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Re: Tori...ATDs

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You Pams certainly think alike :-)

You're right. I didn't understand the herbal vs. conventional meds thing

before. I thought they were concurrent and you got off the ATD's once the

herbals kicked in. Now I gotcha.

Did you have any problems with PTU? Since my periods are screwed up and am

between birth control methods, I'd hate to take anything that could cause birth

defects, so I'm leaning toward PTU. But I also don't want to do anything that

could cause cancer down the line. Is there a reasonable correlation between

cancer and PTU or is it a vague theory?

Thanks,

Tori

In a message dated Mon, 1 Jul 2002 11:53:44 PM Eastern Standard Time,

pladd@... writes:

> You said:

> :-( He wants me to stop taking the tincture if I start taking ATD's, does

> that seem strange? I thought you said it took a couple of months to kick

> in. I don't know how it can kick in if I stop taking it.

>

> This is because they do the same thing. BUT... the ATDs are much stronger.

> If you were to take both at the same time you would

>

> 1. have an impossible time EVER figureing out the right dose

>

> 2. have a good chance of being overdosed

>

> 3. the endo has to be able to do his job without you taking a bunch of other

> stuff and making it harder for him.

>

> This is hard enough when you are only on one anti thyroid type med .

>

> Save the herbs for later, once you are back under control.

>

> I very successfully did use the herbs. BUT that was only later, as I was

> weaning down off the PTU, and headed for remission. I then had plenty of

> experience with lab results, dose requirements, and my own body. I THEN knew

> the difference between my hyper and hypo symptoms. This is

> NOT going to

> happen as fast as any of us want.

>

> -Pam- ( Ladd )

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Yes, PTU has the same risk of cancer as birth control pills.

With any luck, you would be on PTU for less time than most gals take the

pill.

PTU is possibly a better choice for those of us with the eye disease. And

has less possibility of allergic reactions. But then there is the horrible

taste, and yes, the cancer risk. You just need to know what all the

conciderations are.

PTU needs to be taken every eight hours.

Tap is recommended to be taken evey 12 hr. Some, once stable do take it once

a day.

It just boils down to the fact that we have NO good choices.

Was there a link in 's post about PTU ?

-Pam-

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Hi Pam,

> Yes, PTU has the same risk of cancer as birth control pills.

>

> With any luck, you would be on PTU for less time than most gals take the

> pill.

Shoot, if that's it, I'll go for it. Once I start using natural family

planning, I will be eliminating my exposure to cancer risk there.

> PTU is possibly a better choice for those of us with the eye disease. And

> has less possibility of allergic reactions.

I do have the eye disease. And I'm allergic to everything, including

penicillin.

But then there is the horrible

> taste, and yes, the cancer risk.

It can't taste worst than my tinctures. They're awful.

You just need to know what all the

> conciderations are.

Thank you.

> PTU needs to be taken every eight hours.

> Tap is recommended to be taken evey 12 hr. Some, once

> stable do take it once

> a day.

It's better to take meds more frequently, eh?

> It just boils down to the fact that we have NO good choices.

Amen!

> Was there a link in 's post about PTU ?

I don't know. I'll look again.

Take care,

Tori

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Oh yes it can taste worst than the tinctures.

After 3 1/2 years of PTU, I think the tictures are rather tasty ! = :-o

I have labs every four weeks and have never fasted. That might not be a very

good idea when you are so hyper. Good way to pass out. Plus, you will need

all your strenght to listen to the doctor.

Take pen and paper and take notes. I still forget parts as I get so excited

before during and after an appt.

-Pam-

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Pamela Ladd wrote:

>

> Oh yes it can taste worst than the tinctures.

It certainly tastes awful, but it is not the worst medication

I've ever had.

Anyone know why it isn't coated in sugar, given it is used up so

quick I'd have thought some coating would help.

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Hi Pam,

You wrote:

> Oh yes it can taste worst than the tinctures.

> After 3 1/2 years of PTU, I think the tictures are rather tasty ! = :-o

Please tell me you're joking! I don't think I can handle anything worse than

the tinctures.

> I have labs every four weeks and have never fasted. That might not be a very

> good idea when you are so hyper. Good way to pass out. Plus, you will need

> all your strenght to listen to the doctor.

OK. I had to fast for my last labs, but they ran cholestrol too.

> Take pen and paper and take notes. I still forget parts as

> I get so excited

> before during and after an appt.

Great idea. I get flustered and never remember anything doctors tell me.

Also, if I should have baseline tests done, should I stop taking my tinctures

before my appt? Would that give a false reading?

Take care,

Tori

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>> It certainly tastes awful, but it is not the worst medication

>> I've ever had.

>> Anyone know why it isn't coated in sugar, given it is used up so

>> quick I'd have thought some coating would help

Could you coat them with something or would that reduce absorption of the

ATD. I guess the question is do you have to take them on an empty stomach or

can you take them with food? If it doesn't need to be on an empty stomach,

I'd think a coating would be OK. The thyroid hormones are absorbed best on

an empty stomach. The Armour insert says that absorption is 41% when given

in a gelatin capsule as opposed to 74% when given in an albumin carrier, so

coating a thyroid hormone wouldn't work well. I've never taken ATDs so I

don't know how or if they would be affected. If it doesn't matter, you could

put the pill into an empty gelatin capsule and swallow that. I've used that

method to give cats bad tasting medicines and it works well. You can buy the

empty capsules in several sizes depending on how much you have to fit in

them. Might put some thought into other possibilities - the shell coatings

for ice creams might work, though I don't know. Do the pills need to be

stored at room temp, or could they be frozen to make a shell stick better?

There surely are other possibilities too. How about asking the manufacturer.

Bertta

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In a message dated Tue, 2 Jul 2002 8:05:43 PM Eastern Standard Time, bmsnell

writes:

> Might put some thought into other possibilities - the shell

> coatings

> for ice creams might work, though I don't know.

I like the way you think!

-Tori

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bmsnell@... wrote:

>

> >> It certainly tastes awful, but it is not the worst medication

> >> I've ever had.

>

> >> Anyone know why it isn't coated in sugar, given it is used up so

> >> quick I'd have thought some coating would help

>

> Could you coat them with something or would that reduce absorption of the

> ATD. I guess the question is do you have to take them on an empty stomach or

> can you take them with food?

As far as I know PTU can be taken with food.

> If it doesn't matter, you could

> put the pill into an empty gelatin capsule and swallow that.

I prefer the icecream suggestion. Have to admit I had so many

headaches when thyrotoxic I got in the habit of I just

swallowing pills on their own whatever they taste like. I know I

ought to take PTU with water each time, but sometimes I can't be

bothered.

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