Newbie

[Guest guest]

Hi mgfevig,

Welcome to the group! I am glad you found us so quickly, well relatively

so.

>>>I am all new to this. Looking for info. I am a 50 year old female.

Have had a heart rate of 100 for 4 months since a hip replacement

surgery. Doc did an EKG - alls well. Losing weight. Finally heart

rate went up to 138, went to ER. I was l86 and they tried 4

different drugs over 3 hours. It did go down to 120. Was

transfered to different hospital via amblance and admitted to

cardiac floor. Was there a couple of minutes and my heart rate went

down to 40. Was taken to get a pacemaker to regulate rate. Was

unresponsive during this time. Thought I had a stroke. Had a CT.

Normal. Started coming around about 6 hours later. Had to stay in

the hospital 2 days until the pacemaker could be removed. DX:

Hyperthroid. On Beta blocker and ATM. Heart still elevated. Saw a

endo gave me 3 choices. Not stable enought for RAI, don't want

surgery, so meds seem to be the answer now.<<<

WOW what a ride you have been on! It sounds like thyroid storm to me,

something I survived in 1996 before I-131 ablation <RAI>.

What is ATM? Are you meaning ATD <anti-thyroid drugs> like PTU or Tapazole?

I do hope so, could you be more specific as to which one, how much and

your dosing schedule? We could better offer you some tips on the use and

when to expect it to begin easing your symptoms.

I do hope they ran liver function tests on you before you started them.

If you haven't gotten copies of your labs, please do so, you want the same

copies the doctors get from the lab, this will show your test run, your

results and your labs expected values, plus the measurement used in them

Having labs will help you to learn how to follow your progress as you move

along in your journey. A good tip for the mornings we have our labs drawn,

write down how your feeling that day, when you get your copy back of the

lab, attach your note to it. This will help you find *your* normal range,

what we call euthyroid. We all are different.

Stress reduction will help, whether it be meditation, yoga or deep slow

breathing...stress is our biggest enemy...I know, you are probably shaking

your head at me saying thinking how do you reduce stress when you have just

been what you have been through. The deep breathing really does help.

Personally *I* do chanting using the A or E vowel and almost from the

beginning I felt so much better...if that isn't something for 'you'...do the

deep breathing. We all seem to forget how necessary deep breathing is and

how calming it can be.

Dietary changes and supplements will come into play. For right now, do not

do foods high in iodine such as shellfish. The thyroid, when hyper, will

grab all the iodine it can and continue to make, store and dump excess

hormone into our bodies. Something you do NOT need right now. Common sense

tells me that even on atd's doing foods with iodine will fight against what

the atd's are doing and keeping you on the vicious roller coaster ride.

Request that your doctor run the TSI and TPO antibodies blood test to see if

you have an autoimmune thyroid disease. Once this is diagnosed or ruled out

it maybe be easier for some people <Elaine ;-)> to speak more on your

diagnosis. If you have graves disease, you may attain remission with the

use of ATD's...at the very least, it will buy you time to learn all you can

so you can make an educated decision if you decide to go on with a permanent

treatment, at least you will go in with eyes wide open.

*I* had RAI in 1996 and have regretted it to this day. The biggest lie in

the world that endo's and doctors tell those of us they rush into this

treatment is 'after your thyroid dies, one little pill a day is all you will

need to feel wonderful again'...liar liar pants on fire! Be glad you were

to unstable for them to push you into this treatment. RAI does NOT address

the autoimmune nature of our disease in any way shape or form. Last October

I began a treatment of PTU to lower all of my thyroid antibodies...almost 6

years post RAI, I still had/have active graves disease...not hyper graves,

but active graves. I am dealing with the eye disease that can go along with

this, and the PTU is helping with this also. My 'one pill a day' of

replacement hormone is now 5 pills a day...and since it is a new treatment I

can't say one way or the other how this will work out at this time.

There are many people in this group who get euthyroid with the use of atd's

and either attain remission or stay on very low dose atd's for many years.

Granny gets the prize in this category, 23 years on Tapazole and still

going strong.

I know for *me* had I to do it over again, and I couldn't' tolerate one of

the atd's, I would opt for surgery in a NY minute...but this is my personal

choice since I now have several years of hindsight.

>>>What should I know and when should I start to feel okay? Can't

>>>sleep.<<<

One of the first books I would recommend for you is The Thyroid Solution by

Dr. Ridha Arem. This book will explain in pretty easy to understand terms a

lot about the thyroid and how it affects every aspect of our bodies and how

important it is. I say pretty easy to understand because in our hyper or

hypO minds, thinking clearly is NOT one of our finer attributes...but it

does get better.

Another book I would recommend to you is Graves Disease; A Practical

Guide by Elaine ...though this book is pretty graves specific, even if

you don't have graves, the book is so worth it for treatment options,

personal stories and the LABS! I think she wrote that chapter so we would

quit driving her nuts with all of our lab questions ;-)

Both books can be found at amazon.com or barnesandnoble.com. I prefer

barnes and noble as both books are 20% discounted and when you buy more than

one item...free shipping...just food for thought.

The archives here is full of information, if you need any help in using

them, just give a hollar and someone will help you get there.

Take your time, learn all you can, ask lots and lots of questions, even if

that means asking the same one 2/3 times...we all know how that can be ;-)

Read, educate and become proactive in your treatment, those are the best

suggestions I can give you for now.

From the homepage there is a files link, there you will find many many

files, the extended symptoms list organized by Terry P <on vacation right

now> with input from many of us here, a list of 20 reasons why NOT to do

RAI, acronyms that will help you understand what we say when we only use

initials and several other files...I believe there is even a list of high

iodine foods. Print them up for our own use.

As for when you will feel better, depends on how severe the hyper will be

and how sensitive your body is to the atd's, but generally I felt a

difference at week 4, others say 4-6 or 6-8 weeks...it is a matter of when

your excess thyroid hormone is used up by your body. BUT, you WILL feel

better.

Ahhh the sleeping...or lack thereof. You will get back to that as the meds

start kicking in. For now, go to bed, while your laying there do some deep

breathing, and as you are, start at your toes and tell your toes to relax,

your feet, your ankle...all the way up your body, right to the top of your

head. Even if you don't fall asleep the breathing and relaxing will help

your body so very much. If I am having one of those nights, I am now

usually asleep before I get to my neck...it takes training, but it does come

and is one of the easier things we can commit to when we are so hyper.

If your working, know that Graves Disease is recognized by the American with

Disabilities organization and you are eligible for short term disability if

that is necessary for you, especially if it will reduce some stress in other

areas for you.

We all do know where you are at right now, we understand the fear of the

unknown, and some of the known, laugh with, cry with us, vent, rage, beat

that keyboard...we do understand and if we can't help with anything but

support for now, know you will receive a lot of it!

Take care,

Jody

PS If you are in the Buffalo NY area, I have a great endo I will give you

info about. I won't trade her for anyone in the world :-)

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[Guest guest]

WOW what a lot of info. It does make me feel better knowing someone

else has been down this road and knows where they are going.

You are right it's not ATM but ATD it is Tapazole 20mg 2 times a day

and also Lopressor 25 mg 2 times a day. I did start out on

Propylthiour 100mg 3 times a day. The taste in my mouth was bad.

The endo changed this to the tapazole in hopes that this would be a

longer acting drug. I did have the test for Graves and it came back

2 1/2 times n/l. I do not have a copy of the blood work but will

get them. The endo put my name and my GPs for notification of all

labs. I will get the books and then maybe I will be able to

understand all that is happening.

Is hair thinning part of this? Everytime I take a shower the drain

gets plugged. Will this stop?

I am still having the heart palp and it's not comfortable. I don't

go back to the endo for 3 weeks.

Cardiologist seems to think that a pulse of 85 and low blood

pressure is an okay life.

I sure want to feel better. I want to sleep!

I will keep watching this board and read everything.

Gail

[Guest guest]

Hi Gail <my mom's name only spelled different ;-)>

>>>Tapazole 20mg 2 times a day and also Lopressor 25 mg 2 times a day.<<<

I don't know much about the Lopressor, I was on Inderal...maybe someone else

in group can jump in on this one. I do know that when the time comes to get

off your beta blocker <any blocker> do NOT allow your doctor to pull you

cold turkey. If you go to the drug company sites and read all there is to

on your med, it will specify this, and it can be dangerous for us by just

stopping them.

There are plenty in this group who will help you regarding the Tapazole,

Terry P who has been on it I believe 7 years is on a wonderful vacation for

several weeks, but when she comes back I know she will offer

suggestions...as will Granny who has been on Tap for 23 years.

Jeannette from this group is in remission for more than 3 years now and if

memory serves me right, she was on Tapazole for about 2 1/2 years...so you

are in very good company. You can search the archives under those names to

read some of their posts.

>>>I did start out on Propylthiour 100mg 3 times a day. The taste in my

>>>mouth was bad. The endo changed this to the tapazole in hopes that this

>>>would be a longer acting drug.<<<

I am on PTU now, as I think I told you, could be someone else I told

though...so many new people in this group. It does have a nasty taste, but

it eventually lets up...or you can take it in a spoonful of applesauce. My

doctors believe it works on lowering the antibodies quicker than the

tapazole, it may or may not, but it is working for me.

>>>I did have the test for Graves and it came back 2 1/2 times n/l. I do

>>>not have a copy of the blood work but will get them. The endo put my

>>>name and my GPs for notification of all labs. I will get the books and

>>>then maybe I will be able to understand all that is happening.<<<

Good news on both avenues. I am not sure what test you are refering to

here, the scan or blood work? The books will help you, just don't get too

frustrated when you are reading them and maybe not grasping things right

away...your brain is foggy because of this disease.

>>>Is hair thinning part of this? Everytime I take a shower the drain

gets plugged. Will this stop?<<<

Yes this is common. Before I was diagnosed I had lost over half of my hair

and had bald spots all over my head...just little ones that could be covered

up, but it was enough to put me into tears every day. I remember going

through a period where I refused to take a brush to my hair for

weeks...would wash it and just do a finger comb out...don't know if it

actually helped but *I* felt better.

Yes, it wills top and yes it will regrow...for me, every time I do a med

change I go through this, and since I am going through a big hormone

replacement change right now, it is falling out again <sigh> but I do know

this too will settle down again...I just really hate when all that regrowth

starts and I have all those little hairs sticking up all over...my kids tell

me to shave my head and let it come in spikey...I think not! I shall be 50

next month so we are not to far about in age...if your there now, tag, your

older ;P

>>>I am still having the heart palp and it's not comfortable. I don't

go back to the endo for 3 weeks.<<<

They are so scary aren't they. It will calm down, but should they get

worse, do not hesitate to call your docs or get to the ER, with all that you

have been through. I do think they will start settling down in a few more

weeks though, as your excess thyroid hormone is used up.

>>>I sure want to feel better. I want to sleep! I will keep watching this

>>>board and read everything.<<<

You WILL feel better and you WILL sleep again. Don't stay up all night

reading posts though and stressing yourself more. Easier said than done in

the beginning. It is like, once we begin this learning journey we just want

to learn it all right now, we want all the answers right now and we need to

know others really do understand.

Spend time several times a day doing the deep breathing, it will help you

more than you can realize right now...and use the conscious relaxing

techniques when you are laying in bed. Sleep is a good thing, that is when

we heal the most, so getting back to that will be another wonderful addition

to healing your body.

Take care and keep writing!

Jody

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[Guest guest]

Hi Gail !

Welcome. :-)

What a rough road you had to get here.

You will find in time, many of us that should have been diagnosed much

sooner.

At the home page for this list, you can find all the old messages from us,

and when you have extra time, I suggest you read these archives. There are a

lot of stories, tips, and info .

I am 53 yr now, and was finally diagnosed during a thyroid storm in the

emergency room.

I choose anti thyroid drugs, as I was being told I had the worst numbers

they had ever seen. Come to find out, an amazing number of us have heard

'that' story. <sigh>

They told me I had to take the RAI right then and there or die. Come to find

out, IF I had done that, I surely would have died.

I was completely nuts at that time, but I loudly refused to swallow anything

radioactive. Bit of a gut reaction yes, but it turned out to be a good

thing.

After 3 1/2 years on PTU, I hit remission.

I was only so, so , for the first 3 years. I thought as long as I just took

my pills, I would get better.

Come to find out, I needed to look at the big picture. I finally worked

seriously on diet, low iodine food, supplements, and the most important

thing...I learned to say NO to others demands. I finally realized my health

takes the number one spot in all my choices every day.

Yes, hair loss is a big one for most of us. I had the worst loss right in

the beginning. And yes, it will grow back. I find every time I had my

thyroid levels CHANCE , my hair loss increased. And as long as I could

remain some what stable, then the new hair comes in.

Though my bald endo never would listen when I complained about this. <sigh>

The sleeplessness in the beginning is the worst. Once you have been on the

ATDs a bit longer, this will improve.

The ATDs can only prevent NEW excess hormone from being made. Our bodies

simply have to use up all the extra and this takes time. They say 4 to 8

weeks. I took the full 8 weeks, but at the end of week three, I started to

feel things changing for the better.

I am so glad to see another one of my generation join us. tee hee

-Pam L -

[Guest guest]

>

> Subject: Re: newbie

>

> Personally *I* do chanting using the A or E vowel and almost from the

> beginning I felt so much better...if that isn't something for 'you'...do the

> deep breathing.

Jody plus 2 hippy points.

Congratulations you have won a free guided tour of Totnes, tours

depart from Exeter international airport, or Exeter St s

station on request

>

> Subject: Re: newbie

>

> WOW what a lot of info.

It's okay to tell Jody if it was " over help " , you don't have to

just hint gently

Sorry to hear you have had such a bad time of thing. I wasn't

clear on a couple of points;

Was your raised pulse only noted as part of the hip surgery, or

did it occur afterwards? Just wondered as osteoperosis can be

caused by Grave's, and you didn't say why you had to have hip

surgery.

How long ago did you start the Tapazole?

Hair loss can due to the arbitary hormone changes that occur on

starting Tapazole, or it can be hypothyroidism (too much

Tapazole), either way it should stop and grow back once the

hormones are back to a sensible level, and steady.

Sleep I can sympathise with, I don't sleep well when hyper or

hypo, but hit the magic hormone level in between and I sleep 7

hours night, and wake refreshed... Hair grows more whilst you

are asleep as well as lots of other things your body probably

needs to replenish get sorted when asleep.

Some people find the betablockers a bit hard on the system, do

you have a plan for when to start reducing them? The Tapazole

will start working almost immediately but it takes a few weeks

for the existing hormone to be removed from your system. As soon

as the Tapazole starts having a noticable effect, they can

probably start thinking about reducing the betablockers, but

with your heart jumping around like that they may be very

conservative in such things.

I tried some of the herbal sleep rememdies when I was desparate

to sleep, and they did help, although I think part of it is

creating the right atmosphere for sleep - get ready for bed,

nice warm cup of herb tea (definitely no caffeine, I don't do

caffeine anymore), sit back relax, think about going to sleep

etc.

Take care,

Simon

[Guest guest]

Simon...

how did you know I grew up in the 60's?!?! Who's talking ;P

Jody

PS don't poo poo chanting, it really does help...go back in the archives and

read some of 's posts!

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[Guest guest]

The Graves test was a blood test done at Mayo. Had to be frozen and

sent. I can't wait to get copies of the blood work. Well I think I

will try to get some sleep. I will try the deep breathing and

relaxation.

Thanks so much for all your help.

P.S. the PTU bad taste came after I took it. It lasted for upto 4

or 5 hours. Nothing tasted good. Hard to eat.

I had Chemo for breast cancer 4 years ago and the same thing

happened.

Gail

[Guest guest]

welcome and congrats om your new baby..wow, your ob had the surgery, that

will be great!!!! some obs are not understanding at all...good luck

Robin

RNY 2/27/2002

E.D.D 7/20/2003

5 precious children to light the way

[Guest guest]

Candi,

Your blood sugars will drop lower...I think all of ours do..try to eat every

couple of hours...I am hypoglycemic, but don't have episodes that often

anymore until I got PG. I notice now that before I even start to feel bad,

my blood sugar will drop into the low 60's and my normal is in the 90's, so

please be careful!

Jana

RNY 04/02/02

EDD 04/04/03 Isaiah Riley

Scheduled induction 04/11/03

Pre-op wt 260

Current wt 150

[Guest guest]

If your due date is Nov 22nd then you became pregnant on (around)

February 26th....lol.

I got pregnant Feb 15th and my due date was Nov. 11th- (2 years

after WLS).

We have a healthy 5month old boy with Momma hangin' in there at

almost 37 years old~! (This baby is an AI baby too!)

Aren't those lil AI babes just the sweetest things! (lol)

Welcome to the club! <----such a cliche' but I mean it!

lol

~!*~!*~!*~!*~~*!*~!*~!*~!*~~!*~*!~*!*~!*~*!

Sheila, RN-SAHM for now

Mom to Blake 9/25/94

Mom to Christian 10/24/02 <--he came earlier than 11/11

Wife to Jim 5/26/01

[Guest guest]

Welcome Candi!

You are at the right place for great support,knowledge,advice, and

alot of good fun.

Good Luck and God Bless.

Sharon_H.(TTC #4).

34yrs.

115lbs.

WLS215lbs (DOT)

> Hello my name is Candi. I live in Phx, AZ. Here is my story.

>

> My gastric bypass was performed Nov 14,2001. I am 17 months out.

> Before surgery my diabetes was very high. 300 range. For the

past

> few months my sugars have been dropping to 30's. So I had been

> working with my PCP to find out why. I have been eating healthy,

> high protein, low carbs.

>

> On Wednesday I started feeling worse. I bought some new blood check

> sticks. To make sure. I came home from work, because I felt so bad.

>

> Let me back some. All of my menstrual life I have had polystistic

> ovarian syndrome. Which means I didn't have periods without taking

> progesterone. Until last February. They have been like clockwork

21st

> if every month. When women work together they start cycling

together.

> Well my buddy screwed up her birth control pills and started a week

> early, which made me start Feb 15. Something made me buy a

pregnancy

> test when I was at Walgreen's getting my checks sticks. I came home

> and went to bed, because I felt so bad. About 2 hrs later I woke up

> and took the test. Well those Blue lines were fast and bright. So I

> called the Dr. asked for a blood test. Today it was confirmed I am

> pregnant. I am about 6 weeks along Due Nov 22 (if my calculations

are

> right).

>

> Oh, yes we are shocked. Our daughter, who will be 10 in August, was

> an AI baby. My husbands sperm count is less than 800,000. (From

> surgeries he had done as a child).

>

> So this explain why my blood sugars are dropping so low. So I am

with

> child.

>

> I did find out the OB I will be seeing has had a Gastric Bypass.

So

> that makes my husband feel a little better.

>

> Thanks for Listening,

>

> Candi

[Guest guest]

Congrats, Candi! How excited you must be!

I'm a PCO-er, too. You'll find that there a quite of few here. ;o)

This is a great group...lots of experienced women willing to share.

Blessings,

in CA

_____

Jordan's WAHMommy

michelle@...

Newbie

Hello my name is Candi. I live in Phx, AZ. Here is my story.

My gastric bypass was performed Nov 14,2001. I am 17 months out.

Before surgery my diabetes was very high. 300 range. For the past

few months my sugars have been dropping to 30's. So I had been

working with my PCP to find out why. I have been eating healthy,

high protein, low carbs.

On Wednesday I started feeling worse. I bought some new blood check

sticks. To make sure. I came home from work, because I felt so bad.

Let me back some. All of my menstrual life I have had polystistic

ovarian syndrome. Which means I didn't have periods without taking

progesterone. Until last February. They have been like clockwork 21st

if every month. When women work together they start cycling together.

Well my buddy screwed up her birth control pills and started a week

early, which made me start Feb 15. Something made me buy a pregnancy

test when I was at Walgreen's getting my checks sticks. I came home

and went to bed, because I felt so bad. About 2 hrs later I woke up

and took the test. Well those Blue lines were fast and bright. So I

called the Dr. asked for a blood test. Today it was confirmed I am

pregnant. I am about 6 weeks along Due Nov 22 (if my calculations are

right).

Oh, yes we are shocked. Our daughter, who will be 10 in August, was

an AI baby. My husbands sperm count is less than 800,000. (From

surgeries he had done as a child).

So this explain why my blood sugars are dropping so low. So I am with

child.

I did find out the OB I will be seeing has had a Gastric Bypass. So

that makes my husband feel a little better.

Thanks for Listening,

Candi

[Guest guest]

Hi Candie,

I too am a newbie, I just joined the group yesterday and as I was

reading through the posts and saw your posting I just knew I had to

respond. I too live in the Phoenix, AZ area and I had my WLS in

December of 2001 and am 16 months post op. My husband and I just

learned a few weeks ago that I am pregnant and also due in mid-

November, November 16 according to the dates that we have! It's

exciting to find someone locally that is in nearly the exact same

place that I am! Congratulations on your little miracle! I look

forward to gaining lots of knowledge from this group! Thanks for

letting me introduce myself.

Nita

> Hello my name is Candi. I live in Phx, AZ. Here is my story.

>

> My gastric bypass was performed Nov 14,2001. I am 17 months out.

> Before surgery my diabetes was very high. 300 range. For the

past

> few months my sugars have been dropping to 30's. So I had been

> working with my PCP to find out why. I have been eating healthy,

> high protein, low carbs.

>

> On Wednesday I started feeling worse. I bought some new blood check

> sticks. To make sure. I came home from work, because I felt so bad.

>

> Let me back some. All of my menstrual life I have had polystistic

> ovarian syndrome. Which means I didn't have periods without taking

> progesterone. Until last February. They have been like clockwork

21st

> if every month. When women work together they start cycling

together.

> Well my buddy screwed up her birth control pills and started a week

> early, which made me start Feb 15. Something made me buy a

pregnancy

> test when I was at Walgreen's getting my checks sticks. I came home

> and went to bed, because I felt so bad. About 2 hrs later I woke up

> and took the test. Well those Blue lines were fast and bright. So I

> called the Dr. asked for a blood test. Today it was confirmed I am

> pregnant. I am about 6 weeks along Due Nov 22 (if my calculations

are

> right).

>

> Oh, yes we are shocked. Our daughter, who will be 10 in August, was

> an AI baby. My husbands sperm count is less than 800,000. (From

> surgeries he had done as a child).

>

> So this explain why my blood sugars are dropping so low. So I am

with

> child.

>

> I did find out the OB I will be seeing has had a Gastric Bypass.

So

> that makes my husband feel a little better.

>

> Thanks for Listening,

>

> Candi

[Guest guest]

Hi, my name is . I am dabbling in this site because of my main

concerns. I am preop, and still havent made up my mind. Although I

know I desperately need to do something about my weight, I am not

sure which course to take. I have a BMI of 48. I am 25 yrs old, and

have had 2 miscarriages. I have no children. I have been married

for 5 years, and would like to start a family. I was originally

planning on the Lap Band, but am still not convinced. I see a lot of

people on this procedure on diets and struggling to loose weight.

I am also very concerned about the nutrition my baby would receive

once pregnant. I have newly diagnosed hypothyroidism and know how

this plays into the whole scheme of things, but dont know if it would

affect anything postop.

Any advice would be very helpful, and I would very mucha appreciate

it. Also, is there anyone here who has had any surgery and regretted

it?

Thanks,

[Guest guest]

sonia

we have no promise of tomorrow, so we have to live each day to its fullest.

and sweetie if god blesses you with a child at our age then if you have 10

years with it count each day as a blessing.

my mom had my brother at 43 years old she died at 51 of bone cancer. and i

thank god every day for the time she had with him,.he was # 8 for my mom and

dad he is the only boy, and he is just wonderful, there are 4 girls older

than me, 2 girls younger and my brother.

i was the strong one so to speak, <not> but my mom though so, the doctor

gave her 3 months to live , she made it for 13 months , in that time she got

every thing in order, she had each of us boxes of stuff .

with my box even with my dad still living she gave me my brother.

he is now 27 years old and he is the best,

so thats also how i look at it , im 41 and i know the time my mom had with

my brother was the joy in her life.

so you stop worring and have that baby and enjoy it to the fullest, love to

you judy

[Guest guest]

sonia

we have no promise of tomorrow, so we have to live each day to its fullest.

and sweetie if god blesses you with a child at our age then if you have 10

years with it count each day as a blessing.

my mom had my brother at 43 years old she died at 51 of bone cancer. and i

thank god every day for the time she had with him,.he was # 8 for my mom and

dad he is the only boy, and he is just wonderful, there are 4 girls older

than me, 2 girls younger and my brother.

i was the strong one so to speak, <not> but my mom though so, the doctor

gave her 3 months to live , she made it for 13 months , in that time she got

every thing in order, she had each of us boxes of stuff .

with my box even with my dad still living she gave me my brother.

he is now 27 years old and he is the best,

so thats also how i look at it , im 41 and i know the time my mom had with

my brother was the joy in her life.

so you stop worring and have that baby and enjoy it to the fullest, love to

you judy

[Guest guest]

sonia

we have no promise of tomorrow, so we have to live each day to its fullest.

and sweetie if god blesses you with a child at our age then if you have 10

years with it count each day as a blessing.

my mom had my brother at 43 years old she died at 51 of bone cancer. and i

thank god every day for the time she had with him,.he was # 8 for my mom and

dad he is the only boy, and he is just wonderful, there are 4 girls older

than me, 2 girls younger and my brother.

i was the strong one so to speak, <not> but my mom though so, the doctor

gave her 3 months to live , she made it for 13 months , in that time she got

every thing in order, she had each of us boxes of stuff .

with my box even with my dad still living she gave me my brother.

he is now 27 years old and he is the best,

so thats also how i look at it , im 41 and i know the time my mom had with

my brother was the joy in her life.

so you stop worring and have that baby and enjoy it to the fullest, love to

you judy

[Guest guest]

>Hi this is my first post... I just need a little information, My 16

year old son was diagnosed

> with ulcerative colitis 2 years ago; at the time he also had elevated

> LFT's...

I'm sorry about your son - my son is 16 too, UC and PSC diagnosed in

February 2006, but elevated liver function tests for at least four

years before. Liver enzymes do vary and often go up and down.

Repeating both the complete blood count and chemistry tests will show

trending. Hopefully, your son is feeling pretty well now?

Take care.

Joanne

(, Ca; son, , 16)

[Guest guest]

>Hi this is my first post... I just need a little information, My 16

year old son was diagnosed

> with ulcerative colitis 2 years ago; at the time he also had elevated

> LFT's...

I'm sorry about your son - my son is 16 too, UC and PSC diagnosed in

February 2006, but elevated liver function tests for at least four

years before. Liver enzymes do vary and often go up and down.

Repeating both the complete blood count and chemistry tests will show

trending. Hopefully, your son is feeling pretty well now?

Take care.

Joanne

(, Ca; son, , 16)

[Guest guest]

>Hi this is my first post... I just need a little information, My 16

year old son was diagnosed

> with ulcerative colitis 2 years ago; at the time he also had elevated

> LFT's...

I'm sorry about your son - my son is 16 too, UC and PSC diagnosed in

February 2006, but elevated liver function tests for at least four

years before. Liver enzymes do vary and often go up and down.

Repeating both the complete blood count and chemistry tests will show

trending. Hopefully, your son is feeling pretty well now?

Take care.

Joanne

(, Ca; son, , 16)

[Guest guest]

>

Hi,

thanks for your answer. is feeling well, just very uncertain

about his future. He asks questions that I find very difficult to

answer. Has your son ever returned a blood test that showed mild

neutropenia? I live in , Australia, are there others in this

support group from Oz? Tim was diagnosed with UC late 2004, and PSC

early 2005.

Thanks again... its nice to know we are not alone.

Penny.

> I'm sorry about your son - my son is 16 too, UC and PSC diagnosed in

> February 2006, but elevated liver function tests for at least four

> years before. Liver enzymes do vary and often go up and down.

> Repeating both the complete blood count and chemistry tests will show

> trending. Hopefully, your son is feeling pretty well now?

>

> Take care.

> Joanne

> (, Ca; son, , 16)

>

[Guest guest]

>

Hi,

thanks for your answer. is feeling well, just very uncertain

about his future. He asks questions that I find very difficult to

answer. Has your son ever returned a blood test that showed mild

neutropenia? I live in , Australia, are there others in this

support group from Oz? Tim was diagnosed with UC late 2004, and PSC

early 2005.

Thanks again... its nice to know we are not alone.

Penny.

> I'm sorry about your son - my son is 16 too, UC and PSC diagnosed in

> February 2006, but elevated liver function tests for at least four

> years before. Liver enzymes do vary and often go up and down.

> Repeating both the complete blood count and chemistry tests will show

> trending. Hopefully, your son is feeling pretty well now?

>

> Take care.

> Joanne

> (, Ca; son, , 16)

>

[Guest guest]

>

Hi,

thanks for your answer. is feeling well, just very uncertain

about his future. He asks questions that I find very difficult to

answer. Has your son ever returned a blood test that showed mild

neutropenia? I live in , Australia, are there others in this

support group from Oz? Tim was diagnosed with UC late 2004, and PSC

early 2005.

Thanks again... its nice to know we are not alone.

Penny.

> I'm sorry about your son - my son is 16 too, UC and PSC diagnosed in

> February 2006, but elevated liver function tests for at least four

> years before. Liver enzymes do vary and often go up and down.

> Repeating both the complete blood count and chemistry tests will show

> trending. Hopefully, your son is feeling pretty well now?

>

> Take care.

> Joanne

> (, Ca; son, , 16)

>

[Guest guest]

Hi ,

Thanks for your reply. is scheduled to have another

appointment with the Doc in three weeks time, he does have another

blood test before then so I will be sure to ask about the

possibility of an enlarged spleen when we see him. I'll have a look

at the web site too.

Penny,

Mother of 16, UC 11/2004 PSC 2/2005.

>

> > So this might be something you could talk to your son's doctors

> about ... could the elevated LFT's be a sign of a dominant

stricture

> developing?

>

> Best regards,

>

> Dave

> (father of (21); PSC 07/03; UC 08/03)

>

> [i just returned from Bethesda, MD, after dropping off

there

> for his summer internship at NIH].

>

>

> ---

[Guest guest]

Hi ,

Thanks for your reply. is scheduled to have another

appointment with the Doc in three weeks time, he does have another

blood test before then so I will be sure to ask about the

possibility of an enlarged spleen when we see him. I'll have a look

at the web site too.

Penny,

Mother of 16, UC 11/2004 PSC 2/2005.

>

> > So this might be something you could talk to your son's doctors

> about ... could the elevated LFT's be a sign of a dominant

stricture

> developing?

>

> Best regards,

>

> Dave

> (father of (21); PSC 07/03; UC 08/03)

>

> [i just returned from Bethesda, MD, after dropping off

there

> for his summer internship at NIH].

>

>

> ---