Guest guest Posted October 10, 2003 Report Share Posted October 10, 2003 Welcome Priscilla )!!!!!!!!!! Congrats on your 29 pounds so far )!!!!!!! fitnessgurl777@... wrote: Hi Everyone, My names Priscilla, i'm a 20 female from MA, i love researching diet and fitness and right now i'm on my journey to losing weight and reaching my goal, my sw. 250 cw. 221 gw. 120 i've lost 29 lbs so far and i believe so now its time to achieve, i would love to meet the rest of the group!!! Be a F.R.O.G., GLYSDI, I love living in the FOG Gymmie, Tae and Bo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2003 Report Share Posted October 10, 2003 Welcome to the group. I hope you enjoy it here. Teri from Cincinnatir new member > Hi Everyone, > My names Priscilla, i'm a 20 female from MA, i love researching diet and > fitness and right now i'm on my journey to losing weight and reaching my > goal, my sw. 250 cw. 221 gw. 120 i've lost 29 lbs so far and i believe so now its > time to achieve, i would love to meet the rest of the group!!! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2003 Report Share Posted October 10, 2003 Welcome to the group. I hope you enjoy it here. Teri from Cincinnatir new member > Hi Everyone, > My names Priscilla, i'm a 20 female from MA, i love researching diet and > fitness and right now i'm on my journey to losing weight and reaching my > goal, my sw. 250 cw. 221 gw. 120 i've lost 29 lbs so far and i believe so now its > time to achieve, i would love to meet the rest of the group!!! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2003 Report Share Posted October 10, 2003 Welcome to the group. I hope you enjoy it here. Teri from Cincinnatir new member > Hi Everyone, > My names Priscilla, i'm a 20 female from MA, i love researching diet and > fitness and right now i'm on my journey to losing weight and reaching my > goal, my sw. 250 cw. 221 gw. 120 i've lost 29 lbs so far and i believe so now its > time to achieve, i would love to meet the rest of the group!!! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2003 Report Share Posted October 10, 2003 Hi Priscilla, I'm Liz, I'm a 39 year old mother of 2 teenaged boys living in Cincinnati, OH. I started WW last June and by Jan. had lost 55 pounds....I got off track and gained 5 back, so I rejoined a few weeks ago. SW 205, CW 159, GW 145 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2003 Report Share Posted October 10, 2003 Hi Priscilla, I'm Liz, I'm a 39 year old mother of 2 teenaged boys living in Cincinnati, OH. I started WW last June and by Jan. had lost 55 pounds....I got off track and gained 5 back, so I rejoined a few weeks ago. SW 205, CW 159, GW 145 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2003 Report Share Posted October 10, 2003 Hi Priscilla, I'm Liz, I'm a 39 year old mother of 2 teenaged boys living in Cincinnati, OH. I started WW last June and by Jan. had lost 55 pounds....I got off track and gained 5 back, so I rejoined a few weeks ago. SW 205, CW 159, GW 145 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2003 Report Share Posted November 12, 2003 Well, Vicky, you are probably overwhelmed at how fast we respond! I welcome you from California. I was diagnosed in 1997 and I'm 58 now. My symptoms began with my speech. Almost two years ago, the PLS community joined with the HSP (Hereditary Spastic Paraplegia) community to form the Spastic Paraplegia Foundation (SPF)...mouth full, huh? These are both upper motor neuron diseases and often someone will receive a PLS dx only later to learn it is HSP, and vice versa. We joined forces so that we are now able to raise more money for research. Our signature fundraiser, TeamWalk for Our Cure, was held in October and that alone raised over $140,000 (and our treasurer is still receiving donations). It's amazing how far we've come in our two short years...but we'll save that for later. We do have Patient Connections all over the country and that's your best bet...meet some of us. Thanks for finding us....and we definitely know how you feel right now. Gentner Fremont, CA SP-foundation www.sp-foundation.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2003 Report Share Posted November 12, 2003 Hi Vicky, Welcome to the PLS " Friends " group, and that's just what you'll find here, is friends. I was also 51 when diagnosed with PLS at the Mayo Clinic in Minnesota. I live in Iowa, so the famous clinic is just a hop, skip, and a jump from me. I too knew nothing about PLS, and found this group within a day or two of diagnosis, and these people are wonderful! I learned more here than anywhere about the disease, as well as have gotten many laughs, lots of support, and made many friends. Once again, welcome to the best group on the net! Hugs, Laurel New Member I just found this web site today and joined. I am 51 and I also have PLS. I have never talked to anyone that has it, so this is a new experience for me. I will do an introduction File, probably next wk. Please accept me into this group I really need it. Vicky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2003 Report Share Posted November 12, 2003 Ive not heard of the Patient Connections GEO lkgentner@... wrote: Well, Vicky, you are probably overwhelmed at how fast we respond! I welcome you from California. I was diagnosed in 1997 and I'm 58 now. My symptoms began with my speech. Almost two years ago, the PLS community joined with the HSP (Hereditary Spastic Paraplegia) community to form the Spastic Paraplegia Foundation (SPF)...mouth full, huh? These are both upper motor neuron diseases and often someone will receive a PLS dx only later to learn it is HSP, and vice versa. We joined forces so that we are now able to raise more money for research. Our signature fundraiser, TeamWalk for Our Cure, was held in October and that alone raised over $140,000 (and our treasurer is still receiving donations). It's amazing how far we've come in our two short years...but we'll save that for later. We do have Patient Connections all over the country and that's your best bet...meet some of us. Thanks for finding us....and we definitely know how you feel right now. Gentner Fremont, CA SP-foundation www.sp-foundation.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2003 Report Share Posted November 12, 2003 In a message dated 11/12/2003 9:38:39 AM Pacific Standard Time, congeo1@... writes: Ive not heard of the Patient Connections GEO Where have you been? :-) They are always listed in E-News (Kathi Geisler posts the first of every month) and you can also find them on the SPF website. www.sp-foundation.org Several people have talked recently about Casual Connections where a few local people just get together for lunch or dinner. However, since I read both PLS and HSP lists, I read more than the average bear....me and Dale, that is. Dale posts as much on the HSP list as he does here on PLS-Friends. The HSP Discussion Group is HSP-L@... if you want to see what they have to say...much like us. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2003 Report Share Posted November 12, 2003 Hi Vicky, Welcome, welcome you are very much accepted. I was diagnosed in 2000. I'm on Celebrex 200 mg 2 x a day for pain and Zanaflex 2 mg (supposed to be 6 a day, but they zonk me out so I only take one at bedtime. I speak the language of " slur " fluently and imitate a slow turtle when I walk. I'm hoping for a cure soon for all of us. That's part of my story. Again, welcome, you are not alone. Hang in there. God Bless Yolanda New Member I just found this web site today and joined. I am 51 and I also have PLS. I have never talked to anyone that has it, so this is a new experience for me. I will do an introduction File, probably next wk. Please accept me into this group I really need it. Vicky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2003 Report Share Posted November 12, 2003 Vicky, You're accepted. Now, I'm not the official greeter, but just one of many who will have already welcomed you. Believe me, if you have any needs, this is the place to be for PLS. I'm 55 and have had PLS for about 9 or 10 years now. I have trouble really knowing since some things that may have been precursors to PLS I just ignored. I now know that it would not have made any difference if I had paid attention to them, this yucky disease would have raised its ugly head anyway. Please feel free to ask or say anything you want. Someone will have an answer or just a kind, supportive word. Sometimes the latter is all one needs. Welcome? to the group. You will soon know you are surrounded by friends. Mike Gray Logansport IN vickyb0521 wrote: >I just found this web site today and joined. I am 51 and I also have >PLS. I have never talked to anyone that has it, so this is a new >experience for me. I will do an introduction File, probably next >wk. Please accept me into this group I really need it. > >Vicky > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2003 Report Share Posted November 13, 2003 Welcome Vicky: You have found a 'wonderful group of friends' who will give you all the support and information you could want. They are my 'lifeline'. Will look forward to reading your introduction File. You don't need to ask for 'acceptance' it is automatic here. Take care and once again " welcome " . Jo! New Member > I just found this web site today and joined. I am 51 and I also have > PLS. I have never talked to anyone that has it, so this is a new > experience for me. I will do an introduction File, probably next > wk. Please accept me into this group I really need it. > > Vicky > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2003 Report Share Posted November 13, 2003 , As everyone else has said, sorry you have this " thing " , but glad you found us. This group is amazing, as you will find out. I'm a new member myself, just found this group last week and these incredible people have welcomed me with open arms and given me a huge amount of help and suggestions that I otherwise wouldn't have. Keep the faith and stay tuned, because this group has much to share. Don / OKC ps: don't ask about grits!!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2003 Report Share Posted December 6, 2003 Welcome Vicky This is a great group. I am a lurker but oooh you learn so much by just reading the questions and the groups answers. Take care, Sandy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2003 Report Share Posted December 8, 2003 Hi Dave yes we would all love to pretend this is a bad dream unfortunately it's here to stay but if you look on the bright side most of us if not all will live longer than alot of people who have disease in their bodies .Im so glad i dont have Alzheimers that would be pure torcher at least i know i will be disabled and need help getting around but i will have my mind ( cognition ) i cant see any part of Alzheimers that is good .Imagine for a minute that you dont know your wife or none else who is close to you .It's like my old theory IF YOU THINK YOU HAVE IT BAD THERES ALWAYS SOMEONE ELSE WHO HAS IT WORSE GEO New Member Hi all, My name is Dave and I am Vicky's husband. We live in WA and just returned home from the motel today. We are fine but our bedroom is not, so we will camp out in the living room. Motels are hard for Vicky (bathrooms etc.) to manage getting around in. We were very lucky compared to allot of residents here. Friends of ours got a tree thru there house and a tree also landed on there horse. So we have damage but no where as bad as others. I read this site with Vicky and decided I would like to join and learn as much as I can about this disease. I really would like to be in denial but I know I cannot. Thank you for being here. Dave Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2003 Report Share Posted December 8, 2003 Hi Dave! Welcome to the group. I was very happy to hear that you were alright up there in Washington, and I'm glad to hear that your damage is at least manageable. That's better than a tree through your house! There's alot of good info and encouragement on this website so stay tuned. Hey, my husband is from Tacoma. I was telling Vicky that we may visit up there in the Spring, so I'll keep you all posted to let you know if and when. Again, welcome to the group. Maureen - Castle Rock, CO > Hi all, > > My name is Dave and I am Vicky's husband. We live in WA and just > returned home from the motel today. We are fine but our bedroom is > not, so we will camp out in the living room. Motels are hard for > Vicky (bathrooms etc.) to manage getting around in. > > We were very lucky compared to allot of residents here. Friends of > ours got a tree thru there house and a tree also landed on there > horse. So we have damage but no where as bad as others. > > I read this site with Vicky and decided I would like to join and > learn as much as I can about this disease. I really would like to > be in denial but I know I cannot. > > > Thank you for being here. > > Dave Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2004 Report Share Posted May 29, 2004 Greetings, Many here know the feelings you described. I am sure that your post will get numerous replies. As you will find out, there is a possible cure - ablation - for your problem. However there are some risks and it is not a foolproof magic bullet. This has personal accounts from fellow afibbers who have had ablations. Please also see: http://www.a-fib.com/PersonalExperiences.htm There are also many other ablation veterans who post on AFIBsupport and also many more who take meds instead. Best wishes. - cured after 2 ablations Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2004 Report Share Posted May 29, 2004 Greetings, Many here know the feelings you described. I am sure that your post will get numerous replies. As you will find out, there is a possible cure - ablation - for your problem. However there are some risks and it is not a foolproof magic bullet. This has personal accounts from fellow afibbers who have had ablations. Please also see: http://www.a-fib.com/PersonalExperiences.htm There are also many other ablation veterans who post on AFIBsupport and also many more who take meds instead. Best wishes. - cured after 2 ablations Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2004 Report Share Posted May 29, 2004 Greetings, Many here know the feelings you described. I am sure that your post will get numerous replies. As you will find out, there is a possible cure - ablation - for your problem. However there are some risks and it is not a foolproof magic bullet. This has personal accounts from fellow afibbers who have had ablations. Please also see: http://www.a-fib.com/PersonalExperiences.htm There are also many other ablation veterans who post on AFIBsupport and also many more who take meds instead. Best wishes. - cured after 2 ablations Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2004 Report Share Posted May 29, 2004 In a message dated 5/29/04 6:00:22 AM Pacific Daylight Time, markzanderus@... writes: > So im home now getting depressed. I'm imaging my early departure > from the earth due to this unexplained defect in my body. I feel so > defective and cheated. I worry about stroke and my heart enlarging > and never being normal. > > Well, sorry to be such a downer but if anyone has any words of > wisdom for me they'd be greatly appreciated. > You're not alone .... this is how I feel every time I have an attack that lasts longer than an hour or so. And the fear and depression are difficult to shake. I also can't take ANY of the meds others do (except low-dose aspirin daily) so the stroke risk scares me enormously. It it happens at night I wonder if I will wake up if I fall asleep. This disorder IS a downer and it sucks majorly.... but you will find a lot of support here ... and things (natural) to try to help. For me, magnesium supplements 2x a day have helped enormously. This gives me more of a sense of control and less of a sense of powerlessness and impotence, which helps keep the fear at bay. But I still live in fear of the next attack ... and every PVC that happens, or SVT attack, I wonder if it's gonna trigger an a-fib. Then when they stop after a few minutes I am very grateful and relieved. We've all been where you are right now (at least I have been) ... keep sharing ... the support you get here will help I think. People here understand, and more importantly, care. It's an amazing group. Toni CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2004 Report Share Posted May 29, 2004 In a message dated 5/29/04 6:00:22 AM Pacific Daylight Time, markzanderus@... writes: > So im home now getting depressed. I'm imaging my early departure > from the earth due to this unexplained defect in my body. I feel so > defective and cheated. I worry about stroke and my heart enlarging > and never being normal. > > Well, sorry to be such a downer but if anyone has any words of > wisdom for me they'd be greatly appreciated. > You're not alone .... this is how I feel every time I have an attack that lasts longer than an hour or so. And the fear and depression are difficult to shake. I also can't take ANY of the meds others do (except low-dose aspirin daily) so the stroke risk scares me enormously. It it happens at night I wonder if I will wake up if I fall asleep. This disorder IS a downer and it sucks majorly.... but you will find a lot of support here ... and things (natural) to try to help. For me, magnesium supplements 2x a day have helped enormously. This gives me more of a sense of control and less of a sense of powerlessness and impotence, which helps keep the fear at bay. But I still live in fear of the next attack ... and every PVC that happens, or SVT attack, I wonder if it's gonna trigger an a-fib. Then when they stop after a few minutes I am very grateful and relieved. We've all been where you are right now (at least I have been) ... keep sharing ... the support you get here will help I think. People here understand, and more importantly, care. It's an amazing group. Toni CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2004 Report Share Posted May 29, 2004 In a message dated 5/29/04 6:00:22 AM Pacific Daylight Time, markzanderus@... writes: > So im home now getting depressed. I'm imaging my early departure > from the earth due to this unexplained defect in my body. I feel so > defective and cheated. I worry about stroke and my heart enlarging > and never being normal. > > Well, sorry to be such a downer but if anyone has any words of > wisdom for me they'd be greatly appreciated. > You're not alone .... this is how I feel every time I have an attack that lasts longer than an hour or so. And the fear and depression are difficult to shake. I also can't take ANY of the meds others do (except low-dose aspirin daily) so the stroke risk scares me enormously. It it happens at night I wonder if I will wake up if I fall asleep. This disorder IS a downer and it sucks majorly.... but you will find a lot of support here ... and things (natural) to try to help. For me, magnesium supplements 2x a day have helped enormously. This gives me more of a sense of control and less of a sense of powerlessness and impotence, which helps keep the fear at bay. But I still live in fear of the next attack ... and every PVC that happens, or SVT attack, I wonder if it's gonna trigger an a-fib. Then when they stop after a few minutes I am very grateful and relieved. We've all been where you are right now (at least I have been) ... keep sharing ... the support you get here will help I think. People here understand, and more importantly, care. It's an amazing group. Toni CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2004 Report Share Posted May 29, 2004 > I am a 36 year old male who used to be a college athlete. I had my > first episode in 1994. I was sitting at the dinner table eating ice > cream when I noticed this unbelievable sensation in my chest. It > felt like my heart jumped straight out of my chest. My initial knee- > jerk reactions was, " I'm having a heart attack! " Then, " Oh shit, > I'm a dead man " . Ok, after those two thoughts left my > consciousness, I immediately reached for the phone and dialed 911. > ..................................... Welcome to the " club " . There are a lot of people here who understand exactly how you're feeling ad what you're going through. You'll get a lot of information here, some on different medications that might help you, some on certain supplements said to prevent or delay AFIB, some of interventional procedures that have a good chance at curing AFIB. Some people on this board have 4 or 5 episodes every week, some are in permanent AFIB, some have to get shocked to come out of it.........so there a lot of different situations when it comes to AFIB ad you are ot alone. If you have specific questions just ask and you'll get loads of information from various sources. You can then sort through them and decide along with your doctor which course is best for you. One very important thing you'll learn is that the EP field is expanding so rapidly with some many new studies and new technology and new drug information coming out on almost a weekly basis that it's hard to keep up with it. The future for AFIB looks very promising. P <Michigan> Quote Link to comment Share on other sites More sharing options...
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