Guest guest Posted February 21, 2000 Report Share Posted February 21, 2000 Hi all, I've been lurking for a little while and thought it was time to introduce myself. sent me a doctor list a while ago, but that's been my only contact with you fine people until now. Anyhow, it's been one month ago today since I was diagnosed with RA and I'm stunned at how quickly I've deteriorated. I've been having strange pains for a long time, but it seems like things really started up around Thanksgiving. Finally, I went to see someone in January; he diagnosed me and wanted be to start on drugs immediately. But it turns out he's not a member of my medical plan so I am looking for a rheumy (as you all say :-). It won't be any too soon because I'm just in agony... Anyhow, to make a long story short, I have an appt on Mar 9th with an associate of Dr Sessoms, who was on the doctor list but is no longer taking new patients. I am hopeful that her associate also does the AP because I'm just terrified of the regular drugs. I am currently on Celebrex to tide me over (doesn't seem to help much) until I can get in to see her; I also have some prednisone but am too afraid to take it. I hope I can hold out until I see her. I'm sure that most of you feel the same way, but I am just so grateful that the Internet exists. First thing I did, when I found out, was to hit the Internet and research this disease; I feel lucky to have found out about AP and to have found this group. I just finished reading the New Arthritis Breakthrough... A little about me: I live in Houston and am 41, married, no kids. I need to lose about 50 lbs. I manage a software development group; in fact, I started a new job (within the same company) 3 days after I found out about the RA. It really stinks, because I'd like to hit the ground running (ouch!) but I just hobble around all the time :-( In my Internet research, I've found info on various vitamins and supplements and have kind of hacked together a supplement program. This is what I do (to no avail so far): Morn: Lunch: Evening: 1 g ginger 800 IU E 1 g ginger 380 mg feverfew 380 mg feverfew 380 mg feverfew 500 mg B-6 200 mcg selenium B-100 B-complex 4 g C 1000 mg Borage Oil 4 g C 400 mg Calcium 400 mg Calcium 500 mg Magnesium 250 mg Magnesium 1000 mg Borage Oil (210 mg GLA) 1000 mg Borage Oil Now for questions: 1. Any comments on the above? Any supplements that help? Anything stupid here that I shouldn't be doing? 2. What does everyone do for pain and swelling? I see that some of you are on methotrexate and prednisone, but isn't that because you were on that before you found AP? What about us RA " virgins " ? 3. Is this normal, to be hit so hard so quickly? My fingers and thumbs are so swollen it hurts to type and my knees and feet are also swollen; it's very hard to walk. I am feeling pain in my elbows and the muscles in my upper arms too. 4. What about psychological elements? Does anyone do therapy for this? I keep hearing that RA has a strong mind-body link; there was even a study recently about the beneficial effect of writing about difficult times (diseases were RA and asthma)? I really feel that my RA is due partly at least to the stresses in my life.... Anyone else? Geez, sorry this is so long!! You can tell how happy I am to join this group because it really does hurt to type :-) I would really appreciate any ideas, wisdom, advice, comments, etc.!! Thanks already, -- Quote Link to comment Share on other sites More sharing options...
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