Guest guest Posted July 11, 2001 Report Share Posted July 11, 2001 Randi, So glad to see you made it over here. Congrats again on being pg!! Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2001 Report Share Posted July 11, 2001 Randi, So glad to see you made it over here. Congrats again on being pg!! Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2001 Report Share Posted July 11, 2001 Randi, Hi sweetie, welcome and congratulations! I'm so very excited for you. You will have your baby in your arms before you know. I think lots of the ladies are surprised just how fast everything goes by. Trust me, enjoy this time, it's so very special! Love & hugs, Jo-Ann Hi Everyone! Hi Ladies!! Well...I am so happy to be here! I am 7 weeks 2 days pg! YAY!! I can't wait to talk to all of you, and I really can't wait to have the baby here in my arms....(I have a little while to wait...LOL) ((HUGS)), Randi Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2001 Report Share Posted July 11, 2001 Randi, Hi sweetie, welcome and congratulations! I'm so very excited for you. You will have your baby in your arms before you know. I think lots of the ladies are surprised just how fast everything goes by. Trust me, enjoy this time, it's so very special! Love & hugs, Jo-Ann Hi Everyone! Hi Ladies!! Well...I am so happy to be here! I am 7 weeks 2 days pg! YAY!! I can't wait to talk to all of you, and I really can't wait to have the baby here in my arms....(I have a little while to wait...LOL) ((HUGS)), Randi Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2001 Report Share Posted July 11, 2001 Randi, Hello there and welcome! I remember you from the ep group! Congrats again! I am happy you are here too!! Hey, 9 months will be here before you know it!!(smile) Take care. 16wk ep 12-00 ----- Yahoo! Groups is subject to the Yahoo! Terms of Service. Get more from the Web. FREE MSN Explorer download : http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2001 Report Share Posted July 11, 2001 Welcome, Randi!! I'm Amy, mommy to (4), two ectopic angels, and one on the way due November 8th! Glad to have you here!! You're right, you'll have to wait a bit on holding that precious little baby in your arms... but we'll be here to wait with you until you can!! Amy 22w 6d 13 days to go!! Hi Everyone! Hi Ladies!! Well...I am so happy to be here! I am 7 weeks 2 days pg! YAY!! I can't wait to talk to all of you, and I really can't wait to have the baby here in my arms....(I have a little while to wait...LOL) ((HUGS)), Randi Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2001 Report Share Posted July 11, 2001 OOPS!! Silly me!! I forgot to say congrats on the pg!!! Congratulations!!! Amy 22w 6d 13 days to go!! Hi Everyone! Hi Ladies!! Well...I am so happy to be here! I am 7 weeks 2 days pg! YAY!! I can't wait to talk to all of you, and I really can't wait to have the baby here in my arms....(I have a little while to wait...LOL) ((HUGS)), Randi Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2001 Report Share Posted July 11, 2001 Randi, Congatulations on the pg! It's so exciting to have another due date to add to the list. Hopefully I'll be on the list soon. For now, we are just getting through the 6 month wait and I had the HSG today. I've got one little one, Daisy, who turned 2 in June, and 2 ep angels (8/00 and 12/00). We are ttc this month, so send some of that baby dust my way Take care, DeeAnn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2001 Report Share Posted July 11, 2001 Randi, Congatulations on the pg! It's so exciting to have another due date to add to the list. Hopefully I'll be on the list soon. For now, we are just getting through the 6 month wait and I had the HSG today. I've got one little one, Daisy, who turned 2 in June, and 2 ep angels (8/00 and 12/00). We are ttc this month, so send some of that baby dust my way Take care, DeeAnn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2001 Report Share Posted July 11, 2001 Randi, Congatulations on the pg! It's so exciting to have another due date to add to the list. Hopefully I'll be on the list soon. For now, we are just getting through the 6 month wait and I had the HSG today. I've got one little one, Daisy, who turned 2 in June, and 2 ep angels (8/00 and 12/00). We are ttc this month, so send some of that baby dust my way Take care, DeeAnn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2001 Report Share Posted July 11, 2001 Randi - Yay! A new graduate! Welcome to the club. I hope you have a happy and healthy nine months. Have you had the U/S yet? a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2001 Report Share Posted July 11, 2001 Randi - Yay! A new graduate! Welcome to the club. I hope you have a happy and healthy nine months. Have you had the U/S yet? a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2001 Report Share Posted July 11, 2001 Randi - Yay! A new graduate! Welcome to the club. I hope you have a happy and healthy nine months. Have you had the U/S yet? a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2001 Report Share Posted July 12, 2001 Randi, CONGRATULATIONS & WELCOME!! Yes, you do have a bit to wait, but for me it seems like since the first trimester time has gone much much faster. Well it's only been 3 weeks, but it feels like 3 days! I hope time goes quickly for you, but that you also take the time to enjoy this wonderful experience!! -AmyR 15wk5d Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2001 Report Share Posted July 12, 2001 Dear Randi, CONGRATS!!!!!! I am so happy for you. I can't wait to hear more and get to know you better. Welcome to the group! 34 Weeks -- In PregnancyBabiesAfterEctopic@y..., " Jon and Randi Waterman " <jon_waterman@h...> wrote: > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2001 Report Share Posted July 12, 2001 Dear Randi, CONGRATS!!!!!! I am so happy for you. I can't wait to hear more and get to know you better. Welcome to the group! 34 Weeks -- In PregnancyBabiesAfterEctopic@y..., " Jon and Randi Waterman " <jon_waterman@h...> wrote: > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2003 Report Share Posted March 3, 2003 Welcome Jess. Alot of your symptoms sound like mine, plus you are young so I can sympathize with you. Do you have a mito diagnosis? I am 19 and have just begun the mito path. I was diagnosed as having chronic fatigue syndrome since the age of 15. I just have a working diagnosis as of now of a severe carnitine deficiency and mild CoQ10 deficiency. I see Dr. Cohen in Cleveland and have a second appt with him on March. 19th for further testing. Hope you find the answers you are looking for and the support you need. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2003 Report Share Posted March 3, 2003 Hi Jess, Welcome to the list. I found it quite interesting that you had Mono as a senior in high school. I had the same thing when I was a senior. I have had symptoms pretty much since I was very young, but we had no clue either. The only we were ever told is that my mom should watch out for me because my brother who's 3 years older than I am is severely mentally challenged. He functions somewhere around 18 months of age and he's 35 years old. I had seizures and migraines and at about 12 I developed some troublesome GI issues that I never told anyone about and I don't even think I've told anyone til now. I think what it was is Irritable Bowel Syndrome. Now, I have GI issues, Thyroid problems, sleep apnea (going for sleep study soon but we're pretty sure), on anti-seizure meds which also help for my migraines and headaches. I also have muscle weakness and twitching and spasms etc. I am glad you find comfort from the group. This is an awesome group. Alice, the list owner, is my mother. :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2003 Report Share Posted March 3, 2003 Jess I am so glad you posted. We are here for you and want to be part of your extended family. Please continue to post. laurie > " > Reply-To: > Date: Mon, 03 Mar 2003 23:49:37 -0000 > To: > Subject: Hi everyone! > > My name is . I am the daughter of Larry and Sue who just > recently posted. Like them, I have been a silent member of > Mitoldies for quite some time. I get comfort from reading your > positive messages to each other. It's been difficult, as it is for > everyone, knowing I have this disorder that will be with me for the > rest of my life. I joined the Coast Guard when I was 18. My whole > life I had been pretty healthy. I did have stomach and intestinal > problems, but none of us realized it could be linked to something > like this. I was a sprinter throughout middle school and high > school. I did quite well, breaking records. By the 10th grade, my > strength and stamina seemed to lessen a great deal. I was no longer > able to run like I could, so I moved on to other things. I was still > in excellent shape but the only way I can explain it is my body felt > heavy and fatigued all the time. > > I became quite ill with mononucleosis my senior year and I haven't > been quite the same since. I then joined the CG and made it through > boot camp with honors. I had unexplained leg pain and fatigue all > the way through. I figured that was quite normal during boot camp > because it sure isn't fun. ;-) I remember I would wake up crying my > legs hurt so badly. They thought I had shin splints, but being a > runner who was quite familiar with those, I began to realize this was > different. It would hurt the more I walked and nothing seemed to > lessen my pain. I just thought it was my new combat boots and worked > through the pain. > > I felt sick off and on from there. I would have unexplainable pain > in my chest, legs and arms, but the doctor said there was no reason > for this. So, I tried to suck it up. I would be fatigued for no > apparent reason and would sleep for hours on end. Then, I would go > into bouts where I couldn't sleep at all. In early 2000, I became > quite ill and could barely attend to my own needs. The doctor > thought I had another bout of Mono which he said was quite rare. I > started walking into things thinking I was walking around them, had > splitting headaches, no appetite, severe body pain, etc. Then, about > a month later I seemed to slowly come out of it but rarely have I had > a good day since. Through much of this I was forced to keep a > regular schedule at the station where I worked. This was very > difficult. So, to make a long story short, I fell ill again in May > 2002 and haven't come out of it since. I live everyday in pain like > most of you. I am learning to take it a second at a time. I have > learned many people take life and good health for granted. I know I > did. It's only normal to not know what you had until you've lost it. > > It is comforting, and yes sad, to know my family and I are not > alone. I thank you all for taking the time to read this. I have > been trying to deal with this and at times, because I am so far away > from friends and family, (I live in Florida) I feel so alone. My > parents have done a wonderful job helping me and I am glad you now > have the chance to talk to my father and help him in return. Thank > you all and above all else remember to try to smile and laugh…it is > the only medicine I've found to make a difference. > > Take care, Jess > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2003 Report Share Posted March 3, 2003 Hi Jess and family, Glad to hear from you, welcome to the group! We appreciate you being here to share. Juli and Nikki > My name is . I am the daughter of Larry and Sue who just > recently posted. Like them, I have been a silent member of > Mitoldies for quite some time. I get comfort from reading your > positive messages to each other. It's been difficult, as it is for > everyone, knowing I have this disorder that will be with me for the > rest of my life. I joined the Coast Guard when I was 18. My whole > life I had been pretty healthy. I did have stomach and intestinal > problems, but none of us realized it could be linked to something > like this. I was a sprinter throughout middle school and high > school. I did quite well, breaking records. By the 10th grade, my > strength and stamina seemed to lessen a great deal. I was no longer > able to run like I could, so I moved on to other things. I was still > in excellent shape but the only way I can explain it is my body felt > heavy and fatigued all the time. > > I became quite ill with mononucleosis my senior year and I haven't > been quite the same since. I then joined the CG and made it through > boot camp with honors. I had unexplained leg pain and fatigue all > the way through. I figured that was quite normal during boot camp > because it sure isn't fun. ;-) I remember I would wake up crying my > legs hurt so badly. They thought I had shin splints, but being a > runner who was quite familiar with those, I began to realize this was > different. It would hurt the more I walked and nothing seemed to > lessen my pain. I just thought it was my new combat boots and worked > through the pain. > > I felt sick off and on from there. I would have unexplainable pain > in my chest, legs and arms, but the doctor said there was no reason > for this. So, I tried to suck it up. I would be fatigued for no > apparent reason and would sleep for hours on end. Then, I would go > into bouts where I couldn't sleep at all. In early 2000, I became > quite ill and could barely attend to my own needs. The doctor > thought I had another bout of Mono which he said was quite rare. I > started walking into things thinking I was walking around them, had > splitting headaches, no appetite, severe body pain, etc. Then, about > a month later I seemed to slowly come out of it but rarely have I had > a good day since. Through much of this I was forced to keep a > regular schedule at the station where I worked. This was very > difficult. So, to make a long story short, I fell ill again in May > 2002 and haven't come out of it since. I live everyday in pain like > most of you. I am learning to take it a second at a time. I have > learned many people take life and good health for granted. I know I > did. It's only normal to not know what you had until you've lost it. > > It is comforting, and yes sad, to know my family and I are not > alone. I thank you all for taking the time to read this. I have > been trying to deal with this and at times, because I am so far away > from friends and family, (I live in Florida) I feel so alone. My > parents have done a wonderful job helping me and I am glad you now > have the chance to talk to my father and help him in return. Thank > you all and above all else remember to try to smile and laugh…it is > the only medicine I've found to make a difference. > > Take care, Jess Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2003 Report Share Posted March 3, 2003 , Welcome to the group. I am sorry that you have to be here, but this is a caring group of people here. I am a, a 26 year old, with mitochondrial cytopathy, COX deficiency. I was a special education teacher for three years and then, because of fatigue and pain and some other complications, had to resign this past year. This school year I have subbed a little and in January was hired to be a part-time reading teacher. I work 2 1/2 hours a day and that works well with my body. I was surprised when you mentioned mono. When I was going through the process of being diagnosed (age 13-18), they thought I had mono a couple of times. I don't think I ever had it, as I saw my brother when he did have it! :-) My legs became weaker my senior year of high school. That is when I started using the walker. I have good strength at the beginning of the day, but it wears out quickly. I use the walker for balance and stability and also use a wheelchair to conserve energy and to keep myself safe. My legs have a tendency to buckle or " give out " . I am glad you have posted and hope you continue to do so. I really agree with your comment on remembering to smile and laugh. That is what gets me through! Smiles, a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2003 Report Share Posted March 3, 2003 Dear Jess, This disease is so unpredictable…perhaps there are still better days ahead. You are in my prayers. Hold onto hope. Vivian Hi everyone! My name is . I am the daughter of Larry and Sue who just recently posted. Like them, I have been a silent member of Mitoldies for quite some time. I get comfort from reading your positive messages to each other. It's been difficult, as it is for everyone, knowing I have this disorder that will be with me for the rest of my life. I joined the Coast Guard when I was 18. My whole life I had been pretty healthy. I did have stomach and intestinal problems, but none of us realized it could be linked to something like this. I was a sprinter throughout middle school and high school. I did quite well, breaking records. By the 10th grade, my strength and stamina seemed to lessen a great deal. I was no longer able to run like I could, so I moved on to other things. I was still in excellent shape but the only way I can explain it is my body felt heavy and fatigued all the time. I became quite ill with mononucleosis my senior year and I haven't been quite the same since. I then joined the CG and made it through boot camp with honors. I had unexplained leg pain and fatigue all the way through. I figured that was quite normal during boot camp because it sure isn't fun. ;-) I remember I would wake up crying my legs hurt so badly. They thought I had shin splints, but being a runner who was quite familiar with those, I began to realize this was different. It would hurt the more I walked and nothing seemed to lessen my pain. I just thought it was my new combat boots and worked through the pain. I felt sick off and on from there. I would have unexplainable pain in my chest, legs and arms, but the doctor said there was no reason for this. So, I tried to suck it up. I would be fatigued for no apparent reason and would sleep for hours on end. Then, I would go into bouts where I couldn't sleep at all. In early 2000, I became quite ill and could barely attend to my own needs. The doctor thought I had another bout of Mono which he said was quite rare. I started walking into things thinking I was walking around them, had splitting headaches, no appetite, severe body pain, etc. Then, about a month later I seemed to slowly come out of it but rarely have I had a good day since. Through much of this I was forced to keep a regular schedule at the station where I worked. This was very difficult. So, to make a long story short, I fell ill again in May 2002 and haven't come out of it since. I live everyday in pain like most of you. I am learning to take it a second at a time. I have learned many people take life and good health for granted. I know I did. It's only normal to not know what you had until you've lost it. It is comforting, and yes sad, to know my family and I are not alone. I thank you all for taking the time to read this. I have been trying to deal with this and at times, because I am so far away from friends and family, (I live in Florida) I feel so alone. My parents have done a wonderful job helping me and I am glad you now have the chance to talk to my father and help him in return. Thank you all and above all else remember to try to smile and laugh…it is the only medicine I've found to make a difference. Take care, Jess Medical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2003 Report Share Posted March 3, 2003 welcome . glad you decided to post karen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2003 Report Share Posted March 4, 2003 Hi , welcome to the group. Everyone is so great here, Celia > Welcome Jess. Alot of your symptoms sound like mine, plus you are young so I > can sympathize with you. Do you have a mito diagnosis? I am 19 and have just > begun the mito path. I was diagnosed as having chronic fatigue syndrome since > the age of 15. I just have a working diagnosis as of now of a severe > carnitine deficiency and mild CoQ10 deficiency. I see Dr. Cohen in Cleveland > and have a second appt with him on March. 19th for further testing. Hope you > find the answers you are looking for and the support you need. Quote Link to comment Share on other sites More sharing options...
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