Re: Back from the renal appt.

[Guest guest]

Thank you Laurie!

[Guest guest]

I'm glad your appointment went well. I will continue to keep you in my

thoughts.

laurie

> From: LILQT4U1984@...

> Reply-To:

> Date: Mon, 3 Mar 2003 17:36:15 EST

> To: mito ,

> Subject: Back from the renal appt.

>

> Thank you all for your nice thoughts and prayers today as I went to my renal

> appt. The doc. was very nice and brilliant! He even knew what a carnitine

> deficiency was! hehe He had reviewed all the lab results and reports from my

> other docs beforehand so he was very aware of what was going on and what had

> been done. He examined me and notated how low my bp was. I told him that I

> had NMH. He said he really, really did NOT think I had RTA. He said I would

> have had more than just the one kidney stone and I would be leaking more in

> my urine than just carnitine. He said just to double check he was going to do

> a 24 hr urine collection, a spot urine tests and some more bloodwork. I see

> him again in 2 wks to get the results. The appt is just 2 days before I

> leave for Cleveland since it looks as if I am going for sure now. Please

> continue to pray for me as that is going to be a tough week. Hope you each

> had a nice day today.

>

[Guest guest]

,

Glad you found a good doc for evaluation. Interesting his comment

about the kidney stone. Somewhere I saw some stats that about 70% of

people with RTA have kidney stones.

Will keep you in my prayers this week.

Barbara

> Thank you all for your nice thoughts and prayers today as I went

to my renal

> appt. The doc. was very nice and brilliant! He even knew what a

carnitine

> deficiency was! hehe He had reviewed all the lab results and

reports from my

> other docs beforehand so he was very aware of what was going on

and what had

> been done. He examined me and notated how low my bp was. I told

him that I

> had NMH. He said he really, really did NOT think I had RTA. He

said I would

> have had more than just the one kidney stone and I would be

leaking more in

> my urine than just carnitine. He said just to double check he was

going to do

> a 24 hr urine collection, a spot urine tests and some more

bloodwork. I see

> him again in 2 wks to get the results. The appt is just 2 days

before I

> leave for Cleveland since it looks as if I am going for sure now.

Please

> continue to pray for me as that is going to be a tough week. Hope

you each

> had a nice day today.

[Guest guest]

,

I am glad that your appointment went well. I will be keeping you in my thoughts as you do the rest of your tests and head off to Cleveland.

Smiles,

a

Thank you all for your nice thoughts and prayers today as I went to my renal appt. The doc. was very nice and brilliant! He even knew what a carnitine deficiency was! hehe He had reviewed all the lab results and reports from my other docs beforehand so he was very aware of what was going on and what had been done. He examined me and notated how low my bp was. I told him that I had NMH. He said he really, really did NOT think I had RTA. He said I would have had more than just the one kidney stone and I would be leaking more in my urine than just carnitine. He said just to double check he was going to do a 24 hr urine collection, a spot urine tests and some more bloodwork. I see him again in 2 wks to get the results. The appt is just 2 days before I leave for Cleveland since it looks as if I am going for sure now. Please continue to pray for me as that is going to be a tough week. Hope you each had a nice day today.

[Guest guest]

Barbara,

You are right. He was saying that if I had RTA I would have had MORE than 1 stone by now. Thanks for the prayers.

[Guest guest]

Thank you a!

[Guest guest]

,

glad to hear that your appt went well and that the dr seemed to know what he was talking about. hope the tests come back ok and all.

take care,

adrienne

[Guest guest]

Thank you Adrienne. Hope you are having a feel good day today.

[Guest guest]

Sorry Barbara..I guess I misunderstood what you were saying. It's a very good question. You have set my mind to thinking now. hehe I'm not sure exactly what he meant by that..it just came across to me that he thought I would had more stones if I had RTA and I would be leaking other things besides carnitine.

[Guest guest]

> Barbara,

>

> You are right. He was saying that if I had RTA I would have

had MORE

> than 1 stone by now.

I know next to nothing about RTA, but what I wondered about his

comment is that if 70% of people with RTA have kidney stones, that

means that 30% never have stones, even though they have RTA.

I didn't see any stats about what percentage of people with RTA have

multiple stones, so have no idea about that. It just struck me that

given the stats, I wondered why he was so sure that you would have

had more than one stone. Perhaps he means that of the people with

RTA who have stones, they tend to have multiple occurances?

Well, never mind. Just my rambling non-thoughts here....always

asking irrelevant questions.... :-)

Barbara

[Guest guest]

He has a good point about the carnitine leak...

Barbara

> Sorry Barbara..I guess I misunderstood what you were saying. It's

a very good

> question. You have set my mind to thinking now. hehe I'm not sure

exactly

> what he meant by that..it just came across to me that he thought I

would had

> more stones if I had RTA and I would be leaking other things

besides

> carnitine.