Guest guest Posted February 14, 2000 Report Share Posted February 14, 2000 Hi all! Happy Valentines Day to everyone! Thought I'd relate my lastest adventure into psycho rheumatoligist land. As some of you know I've been looking forward to this appt. with a new rheum for a while now and today was the day. This well educated lady, who Henry Scammell told me headed the MIRA trials, met with me today at 1:30. Boy, was I a waste of HER time! First her nurse took all the background info and my list of questions I had typed out for her. Then she came in to do the exam with the words, " I'm not going to answer any questions until the exam is done " and proceded with the exam all the while talking to a student she brought in with her to observe. Then she left while I dressed and returned to tell me her " plan " . First she confirmed that while I am sero-negative, she believes I do have RA. then she told me she did not do IV's, or use anything other than minocin, no other antibiotics. She looked at my list of questions and told me all those other things would be dealt with after the RA. I managed to speak up at this point and tell her I was part of a group on the AP and she interupted me saying " and thats very bad, thats where you're getting all this bad information. These chat places are full of lay people who don't know anything " Refering to my questions on diet and supplements she told me there was no evidence at all that these things had any bearing on RA and about my question on depression she told me I was depressed because I was hurting and we would deal with that after she treated the arthritis. I told her I had inproved after each IV treatment and she told me there was no proof of that. During this time she is peering at my list over her glasses and then pushes it away from her, states that she thinks she's covered all my questions, and now she is going to get xrays and redo the bloodwork I just had done 2 weeks ago. Oh, I almost forgot, during the exam she noticed a bruise on the inside of my knee I got during a car accident last August. She asked me about it and when I told her, she said " No, it's not a bruise, I'll tell you what it is later. " As she was leaving she told me that blue spot was caused from the minocin and I might get them in other places and they wouldn't go away. I'd have to decide at that time if I wanted to be " The blue girl, or stop the minocin " . Now, I've had my gp look at this place 3 times, the last time was at my physical 2 weeks ago. His comment was it may take a long time to go away. It is some kind of blood residue. Made sense to me, still does. I mean it has never gone away, it is in the same spot as the original injury, nothing changed about it except its fading. Where she came up with this blue spots stuff I don't know. She said it was very rare and could she show it to another student dr. She wanted to see if he would diagnose it correctly. I said sure, I just wanted out of there. I was totally unprepared for this encounter mentally. At this point I was crying, later I was mad, but right then I was so disappointed I couldn't help it.(Yes, I'm a WIMP).Anyway, I picked up my notes and left. Didn't go to xray or the lab, justed told the recetionist I was leaving and no, I wasn't going to need another appt. So now I guess my plan is get my gp to give me the IV's next week to maybe buy me some time til I can find a real dr. that wants to treat me and not just use me for her study. Sorry this is so long and thanks for listening to me vent. If anyone has any suggestions on someone else here in Alabama or maybe Tenn. I could try, I'd be grateful. T. Quote Link to comment Share on other sites More sharing options...
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