Re: need to talk to someone with stage IV Colon cancer

[Guest guest]

Dear ,

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to say, but all I can do is tell you about how our products have

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includes cancer of up to the fourth stage ( Yes, I am an MLM

distributor endorsing our products, of course at this stage

percentage of cure is lesser ).

We use Natural Food Supplements as an alternative medicine to your

illness. And we've been doing it for 8 years and still continue to

help those people that cannot be helped by modern medicine.

And if in case you believe me and want to know what I am presenting

to you, don't hesitate to ask, even only out of curiosity.

Thank You,

Harold Sy.

>

> I was diagnosed three years ago and am now in a state where I feel

> frustrated and alone. I've been steadily losing weight for the

past

> six months. I'm on Avistan and no significant change during the

last

> CT scan. I'm not hungry and TRY to force myself to eat. Are

there

> any others out there that have had or are dealing with stage IV

colon

> cancer out there that I can talk to? I need someone who is going

> through the same things as me or at least can relate.

> Sound like a cry for help? it is :c(

>

>

[Guest guest]

,

I have Stage IV Colorectal cancer as well. I can probably

relate to some of the things that you are going through - and I can

see that it has been a long time for you. Cancer is a terrible

thing - maybe worse than the symptoms of the disease itself, it can

trick you into thinking about it constantly - if you look back

through this forum, you see quite a few posts from me - the reason

for that is that I often cannot get it off of my mind - you wonder

about what types of symptoms that you'll get when it advances; you

think about what it will be like to die; even if you're at peace

with an afterlife, you think about how much you will miss the things

and people around you, and you wonder if they will miss you. People

can be talking to you, but you ignore them because you have other

things on your mind. As much as you don't want to die, sometimes it

seems as if it would really be so much easier. It gets really tough

to sleep.

Being on chemotherapy doesn't help, because it introduces side

effects that are not pleasant. It sounds to me like you are dealing

with all of this - the fact that you are not hungry might be due as

much to your weariness with all of this as it is with any chemical

effect going on in your body. It's hard to tell.

But you can deal with all of the above and still be happy. I'm

a little different than you - chemotherapy was making me sick - I

went from 185 to 150 or so, and we were seeing nothing really

happening, although the scale probably tipped to the disease

progressing. But every time I took a dose, I thought that I was

going to die. Scared my wife half to death. So my doc and I

decided to get off of chemo for at least a while. It has been four

months now and I'm back up to 190 or so - in fact, I'm probably

fatter than I've ever been. The disease is still in me, and its

probably even progressed a bit, but I'm happy and generally, I feel

good. You can be still be happy too. There is time - it is not out

yet. I'm not by any stretch of the imagination saying to ditch

chemotherapy - I'm just using my experience as an example that it

can still get better. But cutting back may help a bit - 3 1/2 years

is a long time. When I first got sick, I also went and saw my

priest, and to be honest, just kind of verbalized all of my

thoughts, getting it off of my chest. I could say things to him

that I couldn't say to my wife. It was a great relief - you can

cry, throw up your arms, whatever - they are there to be receivers.

Maybe that would help as well. You say things to yourself all of

the time - sometimes it feels better to say them to other people.

All the Best - don't hesitate to post or send an email if you don't

want too much exposure. Even though we don't know you, there are a

lot of people on the list that are pulling for you.

Joe

>

> I was diagnosed three years ago and am now in a state where I feel

> frustrated and alone. I've been steadily losing weight for the

past

> six months. I'm on Avistan and no significant change during the

last

> CT scan. I'm not hungry and TRY to force myself to eat. Are

there

> any others out there that have had or are dealing with stage IV

colon

> cancer out there that I can talk to? I need someone who is going

> through the same things as me or at least can relate.

> Sound like a cry for help? it is :c(

>

>

[Guest guest]

Joe,

Thank you so much for your post. It really helps me to understand

what is going on in 's mind. He does not want to eat anymore

and stays in bed 24-7 and that is just not like him.

Lately, he stays up all night watching TV and sleeps all day. It

seems he get a sort of security knowing I am up.

It has been really taking a toll on my body but nothing compared to

what he is going thru.

Thanks for explaining,

Joyce-

-- In colon_cancer_support , " Joe " <jsulli8@n...>

wrote:

>

> ,

> I have Stage IV Colorectal cancer as well. I can probably

> relate to some of the things that you are going through - and I

can

> see that it has been a long time for you. Cancer is a terrible

> thing - maybe worse than the symptoms of the disease itself, it

can

> trick you into thinking about it constantly - if you look back

> through this forum, you see quite a few posts from me - the reason

> for that is that I often cannot get it off of my mind - you wonder

> about what types of symptoms that you'll get when it advances; you

> think about what it will be like to die; even if you're at peace

> with an afterlife, you think about how much you will miss the

things

> and people around you, and you wonder if they will miss you.

People

> can be talking to you, but you ignore them because you have other

> things on your mind. As much as you don't want to die, sometimes

it

> seems as if it would really be so much easier. It gets really

tough

> to sleep.

> Being on chemotherapy doesn't help, because it introduces

side

> effects that are not pleasant. It sounds to me like you are

dealing

> with all of this - the fact that you are not hungry might be due

as

> much to your weariness with all of this as it is with any chemical

> effect going on in your body. It's hard to tell.

> But you can deal with all of the above and still be happy.

I'm

> a little different than you - chemotherapy was making me sick - I

> went from 185 to 150 or so, and we were seeing nothing really

> happening, although the scale probably tipped to the disease

> progressing. But every time I took a dose, I thought that I was

> going to die. Scared my wife half to death. So my doc and I

> decided to get off of chemo for at least a while. It has been

four

> months now and I'm back up to 190 or so - in fact, I'm probably

> fatter than I've ever been. The disease is still in me, and its

> probably even progressed a bit, but I'm happy and generally, I

feel

> good. You can be still be happy too. There is time - it is not

out

> yet. I'm not by any stretch of the imagination saying to ditch

> chemotherapy - I'm just using my experience as an example that it

> can still get better. But cutting back may help a bit - 3 1/2

years

> is a long time. When I first got sick, I also went and saw my

> priest, and to be honest, just kind of verbalized all of my

> thoughts, getting it off of my chest. I could say things to him

> that I couldn't say to my wife. It was a great relief - you can

> cry, throw up your arms, whatever - they are there to be

receivers.

> Maybe that would help as well. You say things to yourself all of

> the time - sometimes it feels better to say them to other people.

>

> All the Best - don't hesitate to post or send an email if you

don't

> want too much exposure. Even though we don't know you, there are

a

> lot of people on the list that are pulling for you.

>

> Joe

>

> >

> > I was diagnosed three years ago and am now in a state where I

feel

> > frustrated and alone. I've been steadily losing weight for the

> past

> > six months. I'm on Avistan and no significant change during the

> last

> > CT scan. I'm not hungry and TRY to force myself to eat. Are

> there

> > any others out there that have had or are dealing with stage IV

> colon

> > cancer out there that I can talk to? I need someone who is

going

> > through the same things as me or at least can relate.

> > Sound like a cry for help? it is :c(

> >

> >

[Guest guest]

My husband, Phil, is stage 4. He doesn't have weight loss or appetite

problems now but he has in the past.

First off are you on diuretics? This was a problem for Phil and once off them

his appetite returned and then some. Make sure you drink water A LOT you need

it with all the chemo and you certainly don't want to have to have IV fluids

if you can avoid it. Start slow Phil liked Carnation Instant breakfast and

ice-cream. He also ate a lot of broiled chicken and mashed potatoes.

If you like Carnation or some of the other drinks their websites have recipes

that will add calories. The sites are

www.carnation.com and www.ensure.com .

Hope this helps

Narice

" As long as I know the WHO

I can bear any HOW

even though I don't know WHY "

(Commentary on Job from Dialogue in Despair)