Guest guest Posted November 3, 2000 Report Share Posted November 3, 2000 Hi Rita, Welcome to the list. Did you read today's post bout Dr. M? He sounds like quite a guy. IMHO - I would take the earliest date possible - be a preop over the holidays, and start your new life that much sooner!!! I'm sure that you are making the right decision for you - but its a case of the sooner the better for me. Hope that you enjoy this list - there are some really great people here, with answers to questions that you haven't even thought of, yet lol Take care... W Pre -op Dr. Denied on 10/26 and fighting mad!!! - Prudential POS 5'5'' 301 - BMI 51 Mire fuera de Prudencial, está muy enojado.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2000 Report Share Posted November 3, 2000 Welcome, Rita. I'm so glad you posted and introduced yourself. I look forward to getting to know you better as you post more. Regarding surgeons, Dr. Gagner is also in your area, Mt. Sinai in NY. ===== H Dr. Keshishian/surgery 11-21-2000 San Francisco Bay Area mailto: hillsmith2000@... __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2000 Report Share Posted November 12, 2000 After months of saying that it would be the height of folly for me to join coffee, given that I can't keep up with any of the other lists and i am massively behind on every domestic chore, here I am. Just can't cope without some juicy discussion - the main list is too dry for me now!! I am branch chair ( not for long if only someone else would come along and do it....), MSLC rep and teacher. I have 2 boys, 6 and 3 , spend hours every day on the s chool runs , and have a husband who works loony hours and looks exhausted. I just plod along, interspersed with bouts of maniacal shouting . however, had a lovely evening last night at The Explorers' Club Dinner , where i got to wear my long frock, pretend I was sophisticated and rubbed shoulders with the likes of Bonnington, Ranulph Fiennes etc. ( Well, not quite shoulders, but they were't far away!) Sat next to someone who I think said he was Barbara Kott's next door neighbour, or knew a man who was..... Looking forward to some sanity saving rants and household tips ( along the lines of the tidy up magic in Poppins please!) Smart Antenatal Teacher and Chair, Aylesbury and District NCT Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2000 Report Share Posted November 13, 2000 >After months of saying that it would be the height of folly for me to join >coffee, given that I can't keep up with any of the other lists and i am >massively behind on every domestic chore, here I am. Just can't cope without >some juicy discussion - the main list is too dry for me now!! Welcome !! Really pleased to have you here. McVeigh Newsletter Editor & Secretary, Leighton Buzzard & District SAHM to (AKA Tiff Toff), DOB 19/9/97 & Caitlin (AKA Cake Tin), DOB 12/1/00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2000 Report Share Posted November 13, 2000 > however, had a lovely evening last night at The Explorers' Club Dinner , <BR> > rubbed shoulders with the likes of Bonnington, Ranulph Fiennes etc. > Smart<BR> > <BR> > Antenatal Teacher and Chair, Aylesbury and District NCT<BR> Being really nosy now but how come? sounds fascinating are you the explorer or DH? Caroline ANT Jersey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2000 Report Share Posted November 17, 2000 I have talked to several of you in private e mail and thought I would introduce myself. My name is Welcome aboard !! I am getting to feel like an old hand here -- even though I am still a pre-op and have been on with this group for maybe 2-3 weeks! But everyone makes you feel so welcome - and there is sooo much to learn, ask and even sometimes to offer words of encouragement and sunshine ... knowing they will be coming back to you soon! Good Luck to you! Judi in MS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2000 Report Share Posted November 17, 2000 Hi ! Your post sounds JUST LIKE MINE. I have been down the exact same path. Funny how things seem to work out. Huh? Diane In a message dated Fri, 17 Nov 2000 1:28:01 PM Eastern Standard Time, Cutie22@... writes: << I have talked to several of you in private e mail and thought I would introduce myself. My name is and I am a lurker. I do however feel as if I know each and every one of you personally already. I am going to have the switch soon, no date set as of yet, but will be soon. I am excited and scared all at the same time. I have done extensive research on this subject and was looking into the mini gastric bypass and chose against that then looked into the lap RNY and decided against that one due to long term weight gain and then looked into the DS and saw that the long term weight loss results were much better and it also had a better exit route if something went wrong. Well, thanks for taking the time to read this. >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2000 Report Share Posted November 17, 2000 : Welcome out of the lurk zone. I believe you have made a good choice to opt for the DS surgery over the RNY. Have you decided on a surgeon yet? Have you made contact with them? Glad to see you here and we look forward to hearing about your progress toward an new life. Regards. Joe Frost, old gentleman, not old fart Pre-op, San , TX 60 years old, BMI 48 Dr. Welker, Surgery Scheduled 11/29/00 http://www.duodenalswitch.com/Patients/Joe/joe.html > I have talked to several of you in private e mail and thought I would > introduce myself. My name is and I am a lurker. I do however feel as if > I know each and every one of you personally already. I am going to have the > switch soon, no date set as of yet, but will be soon. I am excited and scared > all at the same time. I have done extensive research on this subject and was > looking into the mini gastric bypass and chose against that then looked into > the lap RNY and decided against that one due to long term weight gain and > then looked into the DS and saw that the long term weight loss results were > much better and it also had a better exit route if something went wrong. > Well, thanks for taking the time to read this. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2000 Report Share Posted November 18, 2000 Hi cutie -- I have a cutie too. She my almost 15-yr-old daughter and my baby (of our four). I'm glad to see that you are researching and making an educated decision for yourself. That's so important. Best wishes on your quest! Regards -- Margie in Austin, TX 5'4 " , pre-revision 275#, 11/03/00 down 49# RNY GB in 1987, revision to DGB/DS 02/01/00 Dr. Crookes, USC University Hospital, LA, CA > I have talked to several of you in private e mail and thought I would > introduce myself. My name is and I am a lurker. I do however feel as if > I know each and every one of you personally already. I am going to have the > switch soon, no date set as of yet, but will be soon. I am excited and scared > all at the same time. I have done extensive research on this subject and was > looking into the mini gastric bypass and chose against that then looked into > the lap RNY and decided against that one due to long term weight gain and > then looked into the DS and saw that the long term weight loss results were > much better and it also had a better exit route if something went wrong. > Well, thanks for taking the time to read this. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2001 Report Share Posted March 5, 2001 Miranda Welcome to the list. And, I love your name, by the way....enough that I chose it for my first born! Take care Jen Mommy of 7, including ph 20 months with CF, Mallory 3 with CF, RAD, GERD, OSA, port-a-cath WHO STARTS ANOTHER TUNEUP TONIGHT, getting ready to go access her port; 5 with CF, port-a-cath; 6, Miranda 9, Brittany 8 yo foster daughter with Type 1 diabetes (juvenile diabetes) soon to be adopted by us; ERica 4 yo foster daughter, soon to be adopted by us also ; also aunt to 3 yo with CF Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2001 Report Share Posted March 5, 2001 Hi there, I am glad you are here with us. We all really need this CF-Internet family & I know you will both get info/help/support and GI VE it too. All folks need to have others that truly understand how your doing.......What you are going thru....They have " been there done that " ,so this is THE PLACE to be!! :) enjoy, tell us all about yourselves. What clinic/doc do you see? what state do you live in? , etc... LOVE & HUGS, grandmomBEv introduction Hi, I just recently found out about this list and wanted to introduce myself to everyone. I'm Miranda and have 2 great kids both wcf. will turn 6 this month and our baby Isabelle is just over 6 months. I look forward to getting to know each of you better. Miranda _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com *********************** This is a secular list. *********************** PLEASE do not post religious emails to the list. -------------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. -------------------------------------------------- Our webpage is at http://www.eohio.net/malbright/cfparents.htm _________________________________________________ Post message: cfparentsegroups Subscribe: cfparents-subscribeegroups Unsubscribe: cfparents-unsubscribeegroups List owner: cfparents-owneregroups _________________________________________________ WE HAVE A CHAT PAGE!!! /chat/cfparents _________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2001 Report Share Posted March 5, 2001 HI Miranda How are your babes doing? How are you doing?? I have 2 kids one with CF, he's 9 months . It's been a long haul.But we are nearing the 1 year marker! I'm learning so much from everyone here, I'm glad you found us. Take care, Stein...mom to CF (9 mo) asthma,rotavirus and milk protein allergy & Tori wo/CF (3 1/2 yr W/asthma) introduction Hi, I just recently found out about this list and wanted to introduce myself to everyone. I'm Miranda and have 2 great kids both wcf. will turn 6 this month and our baby Isabelle is just over 6 months. I look forward to getting to know each of you better. Miranda _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2001 Report Share Posted March 6, 2001 __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2001 Report Share Posted April 3, 2001 Hi, my name is Freda I am a mother of 2. daughter 16 wo/CF son 12 w/CF. I'm looking forward to hereing from you all. thank you HUGS AND PRAYERS Freda freda@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2001 Report Share Posted April 4, 2001 Welcome Jill! You will love this List. It is nice because you can express your thoughts and feelings pretty openly and not feel like you have to " stick to the subject " . I'm glad to hear is doing well with his CF. My youngest is an (no cf). , mom of Shantell 19yr wcf introduction Hi My name is Jill Marchione, I am the mother of two children an 11 year old daughter without CF, and a seven year boy with CF. My son's name is and he has been pretty well so far. I am looking forward to reading about other people's experiences dealing with this horrible disease PLEASE do not post religious emails to the list. ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. -------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2001 Report Share Posted April 4, 2001 Hi Freda! Welcome also to the list. I hope you enjoy all the wonderful parents out here. It's a nice group! , mom of Shantell 19yr wcf Re: introduction Hi, my name is Freda I am a mother of 2. daughter 16 wo/CF son 12 w/CF. I'm looking forward to hereing from you all. thank you HUGS AND PRAYERS Freda freda@... PLEASE do not post religious emails to the list. ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. -------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2001 Report Share Posted April 10, 2001 Hi!My name is Patty.I have just been made aware of this list and am looking forward to hearing what people such as yourselves have to say and experience on a day to day basis with CF.I live in Michigan, USA with my husband, Corey, son Austin,2, daughter, Selena,1, and my special little guy with CF:Tyler,6.Tyler was diagnosed at age 3 after a bout with jaundice, and common symptoms of CF before, during, and after that.He is seen at our nearest Children's Hospital.If I am correct he has Delta 508(twin copies).We try to learn, together, the best ways for our family to cope with this disease from every aspect, and welcome any advice or helpful tips on how to make our lives more enjoyable and " normal " .I check my e-mail regularly and can be reached at:PLH3395@..., and also:PKBLAZER@... for the opportunity to become a member of this group!Patty and family. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2001 Report Share Posted April 10, 2001 WELCOME you all, It is always a pleasure to have some more folks join in.,these listers are great Your family sounds delightful. Please post again soon. I am a grandmom to a wonderful 16+ yr old gal ..ERIN. she is well and very active. LOVE & HUGS, GrandmomBEV Introduction Hi!My name is Patty.I have just been made aware of this list and am looking forward to hearing what people such as yourselves have to say and experience on a day to day basis with CF.I live in Michigan, USA with my husband, Corey, son Austin,2, daughter, Selena,1, and my special little guy with CF:Tyler,6.Tyler was diagnosed at age 3 after a bout with jaundice, and common symptoms of CF before, during, and after that.He is seen at our nearest Children's Hospital.If I am correct he has Delta 508(twin copies).We try to learn, together, the best ways for our family to cope with this disease from every aspect, and welcome any advice or helpful tips on how to make our lives more enjoyable and " normal " .I check my e-mail regularly and can be reached at:PLH3395@..., and also:PKBLAZER@... for the opportunity to become a member of this group!Patty and family. [Non-text portions of this message have been removed] PLEASE do not post religious emails to the list. ------------------------------------------- The opinions and information exchanged on this list should IN NO WAY be construed as medical advice. PLEASE CONSULT YOUR PHYSICIAN BEFORE CHANGING ANY MEDICATIONS OR TREATMENTS. -------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2001 Report Share Posted April 11, 2001 Hi Patty, Welcome to the list! I think you'll find this a very good list to get information and support. I hope Tyler is doing well since the diagnosis. Best of luck! C mommy to and , 15 mo twins wcf --- PLH3395@... wrote: > Hi!My name is Patty.I have just been made aware of > this list and am looking > forward to hearing what people such as yourselves > have to say and experience > on a day to day basis with CF.I live in Michigan, > USA with my husband, Corey, > son Austin,2, daughter, Selena,1, and my special > little guy with > CF:Tyler,6.Tyler was diagnosed at age 3 after a bout > with jaundice, and > common symptoms of CF before, during, and after > that.He is seen at our > nearest Children's Hospital.If I am correct he has > Delta 508(twin copies).We > try to learn, together, the best ways for our family > to cope with this > disease from every aspect, and welcome any advice or > helpful tips on how to > make our lives more enjoyable and " normal " .I check > my e-mail regularly and > can be reached at:PLH3395@..., and > also:PKBLAZER@... for > the opportunity to become a member of this > group!Patty and family. > > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2003 Report Share Posted March 8, 2003 Welcome, Marjette - Where are you in Michigan? I know of some doctors in the Chicago area. Nan Introduction Hello all,I am a 44 year old female with a diagnosis of genetic DNA mitochondrial mutation. My cells aparently use the wrong amino acid when making energy, so not very efficient. Symptoms include weakness and constant fatigue, as well as lots more.I am looking for a mitochodrial specialist that treats adults. I realize any names traded are not endorsements of ability but know of any near Michigan? Dr. Cohen's office at Cleveland Clinic tells me he no longer takes adult patients. Thanks, MarjetteMedical advice, information, opinions, data and statements contained herein are not necessarily those of the list moderators. The author of this e mail is entirely responsible for its content. List members are reminded of their responsibility to evaluate the content of the postings and consult with their physicians regarding changes in their own treatment. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2003 Report Share Posted March 8, 2003 Marjette Welcome to the group! I live in Michigan (). Where do you live? There are several Michiganders on the list. My suggestion would be to try an MDA clinic. laurie > > Reply-To: > Date: Sun, 09 Mar 2003 01:27:07 -0000 > To: > Subject: Introduction > > Hello all, > I am a 44 year old female with a diagnosis of genetic DNA > mitochondrial mutation. My cells aparently use the wrong amino acid > when making energy, so not very efficient. Symptoms include weakness > and constant fatigue, as well as lots more. > I am looking for a mitochodrial specialist that treats adults. I > realize any names traded are not endorsements of ability but know of > any near Michigan? Dr. Cohen's office at Cleveland Clinic tells me > he no longer takes adult patients. Thanks, Marjette > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2003 Report Share Posted March 9, 2003 Welcome to the group Marjette. Hope you find the answers and support you are needing. This is a very caring group of people. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2003 Report Share Posted March 9, 2003 Hi Laurie, I am in East Lansing. Never thought of an MDA Clinic - may check into it. thank you. Marjette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2003 Report Share Posted March 9, 2003 thank you very much. marjette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2003 Report Share Posted March 9, 2003 Hi Laurie, I have an apt with the MSU genetics clinic in May but assumed by MDA that you (and ) meant Muscular Dystrophy? Not sure what MSU knows about mito problems but will find out. We are close - I am not driving much right now due to health but you are welcome any time if you get up this way. Keep in touch. Marjette Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.