New Member

[Guest guest]

Welcome Verena

I'm so glad you found this site. (not so glad you had to find it)

These ladies are a wealth of information. I hope you can find an A

list doctor near you. I'm sure someone in your area can help better

with that. Good luck on your journey.

B.

[Guest guest]

Verena,

Welcome to our group. I'm sorry to learn that you have AS--but good

for you for being so persistent and figuring our what was wrong.

Since Asherman's is quite rare, doctors are often not very informed

about it. From what I've read, most people are put on some type of

hormone regimen after surgery to build up the uterine lining. Did

your doctor put you on hormones? There's a list of different

combinations of hormones that have been used in the database section

of this web site titled " Hormone Treatment for Asherman's. "

I hope that soon you will be able to conceive the baby that you want.

Terry M.

[Guest guest]

Welcome to this group, Helle.

I am from Finland, 34 years old, have one son (born '00) and I'm

struggling with ashermans, still hoping to have one or two more

children. I've had one operative hysteroscopy in Helsinki and I'm

having a hysteroscopy + laparoscopy with Dr. Gallinat in Hamburg on

June 23rd. He is an excellent surgeon and one of the few ashermans

experts worldwide. Is there any way you could consider going to him

for help?

I am Swedish speaking and understand Danish very well, so if you feel

like contacting me privately you are very welcome to e-mail me at

maria.fremer@... - there is also another Danish member,

nne, but I think she is not reading the posts currently because

ashermans is not her primary fertility problem. I could ask her if

she wants to contact you, if you are interested.

I know you will find all the information and support you need in this

group, because I did too.

F

[Guest guest]

Hope,

Welcome to our group. I am so sorry to hear that you might have AS. I

remember all too well how agonizing it was to wait for my test

results and I too felt convinced I had AS (and unfortunately, I was

right).

Have you had an HSG or SHG? These are two tests commonly used to

diagnose AS and are less invasive/less involved than a hysteroscopy.

It was an HSG that confirmed I had AS. I think most doctors do one of

these tests before doing a hysteroscopy.

If you do have AS, I highly recommend that you see one of the A-list

doctor for treatment. The experience of your doctor can make a huge

difference and there are only a few doctors who are truly experienced

in dealing with AS.

I have Blue Shield PPO and my surgery will be covered. Thankfully,

Dr. March (an A-list doctor) is on my plan and he does not code AS as

infertility, which allows it to be covered.

I do blame the doctor that performed my d & c for my AS.

I'll be thinking of you.

Take care,

Terry M.

[Guest guest]

Dear Keri,

HAve they tried giving you a round of estrogen before giving you the Provera?

The two reasons for not having a period are that your estrogen is too low to

produce a lining to shed, or that you have mechanical abnormality(like sacr

tissue or an obstruction to flow).

WHen you said the ultrasound was normal, does that mean you had a triple pattern

or at least 5mm endometrial lining?? ANd what hormones have they measured??

WHy is he also doing a laparoscopy? WHy not just a hysteroscopy??

If the HSG is really normal.....

Perhaps another opinion with a different RE??

I must confess I am a little perplexed.

Once again, if your estrogen is too low, even with a normal uterus (without

Asherman's) you may not have withdrawal bleeding.

SO maybe they should do that before your surgery??

GOod Luck!

Hugs,

D.

[Guest guest]

Keri,

I'm sorry to hear about what you're going through. I think a second,

if not a third, opinion on your case is warranted. I'd check with

another doctor--preferably one who is familiar with AS--to see what

he/she thinks before having surgery.

Have you had your thyroid checked? Hyperthyroidism can stop your

periods. Also, as the others have said, you should try provera. If

that doesn't bring on your period, then try estrogen to see if that

does trick. I'd take these less invasive measures before going ahead

with the surgery.

Good luck with everything.

Terry M.

[Guest guest]

Does anybody know if higher dose of birth control pills (i.e. ovcon

35) is the same, or more or less effective to try and get a

withdrawal bleed than the Provera alone or Provera/estrogen

combination? My doctor gave me Ovcon 35 instead of the

Provera/estrogen combo because I was already on birth control pills

to begin with AND still having amenorrhea. I had no withdrawal

bleed (one or two light spots), and so they have diagnosed me with

Ashermans syndrome (after ruling out other causes of amenorrhea). I

am scheduled for a hysteroscopy and laparascopy, but am wondering if

I should try one more round of hormones to try and get a withdrawal

bleed.

Keri

[Guest guest]

Keri,

If you have a blocked cervix, then no amount of Provera/estrogen or birth control pills will bring on a period. The fact that you bled a little after your HSG sounds like this may have opened up a path and is allowing some blood flow.

Do you know why you kept experiencing repeat infections after your daughter was born?? Perhaps some remnants of placenta which got left behind??

Doc10.doc which can be found in the files section under "more questions & Answers" has a good email on lasers in uterus'. You should go read this.

Poly

[Guest guest]

Hi Ginger,

I am also a new member and can understand the pain you are now getting. I also got a similar pain, not exactly cramping pains as you would expect when you have a period, but a strong consistent pain that refuses to go away, the area where the pain is also feels swollen and sore. I find the pain gets worse in the evening and sometimes have had to give in and go to bed to shut the pain out. The pain would also get worse if I had been too physical with lots of bending, for instance using the vacuum cleaner or cleaning the inside of the car, where you are cramped up and bending over for long periods.

I guess you are concerned that these pains are a sign that things are not well and are worrying yourself that you may not be able to get pregnant again. If it's any help I have had a difficult time due to asherman's but did suceed eventually. I gave birth to a child by normal delivery before I had ashermans(now 16) followed 5 years later by a prenancy that went wrong, the baby died inside because of a pre-cancerous growth on the placenta, the baby was removed by D & C and 6 weeks later I had a second D & C to make sure all of the growth had been removed, this caused a lot of scarring to my lining and after this my periods became extremely light, which at the time I thought was a good thing. 6 months later I was given the go-ahead to try for another baby, unfortunately 1 year later I gave birth to a still born little boy. A D & C was needed to remove the placenta as with ashermans the scarring stops the placenta from coming away naturally.

After the trauma and sadness of losing two children in one year, I gave myself 2 years to recover in which time I hated all pregnant women, which was unfair. In 1994 I got pregnant again and received close monitoring to check on the pregnancy. This time it worked I managed to go full-term and gave birth to a healthy boy. Unfortunately, some of the placenta was left behind again and I haemorraged 16 days later, needing another D & C and treatment for an infection in my womb. I recovered but because I had lost so much blood was extremely weak for 6 months and did not enjoy my baby as much as I wanted to, luckily he was a really good baby and easy to look after which gave me valuable recovery time.

In 1997 I had another baby, another little boy but only managed to hold onto the pregnancy for 6 months, due to excellent special care although born early he survived and although he has had his problems he is now 6 years old, is able to go to mainstream school and has brought our family a lot of joy and happiness. I would not have chosen to have waited to have my children in my 30's but I am really happy with my family. I am unable to have anymore children now as the asherman's has taken over and I have not had a peroid since my last pregnancy, but I still felt upset that the choice had been taken away from me.

I can understand your worries, but want you to know it is possible to have a child as I have but it is more difficult than for most people. Please don't be so hard on yourself and give yourself time, you need to grieve and your body needs time to heal.

I hope this is of some help to you,

[Guest guest]

Dear Ginger,

What to do next is a difficult decision and I remember listening to everyone who said 'don't get pregnant', 'it's too dangerous, think of yourself', my mum was adamant that it was foolish to try again. But I have always gone with what my heart thinks and was very determined to try again. I feel giving myself time to grieve after losing both babies gave me the strength to fight on. In hindsight the only thing I would do differently is to have given myself more time before trying again after I lost the first baby.

I hope that if you give yourself a little time you will feel stronger and be more certain about what you want to do, I don't think anyone is ever 100% certain that they are making the right choice, we all have our doubts and we all have our good days and our bad days.

Keep fighting and good luck

[Guest guest]

Dear ,

Thanks for sharing your story with me. On one hand, it gives me so

much hope, yet on the other hand I feel like I should not build all

that much hope.

Best,

Ginger

> Hi Ginger,

>

> I am also a new member and can understand the pain you are now

getting. I

> also got a similar pain, not exactly cramping pains as you would

expect when you

> have a period, but a strong consistent pain that refuses to go

away, the area

> where the pain is also feels swollen and sore. I find the pain gets

worse in

> the evening and sometimes have had to give in and go to bed to shut

the pain

> out. The pain would also get worse if I had been too physical with

lots of

> bending, for instance using the vacuum cleaner or cleaning the

inside of the car,

> where you are cramped up and bending over for long periods.

>

> I guess you are concerned that these pains are a sign that things

are not

> well and are worrying yourself that you may not be able to get

pregnant again. If

> it's any help I have had a difficult time due to asherman's but did

suceed

> eventually. I gave birth to a child by normal delivery before I had

> ashermans(now 16) followed 5 years later by a prenancy that went

wrong, the baby died

> inside because of a pre-cancerous growth on the placenta, the baby

was removed by

> D & C and 6 weeks later I had a second D & C to make sure all of

the growth

> had been removed, this caused a lot of scarring to my lining and

after this my

> periods became extremely light, which at the time I thought was a

good thing. 6

> months later I was given the go-ahead to try for another baby,

unfortunately

> 1 year later I gave birth to a still born little boy. A D & C was

needed to

> remove the placenta as with ashermans the scarring stops the

placenta from

> coming away naturally.

>

> After the trauma and sadness of losing two children in one year, I

gave

> myself 2 years to recover in which time I hated all pregnant women,

which was

> unfair. In 1994 I got pregnant again and received close monitoring

to check on the

> pregnancy. This time it worked I managed to go full-term and gave

birth to a

> healthy boy. Unfortunately, some of the placenta was left behind

again and I

> haemorraged 16 days later, needing another D & C and treatment for

an infection

> in my womb. I recovered but because I had lost so much blood was

extremely

> weak for 6 months and did not enjoy my baby as much as I wanted to,

luckily he

> was a really good baby and easy to look after which gave me

valuable recovery

> time.

>

> In 1997 I had another baby, another little boy but only managed to

hold onto

> the pregnancy for 6 months, due to excellent special care although

born early

> he survived and although he has had his problems he is now 6 years

old, is

> able to go to mainstream school and has brought our family a lot of

joy and

> happiness. I would not have chosen to have waited to have my

children in my 30's

> but I am really happy with my family. I am unable to have anymore

children now

> as the asherman's has taken over and I have not had a peroid since

my last

> pregnancy, but I still felt upset that the choice had been taken

away from me.

>

> I can understand your worries, but want you to know it is possible

to have a

> child as I have but it is more difficult than for most people.

Please don't

> be so hard on yourself and give yourself time, you need to grieve

and your body

> needs time to heal.

>

> I hope this is of some help to you,

>

>

[Guest guest]

You say you travel to the US frequently, where are you from? There are people on this list from all over the world, but mostly US and Canada. Things are different in different places, so it's most beneficial to you if you sign your messages with where you are from, and/or state in your messages where you are from.

In the US most mayo's are, in fact, GF. Kraft, Hellman's, etc... Vinegars are fine, except Malt Vinegar (ie, white distilled vinegar is fine) Apple Cider Vinegar is fine, Apple Cider FLAVORED Vinegar is not (re: Heinz)

From: SillyYaks [mailto:SillyYaks ] On Behalf Of SlinkmanSent: Wednesday, February 15, 2006 2:19 PMTo: SillyYaks Subject: Re: new member

Whole Foods has a GF mayonnaise that I have grown to enjoy (it is made from canola oil). I can't remember the name of it at the moment, but I am sure someone else will come along and help out. It is labeled GF on the label, so you can't really miss it.

French's mustard is GF - I eat it all the time and have no issues with it.

--E new memberHi everyone, I'm a newly diagnosed woman with CD. I have the DH form of the illness and in truth, I'm really PO'd. I've known for years (since I did the induction phase of dr Atkins many years ago) that my skin is great if I don't eat wheat. I tried rye and barley as cereal for breakfast and had instant breakouts - ugly, ugly zits which were very painful.Then late last year, I had a horrible symmetrical set of hives on my forearms. they looked like cold sores at one point and burned and itched and nearly drove me crazy. Nothing touched the pain/itch until I found a cream at the health food store which finally soothed it and allowed it to heal. Needless to say, I have ugly scars from them, since I scratched in my sleep and if I wasn't conscious of it. Ironically, no one has ever suggested a test for Celiac! Sheesh, how dumb are these doctors? I went to a walk in clinic with a boil. When I took off my jacket the doc asked how long I'd had Celiac's. when I asked for clarification, she pointed to the scars on my arms. When I said I didn't know, she immediately ordered a bunch of tests, which have come back positive. Duhhhhthe good news is I haven't eaten wheat, rye or barley for some years, so I feel like I'm starting from a good place but I'm confused by a couple of things. Is vinegar (white vinegar made from malt) okay? Some books say it's not and others say it is. When I look at real mayo, vinegar is the only thing which seems to be a problem, but i thought I'd make my own for awhile and see how I feel (I'm exhausted all the time). What's the consensus about mayo, since it contains vinegar? Ditto for mustard?I'm going to study the files, but eating out seems to be a big problem. I travel to the US many times each year, on business, and am not certain if I should bring food, where I can, or take a chance. Any thoughts?I am really looking forward to getting over this fatigue. and the Osteopenia. So I'm willing to do whatever it takes to feel better.thanksLouise

[Guest guest]

The Canola mayo I use is by Spectrum. It is clearly labelled gluten

free. I get it not only at Whole Foods but also at Wild Oats and

even the health food sections at my local grocery stores (Shaws or

Hannifords). Spectrum's mayo is also casein free.

I use Heinz mustard. I've confirmed that it's both gluten and

casein free (and free of my other allergens).

As to restaurants, I generally stick with a few restaurants that I

know are familiar with food allergies and will take the time to

ensure my safety. When travelling, I research restaurants in cities

I'm going to before I go. I know certain chains have GF menus. I

always try to go at slower times so the staff has time to talk to me

and won't be too rushed which can result in mistakes. The file

section of this list has suggest restaurant lists. Also, if you

know what city you're going to you can ask here for suggestions for

restaurants. I also try when possible to at a minimum have a

kitchenette in my hotel and I pick up some stuff for around the

hotel. Many hotels have continental breakfast buffets. I stick to

hard boiled eggs and fruits.

Trudy in NH

>

> Whole Foods has a GF mayonnaise that I have grown to enjoy (it is

made from canola oil). I can't remember the name of it at the

moment, but I am sure someone else will come along and help out. It

is labeled GF on the label, so you can't really miss it.

>

> French's mustard is GF - I eat it all the time and have no issues

with it.

>

> --E

>

> new member

>

> Hi everyone, I'm a newly diagnosed woman with CD. I have the DH

form of the illness and in truth, I'm really PO'd. I've known for

years (since I did the induction phase of dr Atkins many years ago)

that my skin is great if I don't eat wheat. I tried rye and barley

as cereal for breakfast and had instant breakouts - ugly, ugly zits

which were very painful.

>

> Then late last year, I had a horrible symmetrical set of hives on

my forearms. they looked like cold sores at one point and burned

and itched and nearly drove me crazy. Nothing touched the pain/itch

until I found a cream at the health food store which finally soothed

it and allowed it to heal. Needless to say, I have ugly scars from

them, since I scratched in my sleep and if I wasn't conscious of

it. Ironically, no one has ever suggested a test for Celiac!

Sheesh, how dumb are these doctors? I went to a walk in clinic with

a boil. When I took off my jacket the doc asked how long I'd had

Celiac's. when I asked for clarification, she pointed to the scars

on my arms. When I said I didn't know, she immediately ordered a

bunch of tests, which have come back positive. Duhhhh

>

> the good news is I haven't eaten wheat, rye or barley for some

years, so I feel like I'm starting from a good place but I'm

confused by a couple of things. Is vinegar (white vinegar made from

malt) okay? Some books say it's not and others say it is. When I

look at real mayo, vinegar is the only thing which seems to be a

problem, but i thought I'd make my own for awhile and see how I feel

(I'm exhausted all the time). What's the consensus about mayo,

since it contains vinegar? Ditto for mustard?

>

> I'm going to study the files, but eating out seems to be a big

problem. I travel to the US many times each year, on business, and

am not certain if I should bring food, where I can, or take a

chance. Any thoughts?

>

> I am really looking forward to getting over this fatigue. and the

Osteopenia. So I'm willing to do whatever it takes to feel better.

>

> thanks

> Louise

>

>

>

>

>

[Guest guest]

Great information Lauretta, thanks. I also found a cream called the Gardener's Dream Cream www.aromacrystal.com to be very helpful. It soothed the itch. There was another one I alternated with, but i'll have to bring it from work

good luck. My heart goes out to your little guy

Louise

Calgary

-----Original Message-----From: SillyYaks [mailto:SillyYaks ] On Behalf Of Lauretta McInnisSent: Thursday, February 16, 2006 8:02 AMTo: SillyYaks Subject: Re: new memberI appreciate your writing this. My 5 yo son has dh and when he gets glutened, he is a very difficult to handle little man. We have learned that a bath( more like a long soak) in natures gate herbal hair shampoo and a dose of benedryl do him a world of good. It seems to take forever for the lesions to go away and then the spots are left behind. I can only imagine how painful they are from seeing this sweet little guy change. GOD bless you!! As for mayonaise, he always uses hellmans to dip his veggies in. He carries a lunch and snack to pre K and has been doing well for a few months now. Lauretta

Hi everyone, I'm a newly diagnosed woman with CD. I have the DH form of the illness and in truth, I'm really PO'd. I've known for years (since I did the induction phase of dr Atkins many years ago) that my skin is great if I don't eat wheat. I tried rye and barley as cereal for breakfast and had instant breakouts - ugly, ugly zits which were very painful. Then late last year, I had a horrible symmetrical set of hives on my forearms. they looked like cold sores at one point and burned and itched and nearly drove me crazy. Nothing touched the pain/itch until I found a cream at the health food store which finally soothed it and allowed it to heal. Needless to say, I have ugly scars from them, since I scratched in my sleep and if I wasn't conscious of it. Ironically, no one has ever suggested a test for Celiac! Sheesh, how dumb are these doctors? I went to a walk in clinic with a boil. When I took off my jacket the doc asked how long I'd had Celiac's. when I asked for clarification, she pointed to the scars on my arms. When I said I didn't know, she immediately ordered a bunch of tests, which have come back positive. Duhhhh the good news is I haven't eaten wheat, rye or barley for some years, so I feel like I'm starting from a good place but I'm confused by a couple of things. Is vinegar (white vinegar made from malt) okay? Some books say it's not and others say it is. When I look at real mayo, vinegar is the only thing which seems to be a problem, but i thought I'd make my own for awhile and see how I feel (I'm exhausted all the time). What's the consensus about mayo, since it contains vinegar? Ditto for mustard? I'm going to study the files, but eating out seems to be a big problem. I travel to the US many times each year, on business, and am not certain if I should bring food, where I can, or take a chance. Any thoughts? I am really looking forward to getting over this fatigue. and the Osteopenia. So I'm willing to do whatever it takes to feel better.thanksLouise