Re: Latest results from neph.

[Guest guest]

Hi Billie

You can rest assured that your neph is right about the iron being necessary for

Procrit (or any other epo) to work). Most people on hemodialysis get IV iron

while on the machine. I get one dose per month. I hope you can get it without

any problem.

I think it's great that you are being referred to attend pre-dialysis class when

your creatinine is at about 3. That's entirely appropriate, and it gives you a

very good headstart on thinking about what type of treatment you might choose.

They usually also include a presentation by the dietician, and at mine, a

nephrologist also spoke and provided some very valuable information.

Pierre

Latest results from neph.

Hi everyone, just back from a short vacation-rest in Virginia at the

farm. I went to the Neph. to get my lab test results-iron very low so

I am waiting to find a hospital that will do four IV iron solutions

as I don't have insurance. Neph says in order to take Procrit shots

I will need the IV iron first to rebuild the iron supply so the

Procrit shots will work. I am off of Cytoxin as of 9/9/04 and now I

am starting on Imuran and also get to drop my predisone down to 20 mg

a day. My protein is still down to 1/2 gram a day so very happy about

that. I will be going to my first meeting Sept. 16th about Dialysis

also. My creatitine is 2.9 also started on Crestor for chloestroel.

I suppose things are going as expected or what is expected?

Hope all are having a good week. I am so pleased to have this group

for support and I see the group is growing daily. God Bless each and

everyone one of you. A SPECIAL HELLO TO LAURA. Billie

[Guest guest]

Billie great to hear from you. I'm glad you were able to get away for a bit and

rest in Virginia. It's great that your protein level has stayed down but I'm

sorry to hear you are going to the pre-dialysis classes soon. Bummer but at

least your neph is on top of things and can ease you into this next stage. I

had my labs drawn on Tuesday and see my neph on the 16th.....I'll let ya know

what it shows. I'm truly hoping the " off " feeling I've had lately is due to

stress and not due to decline in kidney function. Glad you are back and let us

know how things go on the 16th. (depending on my results I may have some

questions to ask you!)

Amy

Latest results from neph.

Hi everyone, just back from a short vacation-rest in Virginia at the

farm. I went to the Neph. to get my lab test results-iron very low so

I am waiting to find a hospital that will do four IV iron solutions

as I don't have insurance. Neph says in order to take Procrit shots

I will need the IV iron first to rebuild the iron supply so the

Procrit shots will work. I am off of Cytoxin as of 9/9/04 and now I

am starting on Imuran and also get to drop my predisone down to 20 mg

a day. My protein is still down to 1/2 gram a day so very happy about

that. I will be going to my first meeting Sept. 16th about Dialysis

also. My creatitine is 2.9 also started on Crestor for chloestroel.

I suppose things are going as expected or what is expected?

Hope all are having a good week. I am so pleased to have this group

for support and I see the group is growing daily. God Bless each and

everyone one of you. A SPECIAL HELLO TO LAURA. Billie

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[Guest guest]

Hi Billie,

I am so happy that you were able to take a vacation and get some rest in

Virginia. That sounds so wonderful.

It is very good that your Neph is getting you ready for Procrit. They really

help, and iron is important. Mine is currently low too and I have to start

Iron supplements. Oh great...another pill to swallow every day :-)

I am thrilled to hear that you protein is down to 1/2 a gram a day. That is

fantastic news that the treatment is working! I pray your great results

continue as you start your Prednisone wean and switch to Imuran.

I am right in step with you because my class for dialysis is on Sept 13th.

I'll let you know how it goes.

Take care of yourself and God bless you too!

In a message dated 9/10/2004 8:55:25 AM Pacific Daylight Time,

vintagecrazy2003@... writes:

> Hi everyone, just back from a short vacation-rest in Virginia at the

> farm. I went to the Neph. to get my lab test results-iron very low so

> I am waiting to find a hospital that will do four IV iron solutions

> as I don't have insurance. Neph says in order to take Procrit shots

> I will need the IV iron first to rebuild the iron supply so the

> Procrit shots will work. I am off of Cytoxin as of 9/9/04 and now I

> am starting on Imuran and also get to drop my predisone down to 20 mg

> a day. My protein is still down to 1/2 gram a day so very happy about

> that. I will be going to my first meeting Sept. 16th about Dialysis

> also. My creatitine is 2.9 also started on Crestor for chloestroel.

> I suppose things are going as expected or what is expected?

> Hope all are having a good week. I am so pleased to have this group

> for support and I see the group is growing daily. God Bless each and

> everyone one of you.

[Guest guest]

Hi Billie,

I am concerned about you with your depression. As you may remember, I had a

very severe depression myself a few years back so I completely understand

pulling back from friends and family. I want to encourage you though to reach

out

even when it is the hardest. The thing that got me through was letting a

couple of my friends know and they came by my side and prayed with me and for me

every single week for months. Those friends expanded to a circle of 5 women

who we fondly refer to as " the treasures " and their prayer support as we

navigate through life is the most precious gift. I really hope you can find

some

women who can be your treasures. I know how hard it is to reach out in the

middle of the darkness of depression. It is often the hardest call to make, but

the most important.

Please know you are not alone. You are in my prayers, and even though

depression is a very difficult place to be, there is the other side and you WILL

get

through this. Don't forget to count your blessings because focuses on all we

have to give thanks for really helps too.

God bless you!

In a message dated 9/13/2004 9:40:48 AM Pacific Daylight Time,

vintagecrazy2003@... writes:

> the depression with even with Lexapro just will not lift. I find myself

> shutting myself off more and more from family and friends and I know that is

not

> good. Maybe when I get the IV iron I will have more energy and feel better

> emotionaly .

> I go see my primary care physician the 15th and then the first class Sept.

> 16th so I will take notes and let you all know what I learn. Take care. Billie

>