had 3 EMG's done and they show slight abnormalities but nothing too serious so that is why my diagnosis has remained PLS to date. Hope things are okay with you. Take care. Jo! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2003 Report Share Posted October 12, 2003 Hi Flora these Meds are muscle relaxants and the disease weakens the muscles so who knows .I dont think anyone knows for sure GEO Re: Geo Geo, I am presently on a genetic form of Zanaflex and only it if I've had a bad day and they are 10mg. Don't know if that would also cause the muscle weakness in the lung, I guess it would..........Flora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2004 Report Share Posted January 7, 2004 Geo, Geo. If I'm not mistaken we have both cockroaches and palmetto bugs. Palmetto bugs do fly and roaches just scurry fast. I really don't see any of gods creatures until we have we have a drought period and anyway those lizards (camellias) eat them.........Well, today its disappointing its was 45 degrees this morning its that darn NORTHERN weather that's creeping down here.....Flora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2004 Report Share Posted January 7, 2004 Geo you're right I've lived here since 1955 so my blood is very thin and we do get chilled easily. Hope you do go the Orlando for the meeting. Doug and I plan on going..............Flora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2004 Report Share Posted January 7, 2004 I remember in 76 when we moved back from Fla. the night before it snowed in Sunrise no joke .You have your share of chilly weather as your blood thins after a while and you get chilled easier i remember i worked in construction and we would wear long shirt to work and by 10:00 were taking them off .GEO Re: Geo Geo, Geo. If I'm not mistaken we have both cockroaches and palmetto bugs. Palmetto bugs do fly and roaches just scurry fast. I really don't see any of gods creatures until we have we have a drought period and anyway those lizards (camellias) eat them.........Well, today its disappointing its was 45 degrees this morning its that darn NORTHERN weather that's creeping down here.....Flora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2004 Report Share Posted January 8, 2004 Geo, that would be great if you could make it. You will feel so great after meeting another PLS person. You will not feel alone.........Flora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2004 Report Share Posted January 8, 2004 GEO If it's important to you to meet some of us, you'll find a way, and be happy that you did. How's that for a little extra pressure! :-) Alone we can do so little. Together we can do so much. Helen Keller (1880-1968) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2004 Report Share Posted January 8, 2004 We drive usually and my sister and brother in law follow but they want us to fly ..well that way it would put us right in Orlando Airport ? but then we would have to rent a car to go to Jupiter ( Dean Stadium ) and when they wanted to stay for the whole game Whereas we usually leave early so i can get a nap we would be stuck .Whereas if we drive we can do and go at will .We also have Friends who live in Hollywood Fla. who want us to come down when we are down there In Jupiter .It gets Confusing But Con and i will come up with something ..They plan this every year ,the game schedules etc. (ps ) i would sure like to meet the people who helped me feel like im not alone . GEO Re: Geo Geo you're right I've lived here since 1955 so my blood is very thin and we do get chilled easily. Hope you do go the Orlando for the meeting. Doug and I plan on going..............Flora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2004 Report Share Posted January 8, 2004 GEO -- great! Alone we can do so little. Together we can do so much. Helen Keller (1880-1968) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2004 Report Share Posted January 8, 2004 Boy you sure know how to make a guy feel good LOL the boss said ok So ile be sending my money in to Kathi GEO Re: Geo GEO If it's important to you to meet some of us, you'll find a way, and be happy that you did. How's that for a little extra pressure! :-) Alone we can do so little. Together we can do so much. Helen Keller (1880-1968) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2004 Report Share Posted January 8, 2004 Well Flora i got the official OK from the boss GEO Re: Geo Geo, that would be great if you could make it. You will feel so great after meeting another PLS person. You will not feel alone.........Flora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2004 Report Share Posted January 8, 2004 Geo, that is great see you soon.........Flora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2004 Report Share Posted January 31, 2004 Well Geo, I've sneezed and thrown my back out twice..........Flora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2004 Report Share Posted February 1, 2004 Geo, yes it is cold here but by noon. Its not to bad but I hate this rain we are having just drip drip all day long yesterday. Sneezing is hard to know when its going to happen. I can be sitting on the edge of the bed and down I go. Thank goodness it only few feet to fall. Flora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2004 Report Share Posted February 1, 2004 Well you see the more we talk to each other the more we find we have in common even though it's not good .Also my Laugh has gone from a good belly type laugh to a strangled running out of air type laugh .That i attribute to the diaphram not working like it should .If i feel a sneeze coming i grab something Later GEO( ps) i see the weathers not too hot there Re: Geo Well Geo, I've sneezed and thrown my back out twice..........Flora Quote Link to comment Share on other sites More sharing options...
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