Guest guest Posted July 3, 2002 Report Share Posted July 3, 2002 pmmnmb wrote: > > Just to update those of you who responded to my email below (for > reference), I called my endo yesterday and had her call in a > prescription for PTU for me to make the switch, which I did starting > with this morning's dose. I just indicated that I didn't want to > wait until I got pregnant to make the switch from generic Tap to PTU, > not that we are trying but you never know. > > So far, I've felt no difference with taking the Synthroid even though > it has only been 5 days. I'll have labs done in 4 weeks to see where > my new block and replace therapy has taken me. Hopefully I will > start drifting away from hypo land. Okay you are on 10mg Tapazole - which is (VERY) roughly 100mg daily of PTU. PTU is best taken 3 times a day, at 8 hour intervals, if you were slightly hypo the doctor might drop the dose (but you got thyroxine instead which might be better!). So I assume you'll be doing about 25 mg every 8 hours, which is 75mg daily, but that is the closest easy dose to work out (1/2 a pill every 8 hours), or you'll be left doing some even more convoluted pill juggling like 1/2 for breakfast, 1/2 with afternoon coffee, 1 at bed time.... argh. So what dose did the doctor suggest? Simon, very concerned your doc doesn't get the starting dose too wrong like mine did, it was about 3 days before I was sweating continuously, and Elaine and co. persuaded me to split the dose...... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2002 Report Share Posted July 3, 2002 Simon, my doc suggested that I take 50 mg twice a day (Yes-100 mg a day). I know that PTU should be taken every 8 hours but I thought I would go with what she suggested first before I started breaking the pills up into 3 doses. What do you think? (Or anyone else out there reading this post?) What did your doc start you out with on PTU that screwed up your system? in land ____________________________________________________________________________ Simon Waters wrote: pmmnmb wrote: > > Just to update those of you who responded to my email below (for > reference), I called my endo yesterday and had her call in a > prescription for PTU for me to make the switch, which I did starting > with this morning's dose. I just indicated that I didn't want to > wait until I got pregnant to make the switch from generic Tap to PTU, > not that we are trying but you never know. > > So far, I've felt no difference with taking the Synthroid even though > it has only been 5 days. I'll have labs done in 4 weeks to see where > my new block and replace therapy has taken me. Hopefully I will > start drifting away from hypo land. Okay you are on 10mg Tapazole - which is (VERY) roughly 100mg daily of PTU. PTU is best taken 3 times a day, at 8 hour intervals, if you were slightly hypo the doctor might drop the dose (but you got thyroxine instead which might be better!). So I assume you'll be doing about 25 mg every 8 hours, which is 75mg daily, but that is the closest easy dose to work out (1/2 a pill every 8 hours), or you'll be left doing some even more convoluted pill juggling like 1/2 for breakfast, 1/2 with afternoon coffee, 1 at bed time.... argh. So what dose did the doctor suggest? Simon, very concerned your doc doesn't get the starting dose too wrong like mine did, it was about 3 days before I was sweating continuously, and Elaine and co. persuaded me to split the dose...... in land --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2002 Report Share Posted July 3, 2002 Willis wrote: > > Simon, my doc suggested that I take 50 mg twice a day (Yes-100 mg a day). I know that PTU should be taken every 8 hours but I thought I would go with what she suggested first before I started breaking the pills up into 3 doses. What do you think? (Or anyone else out there reading this post?) What did your doc start you out with on PTU that screwed up your system? 50 mg twice a day sounds a good starting dose, based on what you were on before. I was hypo on 5mg a day of Carbimazole (similar to Tapazole), and am on 25mg twice a day now, so your be making the same transition as me (but twice as much of everything - don't worry that you are twice as sick they already hacked my thyroid about with surgery). The dose that screwed me up with 50mg once a day, so you see how important timing is! That is every 12 hours, not just twice a day! I tried 12.5, 12.5 25 (1/4, 1/4, half before bed) but that was too much PTU! I am slightly concerned I am getting slightly manic toward the end of the twelve hours, but if you are hypo on ATD's, with thyroxine perhaps it won't be as noticable. I also had something else going on, I suspect with my liver, hence the switch of drugs. I'm also slightly concerned at waking up at 05:00 with exciting dreams, I don't mind the exciting dreams, but 05:00 ? Still makes a change from going to bed at 05:00. I guess I'm going hyper again. I must confess I literally just sat down to look for the evidence for prescribing PTU every eight hours to see if it is strong enough to sway my doctor, hence my other post digging up references to PTU. Ironically my doctor is asking my endo if there is any reason not to try block and replace, so I might be joining you on the thyroxine (and hopefully if Dr Toft has really changed his mind perhaps T3 as well). I assume the changes over the day that I see must be due to T3 production, as my FT4 is always fine when it is measured, and it doesn't change quickly (allegedly), but they aren't measuring FT3 here (UK) arghhhh...... So I'm quite prepared to believe those who say the more evenly you can dose the PTU the better, and that we can probably have less PTU, spread more evenly - hence 25, 25, 25 I suggested for you, or 12.5 12.5 12.5 I suggested to my doctor for me (he was concerned at my cutting the pills into uneven quarters). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2002 Report Share Posted July 3, 2002 Simon, How long have you been on PTU now? I think I recall answering a post of yours when you were switching to PTU. I was on PTU before and had to switch to Tap because I had an allergic reaction. But that was after I had been on PTU for 2 months and my dosage was upped to 750 mg a day!!! I guess I was just allergic to that large of a dose. Hopefully being on the 100 mg/day won't bother me. I'll find out in a few days if it does but hopefully not. I'll keep you up to date on how the BRT is working. I also had some weird but good dreams over the weekend. They happened prior to my starting the Synthroid and PTU though. Ones that I remembered clearly and they were in color. I could describe this dress that was in one of them in great detail, even down to the inside lining of a dress that was bright blue! Strange. Maybe all of the recent posts about dreaming in color had something to do with that. in land --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2002 Report Share Posted July 3, 2002 Hi Donna! I'm sure Pam will respond, but Synthroid isn't a beta blocker. It's your thyroid hormone replacement. Beta blockers in general do this: Reduce angina attacks, stabilize irregular heartbeat, lower blood pressure, reduce frequency of vascular headaches. Synthroid is used to replace thyroid hormones. They are two very different drugs. Hope that helps! Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2002 Report Share Posted July 3, 2002 In a message dated Wed, 03 Jul 2002 20:13:44 +0100, simon@... writes: > Simon, very concerned your doc doesn't get the starting dose > too wrong like mine did, it was about 3 days before I was > sweating continuously, and Elaine and co. persuaded me to > split > the dose...... Simon, I don't really understand what you're talking about. After my doctor appt, I'm very frustrated and confused today. I've never taken any ATD's and the doc is starting me on 150 mg 3 times/day. Is that too much? It seems like an enormous dose, but I'm not familiar with it. I'm waiting to start it until I feel more comfortable with the dose. Thanks, Tori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2002 Report Share Posted July 3, 2002 Hi Tori, I am in a rush right now, and ..WOW.. lots of mail today ! I must very quickly write to you though. Please do NOT wait to start your PTU. ATDs are normally started at a high dose, to get you out of danger. THEN they are reduced . The average starting dose seems to be 300mg. But since you are VERY hyper, a slightly higher dose seems reasonable. The people you read about here on the list, taking smaller amounts have been treated longer, and are NOW at a lower dose. As you may remember, I was VERY, VERY hyper when diagnosed. I was started at 1200mg. with reductions it was about 2 mo. before I was able to get down to that 300mg. Even IF it turns out the bad hand writing was supposed to be 300mg and not the 450mg you have written there... 450mg will do no harm until you have a chance to clear up your question. Figured you needed a little perspective. Please be very careful of the Prednisone. It can make you very hyper, the first week or two that you take it. It has many other side effects. Perhaps a nice Google search will help you learn about this one. If it were ME, I would only add one strong medication at a time, and see exactly what it does. And the PTU is the ONE you really need right now. -Pam- (Ladd) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2002 Report Share Posted July 3, 2002 Thanks, Pam. I just took my first dose of PTU & beta-blocker. I need the beta-blocker to bring my heart rate down, I'm most afraid about it. I think you're right about the prednisone. I was reading the package insert and the possible side effects sounded like all the hyper symptoms. I wouldn't be able to tell if it I were having an adverse reaction to it or going very hyper. I'm going to hold off on it until I talk to my Dr. Little from Bastyr. It kinda shocked me that it was prescribed. I think she looked over my medical history and decided because in our 5 minute visit we didn't discuss anything it would be used to treat. Peace, Tori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2002 Report Share Posted July 3, 2002 Tori, I am relieved you see my logic about the prednisione. I hope you got a FULL package insert, not just the incomplete one the pharmacy prints out. I am sorry you have been frightened of the beta blocker. It will make you feel SO much better. How are you doing right now ? It has been over an hour since you took the beta blocker. It has done all it is going to do. So you NOW know what it makes you feel like. Beta blockers do not have a cumulative affect. Once they are worn off, that is it, and the next dose will then be taken. -Pam- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2002 Report Share Posted July 3, 2002 Pam, is Synthroid considered a beta blocker? If not, which category does it fit into? My doctor told me next to nothing. Donna Re: Update on my meds Tori, I am relieved you see my logic about the prednisione. I hope you got a FULL package insert, not just the incomplete one the pharmacy prints out. I am sorry you have been frightened of the beta blocker. It will make you feel SO much better. How are you doing right now ? It has been over an hour since you took the beta blocker. It has done all it is going to do. So you NOW know what it makes you feel like. Beta blockers do not have a cumulative affect. Once they are worn off, that is it, and the next dose will then be taken. -Pam- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2002 Report Share Posted July 3, 2002 Hi Tori! I'm glad your day was a success, even if it was drawn out. There is no reason to be afraid of the beta-blocker, though it could make you a little dizzy and tired at first until your body gets used to it, but it will really calm you down and make you feel somewhat normal. Just don't suddenly stop taken them. Or were you saying you are most afraid for your heart? Either way, I'm glad you are on them! I doubt the dispensary at Bastyr could help you with your questions about these meds, but maybe they would have some info on drug interactions with herbs and such, so I guess they might know more that I first assumed. Let us know how you are feeling - I bet you sleep really well tonight! :)Pam B. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2002 Report Share Posted July 3, 2002 In a message dated Wed, 3 Jul 2002 10:44:29 PM Eastern Standard Time, pladd@... writes: > I am relieved you see my logic about the prednisione. I hope you got a FULL > package insert, not just the incomplete one the pharmacy prints out. I'm really not sure why she prescribed it to me. She spoke much faster than my brain can work. I followed your advice and took in a pen & paper intending to take notes. I was barely able to stop her long enough to ask which meds she was prescribing, much less take notes. It's mainly used as an arthritis med isn't it? I have pain and stiffness in my joints sometimes, but it's not persistent enough to warrant meds. > I am sorry you have been frightened of the beta blocker. It will make you > feel SO much better. > How are you doing right now ? > It has been over an hour since you took the beta blocker. It has done all it > is going to do. So you NOW know what it makes you feel like. Beta blockers > do not have a cumulative affect. Once they are worn off, > that is it, and the > next dose will then be taken. I'm sorry, Pam. I didn't make myself clear. I'm scared of my rapid heart beat and made sure the doc gave me a beta-blocker. I feel fine now, much calmer than I've felt in a while. My heart rate is 102 bps, pretty good considering it was 128 earlier today. I had forgotten how great it feels to be 'normal'! Oh, I forgot yet again to ask the lab tech to check my blood type. Can they tell be looking at the results? I'm intrigued by the blood type diet and would like to see if I guessed my blood type correctly by finding the blood type in the diet that most closely matches my habits. If so, it would gain credibility in my opinion. Take care, Tori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2002 Report Share Posted July 3, 2002 Okay, that makes sense. I assume my doc said to take Synthroid because I had a nodule, I don't know. I was pregnant at the time, don't know if that would have made a difference. Thanks so much for the info! Donna Re: Update on my meds Hi Donna! I'm sure Pam will respond, but Synthroid isn't a beta blocker. It's your thyroid hormone replacement. Beta blockers in general do this: Reduce angina attacks, stabilize irregular heartbeat, lower blood pressure, reduce frequency of vascular headaches. Synthroid is used to replace thyroid hormones. They are two very different drugs. Hope that helps! Ann ------------------------------------- The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. Please consult your doctor before changing or trying new treatments. ---------------------------------------- DISCLAIMER Advertisments placed on this yahoo groups list does not have the endorsement of the listowner. I have no input as to what ads are attached to emails. --------------------------------------------------------------------------------\ ------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2002 Report Share Posted July 3, 2002 Donna wrote: > > Pam, is Synthroid considered a beta blocker? If not, which category does it fit into? My doctor told me next to nothing. Excuse a non-Pam reply but she didn't get there yet and I have several times zones advantage (especially since waking up at 04:30 today - argh - leaves me little better to do without waking others up - the lawn needs cutting but the neighbours won't apreciate it). Synthroid is a synthetic thyroid hormone (thyroxine, or more correctly levo-thyroxine), and is used in Graves either to; replace thyroid hormone after surgery or ablation with Radioactive Iodine. or as part of a " Block and Replace " scheme, where normal thyroid function is inhibited with antithyroid drugs like Tapazole or Propylthiouracil, and then replaced by pills. Your doctor needs kick up the ...., but you can find a lot of background information at sites like thyroid.about.com, or just ask here. Thyroxine as a replacement hormone (despite being synthetic it is chemically identical to natural T4) is very safe. The important thing being to get the dose right, but if you are in a Graves list, and prescribed synthroid (thyroxine), you've probably experience too much, and too little thyroid hormone, so we probably don't need to explain what that is like. The bone of contention with synthroid, is that the thyroid produces several hormones, including the more potent T3 hormone, and it is important to have the right levels of both T4 and T3. Rats whose thyroid function is replaced with thyroxine only don't have all their tissues returns to normal, but the conventional medical establishment is only just beginning to accept this is a vital part of thyroid hormone replacement. Some realised it a long time ago hence products like thyrolar, which contain both hormones, or the use of natural thyroid products like Armour. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2002 Report Share Posted July 3, 2002 Tee Hee Tori.... You said: I'm sorry, Pam. I didn't make myself clear That's OK... you are pretty darn hyper right now, and none of us expect you to make it clear. :-) We have all been down this road. Sorry you got such a spaz doctor, but no big deal. You got exactly what you needed, and had the composure to insist on it ! We are all proud of you right now, because we know how confusing any doctor visits are, much less the first one. But aren't you glad you did not fast ! Blood type... if you have ever donated blood, they would have given you a little wallet card, that has this info on it. No, the tests you had will not show your blood type. The pain and stiffness in your joints is most likely more Graves' stuff, so in time it will lessen. The next thing you could run into is ITCHING and or hives.. This can be caused by Graves' itself or it can be caused by a high dose of PTU. If this happens, once the dose can be reduced it will go away. Do NOT let them tell you it is an allergy and you must have RAI. This is listed on the real package insert of PTU as a MINOR side effect. Did not feel minor to ME. But I stuck it out, and once my dose was reduced it did go away. But then I was on a really high dose. You may not have it happen. I just wish I had known ahead of time. Enjoy the beta blocker. It felt like a gift from the Gods my first week on it. Remember, all ATDs only can prevent new excess thyroid hormone from being made. The extra you already have in your body just has to get used up. There is nothing that will suck it out or speed it up. They say it takes a few weeks to 8 weeks for this to happen. I felt the change start at three weeks, and continue to improve for the full 8 weeks. So here is your first 'HANG IN THERE'. Many more to follow. -Pam- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2002 Report Share Posted July 3, 2002 OMG, I forgot about the itching! That was so horrible, I just remember laying in bed itching and scratching and begging my husband to SCRATCH. LOL it's funny now. Once I started the beta blockers, that slowly went away. :)Pam B. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2002 Report Share Posted July 3, 2002 L@... wrote: > > In a message dated Wed, 3 Jul 2002 10:44:29 PM Eastern Standard Time, pladd@... writes: > > > I am relieved you see my logic about the prednisione. I hope you got a FULL > > package insert, not just the incomplete one the pharmacy prints out. > > I'm really not sure why she prescribed it to me. She spoke much faster than my brain can work. I followed your advice and took in a pen & paper intending to take notes. I was barely able to stop her long enough to ask which meds she was prescribing, much less take notes. It's mainly used as an arthritis med isn't it? I have pain and stiffness in my joints sometimes, but it's not persistent enough to warrant meds. Prednisolone/prednisone/predsol is used to treat inflammation, arthritic inflammation, or crohns disease are common targets. It is used in Graves to drop the antibody count, thus hopefully minimising the eye symptoms in Graves. It is mainly used (in Graves) to treat chronic Graves eye disease, or as a prophylaxisis (spelling) during ablation with radioactive Iodine (where it appears to stop the worsening of Graves eye disease with the treatment). Because it suppressed inflammation, and antibody response, it can mask (and stop the normal response) to other infection. Whilst I understand Pam's reluctance, I thought you were the one whose other doctor wanted to treat you by reducing inflammation? This is kind of the brute force method of conventional medicine to treat inflammation. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2002 Report Share Posted July 3, 2002 Tori -- Yes, people are giving you good advice here: the beta blockers will help immensely and the high dose of PTU right off the bat isn't uncommon. Do both and don't worry that you're making a mistake. Prednisone is generally prescribed for TED or Thyroid Eye Disease. Prednisone will help the swelling -- perhaps others who have taken this for eye problems can help me out here, but doesn't prednisone help either the bulging or swelling near the optical nerve? I'd check with the doc and see if your visible eye involvement was why she prescribed prednisone. If so, make an appointment with an ophthalmologist who knows thyroid eye disease and see what she/he has to say. Unless my vision or eye health was in danger, I wouldn't take prednisone because of the side affects. B Re: Update on my meds > Thanks, Pam. I just took my first dose of PTU & beta-blocker. I need the beta-blocker to bring my heart rate down, I'm most afraid about it. I think you're right about the prednisone. I was reading the package insert and the possible side effects sounded like all the hyper symptoms. I wouldn't be able to tell if it I were having an adverse reaction to it or going very hyper. I'm going to hold off on it until I talk to my Dr. Little from Bastyr. It kinda shocked me that it was prescribed. I think she looked over my medical history and decided because in our 5 minute visit we didn't discuss anything it would be used to treat. > > Peace, > Tori > > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > DISCLAIMER > > Advertisments placed on this yahoo groups list does not have the endorsement of > the listowner. I have no input as to what ads are attached to emails. > -------------------------------------------------------------------------- ------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2002 Report Share Posted July 3, 2002 Nope, I was NEVER on PTU. Just beta-blockers and nutritional supplements at the time. :)Pam B. Fw: Update on my meds EXCELLENT Pam ! Since you were not on PTU, this will help our new people see for sure, Graves' itself does cause itching that can almost drive you mad . -Pam- RE: Update on my meds > OMG, I forgot about the itching! That was so horrible, I just remember > laying in bed itching and scratching and begging my husband to SCRATCH. LOL > it's funny now. Once I started the beta blockers, that slowly went away. > > :)Pam B. > > > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > DISCLAIMER > > Advertisments placed on this yahoo groups list does not have the endorsement of > the listowner. I have no input as to what ads are attached to emails. > -------------------------------------------------------------------------- ------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2002 Report Share Posted July 3, 2002 Simon, Just to make it a bit more clear. I was on Predisone for my eyes for some time. And having experienced both extreme hyper and Prednisone....thank goodness at different times...I can not imagine being really hyper and taking that steroid at the SAME time ! I know it is just not me either. I have a friend that does rounds of Prednisone all the time, and she has the same side effects, and she is hypo ! The first few weeks on Prednisone, it makes us feel like we are on speed. We know this is temporary and will fade to ucky sick feelings. But while it is happening, you will clean the house from top to bottom, plow the north fourty, clean all your friends houses, never sleep, and have a very high heart rate. Tee hee, I just remembered that time. I was cleaning the yard, did both front yards on either side of my house, and as I was sweeping my sidewalk, I did the whole dang street...the whole block ! Great side effect if you can stand the crash that follows. But with Tori's already elevated heart rate, this was what caused my concern. -Pam- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2002 Report Share Posted July 3, 2002 Tori, Just got to thinking... Be sure you have writen down all your symptoms today.And put the date on it. :-) As we go along it gets very confusing. Good notes are going to pay off in the long run. -Pam- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2002 Report Share Posted July 4, 2002 Hi Pam, You said: > Tee Hee Tori.... > You said: > I'm sorry, Pam. I didn't make myself clear > > That's OK... you are pretty darn hyper right now, and none of us expect you > to make it clear. :-) We have all been down this road. I'm glad you don't expect me to clearly express myself, I don't think I have the ability to do that yet. > Sorry you got such a spaz doctor, but no big deal. You got exactly what you > needed, and had the composure to insist on it ! We are all proud of you > right now, because we know how confusing any doctor visits are, much less > the first one. I didn't have much composure and I'm sure everyone in the office thought I was a spaz. I went back to ask questions 4 times after I left. Each time I'd leave, I'd think 'Oh yeah, I forgot about that.' Good to now the doc visits get better. > But aren't you glad you did not fast ! I thought I was going to pass out. I had only eaten fruit for breakfast and seriously needed to eat something. I had brought healthy snacks just in case, but I forgot to bring them into the office with me--figures! > Blood type... if you have ever donated blood, they would have given you a > little wallet card, that has this info on it. > No, the tests you had will not show your blood type. I can't stand the sight of blood and go hide any time the Red Cross has a blood drive in my building. I know, I'm a wimp. I spent the first quarter of my college career in pre-med before I realized there's no way I could do hack it as a doctor. I'm quite happy to be a geek ;-) > The next thing you could run into is ITCHING and or hives.. > This can be caused by Graves' itself or it can be caused by a high dose of > PTU. If this happens, once the dose can be reduced it will go away. > Do NOT let them tell you it is an allergy and you must have RAI. Oh great! I have severe skin allergies to pretty much everything. A few months ago, I broke out into hives over my whole body because I unknowingly slept under a down comforter at a friend's house. It was really gross. I hope I don't have a repeat. > This is listed on the real package insert of PTU as a MINOR side effect. Did > not feel minor to ME. But I stuck it out, and once my dose was reduced it > did go away. But then I was on a really high dose. You may not have it > happen. I just wish I had known ahead of time. I totally agree. Breaking out into hives is a major side effect--and embarrassing! > Enjoy the beta blocker. It felt like a gift from the Gods my first week on > it. Man, I feel so good! My pulse was down to 104 this morning--the best it's been in morning time in years! > Remember, all ATDs only can prevent new excess thyroid hormone from being > made. The extra you already have in your body just has to get used up. There > is nothing that will suck it out or speed it up. > They say it takes a few weeks to 8 weeks for this to happen. I felt the > change start at three weeks, and continue to improve for > the full 8 weeks. I feel better already. If it just keeps getting better, I won't complain :-) > So here is your first 'HANG IN THERE'. > Many more to follow. Thanks, Pam. I'll at least hang on through my vacation! Take care, Tori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2002 Report Share Posted July 4, 2002 In a message dated Thu, 4 Jul 2002 12:00:36 AM Eastern Standard Time, petri017@... writes: > > Yes, people are giving you good advice here: the beta blockers will help > immensely and the high dose of PTU right off the bat isn't uncommon. Do > both and don't worry that you're making a mistake. > > Prednisone is generally prescribed for TED or Thyroid Eye Disease. > Prednisone will help the swelling -- perhaps others who have taken this for > eye problems can help me out here, but doesn't prednisone help either the > bulging or swelling near the optical nerve? > > I'd check with the doc and see if your visible eye involvement was why she > prescribed prednisone. If so, make an appointment with an ophthalmologist > who knows thyroid eye disease and see what she/he has to say. Unless my > vision or eye health was in danger, I wouldn't take > prednisone because of > the side affects. Thanks, . This is great advice and I think you're right. It makes sense that the doc would prescibe it to reduce the swelling behind my eyes. I'll see if I can get an appt with an opthamologist before taking the prednisone. Peace, Tori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2002 Report Share Posted July 4, 2002 In a message dated Thu, 04 Jul 2002 06:00:32 +0100, simon@... writes: > Whilst I understand Pam's reluctance, I thought you were the one > whose other doctor wanted to treat you by reducing inflammation? > This is kind of the brute force method of conventional > medicine > to treat inflammation. Simon, I'm reluctant to take any new meds these days--too many bad reactions has taught me to research anything before taking it. And the endo didn't tell me why I should take it. If it's just for sinus probs, I probably would pass. I think I'll see if I can see an opthamologist soon and see what they have to say about it. Take care, Tori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2002 Report Share Posted July 4, 2002 In a message dated Thu, 4 Jul 2002 12:24:35 AM Eastern Standard Time, pladd@... writes: > Tee hee, I just remembered that time. I was cleaning the yard, did both > front yards on either side of my house, and as I was sweeping my sidewalk, I > did the whole dang street...the whole block ! > > Great side effect if you can stand the crash that follows. But with Tori's > already elevated heart rate, this was what caused my > concern. Hey, my family might like me to have that side effect for a while. I'm a naturally messy person, and it's been worse lately because I don't have the time or energy to clean. I have much admiration for people who can keep their entire lives organized. -Tori Quote Link to comment Share on other sites More sharing options...
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